Quarterly Newsletter Volume 10; Issue 5 July 2012

Inside This Issue:

KPFC Updates 2

Dates to Remember 3

Obsessive-Compulsive Disorder 4

School-Age Children Spotlight 6

Early Childhood Spotlight 6

Transition-Age Youth Spotlight 7

KPFC Dads 7

Youth Leadership Award Winners 8

KPFC’s Youth/Parent Conference 9 KPFC’s vision is that all families

raising youth and children affected by behavioral health challenges will achieve their fullest potential.

KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change.

KPFC 207 Holmes Street

Frankfort, KY 40601 PHONE: (502) 875-1320 FAX: (502) 875-1399

TOLL FREE : (800) 369-0533 Website: www.kypartnership.org email: kpfc@kypartnership.org

KENTUCKY PARTNERSHIP FOR FAMILIES AND CHILDREN, INC.

Assisting Children and Youth with Behavioral Health Challenges

The Kentucky Family Leadership Academy September 14-16, 2012

KPFC’s Leadership Academy focuses on helping emerging leaders learn how to use their voice for making change occur for themselves and their communities. This training is free and is for parents/primary caregivers of children with emotional, behavioral, mental health, and/or substance use disabilities AND young adults (16-24 years old) with emotional, behavioral, mental health and/or substance use disabilities. The goals of the Leadership Academy are to: Strengthen the parent’s and

youth’s current leadership skills, Help the parents and youth to

become more comfortable sharing their story in an appropriate manner,

Increase the parent’s and youth’s ability to become leaders in their communities, and

Build understanding with the parents and youth of what a “family-driven” and “youth-guided” System of Care looks like and what their role is in creating it in their communities.

Contact KPFC at (800)369-0533 or janet@kypartnership.org to register.

Visit KPFC’s website at www.kypartnership.org for more information about what we do or to sign up to receive our quarterly newsletter. Also, visit us on Facebook to share your thoughts!

KPFC’s Board of Directors

Officers: Jim Reed-Chair, Adanta Region Michelle Hickman-River Valley Region Teresa Howard-Secretary,Cumberland River Region Tim Bailey-Vice-Chair, Dept. for Juvenile Justice Patty Dempsey-Treasurer, Advocacy Agency Honorary Board Members: Phillip Patton, Sr., Warden, St. Andrews Episcopal Church Colonel Robert E. and Mrs. Cora Jane Spiller, Glasgow, KY Board Members: Beki Blevins-FIVCO Region Eve Cates-Four Rivers Region Ken Cude-Private Child Care Facility Michael Denney-Office of Family Resource and Youth Services Kerry Goodman-LifeSkills Region Theresia Gray-Northern Kentucky Region Steve Liles-Bluegrass West Region Renita Murphy-Seven Counties Salt River Region Shaun Murphy-Kentucky Dept. of Education Calvonia Radford-Department for Public Health Allie Caleb Rigsby-Youth Representative-FIVCO Region Peggy Roark-Bluegrass East Region Capplin Sadler-Youth Representative, Salt River Region Heidi Schissler Lanham-Protection & Advocacy Christy Sheridan-Seven Counties Jefferson Region Sarah Weiler-Military Parent Representative Sonya Westerman-River Valley Region Brad Williams-Youth Representative, Northern KY Region Lonnie Williams-Pennyroyal Region Anna Winchell-Lincoln Trail Region Gayle Yocum-Department for Community Based Services

STAFF: Carol W. Cecil, Executive Director Laura Beard, SEED Lead Family Contact Janet Boughter, Training Coordinator Mary Chicoinesmith, Office Support Staff Patti Elam, Regional Family Contact Barbara Greene, Project Coordinator Julie Neace, Regional Family Contact Amanda Peay, Regional Family Contact Carmilla Ratliff, Youth Empowerment Specialist Kate Tilton, Program Coordinator Joy Varney, Associate Director

KPFC is supported by grants from the Substance Abuse and Mental Health Services Administration, the Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities, Kentucky System to Enhance Early Development, and by private and agency donations.

