nmss pacific south coast chapter annual report 2011

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2011 Annual Progress Report NATIONAL MULTIPLE SCLEROSIS SOCIETY Pacific South Coast Chapter

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Page 1: NMSS Pacific South Coast Chapter Annual Report 2011

2011 Annual Progress ReportNATIONAL MULTIPLE SCLEROSIS SOCIETYPacific South Coast Chapter

Page 2: NMSS Pacific South Coast Chapter Annual Report 2011

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We are leaders in the worldwide MS movement, mobilizing millions of people to do something about MS now.

Page 3: NMSS Pacific South Coast Chapter Annual Report 2011

We’re Unstoppable • 1

About Multiple SclerosisMultiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Every hour in the United States, someone is newly diagnosed with the disease. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and over 2.1 million worldwide.

About the National MS SocietyMS stops people from moving. The National MS Society exists to make sure it doesn’t. The Society addresses the challenges of each person affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move forward with their lives. In 2010 alone, through its national office and 50-state network of chapters, the Society devoted $159 million to programs and services that assisted more than one million people. To move us closer to a world free of MS, the Society also invested $37 million to support 325 new and ongoing research projects around the world. The Society is dedicated to achieving a world free of MS. Join the movement at nationalMSsociety.org.

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MS stops people from moving. We exist to make sure it doesn’t.

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We’re Unstoppable • 3

We’re unstoppable!This has truly been an exciting year. In 2010, the National MS Society kept the promise we made in 2005 to raise $32 million over five years to support exciting MS research initiatives. Researchers have made tremendous progress toward stopping MS in its tracks, restoring function that’s been lost and ending MS forever.

We’ve engaged more volunteers and MS activists than ever before. We’ve expanded prorgrams and services and we continue to focus energy on events that raise money to support research as well as everyone in our chapter territory affected by multiple sclerosis. The Walk MS Physician’s Challenge grew tremendously and the Bike MS Bay to Bay Tour has reached new levels of excitement. We collaborated with the other California Chapters to produce our second annual MS research forum.

Thanks to our generous donors and participants, we’ve been able to manage through this challenging economic time. Most importantly, THANK YOU for being an integral part of our movement to create a world free of multiple sclerosis!

MOST SINCERELY,

Richard V. Israel, Chapter President

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A movement by and for people with MS. Helping move more lives forward than ever before.

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We’re Unstoppable • 5

My role as chairman of the Pacific South Coast Chapter’s Board of Trustees officially began in 2010, but like many of you, my commitment to the organization, and to people living with MS, has been long-standing. This was another significant year in creating a world free of MS.

It began with thousands of people across the nation sharing what they need, their hopes for the future and their experience living with MS, which informed the development of the Society’s 2011-2015 Strategic Response. We hear you loud and clear: we will do more and we will do it now.

o We will fuel more research, with more focus on research into progressive MS.

o We will better address the needs of people severely impacted by MS.

o We will grow the talent pipeline of researchers and clinicians.

Now that we have a plan, we are each instruments to drive it forward. Let’s continue to move together towards our ultimate goal: a world free of multiple sclerosis.

SINCERELY,

Chris Serocke, Chair, Board of Trustees

Together, we can end MS.

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We are a driving force of MS research, relentlessly pursuing prevention, treatment, and a cure.

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We’re Unstoppable • 7

READ MORE ABOUT PROGRESS MADE

THIS YEAR.

2011 was a historic year for MS research, with exciting progress made in nearly every field of MS research. The Society led the way.

