ONE VOICE. Another

BUDDY WALK OF SORTS.

Don't walk behind me, I may not lead. Don't walk in front of me, I may not follow. Just walk beside me and be my friend. - Unknown

10,000 VoicesFor and With

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KEITH SAYS:

LET’S MAKE A COMMUNITY DOCUMENTARY AND A

SOUNDTRACK.TOGETHER, WE CAN TELL AN IMPORTANT STORY

OF SOCIAL INCLUSION

ONE VOICE.ANOTHER BUDDY WALK OF SORTS.

Keith is no different from any child. He tells me off in no uncertain terms when I have

been unfair, when I am full of myself, when I dominate, when I am not able to see things

afresh. He forgives me every time when I behave like a lesser human being, and goes on to dance, cuddle, cheer me up and raise

me up to be a better human being.

For and With

www.onevoice.sg

Bring awareness to Down Syndrome, in particular articulating challenges as well as joys and triumphs that individuals and families experience.

Bridge communities by bringing personal encounters and understanding at an experiential level.

Empower self-advocacy by enabling host families to tell their own stories. Host families plan their own walk itineraries .

Empower citizen documentary – corporate-student-individual community-documentarians, learn to make a documentary by using photography, videos and a guided script. Prior to the walk, corporate-student-individual community-documentarians, will be briefed on basic awareness and sensitivities about Down Syndrome. Further, corporate-student-individual community-documentarians, will be given a guided script and receive tips on photography, videos and the documentary process.

Gifting something tangible – or the Down Syndrome Association (Singapore) to further its mission.

a Down Syndrome social inclusion project through CSR & community art

ONE VOICE. PROJECT AIMS.

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JUST TAKE 4 STEPS. ONE VOICE.STEP 1 OUTLINE OBJECTIVES

Target community group Individuals with Down syndrome & families via Down Syndrome Association (Singapore)

Community Issue being addressed Social inclusion

Aim Bring awareness to DS issues and needs

How? Make a community film - viral videos, podcasts, a DVD and a music CD album

STEP 2 DOWN SYNDROME COMMUNITY NEEDS and AWARENESS

Issues to raise/discover/articulate – Cradle to Cradle •Birth – caregiver and siblings support•Medical Attention•Early Intervention•Inclusive Education•Inclusive Employment•Geriatric Support•Self-Advocacy

•Trisomy 21 - Extra 21 chromosome. Science-based facts about why it happens•General challenges – low muscle tone, general developmental delay, including cognitive delay•Specific medical challenges – eyes, ears, lungs, heart, digestive, leukaemia, hypothyroidism, autism, cerebral palsy•Emotional intelligence – magical/happy quality•Quality of life – being included has the most positive impact on this•15 years ago and now – achievements of young adults•Special Olympics, Special Arts•A GIFT – through which the quality of society and humanity is transformed to deeper heights

How to Make a Community Documentary

Briefing by film producerSTEP 3 MAKING THE FILM AND SOUNDTRACK

Making the Community Documentary and Soundtrack

Community documentarians spend half day with DS individual and host familyEach group given a “script guideline” that would prompt coverage of issuesDocument your day and conversations and voices singing “One Voice” Send documentation to film producer

STEP 4 SHOWING THE FILM

Post-production Film producer work with DSA rep and GSK rep

Launch Film Party to celebrate or show film

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ONE VOICE. DOWN SYNDROME AWARENESSISSUES TO RAISE/DISCOVER/ARTICULATE

CRADLE TO CRADLE•Trisomy 21 =Extra chromosome 21.

•General challenges – low muscle tone, general developmental delay, including cognitive delay•Specific medical challenges – e.g. eyes, ears, lungs, heart, digestive, leukaemia, hypothyroidism, autism, cerebral

palsy•Emotional intelligence – magical/happy quality

•Quality of life – families celebrate life•15 years ago and now – pre1980 literature outdated

•Pre-natal and Birth•Family/caregiver support

•Financial support•Sibling support

•Early intervention•Inclusive education – from preschool to tertiary

•Inclusive employment & lifelong learning•Supported independent housing & living

•Geriatric support•Inclusive community – public spaces and events

•Self-advocacy•Dedicated Research

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ONE VOICE. MAKING A DOCUMENTARY

The Idea “Why do we really want to make this film? This, above anything else, is what you really have to ask yourself before you start.”

From, “writing, directing, and producing documentary films and videos by Alan Rosenthal, revised edition 1996”

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Corporate - School - Individual Community-Documentarians

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ONE VOICE. THE STORY

The story is how and why each of us took the first step to arrive at singing for a fellow human being.

