programs & resources guide, spring 2012

Programs & Resources Guide

Spring 2012

Grieving lost dreams. Welcoming new ones. Discover strategies for facing the challenges of multiple sclerosis.

Youth CampA memorable week in Amery, Wis., for youth affected by MS.

PlusFind MS programs in your community, a listing of local clubs, groups and exercise classes, and ongoing resources and services available anytime.

JOIN THE MOVEMENT®

Introducing your new Programs & Resources Guide

I’m proud to introduce you to the National MS Society, Upper Midwest Chapter’s very first issue of the Programs & Resources Guide ! This brand new publication is designed to serve as a comprehensive guide to the programs, services and resources available to people affected by multiple sclerosis in our chapter area.

In this guide, you’ll find listings of education programs, social activities, clubs and groups in the area you live and more.

Flip to your state to check out what’s happening in your neck of the woods. You’ll also find a section called “Anywhere programs,” which provides information about opportunities to learn, gain support and connect with others no matter where you live, such as teleconferences and online learning programs. And be sure to page through our resources section in the back, which outlines all the ongoing services available to people with MS and their care partners, such as financial assistance, professional consultations and much more.

I hope you find this publication to be a valuable tool in navigating the day-to-day challenges of life with MS. As with any newly launched publication, the Programs & Resources Guide is a work in progress, and we want to hear from you! Please share your ideas, suggestions and feedback with us at [email protected].

Holly Anderson, National MS Society,

Upper Midwest Chapter President

Programs & Resources GuidePrograms & Resources Guide is a free publication of the National MS Society 200 12th Ave. S.Minneapolis, MN [email protected] Editors Maggie FlanaganSteve Korngable

Chapter PresidentHolly Anderson

Promising treatments for MS Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health care professionals about using these medications and about effective strategies and treatments to manage symptoms. If you or someone you know has MS, please visit nationalMSsociety.org or call 800-582-5296 to learn more.

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

MOVING IS WHO WE ARE

JOIN THE MOVEMENT®

Table of contentsFeatured programsYouth Camp 4Grieving lost dreams 5

Iowa programs 6–7

Minnesota programs 8–21

North Dakota programs 22–23

South Dakota programs 24–25

Anywhere programs 26–27

Resources and financial assistance 28–31

Walk to create a world free of MSMore than 15,000 people across the Upper Midwest Chapter area will rally together during the month of May for Walk MS. Every step. Every person. Every second spent and dollar raised. They all add up to an experience unlike any other.

Register today for Walk MS.Join us at one of 34 locations across Iowa, Minnesota, North Dakota, South Dakota and western Wisconsin. Can’t make it? Sign up for Walk MS: Anywhere Walk. Register today at myMSwalk.org or call 800-582-5296 (option #2).

This is our time to unite and stand strong. Together we will change lives.

June 18-23 n Amery, WI

Do you know a child entering grades four through 12 who has a parent with MS or lives with someone with MS? Now in its 13th year, Youth Camp brings together youth from across the chapter and beyond for a week of summertime fun, memory-making and personal growth.

Youth Camp spans an entire island on the edge of beautiful Lake Wapogasset at YMCA Camp Icaghowan. Campers enjoy a variety of activities, such as:

n swimming; n horseback riding;n high ropes; n canoeing; andn disc golf; n evening campfires.

Teens age 18 who have graduated from high school can apply to be counselors in training.

Space is limited. Hurry! Applications must be received by May 6.

Program fee$150 per child. Fee adjustments are available upon request. Do not send a check at this time. Upon acceptance, you’ll receive a billing invoice.

QuestionsFor more information, contact Krista at 612-335-7937 or [email protected].

Youth CampExperience a week of fun and adventure with other young people affected by MS.

FEATURE PROGRAM

To apply

Applications are available online at MSsociety.org. To request a hard-copy application, contact Krista at 612-335-7937 or [email protected].

Completing an application doesn’t guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. Upon acceptance, you’ll receive more detailed information and a billing invoice.

4 National Multiple Sclerosis Society

FEATURE PROGRAM

May 5 n Coralville, IAJune 2 n Fargo, ND

Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.”

Breakout sessionsJoin Ellis for an engaging, interactive discussion with other care partners, whether you’re a spouse, partner, family member or friend of someone with MS. Women and men living with MS will be joined by experts from their communities.

Discover common issues for women living with MS with Carissa Schroeder, C.N.A., C.M.A., M.S.C.S. (Coralville); and Dr. Susan Scarberry, medical director at Sanford MS Center (Fargo).

Men will be joined by Verne Beachy, author of “A Tear-Stained letter” and former broadcast journalist (Coralville); and Greg Bjorklund, P.A.-C., from the Sanford Clinic Neuroscience (Fargo).

See pages 6 and 22 for program dates, times and locations.

Grieving lost dreams.Welcoming new ones.

Thomas M. Ellis

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org 5

To register or RSVP for any of the programs listed below, please visit MSsociety.org and click “Chapter Calendar” on the upper left-hand side, or call 800-582-5296 (option 1). Scholarships are available upon request for most programs that require a fee.

MS research symposiumThursday, May 3, 5:30–7:30 p.m. Stoney Creek Inn, 5291 Stoney Creek Court, Johnston, IA

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by local MS expert Dr. Todd Janus, Ph.D., M.D., F.A.A.N. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and appetizers are from 5:30 to 6 p.m. Program is free. The registration deadline is April 25.

Grieving lost dreams. Welcoming new ones.Saturday, May 5, 9:30–2 p.m.Holiday Inn and Conference Center, 1220 First Ave., Coralville, IA

Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.” Afternoon breakout sessions will address the needs of care partners as well as men and women living with MS. Lunch will be provided. Program is free. The registration deadline is April 30. See page 5 for more detail.