IN 2010-2011, WE:

o Launched a Rapid Response Fund to follow urgent research leads, immediately using this support to investigate the link between chronic cerebrospinal venous insufficiency (CCSVI) and MS.

o Funded more than 325 new and ongoing research projects around the globe, including important new projects to discover risk factors that lead to MS progression, research on vitamin D and estrogen, and tests of a new device to improve walking ability.

o Gathered more than 80 new MS research trainees and specialists at the second annual Tykeson Fellows Conference.

o The chapter collaborated with the Southern California and Northern California chapters to host the 2nd Annual MS Research Forum at UCSF in August. Over 82 Society funded researchers were present to share ideas and current research strides taking place.

o Funded exciting new research by 10 companies through our Fast Forward initiative to facilitate the commercial development of new therapies from the laboratory to people with MS, raising nearly $9 million to support this cutting-edge effort.

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We address the challenges of each person whose life is affected by MS.

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We’re Unstoppable • 9

This year, we provided in-person education to over 30,000 people in Orange, San Diego and Imperial counties. Over 7,200 people took part in a chapter program, education event, wellness class or training opportunity.

SOME NOTABLE HIGHLIGHTS:

o We fielded over 4,600 local requests for information and/or referral.

o Four issues of the MSConnection, our quarterly newsletter, were sent to 64,000 total recipients and more than 150,000 email recipients.

o Over $273,000 in direct assistance was provided for 880 unique requests to people for grants for independence, modifications for homes, hand controls for cars, utility relief during the hot summer months, emergency assistance to avoid homelessness, transportation assistance, equipment assistance, respite care and chore services.

o Seven physicians started Walk MS teams, recruiting a total of 200 walkers and raising over $30,000 for the 2nd Physician’s Challenge.

o The chapter’s Clinical Advisory Committee launched a new online toolkit, Professional Connection email newsletter and a new resource guide: Project Access for doctors to assist people with MS facing insurance challenges.

o The chapter trained 51 mental health professionals by offering a continuing education program regarding mental health and MS.

Learn more about the programs & services we

provide at MSpacific.org

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We mobilize the talents and resources of the millions of people who want to do something about MS NOW.

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10 • 2011 Progress Report We’re Unstoppable • 11

None of the progress made in 2010/2011 would have been possible without the hard work and resourcefulness of the chapter’s volunteers.

THIS PAST FISCAL YEAR:

o One-hundred-seventeen individuals served as leadership volunteers, leading over 5,300 individuals serving as volunteers.

o Thiry-two self-help groups convened monthly and welcomed over 3,800 members.

o The local MS Action Alert Network was activated this year reaching out to more than 1,900 volunteer activists who are telling their stories to our local public officials.

o Twenty-four MS Ambassadors shared a personal story at over 35 events to educate and inspire event participants and mambers of the wider community.

o We engaged over 15,000 walkers, cyclists or other event participants who advanced MS awareness and raised vital funds.

o A volunteer committee of men living with MS launched Boys Night Out, a social program for men living with MS and male caregivers. Four gatherings were held this past year that welcomed more then 100 men.

o 75 Angel volunteers provided over 1,800 friendly visits to people with MS who rarely leave the home or live in long-term care facilities.

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2 • 2011 Progress Report

We mobilize the talents and resources of the millions of people who want to do something about MS NOW.

12 • 2011 Progress Report We’re Unstoppable • 13

Page 15: NMSS Pacific South Coast Chapter Annual Report 2011

Economic challenges or not, the Society’s donors and fundraisers gave generously to support Society programs and services and research to find the cause and cure of MS.

o Bike MS: 2,401 people cycled and raised $2,346,286 million at the one or two-day, 15-, 30-, 100- or 150-mile Bike MS Bay to Bay Tour sponsored by Land Rover Miramar. The Tour was also voted the “Best Cycling Event” by readers of Competitor magazine for the 5th year.

o MS Dinner Auction: Over 600 guests helped raise $453,000 at the MS Dinner Auction held at the Loews Coronado Bay Resort.

o Walk MS: ANearly 12,000 people on 277 teams raised $1.6 million at the San Diego Country Credit Union Walk MS in University of California, Irvine; LEGOLAND® California in Carlsbad; and NTC Park in San Diego.

o MS Golf Invitational: At the La Jolla Country Club, $160,000 was raised by 120 players. Coach Norv Turner of the San Diego Chargers acted as the chair for the event.

o Race to Stop MS Endurance Training Program: 20 Triathletes and marathoners raised nearly $30,000 while challenging themselves to complete an endurance event.

o Challenge Walk MS: In September 2011, 217 Walkers plus 90 Super Crew and Crew members raised $969,811.

o Leadership Giving: Year round, thousands of donors give outright donations to the Chapter through; workplace giving, planned gifts through their estates and foundation giving totaling more than $1,070,00 in support.