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Corporate - School - Individual Community-Documentarians

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ONE VOICE. 3 GROUPS OF COMMUNITY DOCUMENTARIANS

CORPORATE GSK Corporate Community Documentarians will journey with host families as part of GSK’s

Orange Day. Host families plan walk itineraries. Target 30 host families + 100 GSK corporate documentarians = 3,000 voices (each group collecting 100 voices)

SCHOOLSchool Community Documentarians will journey with the young adults. DSA(S) plan walk itineraries. GSK-charKOL will coordinate with 30 participating schools. Target 30 young

adults host + 150 school documentarians = 6,000 voices (each group collecting 200 voices)

INDIVIDUALIndividual Community Documentations will plan their own walk itineraries and produce their

own documentaries. Target 50 individual documentarians + 50 individuals/families with Down syndrome = 1,000 voices (each group collecting 20 voices)

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You just need to host GSK corporate executives or STUDENTS or INDIVIDUALS who have volunteered to become community-documentarians for ONE VOICE.

Commit to host for half a day and sing “One Voice” (written by Barry Manilow) with the community-documentariansPlan a walk itinerary to go out and COLLECT VOICES - as many voices for social inclusion as you can, or a particular voice of someone who can influence better social inclusion, or an unsung hero in the social inclusion journey.

You tell us what you will be doing on this day and we help you frame this into an advocacy topic, if you so choose. This is not critical; what is critical is that you have opened up a part of your life to another person and the public at large. It’s scary, but it is also a brave journey into advocating for social inclusion.

You tell us the time, location and constraints.

Nothing out of the ordinary. Think of it as spending a day out with a new friend who wants to know more about Down Syndrome.

ONE VOICE. WHAT DOES A HOST FAMILY DO?

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Only recording of whatever you allow is allowed. Community-documentarians are only allowed to document using the issued recording equipment.

Community-Documentarians will also be asking questions – answer them as you feel comfortable.

Community-Documentarians will also be asked to write reflections and/or interviewed – which we may select as narration or voiceover for ONE VOICE.

You will also be asked to reflect on this unique walk. You may submit this and/or be interviewed and we may use it as the voiceover for ONE VOICE

And everything out of the ordinary. Think of it as sharing your world with the whole world. As you like it.

ONE VOICE. WHAT DOES A HOST FAMILY DO?

a collaborative CSR project

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This could be a visit to this friend’s home if he or she is homebound. Or it could be a special school or a school which practices mainstreaming. Or you could be travelling with your new friend to work and experience some of the workplace integration programmes that are being developed. Perhaps your host family may plan a visit to a hospital or one of the therapy visits. The walk could also be a dance performance or at a recording studio, or collecting voices at public places, and schools.

You are going on a walk, with a new friend. There will be many walk itineraries.

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

You don’t choose, just like your host families. Walk itineraries were chosen .

a CSR project through art

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Somewhere you’re not likely to have encountered on your own. Somewhere only the brave are privileged to encounter, as after you return, we know your lives would be changed forever. Individuals with Down syndrome have a truly magical quality about them. It is not possible to explain to you in words. You can only know this magic through a personal experience.

It will be more like a voyage.

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

a CSR project through art

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Getting angry on its own does not help us raise the quality of lives of individuals with Down syndrome. There are many practical things we can do – health insurance coverage, funding for quality early intervention, a chance at being truly and successfully included in school, work, and in the community, and basic care and respect. How can we remove the barriers to a meaningful quality of life for your new friend? What next steps can you take?

You might get angry after you return home. You might ask why does it still have to be so challenging in a world of abundance?

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

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Once you process your emotions, you will search more. In the most poignant of moments, you will find the reconciliations. You will find peace.

You might cry after you return home. It is okay to cry.

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

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Our children surprise us every day with their gifts and abilities. They overcome their challenges, albeit slower and with much support. And they achieve heights higher and greater than most parents can ever imagine. Every new step they take, we soar. We hope we are able to share this love and joy with you and perhaps you may want to hold it in your heart. In your personal moments of challenges, just remember, each small step matters. And just like our babies - we will triumph in the end.

We want you to celebrate with us.

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

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You will need to record using the issued equipment only. No other recording is allowed.You will need to write a commentary or essay or anything which you feel inspired that you think will help bring more awareness to Down Syndrome.

You will play an artist.You will become documentarians for ONE VOICE.

ONE VOICE. WHAT DOES A COMMUNITY-DOCUMENTARIAN DO?

You will give voice.You will tell the story of your buddy walk by singing.

On an ordinary, not-so-ordinary journey. It takes just one voice.

You will sing.

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ONE VOICE. GSK, CHARKOL & DSA (SINGAPORE) ROLES

GSK – charKOL are PRODUCERS of ONE VOICE.