Iowa programs

IOWA


IOWA

Clubs and groupsJoin an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

BurlingtonThird Saturday of the month 2 p.m., Burlington Public Library Laurie, 319-277-0337

CarrollFirst Tuesday of the month 6 p.m., Swan House Tina, 712-792-4777

Cedar Falls/WaterlooThird Thursday of the month 6:30 p.m., Covenant Medical Center Perry, 319-235-2852

Cedar RapidsThird Sunday of the month 2 p.m., Mercy Hospital Kathy, 319-373-5390

DavenportSecond Tuesday of the month 6:30 p.m., Genesis East Heart Building Karen, 309-736-0738

Des MoinesThird Sunday of the month 2 p.m., Walnut Ridge at Clive David, 515-556-5338

Des Moines Caregivers GroupSecond Monday of the month 7 p.m., West Des Moines Public Library Larry, 515-989-9234

Des Moines Men’s GroupMeets quarterly Various times and locations Ken, 515-999-9186

Des Moines Phone GroupSecond Thursday of the month 10 a.m., Toll-free: 866-906-9995 Passcode: 828172 Rita, 515-480-3870

Des Moines Women’s Luncheon GroupSecond Tuesday of the month 11:30 a.m., location varies Annie, 515-724-2641

Fort DodgeFirst Saturday of the month 7 p.m., St. Olaf Lutheran Church Sheila, 515-576-1860 Marc, 515-955-5814

IndependenceThird Monday of the month 6 p.m., Immanuel Lutheran Nicole, [email protected]

Iowa CityThird Thursday of the month 6:30 p.m., Mercy Medical Plaza Catherine, 319-466-0346

Mason CityFourth Sunday of the month 2 p.m., Bethlehem Lutheran Kathy, 641-454-2953

OskaloosaSaturday following the third Tuesday of the month 10 a.m., Mahaska County Hospital Lin, 641-673-7802

Sioux CityFirst Saturday of the month 1:30 p.m., CNOS Clinic Janet, 605-217-2726

NEW

NEW

NEW

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MINNESOTA


MS research symposiumSaturday, June 23, 9–11:30 a.m.Brainerd Hotel and Conference Center, 2115 S. Sixth St., Brainerd, MN

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Yelena Usmanova, neurologist at the Minneapolis Clinic of Neurology. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Registration and breakfast start at 9 a.m. Program is free. The registration deadline is June 18.

Care partner social Thursday, May 17, 6–8 p.m.Green Mill Pizza, 1000 Gramsie Road, Shoreview, MN

The National MS Society recognizes the importance of connecting with others who understand the challenges of caring for someone with MS. All MS care partners are invited to this fun, casual gathering. Enjoy complimentary appetizers on us! There is no cost to attend. Attendees must purchase their own beverages. Respite care options are available, if needed.

Pearl of the Lake Riverboat Cruise on the Mississippi Saturday, June 9, 12:15–2:30 p.m.Lake Pepin Paddleboat, Inc., 100 Central Point Road, Lake City, MN

Join other people affected by MS on “Pearl of the Lake,” a modern day replica of the grand Twin Paddlewheel riverboats that traveled the Mississippi River in the 1800s. Learn about the historic significance of paddlewheel boats and the fresh water pearl industry. Beverages and snacks will be available for a fee. Program is free. The registration deadline is May 23.

Minnesota programs


MINNESOTA

20s and 30s social outing Saturday, June 16, 10:30 a.m.–6 p.m.Minnesota Zoo, Green Acres picnic area, 13000 Zoo Blvd., Apple Valley, MN

Enjoy a day at the Minnesota Zoo while picnicking and socializing with other people in their 20s and 30s who understand an MS diagnosis. Enjoy good food, make friends and have fun! Friends and family are invited, too! The picnic is from 10:30 a.m. to 12:30 p.m. in Green Acres picnic area, but guests can enjoy the zoo attractions for the entire day. Please RSVP to Jill at 612-335-7938 or [email protected]. Program is free. Zoo admission, parking and food and beverages at the picnic are provided by Noran Neurological Clinic. The registration deadline is June 11.

See the Twins play at Target FieldTarget Field, 550 Third Ave., Minneapolis, MN

Hear the crack of the bat and watch the Minnesota Twins alongside other people with MS and their families. Accessible seating is available. Attendees are responsible for their own transportation. Fee adjustments are not available for this program. To purchase tickets, call Jeannie at 612-335-7939. Tickets must be purchased by June 9. Choose from one of two games:

n Saturday, June 30, 6:10 p.m., Minnesota Twins vs. Kansas City Royals. Tickets are $34 per person for seats located on skyline deck.

n Saturday, Sept. 29, 12:10 p.m., Minnesota Twins vs. Detroit Tigers. Tickets are $25 per person for seats located in Powerball Pavilion; or $17 per person for right-field bleacher.

An evening at the racesSaturday, Aug. 4, 3–9:45 p.m.Running Aces, 15201 Zurich St. NE, Columbus, MN

People affected by MS are invited to an evening at Running Aces! Enjoy an inspiring presentation, the opportunity to socialize with others who understand the challenges of MS, great food and exciting horse racing. Check-in starts at 3 p.m.; the presentation “Living Motivated with MS” is from 4 to 4:45 p.m.; and activities continue until 9:45 p.m. Come for all or just part of the time. There is no cost to attend, but attendees must purchase their own food and beverages. The registration deadline is July 12.


