princess margaret cancer centre patient ......ovarian cancer: knowledge is power will be presented...
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A N E W S L E T T E R F O R
P A T I E N T S , F A M I L I E S , S T A F F
A N D C O M M U N I T Y M E M B E R S
S E P T E M B E R 2 0 1 6
In this issue:
Guides for patients
Library Corner: September is Ovarian Cancer Awareness Month
Patient & Family Education NewsP R I N C E S S M A R G A R E T C A N C E R C E N T R E
Guides for patientsHow to Manage Your SymptomsBy Janet Papadakos MEd, PhD (c), Patient Education Regional Lead, Toronto Central,
Cancer Care Ontario
If you have cancer, you may get side effects from treatment or symptoms from the cancer. Cancer Care Ontario has created 10 guides to help you and your family members manage your symptoms. The guides are filled with easy to understand, practical tips for what you should do and when to get help from your healthcare team.
The symptoms that the guides address are:• Fatigue• Nausea and Vomiting• Pain• Constipation• Diarrhea• Depression • Anxiety• Loss of Appetite• Shortness of Breath• Mouth Problems
The guides are available in several languages including French, Chinese, Italian, and Spanish.
You can pick-up a guide in the Princess Margaret Patient and Family Library. The Library is on the main floor in the Princess Margaret Cancer Centre. You can also find the guides online at: www.cancercare.on.ca/toolbox/symptools/patient_symptom_management_guides/
It is important that you know that the information in the guides is not medical advice. Please discuss your side effects and symptoms with your healthcare team.
Funds for translation are provided by the Elizabeth Walters Patient Education Fund, Princess Margaret Cancer Foundation.
Library Corner: September is Ovarian Cancer Awareness Month By Michelle Snow, Librarian, Patient & Family Education
Program, Princess Margaret Cancer Centre
Stop by the Patient & Family Library on the main floor at Princess Margaret Cancer Centre during September 6 – 9, 2016 to meet team members from Ovarian Cancer Canada. Learn about ovarian cancer awareness, the common signs and symptoms of ovarian cancer and support groups available in your area.
Please join us at the Patient & Family Education Lunch and Learn. Ovarian Cancer: Knowledge is Power will be presented by Cailey Crawford, Ontario Regional Director at Ovarian Cancer Canada. The presentation will include information about:
• The facts, risks and signs and symptoms of ovarian cancer and touch upon the challenges associated with early detection and diagnosis.
• Inherited genetic mutations and opportunities for prevention.
• The role that Ovarian Cancer Canada plays to support those with ovarian cancer and their families.
When:Tuesday September 27, 2016, 11:30AM – 12:30PM Where:Dr. Bob Bell Auditorium, Princess Margaret Cancer Centre, 6th Floor, Room 604
For staff, volunteers, patients and family members... All are welcome.
Listed below are resources that you can find at the Princess Margaret Cancer Centre Patient & Family Library. Learn about ovarian cancer, detection and diagnosis, treatment options, side effect management and support services.