GSK will organise and coordinate the following:Provide GSK Orange Day VolunteersAllow briefings and talks at GSK premises for GSK participantsProvide funding as per stated budgetAttendance of GSK senior personnel at presentation party

charKOL will organise and coordinate the following:Source host families, school groups and coordinate various walk itineraries with DSA (Singapore)Coordinate various walk itineraries with individual documentariansObtain the necessary releases and permits, if necessaryMake the community documentary and music CD Coordinate a celebration/presentation party when the community documentary is produced

DSA (Singapore) is the BENEFICIARY as well as support the following:Source host families, school groups and coordinate various walk itineraries with ProducersCoordinate various walk itineraries with school documentariansLiaise with various community groups and public through Community Relations and Corporate CommunicationsLiaise with host families through the Family Services Group of DSAJoin a celebration/presentation party when the community documentary is produced

GSK, charKOL and DSA (Singapore) will contribute dedicated volunteers to form the One Voice project team – The Crew

This collaborative CSR project is kindly funded by GSK, primarily to cover expenses such as production transportation, materials and administrative support costs, as well as for the Celebration/Presentation Party. Note the following pro-bono contributions. Artist fees have been waived by the Executive Producer/Director, graphic designer, and other creative professionals. Host families have incurred time and expenses not included in the funding budget. Community documentarians have incurred time and expenses not included in the funding budget. GSK has contributed the time of GSK employees to play the role of documentarians through their Orange Day programme. This project would not be possible without the tremendous support from DSA (Singapore), including personal time of Board members and staff, who immediately rallied behind the project and helped source host families, school groups and individuals, lead awareness talks and make possible all necessary arrangements towards a successful project.

We are indebted to everyone’s kind support and contribution. Enabling social inclusion through CSR & community artFor and With

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ONE VOICE. ABOUT BUDDY WALK

The Buddy Walk® was established in 1995 by the US National Down Syndrome Association to promote acceptance and inclusion of people with Down syndrome. www.buddywalk.orgMore than 270 Buddy Walk® events took place across the US and abroad. Over $9.5 million dollars was raised in the US in 2007.More than 230,000 individuals participated in a Buddy Walk® in 2007. Since the Buddy Walk® was created in 1995, over 2,000,000 people have participated in a Buddy Walk worldwide.

Singapore – Down Syndrome Association (Singapore) Buddy Walk 2009 - Over 1000 participants (from over 13 schools, associations & members of the public) and 80 volunteers were at the Singapore Flyer at the break of dawn to take part in the DSA Buddy Walk held in commemoration of the World Down Syndrome Day 2009.

Another Buddy Walk of SortsExtending the Buddy Walk concept to a more immediate and interpersonal level. A small group time spent with a host family or host group and walk itineraries and experience are unique and personal.

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ONE VOICE. RESPONSIBLE INTELLECTUAL PROPERTY

ONE VOICE – a community documentary by GSK-charKOL. Executive Producer & DirectorPeng-Ean KhooSponsor ProducersYong Hwee YeeLai-Wah LaiBeneficiary ProducersMonica de Silva-LimPatricia HanLi Shu YunRanee GovindramGladys LimVolunteer ProducerWinnie WongWalk ItinerariesHost FamiliesDocumentariansGSK Orange Day volunteersSchool GroupsIndividualsONE VOICE IS GIFTED FOR THE DISCRETIONARY USE OFDown Syndrome Association (Singapore)

GSK-charKOL are the producers of ONE VOICE .ONE VOICE is strictly to be used in a responsible manner and is produced for not-for-profit purposes only. GSK-charKOL intends to gift the film to the DOWN SYNDROME ASSOCIATION (SINGAPORE) for its discretionary use - in bringing hope, raising awareness and fund-raising for its efforts to enhance the quality of lives of individuals with Down syndrome and their families.We thank all involved for enabling the creation of a responsible intellectual property.

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ONE VOICE. ABOUT DOWN SYNDROME ASSOCIATION (SINGAPORE)

Vision"To be the Centre of Excellence for individuals with Down syndrome, their families and the community."

MissionDevelop individuals with Down syndrome through life long learning and social integration. Support families through specialist services, information and education. Advocate for equal opportunities, quality of life and their contribution to society. History Early in 1995, a group of parents of children with Down syndrome recognized that a great need existed in Singapore to support and educate families, professionals and the public about Down syndrome. Out of a meeting held on 1 October 1995, the Down syndrome Support Group was formed. In May 1996, the group organized and hosted, with great success, the 2nd Asia Pacific Conference on Down syndrome. The enthusiasm generated amongst parents, professionals and community members spurred the formal registration of the group as Down Syndrome Association (Singapore) on 16 September 1996. The Association was registered as a Charity under the Charities Act on 17 January 1997 (no. 1229) and awarded official recognition by the National Council of Social Services on 4 July 1997.

