pulse oximetry screening for detecting critical congenital heart disease

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© The Children's Mercy Hospital, 2014. 03/14 Critical Congenital Heart Disease (CCHD) Meagan Dorton, MSN, MBA, RN-CPN Pulse Oximetry Screening for Pulse Oximetry Screening for Detecting Detecting

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© The Children's Mercy Hospital, 2014. 03/14

Critical Congenital Heart Disease (CCHD)

Meagan Dorton, MSN, MBA, RN-CPN

Pulse Oximetry Screening for Pulse Oximetry Screening for DetectingDetecting

© The Children's Mercy Hospital, 2014. 03/14

What is the prevalence of babies born with a Congenital Heart Defect?

3.3% 1% 0.1

%0.03%

0% 0%0%0%Data & Statistics. (2014, October 20). Retrieved March 18, 2015, from http://www.cdc.gov/ncbddd/birthdefects/data.html

A. 3.3%

B. 1%

C. 0.1%

D. 0.03%

© The Children's Mercy Hospital, 2014. 03/14

Prior to CCHD screening recommendations, approximately how many babies per year were

discharged with an unrecognized CCHD?

A. 280

B. 170

C. 520

D. 96

280

170

520 96

0% 0%0%0%

© The Children's Mercy Hospital, 2014. 03/144

© The Children's Mercy Hospital, 2014. 03/145

Laws and RegulationsLaws and Regulations

• Missouri– Chloe’s Law

– http://health.mo.gov/living/families/genetics/birthdefects/doc/cchdreportingform.doc

• Kansas– Quality initiative program

• Nationwide– 37 states have passed a law or

regulation (CDC)

– Many hospitals have chosen to screen even if states don’t require it

© The Children's Mercy Hospital, 2014. 03/146

StatisticsStatistics

• KDHE (information current as of 9/19/2014)– 94.8% of babies in KS currently being screened prior to

discharge

– 84% of birthing facilities in KS currently screening for CCHD

– 47% of birthing facilities reporting CCHD screens to KDHE

– 500 screens reported since May 2014Critical Congenital Heart Defects. (n.d.). Retrieved March 4, 2015, from http://www.kdheks.gov/newborn_screening/CCHD.htm

© The Children's Mercy Hospital, 2014. 03/14

What is the estimated cost of screening for CCHD?

A. $14

B. $20

C. $36

D. $72

$14

$20

$36

$72

0% 0%0%0%

© The Children's Mercy Hospital, 2014. 03/148

ObstaclesObstacles• Cost

• Time

• Education

• Resources

http://www.childrensmercy.org/library/uploadedFiles/childrensmercyorg/Clinics_and_Services/Clinics_and_Departments/Neonatology/20140319_Pulse%20OX%20toolkit.pdf

© The Children's Mercy Hospital, 2014. 03/149

ResourcesResources• 1-877-Pulse Ox (1-877-785-7369)

– Consultation

– Remote evaluation

• Education and Training– Onsite ECHO

– Training materials for nursing staff

• http://www.childrensmercy.org/PulseOx/

© The Children's Mercy Hospital, 2014. 03/1410

ReferencesReferencesCongenital Heart Defects: Current Research Activities. (2014, June 25). Retrieved March 4, 2015, from

http://www.cdc.gov/ncbddd/heartdefects/current-research.html

Critical Congenital Heart Defects. (n.d.). Retrieved March 4, 2015, from http://www.kdheks.gov/newborn_screening/CCHD.htm.

Critical Congenital Heart Disease. (n.d.). Retrieved March 4, 2015, from http://health.mo.gov/living/families/genetics/birthdefects/cchd.php.

Data & Statistics. (2014, October 20). Retrieved March 18, 2015, from http://www.cdc.gov/ncbddd/birthdefects/data.html

Knapp, A., Metterville, D., Kemper, A., Prosser, L., & Perrin, J. (2010, September 3). EVIDENCE REVIEW: Critical Congenital Cyanotic Heart Disease. Retrieved March 18, 2015, from http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/nominatecondition/reviews/cyanoticheart.pdf

Newborn Screening for Critical Congenital Heart Disease (CCHD)-2014 State Actions. (2014, October 20). Retrieved March 4, 2015, from https://www.aap.org/en-us/advocacy-and-policy/state-advocacy/Documents/2014%20CCHD%20Newborn%20Screening%20Bills,%20Regulations,%20and%20Executive%20Orders%20-%20AAP%20Division%20of%20State%20Govt%20Affairs.pdf.

Peterson C, Ailes E, Riehle-Colarusso T, et al. Late Detection of Critical Congenital Heart Disease Among US Infants: Estimation of the Potential Impact of Proposed Universal Screening Using Pulse Oximetry. JAMA Pediatr. 2014;168(4):361-370. doi:10.1001/jamapediatrics.2013.4779.

Peterson C, Gross SD, Glidewell J, Garg LF, Van Naarden Braun K, Knapp MM, Beres LM, Hinton CF, Olney RS, Cassell CH. A public health economic assessment of hospitals’ cost to screen newborns for critical congenital heart disease. Public Health Rep. 2014;129(1):86-93.