Tools and tips for gardening with MSWednesday, May 9, 7 p.m.St. Cloud Public Library, 1300 W. St. Germain, St. Cloud, MN

Gardening is not only a rewarding, creative activity; for some it’s a passionate endeavor. But when living with MS, gardening may present challenges. Join us for an inspiring program as master gardeners share tips and demonstrate adaptive tools to enhance your gardening. No previous gardening experience required! To RSVP, contact Betsy at 320-253-5421 or [email protected]; or Paulette at 320-253-6779.

Fatigue: Take control June 5, 6:30 p.m.Fairview Education Center, 152 Cobblestone Lane, Burnsville, MN

Fatigue is one of the most common symptoms of MS and can significantly interfere with a person’s ability to function at home and at work. In this DVD presentation, learn more about MS-related fatigue and medical management, and how to adopt personal, proactive energy choices. To RSVP, contact Mike at 952-898-2857 or [email protected]; or Sue at 952-432-9515.

Dream board workshop: Imagine a positive futureSaturday, June 16, 9:30 a.m.–2 p.m.Opportunity Manor, 701 23rd St. S., Sartell, MN

Creating your own dream board can help you reinforce attainable dreams, identify new ones and re-instill a positive outlook for your future. As a creative exercise, dream boards may be especially useful addressing personal challenges or coping with unanticipated life changes. Lunch will be provided. To RSVP, contact Betsy at 320-253-5421 or [email protected]; or Paulette at 320-253-6779.

MINNESOTA


MINNESOTA

Mood changes and MSThursday, May 17, 11 a.m.Courage Center St. Croix, 1460 Curve Crest Blvd. W., Stillwater, MN

Monday, June 11, 6:45 p.m.Christ the King Lutheran Church, 1040 S. Grade Road SW, Hutchinson, MN

Wednesday, June 20, 6:30 p.m.St. Joseph’s Area Health Services, 600 Pleasant Ave., Park Rapids, MN

Multiple sclerosis sometimes has profound emotional consequences. In this DVD presentation, hear medical experts discuss diagnosing and treating mood changes in MS, and learn more about positive ways to manage the emotional impact of the disease. To RSVP for the Stillwater program, contact Chris at 612-850-7868. To RSVP for the Hutchinson program, contact Ann at 320-894-7896 or [email protected]. To RSVP for the Park Rapids program, contact Denise at 763-350-6957 or [email protected].

Minimizing your risk of fallsWednesday, July 18, 6:30 p.m.St. Joseph’s Area Health Services, 600 Pleasant Ave., Park Rapids, MN

Due to mobility issues and other MS-related symptoms, many people with MS are at significant risk of falling. Falls often occur under predictable circumstances. Learn how they can be prevented by identifying and minimizing or eliminating key risk factors. To RSVP, contact Denise at 763-350-6957 or [email protected]; or Susan at 218-237-2067.

Facetime with Dr. Yelena UsmanovaQuarterly, 5:30 p.m. The Minneapolis Clinic of Neurology, 3400 W. 66th St., Suite 150, Edina, MN

May 17 Cognition and memory issues with guest speaker Rebecca Anderson, O.T.

Aug. 9 National MS Society services with guest speaker Jill Parkinson, L.S.G.W., M.S.S.M.C.

For more information, contact the Minneapolis Clinic of Neurology at 952-920-7200.


MINNESOTA

Facetime with Dr. Jonathan Calkwood Every Wednesday, 1–2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422

Topics:

May 9 Cognifitness: Exercising your brain with guest speaker Rebecca Anderson, O.T.

May 23 Assistive technologies with guest speakers Caroline Portoghese, O.T.R./L., A.T.P., and Jon Swenson Tellekson

June 20 Dental issues in MS with guest speaker Ryan Clouse, D.D.S. Join us at 12:30 p.m. for lunch sponsored by Questcor.

July 18 Supplemental and special-needs trusts: Protecting assets and maintaining benefits with guest speaker Cathryn Reher, Minnesota Elder Law Attorney. Join us at 12:30 p.m. for lunch sponsored by Teva.

Aug. 8 Renewing life using complementary therapies with Pathways Health Crisis Resource Center. Join us at 12:30 p.m. for lunch sponsored by Teva.

For more information, contact the Schapiro Center for MS at 763-302-4199.

Facetime with Matt Castens, R.N., C.C. R.N., and Sandra Lidberg, R.N.Every other month, 6 p.m.Fairview Maple Grove Clinic, 14500 99th Ave. #500, Maple Grove, MN

May 8 Fatigue

July 10 Bowel and bladder issues

For more information, contact the University of Minnesota MS Center at 612-626-2675.


MINNESOTA

Industry partner programsThe National MS Society partners with many companies to provide educational opportunities

about multiple sclerosis. Details about these industry programs are provided for your information.

Has MS affected you?Sponsored by Acorda Therapeutics®, Inc.

Wednesday, May 9, 9 a.m.Woody’s Grille, 220 Carlson Parkway N., Plymouth, MN

Wednesday, May 9, noonBucca Di Beppo, 2728 Gannon Road, St. Paul, MN

Wednesday, May 9, 6 p.m.Carmine’s Restaurant, 9900 Valley Creek Road, Woodbury, MN

Attend a free and interactive event featuring Dr. Gareth Parry, a leading MS expert, to learn more about a therapeutic treatment option for MS. Food will be provided. Space is limited, so reserve your spot today! Program is free. To register, call 800-397-8082 or visit ampyraseminars.com.

Bioness L300 Foot Drop System educational screeningSponsored by Bioness, Inc.