DSA is a self-funding, non-profit voluntary welfare organization with IPC (Institute of Public Character) status, which works closely and regularly with healthcare and educational professionals, and voluntary welfare organizations. The Association is affiliated to international bodies such as Down Syndrome International (DSI), the Asia-Pacific Down Syndrome Federation (APDSF), Asian Federation of Mental Retardation (AFMR) and the International Association of the Scientific Study of Intellectual Disabilities (IASSID). In April 2004, DSA was invited to organize and host the 8th World Down Syndrome Congress in Singapore, which attracted participants from more than 34 countries.

Goals and aspirationsWe acknowledge and respect the right of all persons with Down syndrome to receive an adequate response to their needs. We are thus committed in our aims to provide support, enable a person with Down syndrome to attain his or her full potential, help a person with Down syndrome to lead a “normal” life and thus be able to contribute to society and educate the public on Down syndrome.

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ONE VOICE. ABOUT GLAXOSMITHKLINE

GlaxoSmithKline, being a pharmaceutical corporation, aspires to improve the quality of human lives - not just through our medicines, vaccines and consumer products but also through involvement with local communities. Orange day is but an extension of this. It enables every GSK employee to take one working day, to make a difference in the community where we live and work. GlaxoSmithKline – one of the world’s leading research-based pharmaceutical and healthcare companies – is committed to improving the quality of human life by enabling people to do more, feel better and live longer. For further information please visit www.gsk.com)

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ONE VOICE. ABOUT EXECUTIVE PRODUCER/DIRECTOR

This project was conceptualised and will be produced & directed by Peng-Ean Khoo. Peng-Ean Khoo's career involves juggling the intricate duality as a business professional and a poet-artist. A chartered accountant (ICAEW UK) by profession, Peng-Ean read Economics at Cambridge University, U.K. As a poet-artist, Peng-Ean has read, exhibited and published in the Greater Boston area and Singapore including the Boston Public Library, Warwick Museum of Art and the Massachusetts Radio Network for the Blind. She provides business advisory and solutions to sustainable enterprises - start ups, creative businesses, social enterprises, and enterprises desiring to be sustainable. In 2008, she co-founded charKOL to create a space for the exploration of our humanity through art and ideas. PEK has added Corporate Responsibility, Social Business Entrepreneurship and Down Syndrome to her list of ponderings: motherhood and family, post-colonialism, environmental awareness, and children’s rights. She continues to explore what makes us human through art, poetry and entrepreneurship. She maintains a blog at www.ponderwithpek.wordpress.com Peng-Ean Khoo has produced and participated in numerous public art and education projects, including:Culture of Peace - a travelling exhibition of art & poetry touring in New England, USA since 2001;My Mark to Strain Peace: A Creative Encounter – an art & poetry exhibition and public programme supported by the National Library ; Art Fields – a public installation art project in a neighbourhood cafe – Gone Fishing - supported by the National Arts Council (Singapore); Borrowed Nature – installation art to bring awareness to the environment commissioned by Woodlands National Library-Singapore Art Museum;Spoken Word – an education programme to facilitate authentic and confident oralcy development through art commissioned by MOE-Canossa Convent Primary School;Van Gogh: A Handshake in Thought - a public education exhibit commissioned by the Singapore Science Centre. ONE FRIDAY: A Buddy Walk of Sorts – a community documentary to bring awareness about Down Syndrome in Singapore.

Her son, Keith, is bestowed with an extra chromosome 21.

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ONE VOICE. CONTACT US.charKOL Pte Ltdwww.charkol.comProject Director: Peng-Ean KhooProject Manager: Lim Li PingEmail: onevoice@charkol.comObtain forms & publications from website www.onevoice.sg: standard release forms, location permission forms, walk itineraries forms and reflections forms.Please scan and email completed forms to onevoice@charkol.comMark ATTN: ONE VOICE

CharKOL is a space for the exploration of our humanity through art and ideas. CharKOL's goal is to develop a workable balance between art, commerce and conscience. CharKOL produces art and innovative projects to promote art appreciation, social consciousness and community amongst schools, tourists, corporations and the local public. CharKOL is a sustainable art enterprise, organised as a Pte Ltd company with corporate responsibility and governance. Sustainable enterprises account for social, environmental & financial responsibilities. In other words, we exist for Art, People, Planet and Profit.

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ONE VOICE. BE ALWAYS KIND & GOOD

“Our ONE VOICE time is over. It’s time to go home now. Goodbye, Goodbye. Be always kind and good.” – Goodbye song in early intervention classes.

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