12 • 2011 Progress Report We’re Unstoppable • 13

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We are activists.

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We are raising awareness of MS through MS Awareness Week and helping to shape, in federal and state legislatures, public policy that affects people with MS. Everyone in the movement has a stake in the Society’s activism efforts.

THIS YEAR, SOCIETY ACTIVISTS:

o Secured an additional $4.5 million in MS research funding through the Congressionally Directed Medical Research Programs, bringing our total through this funding source to nearly $12 million in three short years.

o Welcomed 25 senators and 125 representatives to our Congressional MS Caucus, bringing the total number of federal lawmakers participating in this bipartisan caucus in 2010 to 150.

o Rallied to get federal legislation drafted to establish new adult day programs and to enhance the services of those that already exist.

o Pushed for the passage of the National Neurological Disease Surveillance System act and continued efforts to increase Lifespan Respite resources.

o Gathered in 23 state capitals to shape public policies to better serve those affected by MS and increase awareness among lawmakers of the effects of MS.

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A vision for the future – with the hopes and concerns of people living with MS at the center.

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We’re Unstoppable • 17

A bold & urgent plan for the next five yearsIn 2010, the Society unanimously endorsed a five-year strategic roadmap, The STRATEGIC RESPONSE: 2011-2015. More than an organizational plan, it strives to be a response to the brutal facts of living with MS and identifies what must be done, not only at the Society, but globally, to achieve a world free of MS. People and organizations from coast to coast and around the world informed and guided our work to develop the Strategic Response: 2011-2015.

Nearly 10,000 individuals — including over 7,000 people living with MS — provided clear expectations about what must be accomplished to change the lives of those with MS by the year 2015. Participants included people living with all forms of MS, as well as health-care professionals, researchers, and scientists, elected officials, activists, donors and event participants, corporate partners, volunteers and more.

FIVE KEY STRATEGIC GOALS PROVIDE THE FOUNDATION:

o We are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever.

o We develop, deliver and leverage resources to enhance care for people with MS and quality of life for those affected by the disease.

o We are leaders in the worldwide MS movement, mobilizing millions of people to do something about MS now.

o We are activists.

o We develop and align human, business and financial resources to achieve breakthrough results.

Click here for a downloadable copy of the complete Strategic Response: 2011-2015.

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Special Events

Membership & Contributions

Other Income

Legacies & Bequests

Fiscal Year 2010-2011 Revenue

TOTAL REVENUE: $5,344,013

Special Events 80%Legacies & Bequests 2%Other Income 3%Membership & Contributions 15%

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We’re Unstoppable • 19

Fiscal Year 2010-2011 Expenses

TOTAL EXPENSES: $5,782,611

Fundraising 16%Management & General 12%Client & Professional Services 48%Research & National 35%

Client & Professional Services

Management

Fundraising

Research & National

Page 22: NMSS Pacific South Coast Chapter Annual Report 2011

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Board of TrusteesEXECUTIVE COMMITTEE

Chris SerockeBarry ClarksonCynthia PerazzoKaren Sedgwick TylerMark MalbonTim Holl

TRUSTEES Ellie BarnardDawn BeattiePhil BresnickSam BruscoJody Corey-BloomArt FlippinCecelia GarrFranklyn GottbetterJayne HancockRick HausmanCharlotte HayesWilliam HornsteinZuzana HostomskaSelina HudginsGreg JoumasTom KarloJim KesarisNan LukeDac McAllister Penny MartinBarbara Maurais John G. Most Lizbeth Najm