Tuesday, May 15, 8 a.m.–5 p.m. Hampton Inn-Bloomington, 4201 American Blvd. W., Bloomington, MN

Foot drop, a common symptom in multiple sclerosis, can significantly affect quality of life and degree of disability. If you experience foot drop as a result of having MS, you may be a candidate for the NESS L300 foot drop system. Learn more about foot drop and treatment options by attending this free program. To learn more or register, call 855-246-6377.




Take a closer look at multiple sclerosisSponsored by Bayer HealthCare.

Monday, June 11, 7 p.m.Radisson Hotel, 505 W. Superior St., Duluth, MN

Take a closer look at MS with guest speaker and leading MS expert Dr. Gary Beaver. To RSVP, call 800-788-1467 and choose option 4. Program is free. Program number: PAT197.

How is your MS being managed?Sponsored by Bayer HealthCare.

Join Dr. Gary Beaver to discuss overcoming some of the challenges of living with MS. Program is free.

Thursday, June 21, 6:30 p.m.The Lodge at Brainerd Lakes, 6967 Lake Forest Road, Baxter, MN

To RSVP, call 800-788-1467 and choose option 4. Program number: PAT198.

Tuesday, July 17, 6:30 p.m. Cambria Suites Hotel, 9655 Grove Circle N., Maple Grove, MN

To RSVP, call 800-788-1467 and choose option 4. Program number: PAT199.

MINNESOTA


MINNESOTA


CLUBS

Book clubs

Apple ValleyFirst Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

DuluthFourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Maple GroveFourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

MahtomediFourth Tuesday of the month 6 p.m., Perkins Maplewood Judy, 651-488-4454

MinneapolisThird Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

RosevilleFirst Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 612-874-9019 or Lisa, [email protected]

Nutrition club

KC Nutrition ClubFourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis Susan, 612-522-9519

Social gatherings

Arrowhead regionMeeting monthly at regional restaurant Mary, 218-827-8327

Burnsville/Apple ValleyThird Thursday of the month Noon, Perkins Restaurant, Apple Valley Mike, 952-898-2857

Forest Lake areaFourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

New Brighton/St. AnthonyFourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton Rick, 612-791-6473

GROUPS

CogniFitness

MinneapolisFirst Tuesday of the month 2 p.m., Aster Café Casey, 612-722-5548

For artists, crafters and writers with MS

MS Art & Crafts Interest GroupFirst Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville Donna, 612-280-0786

For care partners

Bemidji Care PartnersThird Saturday of the month 10 a.m., North Country Regional Hospital Barb, 218-751-1879

Men’s Care Partner BreakfastThird Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville Dan, 651-779-9435


MINNESOTA

Perham Care PartnersLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

St. Louis Park Care PartnersThird Wednesday of the month 6:30 p.m., St. Louis Park City Hall Bobbie, 651-223-9858

Women Care PartnersThird Saturday of the month Noon, Dorothy Ann Bakery & Café, Woodbury Rose, 651-337-0133

For couples

Stillwater CouplesSecond Saturday of the month Noon, Courage St. Croix, Stillwater Dan & Jean, 651-779-9435

For GLBT

GLAMS Twin Cities (for GLBT living with MS)Third Thursday of the month 6:30 p.m., Walker Library, Minneapolis John, 612-824-5270

St. Paul GLBT (for GLBT living with MS)First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul Corbett, 651-603-2028

For men

Metro Area It’s Just Breakfast (with the guys)First Saturday of the month 10 a.m., Famous Dave’s, Calhoun SquareSecond Wednesday of the month 10 a.m., Restaurant varies Rick, 612-791-6473

For moms with young children

Moms with Young ChildrenFirst Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina Jennifer, 952-412-1291

For people of color

Metro MS Group for People of ColorSecond Saturday of the month 10:30 a.m., Sumner Library, Minneapolis Linda, 612-290-9515

For people mildly affected by MS

Southwest Metro MS Group for Mildly AffectedThird Saturday of the month 10 a.m., United Methodist Church, Eden Prairie Lisa, 952-934-2296

For people recently to five years diagnosed

South Metro Recently to five Years DiagnosedLast Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington Carol, 612-310-0070

For professionals

Let’s Lunch: Professionals Living with MSThird Saturday of the month 11 a.m., Chatterbox Pub, St. Paul

For women

Maplewood Women’s Peer Support GroupSecond Thursday of the month 1 p.m., Gustavus Adolphus Lutheran Church Joan, 651-426-3220


MINNESOTA

General groups

AitkinFirst Wednesday of the month 7 p.m., Hope Drop-In Center Cindy, 218-927-4929

Albert LeaSecond Monday of the month 1:30 p.m., Dec. – Feb. and 7 p.m., March – Nov., Grace Lutheran Church Carol & Ray, 507-377-1473

AlexandriaSecond Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March Deb, 320-761-5131

AustinFirst Monday of the month 6:30 p.m., Grace Lutheran Church Larry, 507-285-3918

BelviewThird Thursday of the month 7:30 p.m., Redwood Area Hospital No meetings Nov.–Feb. Kathy, 507-641-2555

BemidjiThird Saturday of the month 10 a.m., North Country Regional Hospital Carson, 218-751-1879

BloomingtonFirst Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July Carol, 952-884-2747

BuffaloThird Monday of the month Noon, United Methodist Church Cathy, 320-274-8408

Burnsville/Apple ValleyFirst Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville Mike, 952-898-2857

CambridgeThird Thursday of the month 7 p.m., Cambridge Medical Center Bob, 763-270-0678

CanbySecond Thursday every other month, April – Dec., 4 p.m., Sanford Canby Medical Center Peggy, 507-223-7277

Carlton/CloquetFourth Monday of the month 3 p.m., Bethesda Lutheran Church in Carlton Karen, 218-213-3105