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Big News for KPFC and Kentucky!

Kentucky Partnership for Families and Children, Inc. would like to congratulate Carol Cecil, Joy Varney and Barbara Greene on successfully passing the National Peer Support Provider certification! The Certification Commission of the National Federation of Families for Children's Mental Health is the only national certification program for parents who assist other parents who have children experiencing emotional, developmental, behavioral, substance use, or mental health concerns. The Certification Commission of the National Federation of Families for Children’s Mental Health is composed of people involved in the field of parent and peer support and volunteers to guide and administer all aspects of the CPSP certification program. Thirty-four parent leaders across the country completed this first computer-based pilot exam in April 2012. The certification exam focused on ten domains of competency: 1. Ethics 2. Confidentiality 3. Effecting Change 4. Behavioral Health Information 5. Education Information 6. Communication 7. Parenting in Advocacy 8. Advocacy in Multiple Systems 9. Empowerment 10. Wellness and Natural Supports Congratulations to Carol, Joy and Barbara!

For more information, visit the Federation’s website at www.ffcmh.org.

Thank you to Dr. Tim Bailey for his generous contribution to KPFC!

Please Help! KPFC holds Silent Auctions throughout the year at events such as the KY Family Leadership Academy in order to raise much needed funds for our nonprofit organization. If you have an item that you would like to donate for our baskets, please contact us at (800)369-0533. Thank you!

Victory Over Violence July 10-12 This year’s conference, sponsored by the Family Resource and Youth Services Centers, will be held in Lexington, KY. For information visit: http://chfs.ky.gov/dfrcvs/frysc/training.htm or call (859)333-4209.

Bluegrass Autism Walk 2011 July 14 This year's 2K walk will be held at Keeneland Race Course in Lexington. For more information and to register, please visit www.asbg.org.

KY-SPIN Parents Educating Parents July 28 KY-SPIN presents PEP (Parents Educating Parents) Talk in Owensboro. The workshop will include information on advocating for your child, building partnerships, Special Education information, and much more! Contact KY-SPIN at (800)525-7746 or email spininc@kyspin.com to reserve your spot.

NAMI KY Annual Conference July 28 The National Alliance on Mental Illness (NAMI) will be holding their annual conference this year at Christ Lutheran Church in Louisville. Contact NAMI KY for more information namiky@bellsouth.net or (800)257-5081.

Infant Toddler Institute Aug 8-9 The Institute will be in Lexington and is designed to bring families, professionals and paraprofessionals together to learn about quality services for infants and toddlers with and without special needs. For more information call (859)257-1267 or email cau222@uky.edu.

KY Prevention Network Conference Sept 5-7 Partnerships: Exploring New Possibilities—This conference will be held in Lexington and will focus on substance abuse prevention. Go to www.kentuckypreventionnetwork.org to access the registration form.

KY Family Leadership Academy Sept 7-9 This training is for parents/primary caregivers of children with emotional, behavioral, mental health, and/or substance use disabilities AND young adults (16-24 years old) with an emotional, behavioral, mental health and/or substance use disabilities. Contact the KPFC office for more information.

Kids Are Worth It! Sept 10-11 This annual child abuse and neglect prevention conference will be held at the Lexington Convention Center. For more information, contact Prevent Child Abuse Kentucky at (800) CHILDREN (244-53736) or www.pcaky.org

Regional Parent-Professional Conference Sept 15 This conference, held in Murray, will offer many great workshops for parents, teachers, therapist, and other professionals on topics related to children with special needs. You can register for the conference at www.mywkec.org or call Rhonda Logsdon at KY-SPIN (800)525-7746.

Y.E.S. (Youth Empowerment Summit Sept 22 Youth are invited to attend this summit where they will use their voice to make a difference, learn how available services can support their transition to self sufficiency, and help create change for young people growing up in the system. This summit is especially for youth who are aging out of foster care, but all youth are welcome and encouraged to attend. Contact Pro-tection and Advocacy for details at (800)372-2988.