UHN Brochures on Ovarian Cancer Ask library staff for a free copy
• Coping with Gynecological Cancer: Patient resource guide
• Quick Facts about Ovarian Cancer
• What to Do When Receiving Radiation therapy to the Abdomen and Pelvis
• Lymphedema: a possible late effect of some cancer treatment
• How to Do Self Lymphatic Massage on your Lower Body: For patients with lower body lymphedema who have had treatment for gynecologic cancer
• How to Self-bandage Your Leg(s) and Feet to Reduce Lymphedema (Swelling)
• Know How to Use Vaginal Moisturizers and Lubricants
• Pelvic Floor “Kegel” Exercises for Women
• Manage Sex and Intimacy during and after Gynecologic Cancer Treatment
• Going Home after Your Vulvectomy
• How to Manage Vaginal Stenosis
• Know How to Care for Your Lymphedema Bandages
• Know How to Maintain Good Bowel Function
Ovarian Cancer: Understanding your diagnosis by Canadian Cancer Society
By Your Side by Ovarian Cancer Canada This resource is specifically for women who have received a new diagnosis
Still By Your Side by Ovarian Cancer Canada This resource is specifically for women who are facing recurrence
Books to Borrow from the Library100 Questions & Answers About Ovarian Cancer By Don S Dizon
Bearing Witness: Living with ovarian Cancer by Kathryn Carter and Laurie Elit
Confronting Hereditary Breast and Ovarian Cancer by Sue Friedman
Mobile Health Apps to help you Relax
Breathe to Relax by National Center for Telehealth and Technology
Relax Melodies by iLBSoft
Sleepmaker Rain by SoftwareX
Take a Break! by Meditation Oasis
How to Become a Library Member The first time you borrow resources, you will need to fill out a registration form and show valid identification with your name and address, such as a Driver’s License or UHN Hospital Card. Once you register with us, you may borrow resources for a 3 week loan from any of the UHN Patient & Family Libraries.
Visit the library: Hours: Monday to Thursday, 8:30 am – 4:30 pm Fridays 8:30 am – 4:00 pm
Location: Princess Margaret Cancer Centre, main floor, atrium
Phone: 416 946-4501 x 5383
E-mail: [email protected]
UHN
C034-D
How to Do Self Lymphatic Massage on your Lower Body
For patients with lower body lymphedema who havehad treatment for gynecologic cancer including:• Pelvic lymph node removal
• Groin lymph node removal
• Pelvic radiation
This pamphlet explains:• What self lymphatic massage is and why it is important
• How to do self lymphatic massage step-by-step
Please visit the UHN Patient Education website for more health information: www.uhnpatienteducation.ca © 2013 University Health Network. All rights reserved. This information is to be used for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis or treatment. Please consult your health care provider for advice about a specific medical condition. A single copy of these materials may be reprinted for non-commercial personal use only.
Author: Sylvia Crowhurst RMT/CDTl; Pamela Hammond RMT, MSc; Aleksandra Chafranskaia PT, MHSc; Linda Durkee RN, BScN, MEd; Stephanie Phan OTReg(Ont)Created: 10/2011Form: D-5802 (10/2013)
Disclaimer:This pamphlet does not replace manual lymph drainage massage performed by a trained Combined Decongestive Therapist in your community. It is meant to be used as a guide to help patients with lymphedema and/or their family members do self-lymphatic massage after they have been taught these skills by a Combined Decongestive Therapist.
How to Manage Vaginal Stenosis
Princess Margaret
For women who have had cancer treatment
Read this resource to learn about:
• What vaginal stenosis is……………………………………………… 2
• What you can do to help manage vaginal stenosis…………………... 3
• When to get medical help……………………………………………. 8
• Where to get more information………………………………………. 9
Please visit the UHN Patient Education website for more health information: www.uhnpatienteducation.ca© 2015 University Health Network. All rights reserved.This information is to be used for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis or treatment. Please consult your health care provider for advice about a specific medical condition. A single copy of these materials may be reprinted for non-commercial personal use only.
Author: Brachytherapy Department; Lianne McCabe, Registered Physiotherapist, Cancer Survivorship ProgramRevised 06/2015Form: D-5907
The information contained in this newsletter is to be used for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis or treatment.
Please consult your health care provider for advice about a specific medical condition. A single copy of these materials may be reprinted for non-commercial personal use only.
© University Health Network - Princess Margaret Hospital - Patient and Family Library - 2016
Patient & Survivorship Education Editor: Karen Lawrie, Patient Education Specialist | Editorial Board: Nazek Abdelmutti, Daniela Fierini, Janet Papadakos, Michelle Snow, Aileen TrangGraphic Artist: Kristin Foster | Please forward comments, questions or submissions to [email protected] Patient Education and Survivorship Programs are supported by the Princess Margaret Cancer Foundation.
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“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
–Chris Taylor