ChaskaThird Tuesday of the month 12:30 p.m., Chaska Library Mary, 952-556-5599

Coon Rapids North SuburbanSecond Wednesday of the month 6:30 p.m., Coon Rapids City Center Renee, 763-757-4650

DuluthFirst Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church Bev, 218-624-1212

Eden PrairieThird Tuesday of the month 7 p.m., Wooddale Church Rick, 612-791-6473

Excelsior/MinnetonkaSecond and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior Denise, 952-474-2960

FaribaultThird Tuesday of the month 6 p.m., Buckham Memorial Library Kurt, 507-210-1853


Fergus FallsSecond Wednesday of the month 11:30 a.m., United Church of Christ Connie, 218-736-7285

Forest Lake areaSecond Thursday of the month 6:30 p.m., The Meadows for Assisted Living Susan, at 651-464-1043

Grand RapidsSecond Thursday of the month 12:30 p.m., St. Joseph Church Sally, 218-326-1371

HibbingLast Thursday of the month 1 p.m., Open Door Church Corry, 218-262-1364

HutchinsonSecond Monday of the month 6:45 p.m., Christ the King Lutheran Church Ann, 320-894-7896

Inver Grove Heights/ West St. PaulFirst Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec. – Feb. LaDonna, 651-450-6230

Lake ElmoSecond Wednesday of the month Noon, Christ Lutheran Church Mary Jo, 651-653-5844

Little Falls/PierzFirst Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls Rita, 320-632-5679

LuverneThird Thursday of the month 7:30 p.m., Rock County Family Services Chuck, 605-582-2309

MankatoSecond Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center Brenda, 507-385-2600 (ext. 2414)

Maple GroveSecond Saturday of the month 10 a.m., St. Joseph the Worker Church Diane, 763-425-8346

MinneapolisLast Saturday of the month 10 a.m., Kingsley Commons Louann, 612-874-9989

MonticelloThird Wednesday of the month 6 p.m., Monticello Hospital Jane, 763-295-8103

New PragueLast Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb. Adele, 952-688-8068

New RichmondSecond Thursday of the month 6 p.m., First Lutheran Church

New UlmThird Tuesday of the month 7 p.m., Oak Hills Living Center No meetings Dec. – Feb. Sue, 507-359-4345

OakdaleThird Saturday of the month 10:30 a.m., Oakdale Library Samantha, 651-735-0190

Park RapidsBeginning June 20, third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services Denise, 763-350-6957

PerhamLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

PrincetonThird Saturday of the month 10 a.m., Fairview Northland Regional Hospital Laurie, 763-389-4225

MINNESOTA

NEW

NEW


MINNESOTA

RochesterThird Wednesday of the month 7 p.m., Meadow Lake Senior Living Geri, 507-288-6255

RosevilleSecond Thursday of the month 6:45 p.m., Roseville City Hall Robin, 651-647-0809

StaplesSecond Thursday of the month 3:30 p.m., Lakewood Care Center No meetings June – Aug. Angela, 320-594-6377

St. Cloud, 20s and 30sLast Thursday of the month, 6:30 p.m., Restaurant varies Dennis, 320-237-5447 St. CloudSecond Wednesday of the month 7 p.m., St. Cloud Public Library Betsy, 320-253-5421

St. Paul Care to ShareSecond Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

StillwaterThird Wednesday of the month 6 p.m., Courage Center Scott, 651-275-3898

Stillwater DaytimeThird Thursdays of the month 11 a.m., Courage St. Croix, Stillwater

SuperiorSecond Tuesday of the month 6 p.m., Superior Public Library Pam, 715-394-6958

WasecaThird Tuesday of the month 7 p.m., Waseca Medical Center Cindy, 507-461-3648

Wayzata/PlymouthFirst Thursday of the month 1 p.m., restaurant varies, Richie 763-670-9114

WillmarFirst Tuesday of the month 7 p.m., Bethesda Nursing Home No meetings Jan. – Mar. Teresa, 320-235-7499

Windom/Cottonwood CountyThird Wednesday of the month 7 p.m., ALC Lutheran Church Lois, 507-831-3256

Woodbury A.M.Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church Jeanine, 651-757-6152

Woodbury P.M.Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury Jeanine, 651-757-6152

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MINNESOTA

ExerciseStudies show exercise not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Albert LeaFamily YMCA Bill, 507-373-8228 T/W/R, 1–1:45 p.m.

AlexandriaLakes Area Recreation held at Arrowwood Resort Pool Kelly, 320-762-2868 M-F, 9–10 a.m.

BurnsvilleMinnesota Valley YMCA Sarah, 952-435-9022 T/R, 9–9:45 a.m.

Detroit LakesDetroit Lakes Community & Cultural Center Leslie, 218-844-4221 T/R, 9–10 a.m.

Eden PrairieCommunity Center Beth, 952-949-8447 M/W, 10:30–11:30 a.m.

Elk RiverFamily YMCA Kylie, 763-230-2824 T/R, 11 a.m.

Grand RapidsItasca County Family YMCA Sue, 218-327-1161 M/W/F, 9:30–10:25 a.m.

Inver Grove HeightsThe Grove Amy, 651-554-3420Shallow water T/R, 10 a.m.Deep water M/W, 7:15 p.m. Call for more options.

MankatoMankato Family YMCA Joy, 507-345-9813 W, 5–6 p.m.

MarshallMarshall Area YMCA Cindy, 507-532-9622 M, 4:30–6 p.m.

New HopeNorthwest YMCA Pauline, 763-592-5518 T/R, 11 a.m.–noon

OsakisClub Galeon Tony, 320-859-6280 T/R, 11 a.m.