John Platon Justin Reckers Shashona Reynolds Kimberly Roush Jerry Sanders Suzanne Schulman Norv Turner Eric Vann Diane Ward Stephen Zamucen

EMERITUS Pat Brown Bob Clark Patrick Connors Richard Hausman Robert Melucci Michael Smoger

ADVISORY Bill Bisch James Brown Gina Cunningham Daley Margery Dorsey Pam Fair Lewis Finkelstein Ronald Fowler Francie Mortenson Thomas Page Beth Philion Nancy Rossi Jerry Sweeney Blake Von Sprecken Carol Webster Mrs. Alice Zamboni

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We’re Unstoppable • 21

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OCTOBER 2 CAN DO MS – Del Mar 2 CAN DO MS – Santa Ana 7 Jobtoberfest Job Fair – Balboa Park 16-17 Bike MS Bay to Bay Tour sponsored by Land Rover Miramar

NOVEMBER-NATIONAL FAMILY CAREGIVER MONTH 6 Thrive With MS-Kaiser Permanente Symposium – Carlsbad 13 Moving Forward: Program for the Newly Diagnosed – Santa Ana 20 MS Dinner Auction 22 & 23 Turkey Delivery Day

DECEMBER 9 Boy’s Night Out- Carlsbad Sheraton 19 Sycuan Annual Family Holiday Party – San Diego

JANUARY 22 Annual Meeting of the Members – Dana Point

FEBRUARY 2 CEOs Against MS Breakfast – Costa Mesa 3 CEOs Against MS Breakfast – San Diego 17 Regional Teleconference: Humor and Stress 24 Social Security Education Day – Orange County 26 Moving Forward: Program for the Newly Diagnosed – San Diego Ongoing When MS Progresses-Costa Mesa Regional Teleconference: Accessibility in the Community

MARCH 1-3 Public Policy Conference 4 Golden Circle Donor Reception 8 Regional Teleconference: Energy Management 10 Boys Night Out - San Clemente

2010-2011 Calendar of Events

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We’re Unstoppable • 2322 • 2011 Progress Report

MARCH (CONTINUED) 14 MS Awareness Week 22 Regional Teleconference: Research 24 UCSD MS Symposium-San Diego Ongoing When MS Progresses-Costa Mesa

APRIL 9 Walk MS-Irvine 30 Walk MS-San Diego

MAY 1 Walk MS-Carlsbad Legoland 2 MS Invitational Golf Tournament 11 Imperial Valley Education Day – El Centro 14 Day at the Bay- Mission Bay 16 State Advocacy Conference 21 Moving Forward: Program for the Newly Diagnosed – Orange County 25 World MS Day

JUNE 16 Boy’s Night Out – Carlsbad Ongoing 8 week Pro-led Group: First Steps/ Newly Diagnosed (OC and SD) Ongoing 8 week Pro-led Group: When MS Progresses (OC and SD) Ongoing 8 week Pro-led Group: Active Adults Living with MS (OC and SD)

JULY 16 MS Research Symposium-Irvine 23 Caregiver Education Day – San Diego

AUGUST 5-6 California MS Research Forum – San Francisco 10 Social Security Education Day – San Diego 13 Moving Forward: Program for the Newly Diagnosed – San Diego 17 Mental Health Training

SEPTEMBER 16-18 Women’s Wellness Weekend 23-25 Challenge Walk MS

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2 • 2011 Progress Report We’re Unstoppable • 2524 • 2011 Progress Report