Early Childhood Family Conference Oct 12-14 The Early Childhood Family Network will offer a special conference in Lexington for parents and caregivers of young children 0-5 years of age with emotional and behavioral issues. This conference is free. There is no cost for lodging or food. Childcare will be provided. Parents and caregivers will have the opportunity to speak with physicians and therapists, connect to resources, and learn new tools for working with their child. Contact Laura at KPFC for more information (800)369-0533 or laura@kypartnership.net. This conference is being sponsored by KPFC, KY SEED, and Public Health.

Dates to Remember

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Obsessive-Compulsive Disorder Fact Sheet

Obsessive-compulsive disorder (OCD) has a neurobiological basis. This means it is a biological disease of the brain, just as diabetes is a biological disease of the pancreas. OCD is not caused by bad parenting, poverty, or other environmental factors.

Children with OCD may have obsessive thoughts and impulses that are recurrent, persistent, intrusive, and senseless—they may, for instance, worry about contamination from germs. They may also perform repetitive behaviors in a ritualistic manner—for example, they may engage in compulsive hand washing. An individual with OCD will often perform these rituals, such as hand washing, counting, or cleaning, in an effort to neutralize the anxiety caused by their obsessive thoughts.

OCD is sometimes accompanied by other disorders, such as substance abuse, attention deficit/hyperactivity disorder, eating disorders, or another anxiety disorder. When a student has another disorder, the OCD is more difficult to treat or diagnose. Symptoms of OCD may coexist or be part of a spectrum of other brain disorders such as Tourette’s disorder or autism.

Research done at the National Institute of Mental Health suggests that OCD in some individuals may be an auto-immune response triggered by antibodies produced to counter strep infection. This phenomenon is known as PANDAS.

Students with OCD often experience high levels of anxiety and shame about their thoughts and behavior. Their thoughts and behaviors are so time consuming that they interfere with everyday life.

Children who show symptoms of OCD should be referred for a mental health assessment. Behavior therapy and pharmacological treatment have both proven successful in the treatment of this disorder.

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Symptoms or Behaviors Unproductive time retracing

the same word or touching the same objects over and over

Erasing sentences or problems repeatedly

Counting and recounting objects, or arranging and rear-ranging objects on their desk

Frequent bathroom trips Poor concentration School avoidance Anxiety or depressed mood

Common compulsive behaviors: • Cleaning and washing • Hoarding • Touching • Avoiding • Seeking reassurance • Checking • Counting • Repeating • Ordering or arranging

Common obsessions: • Aggression • Contamination • Sex • Loss • Religion • Orderliness and symmetry • Doubt

Educational Implications Compulsive activities often take up so much time that students can’t concentrate on their schoolwork, leading to poor or incomplete work and even school failure. In addition, many students with OCD find verbal communication very difficult. Students with OCD may feel isolated from their peers, in part because their compulsive behavior leaves them little time to interact or socialize with their classmates. They may avoid school because they are worried that teachers or their peers will notice their odd behaviors. If asked “why” a behavior is repeated, many students say, “It doesn’t feel right.”

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Instructional Strategies and Classroom Accommodations Try to accommodate situations and behaviors that the student has no control over. Educate the student’s peers about OCD. Be attentive to changes in the student’s behavior. Try to redirect the student’s behavior. This works better than using “consequences.” Allow the student to do assignments such as oral reports in writing. Allow the student to receive full credit for late work. Allow the student to redo assignments to improve scores or final grades. Consider a Functional Behavioral Assessment (FBA). Understanding the purpose or function of the stu-

dent’s behaviors will help you respond with effective interventions and strategies. For example, a puni-tive approach or punishment may increase the student’s sense of insecurity and distress and increase the undesired behavior.

