Disclosure of interest: None declared

Patients and physicians collaborative effort in the gynecological rare cancers network through a web platform.

Ms Nuchanard Chiannilkulchai - ARCAGY-GINECO, Paris

Dr Anne Floquet - Institut Bergonié, Bordeaux

Ms Coralie Marjollet - ARCAGY-GINECO, Paris

Ms Pascale Jubelin - IMAGYN, Paris

Pr Eric Pujade-Lauraine - Hôtel-Dieu, AP-HP, and on behalf of the GINECO group

EPP45-18

Track 3 - Improving patient and family experiences

Abstract presented before: N0

• Other non-epithelial tumors

-- Small cell carcinoma

-- Carcinosarcoma

• Epithelial tumors

-- Clear-cell adenocarcinoma

-- Mucinous adenocarcinoma

-- Low grade serous carcinoma

-- Borderline tumors

GYNECOLOGICAL RARE CANCERS

Rare cancers are those with incidence < 6 / 100 000 per year

Annually rare cancer diagnoses in Europe represent about 22% of all cancer cases diagnosed. RARECARE

Incidence of rare and common cancers by site in EU27

Incidence

rate per

100,000

Standard

error

Estimated

incident

cases in

EU27

incidence

distribution

(%)

Female genital tract Common 9,6 0,0 47 779 32

Female genital tract Rare 16,1 0,0 80 669 55

Female genital tract All 29,5 0,0 147 597 100

Breast Common 47,7 0,1 238 471 74

Breast Rare 4,9 0,0 24 415 8

Breast All 64,3 0,1 321 429 100

Rare Ovarian Cancers

• Stromal and sex-cord tumors

(adult, juvenile granulosa cell T,

Sertoli-Leydig cell T, ...)

• Germ-cell tumors (dysgerminoma,

yolk sac tumors, Immature

teratoma, ... )

FRENCH RARE OVARIAN CANCERS NETWORKreferenced by INCa

Sex cord-stromal

tumor, 972

Germ cell

tumor, 528

Small cell

carcinoma , 41

Carcinosarcoma , 200

Clear cell carcinoma,

430

Mucinous carcinoma,

475

Low-grade serous carcinoma , 135

Borderline tumor, 1631

Other rare tumors, 200

Rare Ovarian Tumors distribution

REFERENCE CENTERS WEBSITEhttp://www.ovaire-rare.org

Secured-access for - experts confirmation on diagnosis and- expert opinion on care management - within reference center multidisciplinary tumor boards

GYNECO CANCER PATIENTS ADVOCACY GROUP

This work has been supported by INCa and La Ligue Contre le CancerFor any question - contact : nchen@arcagy.org

Carnet de santé - Health records :• Medical reports • Follow-up after cancer • …