PerhamCommunity Center Marie, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11–11:45 a.m.

St. CloudFamily YMCA Celeste, 320-253-2664 M/W/F, 9:30–10:30 a.m.

St. PaulJewish Community Center Stacey, 651-255-4762 T/R, 9:50–10:35 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 T/R, 10–11 a.m.

VirginiaMesabi Family YMCA Chelsea, 218-749-8020 T/R, 1–2 p.m.

WaconiaSafari Island Sara, 952-442-0695 M/W/F, 8:30 a.m.

NEW


MINNESOTA

WillmarKandiyohi County Area YMCA Christy, 320-222-9622Shallow water M-F, 8:30–9:30 a.m.Deep water M/W/F, 9:30–10:30 a.m.Shallow/deep combo M/W, 5:30–6:30 p.m.

WoodburySoutheast Area YMCA Amanda, 651-739-6589 T, 11:15 a.m.–noon.

FELDENKRAIS LESSONSFeldenkrais Method is a form of exercise that aims to reduce pain or limitizations in movement and promote general well-being.

St. Louis ParkLennox Community Center Linda, 952-928-6419 R, 6:35–7:35 p.m.

TAI CHI

MankatoV.I.N.E. Summit Center, Karen, 507-345-5262 T, 3:30–4:30 p.m.

BurnsvilleDiamondhead Education Center Linda, 651-686-0335 W, 11 a.m.–noon

YOGA

BemidjiDionne’s OM Yoga Studio Dionne, 218-766-9262 T, 8-9 a.m.; S, 9:30–10:30 a.m.

Eden PrairieEden Prairie Community Center Beth, 952-949-8447 F, 10:30–11:15 a.m.

MankatoOld Main Village Karen, 507-345-5262 T/R, 9 a.m.

MinneapolisKingsley Commons Mary, 651-690-1850 T/F, 10:30 a.m.

Uptown YWCA Lisa, 612-822-3504 T/F, Noon

St. PaulFairview MS Achievement Center Casey, 612-672-2815 T, 9-10 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 W, 10 a.m.; R, 6:30–7:30 p.m.

GROUP EXERCISE

DuluthDuluth Clinic, Fitness & Therapy Center Kelly, 218-786-5400 Low impact M/W, 10–11 a.m. Muscular strength and range of motion M/W, 10 a.m.

North OaksVillage Center Megan, 651-766-0080 M/W, 10:30–11:15 a.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

NEW

NEW

NEW

NEW


NORTH DAKOTA


MS research symposiumWednesday, June 6, 5:30–7:45 p.m.Alerus Center, 1200 42nd St. S., Grand Forks, ND

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by local MS expert Dr. Matthew Roller, neurologist at the Altru Clinic in Grand Forks. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and appetizers are from 5:30 to 6 p.m. Program is free. The registration deadline is May 31.

Grieving lost dreams. Welcoming new ones.Saturday, June 2, 9:30 a.m.–2 p.m. Ramada Plaza Suites & Conference Center, 1635 42nd St. S., Fargo, ND

Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.” Afternoon breakout sessions will address the needs of care partners as well as men and women living with MS. Lunch will be provided. Program is free. The registration deadline is May 28. See page 5 for more detail.

North Dakota programs


NORTH DAKOTA


Bismarck, MandanThird Wednesday of the month 7 p.m., Medcenter One Outpatient Services Center Judy, 701-202-4181

BottineauFirst Wednesday of the month 2:30 p.m., St. Andrews Hospital Amy, 701-228-3665

DickinsonSecond Tuesday of the month 1:15 p.m., St. Luke’s Home Tom, 701-225-5103

FargoLast Thursday of the month Noon, Country Kitchen Restaurant DeeAnne, 701-361-6915

Fargo (for newly diagnosed)First Thursday of the month 6 p.m., restaurant location varies monthly Jennifer, 218-329-0805

JamestownSecond Tuesday of the month 6:30 p.m., St. Paul’s United Methodist Church No meetings June – Aug. Denise, 701-769-2529

MinotSecond Wednesday of the month 7 p.m., No meetings June – Aug. Trinity St. Joseph’s Hospital Donna, 701-837-0824

WillistonSecond Thursday of the month 6:30 p.m., Gramma Sharon’s Restaurant LaWanda, 701-570-0194


BismarckYoga and You Brenda, 701-255-8499 W/S, 11 a.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday


SOUTH DAKOTA


Fatigue: Take controlMonday, May 7, 7 p.m.Brookings Health System, 300 22nd Ave., Brookings, SD

Fatigue is one of the most common symptoms of MS and can significantly interfere with a person’s ability to function at home and at work. This DVD presentation provides an overview of fatigue and medical management of factors that can complicate and compound MS fatigue, as well as introduces steps for making personal, proactive energy choices. To RSVP, contact Jon at 605-691-1355 or [email protected].

South Dakota programs



Bioness L300 Foot Drop System educational screeningSponsored by Bioness, Inc.

Tuesday, May 22, 8 a.m.–5 p.m.Country Inn & Suites, 200 E. Eighth St., Sioux Falls, SD Foot drop, a common symptom in multiple sclerosis, can significantly affect quality of life and degree of disability. If you experience foot drop as a result of having MS, you may be a candidate for the NESS L300 foot drop system. Learn more about foot drop and treatment options by attending this free program. To learn more or register, call 855-246-6377.