Post the daily schedule in a highly visible place so the student will know what to expect. Consider the use of technology. Many students struggling with OCD will benefit from easy access to

appropriate technology, which may include applications that can engage student interest and increase motivation (e.g., computer-assisted instruction programs, CD-ROM demonstrations, as well as videotape presentations).

How Do You Offer Support To Your Chi ld? Maybe one of the most effective ways of showing support is by listening. Simple as it may sound, this will offer your child some comfort and make them feel less isolated in this. But remember that not all children will be as open as to come to their parents, in this case just let them know you are there for them, without judging. Remember they are also being helped by their psychologist and so they will always have a place to go to to share their thoughts.

Being their parent doesn't mean you also can or should become their psychologist. It isn't easy to see your child go through this but they will have to find their own personal way and this may mean confiding in you less than in their psychologist. This is one reason why finding adequate professional help is so crucial, because it allows your child to always have a place to go to to discuss the more difficult stuff. Stuff which may be too personal even to talk to a parent about.

But, leave the door to communication open to them. Get some booksgeared toward parent’s concerning OCD and buy some for your child to read as well. There are a few books that are tailored to kids and depending on the age, you as a parents will be playing an active role into reading the book.

Also acknowledge the improvements they make, however small they may be. Getting positive feedback for the efforts they are making will definitely help them to stay on the right track. Another important aspect of offering support to a Child with OCD is to involve the entire family in this. This means that everyone should be properly informed about what OCD means so it becomes easier to distinguish what behavior is part of OCD and what behavior is simply the child being a child. Avoid criticizing the child when in fact it's the OCD which is causing the problem.

Last point that needs to be made is that keeping the family routine going is important. Structure is important as it will make it harder for the OCD to take the upper hand. While you should show understanding to your kid having OCD, you should not create a life that is built around the OCD.

This Fact Sheet has been provided by the Minnesota Association for Children’s Mental Health. Visit their website at www.macmh.org for a copy of this fact sheet and many more.

"Intro to OCD." Understanding Obsessive Compulsive Disorder. N.p., n.d. Web. 26 June 2012. .

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Early Childhood Spotlight It’s summer! The smell of fresh cut grass, sound of crickets in the evening, taste of fresh watermelon, feeling of pool water being splashed and the big fluffy clouds on a blue sky day are all things most of us experience during this time of year. Many young children crave the need to touch, taste, smell, see and hear the things around them. Letting your child explore is healthy for the mind and body. Here are some simple things to do with your child this summer to help reinforce their sensory experience.

Touch- Texture paintings, walking barefoot on different surfaces, planting flowers Taste- Try freezing some of your favorite fruit into popsicles, picnics, ice cream and snow cone making Smell- Outdoor smell scavenger hunt (put items from outside in separate bags, have children close

their eyes and try to guess the smell….grass, flowers, bugs, pool water etc) Sight- Help children learn to take pictures of things in nature, play games like I spy while on long car

rides Sound- Ask children what they hear at dusk, at the fair, early of the morning, in the neighborhood.

Have them stop for a second to tease out those different sounds and identify them.

School-Age Spotlight IEP Tips: What to Do at an IEP Meeting

by Anne Eason, Esq. and Kathleen Whitbread, Ph.D. Are you overwhelmed or intimidated at IEP meetings? Are your confused about your parental role? Professionals who attend IEP meetings often provide so many rules, regulations, policies, and assessment results that parents leave IEP meetings feeling overwhelmed and inadequate.

These IEP tips are strategies you can use to be a more effective, advocate participant in the IEP process for your child. The strategies offer common sense approaches about how to effectively advocate for your child, while learning how to provide input and build positive relationships with the school personnel who work with your child.

Having friends and being a friend are important for your child's development. These tips are also designed to insure that your child is successfully included in the neighborhood school and enjoys after-school community activities.