Thank you to our generous supporters & sponsorsAbbott NutritionAbility CenterAce Relocation SystemsAcorda TherapeuticsAgel Albertsons/So Fresh Produce Co.Allie’s Party RentalsAM StrategiesAmerican AssetsAmino VitalAMN HealthcareAvanir Pharmaceuticals, Inc.Barefoot WineBarney’s Premium FoodsBear NakedBeckman Coulter FoundationBikeFit Biogen Idec, Inc.BioFreezeBJ’s Restaurant & BrewhouseBlistexBrutoco Engineering & ConstructionCalifornia ChipsCalifornia SulpherCape CodCARESCascadian FarmsCBS OutdoorChamois Butt’r

Chick-fil-ACity of San MarcosClear Channel OutdoorClif BarCO’s Traffic ControlCoca ColaCollins PlumbingCompetitor MagazineContinental AirlinesCourtyard Marriott CarlsbadCR&RCreative Flavor ConceptsCrystal GeyserCurves Diesel StixThe Disneyland ResortDJ’s 4 UDole BananasDon Francisco’s CoffeeDoubletree Santa AnaEarnest EatsEAS MyoplexEast County Herald NewspaperEMD Serono, Inc. EnterpriseErin Baker’s Wholesome Baked GoodsEvans TiresFedExFelt BicyclesFitness Chiropractic

Fitness Quest 10Flower FieldsFluidFly by NightFrazee PaintFrito-LayFRS G & C Equipment CorporationGeicoGeneral MillsGenzymeGMI SecurityGolden Eagle InsuranceGolden SpoonGoodyHansens Beverage CompanyHEALTHSOUTH Tustin Rehabilitation HospitalHeritage Foods/Kerns NecterHigher Level Sound Homestead Sheet MetalJelly Belly Sport BeansJimbo’sKaiser PermanenteKaplan CollegeKarl StraussKiss My Face SunscreenKOST 103.5KPBSKPMGKSL Resorts

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We’re Unstoppable • 2524 • 2011 Progress Report

KTLAKxKy 96.5LA TimesLa Quinta Resort & SpaLand Rover MiramarLanger’s Juice Company, Inc.Larson LightingLEGOLAND® CaliforniaLeo Hamel Fine JewelersLexus San DiegoLoews Coronado Bay ResortMARCMedlineMedMediaMelissa’s/World Variety ProduceMighty Ducks of AnaheimMobile Music PlusMOST Branding & AdvertisingMotor TabsMSC SoftwareNatures Gate SunscreenNBC Los AngelesNBC San DiegoNetAppNew Country Radio 95.7OC CorpsOrange County Public LibrariesOrange County Unified School DistrictOutdoor InsightPaceline ProductsPacific AmbulancePacific Wealth ManagementPamela Sailor

Papa John’s PizzaPearl IzumiPedro’s TacosPennySaverPepsiPerformance Healthcare Inc.PfizerPostal AnnexPrescriptions Solutions Pharmacy Presidio SentinelPretzel CrispsProvide CommercePure ProteinMET- Rx & Worldwide Sports NutritionQualcommQuestcorRally’sRandy AlbersRaphael’s Party Rentals Redfearn & AssociatesRehab UnitedREIRepublic WasteRoberto’s Very Mexican FoodRock N’ Road CyclerySan Diego City LibrariesSan Diego City School DistrictSan Diego County Credit UnionSanDiego.comScreaming Daily DealsSDG&E/Energy for OthersSherry’s Gotta DanceShoebaccaSide Jobz

Smokehouse CateringSophie 103.7SouplantationSpanky’sSports AuthoritySullivan Moving & StorageSycuan CasinoTargetTEVAThe BreakawaysTorrey Pines BankTHE UPS STORETrader JoesUltraStar CinemasUnified Port of San DiegoUrban Corps of San Diego CountyUSA King’s CrossingViaSatVitalyteVolunteer Clowns of Orange CountyVTDS Inc. / ProSonixWalgreensWal-MartWaste ManagementWawanesa InsuranceWeb AdvancedWells FargoWestern PistachiosWesfield Plaza Camino RealWIN TherapyYikes ID!Zico Coconut Water

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