SOUTH DAKOTA


AberdeenSecond Saturday of the month 11 a.m., Mother Joseph Mano Retirement Community No meetings June – Aug. Cathie, 605-225-0724

Aberdeen SAMSFirst and third Saturday of the month 11 a.m., First United Methodist Church Lois, 605-730-1321

BrookingsFirst Monday of the month 7 p.m., Brookings Hospital No meetings June – Aug. Jon, 605-691-1355

HuronSecond Thursday of the month Time and location varies Brenda, 605-354-2783

MitchellSecond Saturday of the month 10 a.m., Zion Lutheran Church Brian, 605-770-7097

Rapid City Lunch BunchTime and restaurant varies Jolene, 605-341-7622

Sioux FallsThird Friday of the month Times vary, Avera Living Well Center Kirsten, 605-366-7440

SpearfishSecond Friday of the month 10 a.m., Spearfish Recreation Center Liz, 605-644-8921

WatertownFourth Tuesday of the month 7 p.m., Lake Area Tech Institute Tawnya, 605-881-3171 Suzanne, 605-520-5596

WinnerThird Monday of the month 6:30 p.m., United Methodist Church Doris, 605-835-8945


M= Monday T = Tuesday W= Wednesday R = Thursday F = Friday S = Saturday

Dakota DunesCenter for Neurosciences, Orthopedics and Spine Janet, 605-217-2770 Land-based strengthening M/W, 5:30 p.m.

Rapid CityFitness Plus Theresa, 605-721-5959 Adaptive yoga W, 10:30 a.m.; S, 9:30 a.m.

Sioux FallsDow Rummel Village Wellness Center Melissa, 605-575-0193Water walking, Neuro Fit, Aqua Chi and Adaptive Yoga


ANYWHERE

AdvocacyWith legislators back in their home districts, now’s the perfect time to make an impact. Learn about your local candidates and, if you get the opportunity, talk to them about MS and the concerns of people affected by the disease. Here are a few things you can do:

n Spring and summer are perfect for having picnics, attending community festivals and chatting with neighbors. Your legislators and other elected officials are often at these events, too! Take a moment to introduce yourself and share your personal story.

n Keep your eye on local news to learn when your legislator is holding town hall meetings or participating in candidate forums. Attend these events and raise issues that are important to you.

The National MS Society, Upper Midwest Chapter is looking for volunteers chapterwide to be leaders in their communities. Contact Jenna at 612-335-7981 or [email protected] to get involved or learn more.

Knowledge is PowerKnowledge is Power is a free, at-home educational series for people who are newly diagnosed and their family members. The multi-week program provides literature with up-to-date information about multiple sclerosis. To learn more or participate, call 800-582-5296 (option 1).

Mentor ProgramThe Mentor Program pairs people with MS with others living with the disease or with people who know a great deal about it. The Mentor Program can also match care partners with others who can relate to their experiences. Enjoy a one-on-one connection — over the phone, email or in person — with someone who understands the challenges of the disease. To learn more or participate, contact Connie at 612-335-7964 or [email protected].

MS Learn OnlineMS Learn Online, a Society internet program, is a convenient way to learn about multiple sclerosis. View new or archived programs on a wide variety of topics such as information for people newly diagnosed, basic facts about MS, symptom management, employment, intimacy, care partners, progressive MS and more. Registration is not required.

To view a listing of topics and links, visit MSsociety.org and search “MS Learn Online.”

Anywhere programs


ANYWHERE

Midwest Teleconference SeriesEach month, an MS specialist provides up-to-date information on a specific topic in a one-hour teleconference format. Empower yourself with education from the comfort of your own home for free. To learn more or register, visit MSsociety.org and search “Midwest Teleconference Series;” or call 800-582-5296 (option 1).

Monday, May 14, 2012, 7–8 p.m. CT “Me, Myself and I: The Art of Being Your Own Care Partner” with Marcia Finlayson, Ph.D., O.T.(C.), O.T.R./L., and Kathy Preissner, M.G.S., O.T.R./L.

Monday, June 11, 2012, 7–8 p.m. CT “Give Yourself A Hand: Tools for Everyday Life” with Tabatha Sorenson, O.T.D, O.T.R./L.

Monday, July 9, 2012, 7–8 p.m. CT “The Cycle of MS Symptoms and their Effect on Bowel and Bladder” with Colleen Berding, R.N.

Monday, Aug. 13, 2012, 7–8 p.m. CT “Spasticity: What’s Under Your Control” with Dr. Arthur Itkin

Monday, Sept. 10, 2012, 7–8 p.m. CT “MS: What a Pain” with Heidi Maloni, Ph.D, A.N.P.-B.C., M.S.C.N.

MS ConnectionMake meaningful connections and access the most up-to-date resources.

Multiple sclerosis destroys connections. It disconnects the mind from the body and people from each other. But what if we could defy this disease with the very thing it seeks to destroy: Connections. Would we share more knowledge? More questions? More answers? More hope? Maybe, by connecting enough small victories, we could win some really big ones.

MS Connection — a new online community that is all about making meaningful connections when, where and how you want

— provides easy access to the best content and resources the MS community can bring you. You’ll learn about the topics that are most important to you, connect with people you want to connect with, and have expert MS information right at your fingertips.

Visit MSconnection.org, complete your community profile, find new connections, join and start groups and discussions and more.

If you have any questions, please contact us at [email protected].

MS KILLSCONNECTION

CONNECTIONKILLS MS

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The National MS Society addresses the challenges of each person whose life is affected by MS and helps them stay independent and connected. The services and financial assistance programs listed below are available at any time to any person with a clinical diagnosis of multiple sclerosis who’s registered with the Upper Midwest Chapter.

For more information or an application for the services below, call 800-582-5296 (option 1).