Bring food, or at least bottled water to the meeting. At the end of the meeting, leave any leftover food for the staff to enjoy. You are a full & equal member of the IEP team. Don’t be afraid to take charge. See your role as equally important as the educational professionals. Don’t allow yourself to get into a “them versus me” situation. Be an active listener. Make sure you make eye contact with people as they are speaking. Give each speaker your full attention. Allow people to finish their thoughts before speaking up. Don’t fidget. Make sure your child’s IEP goals are SMART. In the corporate world, business goals are SMART, which means they are Specific, Measurable, use Action words, are Realistic, and Time specific. If you don’t understand what is being said or proposed, ask the Team to clarify. Ask members to explain what acronyms and educational jargon means. Bring your child to the IEP meeting. If you feel it is inappropriate for the child to stay for the entire meeting, bring her for part of the meeting. Consider inviting other students to the IEP meeting. Kids often have great ideas on how to support other students. Of course, your child needs to be okay with this.

(for the full article, visit http://www.wrightslaw.com/info/iep.tips.eason1.htm)

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KPFC Dads Spotlight FATHER FACTS FROM Fathers Matter

Published by Parenting Research Centre © Parenting Research Centre 2009

A father’s affection literally makes your baby grow. When you show your baby affection, you set off a train of events that literally grows your baby’s brain. It’s like photosynthesis and you are the sun! It works like this. When you cuddle or even smile at your baby, a natural feel-good chemical (neuropeptide), which plays a key role in our emotional life, is released in your baby’s brain (prefrontal cortex). As well as making baby feel good, this chemical helps build connections between nerve cells, thus stimulating brain development. At the same time, another chemical (dopamine) is released in the brain stem that helps brain cells take up energy (in the form of glucose), so helping new tissue to grow.

Fathering is good for you. Any father will tell you that fatherhood has many joys and rewards. In addition, it turns out that fathering may be good for your own development as a person. Researchers have found links between fatherhood and better self-understanding and awareness of others, as well as positive community involvement. You are good for your kids, but it seems your kids are good for you too.

According to a recent online survey, 38% of fathers read to their children every day.

A father’s warmth and physical affection from fathers is associated with higher self-esteem and fewer social and emotional problems in their children.

The Dad’s Movement Kentucky Partnership for Families and Children, Inc. will be hosting a Dad’s Leadership event during Fall 2013 to prepare dads raising children with behavioral health challenges to facilitate dad support groups in their communities. If you are interested in volunteering your time and talent to leading a dad’s support group and want to attend this training, contact Carol at cwcecil@kypartnership.org.

Transition-Age Spotlight

Tool for Youth to Make Decisions About Medications - Youth and young adults sometimes feel that they don't have good information about their medications and/or that they are not participating fully in decisions about their medications. This new tool can help. Visit http://www.samhsa.gov/consumersurvivor/sdm/DA_files/PDFs/CT_Side_effect_chart.pdf to access this great tool!

Winning Essays on Bullying - Nicholas Krisotf of the New York Times hosted an essay contest; read the winning essays on his blog. Go to http://kristof.blogs.nytimes.com/2012/05/16/winning-student-essays-on-bullying/ to read these powerful essays.

Your Life Your Voice - Online support for teens and young adults facing overwhelming challenges. Go to www.yourlifeyourvoice.org or call toll free at (800)448-3000. You don’t have to face your problems alone, counselors are available 24/7.

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The Patricia Ratliff Youth Leadership Award

Patricia Ratliff was a founding member of KPFC. Patricia first began advocating for others when she tried to find services for her own children. Later, Patricia wanted to use her experience to help others, and served as the Parent Representative on the FIVCO RIAC for many years. She was actively involved in providing training and consultation for families and professionals. Later, she became the first Family Liaison hired in the state and continued her advocacy and work on behalf of Kentucky's children with serious emotional disabilities and their families.

During her last year, Patricia felt strongly that KPFC should present an award to a Youth Council member who demonstrated strong leadership skills and consistent dedication to reducing the stigma of children's mental health issues. With this in mind, the Kentucky Partnership for Families and Children established the Patricia Ratliff Youth Leadership Award fund in her memory.