ResourcesMS Navigators

Meet the Upper Midwest Chapter’s MS Navigators® — social workers who can help guide you through the many obstacles that can result from an MS diagnosis. This includes understanding health insurance; finding affordable, accessible housing; guiding you through the process of applying for Social Security benefits; and more. Navigators will support you from diagnosis through all the various changes that occur as you move forward living with MS.

Lending LibraryThe National MS Society provides access to accurate, current and comprehensive information for people with MS, for free! Browse books, videos, DVDs and audio recordings. We mail any library items you choose. Even returning your library materials is easy; we prepay the postage! To view items in the chapter library, visit MSsociety.org and click “Lending Library” in the left-hand navigation. To request library materials, call 800-582-5296 or email [email protected].

Resources and financial assistance

Heather Svenson, Services and Care

Management Director

Sarah Danen, Associate Vice President

of Client Services

Jill Parkinson, Senior MS Navigator

Laurie Taschler, MS Navigator

RESOURCES AND SERVICES



Equipment loan programShort-term loans for various types of medical equipment and devices. “Try out” equipment before making an important purchase or simply borrow equipment to address a temporary need related to the unpredictable nature of MS. Equipment and devices include (but are not limited to): manual and power wheelchairs, hospital beds, patient lifts, walkers, scooters and shower chairs.

MS ClassifiedsA virtual marketplace to buy, sell and donate mobility and assistance devices. The National MS Society, Upper Midwest Chapter does not endorse or guarantee any products or services listed on this website. Visit MSClassifieds.org to place your item for sale or to donate. If you’re interested in acquiring an item on MSClassifieds.org, you must contact the seller directly.

Phone consultationsFree and by appointment only. Call 800-582-5296 to schedule an appointment. Consultations include: family attorney consultations; employment consultations; tips on interviewing, resumes and more; employment discrimination/private disability consultations; and financial planning consultations.

Newly diagnosed consultations: Call 612-335-7938 to schedule a face-to-face or phone consultation with an MS Navigator®. Some evening and Saturday times are available.

Financial assistanceThe Upper Midwest Chapter provides financial grants that can assist with securing medical equipment, daily living aids, funds for household chores, counseling, emergency assistance and more. If you have a request for financial assistance and are unsure if it would be covered, please call 800-582-5296 (option 1).

Adaptive equipment/home and vehicle modification grant Financial assistance for home and vehicle modifications; medical equipment (wheelchairs, scooters, batteries, etc.); air conditioning units, walkers, exercise equipment; and transfer aids such as stair glides, electric lifts and urological products. The grant can assist with a maximum of $1,500 per person per fiscal year*.

*Fiscal year: Oct. 1 – Sept. 30



Aids for daily living grantFinancial assistance to help purchase non-medical devices to simplify basic daily living. Eligible items include (but are not limited to): dressing aids, household aids, cooling products, personal care/grooming aids, kitchen/eating aids, low vision aids, recreational aids, e-Readers (Kindle, Nook), walkers with brakes/seats, etc. The grant can assist with a maximum of $200 per person, per fiscal year*.

Care partner relief grantFinancial assistance to provide temporary relief or respite for care partners and family care providers of people with MS, allowing the care provider to rest/relax or attend to short-term personal or business matters. The grant can assist with a maximum of $1,500 per person, per fiscal year*.

Chore services grantFinancial assistance for small household chores, light meal preparation, laundry assistance, routine yard maintenance, snow removal, housekeeping/cleaning and essential errands — helping people with MS remain independent and in their own homes. The grant can assist with a maximum of $750 per household, per fiscal year*.

Counseling assistance grantFinancial assistance for fees and/or co-pays for counseling with a mental health counselor or therapist. The program can assist with a maximum of $750 per person, per fiscal year*.

Driving evaluation and training grantFinancial assistance to help cover the cost of a driving evaluation or training. The grant can assist with a maximum of $500 per person, per fiscal year*.

Emergency financial assistanceFinancial assistance for emergency needs such as help with rent or mortgage payment or utility bill. Assistance is NOT available for medications, medical bill expenditures, credit card bills, taxes or for reimbursement of bills already paid by the person with MS. The grant is a one-time grant with a maximum of $500 per household.



ANYWHERE

Medical transportation grantFinancial assistance to help with costs of transportation to medical appointments. The scholarship can assist with a maximum of $250 per person, per fiscal year*.

Physical/occupational therapy home assessment grantLimited financial assistance to pay for a licensed physical or occupational therapist to evaluate your home for needed modifications, recommend medical equipment and provide general recommendations for making your home more accessible to accommodate your day-to-day needs. The grant can assist with a maximum of $500 per person, per fiscal year*.

Scholarship programWe believe MS should not stand in the way of an education. The National MS Society Scholarship Program helps students affected by MS pursue a post-secondary education. Enrollment for the Scholarship Program is typically open from October to January each year.



Investing now is a promising way to ensure a secure financial future. Why not invest in a future free from MS at the same time? Through a charitable gift annuity with the National MS Society, you can make a gift that pays you a fixed amount each year for life and offers great tax benefits.

Join the Movement®

Make a charitable gift annuity to the Society today. For more information, contact Shannon at 612-335-7928 or [email protected].

Tracey, diagnosed in 2005.

INVEST IN YOUR FUTURE. INVEST

IN OURS.

We’re here to help you move forward

We know an MS diagnosis challenges people physically, mentally and emotionally. But there can also be unexpected financial challenges that come with this disease. That’s why the National MS Society, Upper Midwest Chapter offers a variety of financial assistance programs to help you and your family move forward — in spite of MS.

We’re here to help. To learn more, see page 29 or call 800-582-5296 (option 1).

programs & resources guide, spring 2012

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