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Kiersten Parker is the recipient of the 2012 Patricia Ratliff Youth Leadership Award for an outstanding Statewide Youth Council member. Kiersten joined the youth council in 2009 and has been a dedicated and active member. She is a leader on the council and is always in attendance at meetings and events. She is also very active in her own community and advocates for youth empowerment and leadership. Kiersten is always willing to share her story with others and knows that her voice is important. She is always willing to volunteer and help out. Kiersten is a youth trainer for Trauma Informed Care and has served as a speaker and advocate at many events. Kiersten is also a very caring person and willing to help anyone who needs her advice. She is respectful and kind. She is great at cheering others up who are in a rough space and has made a huge impact on many people’s lives. Congratulations Kiersten!

Johnny Embry is the recipient of the 2012 Patricia Ratliff Youth Leadership Award for an outstanding Regional Youth Council member. Johnny currently serves as a leader for his Regional Youth Council in the Adanta region. He attends all meetings held and actively participates in event planning, food prep, clean up and overall promotion and marketing of the council. Johnny will often take it upon himself to talk to peers at school and in the community about the youth council and the benefits of participation. Johnny is a role model for other youth council members. He encourages other youth to do their best no matter the odds. Johnny is hard-working and driven to help others. Odds have been against him to succeed, but he has risen to the challenge and now is on his way to soar with the eagles. Johnny’s strength makes him a winner, not just for this award but for life! Congratulations Johnny!

Last year’s recipient, Capplin Sadler, presents Kiersten Parker with the award for outstanding Statewide Youth Council member.

Stephanie Carter presents Johnny Embry with the award for outstanding Regional Youth Council member.

The Eighth Annual KPFC Youth/Parent Conference

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Thank you! KPFC would like to thank everyone who helped to make this year’s Seventh Annual Youth/Parent Conference a success! A special thank you goes to the Statewide Youth Council, all of our volunteers, our great workshop presenters, and the amazing parents and youth who attended this year’s conference. KPFC would also like to recognize the following organizations for their donations to our conference, and for their dedication to families of children with mental health challenges: Substance Abuse Mental Health Services Administration (SAMHSA), Cabinet for Health & Family Services, Kentucky’s System to Enhance Early Development (KY SEED)

The KPFC Statewide Youth Council Music Therapy instructor Robert Kelley leads a youth drum circle performance for parents.

Best youth 80’s costume Brandon Kelley

This year’s conference was a great success with 57 youth and 45 parents in attendance. Youth had the opportunity to participate in drama therapy, music therapy, and adventure-based therapy. KPFC Statewide Youth Council members led a workshop for youth that included information on stress and anger reduction. On Saturday night, families and youth attended an 80’s themed dance party. Thank you to everyone who supported this year’s conference!

Best adult 80’s costume Barb Greene

You can make a difference for children and their families by supporting

Kentucky Partnership for Families and Children, Inc. Easy Ways to Help KPFC

Purchase a $5 Kroger gift card for $5. Use this Kroger card as a Kroger debit account. All of the purchases you make on this card, Kroger donates 4% of your amount to KPFC. Contact KPFC’s office to obtain a Kroger card.

Make a cash donation in the amount of:

$10 $15 $25 $50 Other

Make a donation in memory or in honor of a loved one. Amount enclosed: $25 $50 Other ___In honor of ______________________ OR ___In memory of _______________________ If you are a state employee, you can write KPFC in on your Kentucky Employee Charitable Campaign application; this will allow you to donate a small amount out of each paycheck to KPFC. For more information about how to include KPFC in your will, contact the KPFC office.

Please send this form along with your check or money order payable to KPFC to: KPFC, 207 Holmes Street, First Floor, Frankfort, KY 40601

Your donations are tax deductible!

Kentucky Partnership for Families and Children, Inc. 207 Holmes Street, First Floor Frankfort, KY 40601

KPFC207 Holmes StreetFrankfort, KY 40601KPFC’s Board of DirectorsDates to Remember

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