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Report by David Kidd B.Pod., MPH, MHM, CHIA 2018 The Sir William Kilpatrick Churchill Fellowship To improve the quality of care of older people in our health system. Awarded by The Winston Churchill Memorial Trust I understand that the Churchill Trust may publish this report, either in hard copy or on the internet or both, and consent to such publication. I indemnify the Churchill Trust against any loss, costs or damage it may suffer arising out of any claim or proceedings made against the Trust in respect of or arising out of the publication of any Report submitted to the Trust and which the Trust places on the website for access over the internet. I warrant that my Final report is original and does not infringe the copyright of any person, or contain anything which is, or the incorporation of which into the Final Report is actionable for defamation, a breach of any privacy law or obligation, breach of confidence, contempt of court, passing off or contravention of any other private right or of any law. Signed: Date: 16 August 2019

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Page 1: Report by David Kidd · • Dr Kathleen Brasher for her ongoing considered and thorough support, connection, networks, encouragement, clarity and assistance throughout the ... •

Report by

David Kidd B.Pod., MPH, MHM, CHIA

2018 The Sir William Kilpatrick Churchill Fellowship

To improve the quality of care of older people in our health system.

Awarded by The Winston Churchill Memorial Trust I understand that the Churchill Trust may publish this report, either in hard copy or on the internet or both, and consent to such publication. I indemnify the Churchill Trust against any loss, costs or damage it may suffer arising out of any claim or proceedings made against the Trust in respect of or arising out of the publication of any Report submitted to the Trust and which the Trust places on the website for access over the internet. I warrant that my Final report is original and does not infringe the copyright of any person, or contain anything which is, or the incorporation of which into the Final Report is actionable for defamation, a breach of any privacy law or obligation, breach of confidence, contempt of court, passing off or contravention of any other private right or of any law. Signed: Date: 16 August 2019

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Acknowledgments

I would like to acknowledge the following:

• The Winston Churchill Memorial Trust and the late Sir William Kilpatrick for giving

me the support and opportunity to pursue this life shifting exploration.

• My wonderful family, Alison Fitzgerald and Ella Kidd for their support,

understanding and enthusiastic encouragement before during and after my

Fellowship.

• Dr Kathleen Brasher for her ongoing considered and thorough support,

connection, networks, encouragement, clarity and assistance throughout the

conceptual development, application process and throughout my Fellowship

exploration and enabling my Fellowship to come to fruition.

• Margaret Bennett and the Northeast Health Wangaratta Board of Directors for

their support and encouragement of my pursuing the opportunity of my

Fellowship.

• Stacey Manfield and Eleanor Capel at Northeast Health Wangaratta for acting in

my role during my fellowship to allow my complete concentration on the

exploration and experience.

• Dr Catherine Crock, medical pioneer, producer of music and theatrics,

humanitarian, mother and advocate for change for her endless giving and

assistance in helping me frame my Churchill Fellowship experience.

• Alana Officer, Senior Health Advisor - Ageing and Life Course at the World Health

Organisation for her support and connections to enable my Fellowship to come to

fruition.

• Terry Fulmer, President and CEO of the John A Hartford Foundation for her

support and connections that opened the door for my Fellowship to occur across

the USA unhindered.

• Leslie Pelton, Senior Director – Age Friendly Health Systems at the Institute of

Healthcare Improvement (IHI) for allowing me to enter the world of Age Friendly

Health Systems across the USA and connecting me with the pioneer health

systems, IHI and the Age Friendly Health Systems Team.

• Alice Bonner, Senior Advisor, Aging & Innovation at IHI for providing me with

honour of meeting such wonderful innovators across Boston in Age Friendly

Communities, seniors support, wellbeing, housing, research and employment.

• IHI Emeritus Don Berwick, former CEO; Maureen Bisognano, former CEO; Don

Goldmann, Chief Medical and Scientific Officer and Karen Baldoza, IHI Executive

Director and Kedar Mate, Chief Innovation and Education Officer for their insights

and gifts and lessons in leadership, improvement science and implementation

science.

• Amy Berman, Senior Project Officer and Rani Snyder, Vice President at John A

Hartford Foundation for their insights and provisions of opportunities on my

Fellowship.

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• Lil Banchero – Institute for Healthy Aging, Anne Arundel Medical Centre and her

team for her unreserved passion and unhindered sharing of all things Age Friendly

Health Systems.

• Linda Murphy, Pat and Diane Healey, Jenny Albright, Suzanne Engle and Denise

Staschke - Center for Healthy Aging, Ascension St Vincent health System for their

sharing, Indi 550 experience, local produce experience and geriatrician leadership

insights beyond my expectations.

• Ruth Johanson, Collen Casey and Marian Hodges - St Joseph/Providence Health &

Services for their allowing of me to enter their Geriatric Mini Fellowship as an

observer.

• Carrie Rubenstein and Iyabo Tinubu-Karch – Swedish Health for their openness,

giving and sharing.

• Shant Bairian and Karineh Moradian - Kaiser Permanente - Woodland Hills for

allowing me to enter their program and learn unhindered and exposing me to a

legendary LA Double Double.

• Chad E Boult – St Alphonsus/ Trinity Health System for sharing his legendary

leadership in geriatric care insights and a view into the future of geriatric health

care.

• All the special people that made my Fellowship, exploration and adventure across

the USA such a learning, growing and life changing experience:

o IHI: KellyAnne Johnson,Kimberly Mitchell, Derek Feeley (IHI Chief Executive

Officer), Jesse McCall, Allison Luke, Cory Sevin, Catherine Mather, Soma

Stout, Kelly McCutcheon Adams, the 100 Million Healthier Lives project

team, The Conversation Project team.

o Mary Tinetti, MD – Yale School of Medicine, Section Chief, Geriatrics

o Executive Office of Elder Affairs Acting Secretary Robin Lipson and her

team Amanda Bernardo, Pam MacLeod James Fuccione, Lynn Vidler,

Devon Garon, Carole Malone, Annette Peele and Emmett Schmarsow.

o Mike Festa - State Director, American Association of Retired Persons,

Massachusetts State Office.

o Boston Medical Center Board of Visitors

o Amy Schectman - President & CEO - 2Life – Housing and Health Care

Brighton.

o Larry Tye - Health Coverage Fellowship Session with Alice Bonner, Len

Fishman & Dr. Dorene Rentz.

o HEARTH – Elder Homeless Program.

o Joseph Coughlin - AgeLAb,, Massachusetts Institute of Technology: Age

Lab.

o Tim Driver - retirementjobs.com.

o Emily Shea - Commissioner of the Age Strong Commission.

o Ruth Moy & Team - Chinese Golden Age Center.

o Susan Edgeman-Levitan - Executive Director MGH of the John D. Stoeckle

Center for Primary Care.

o Paul Levy – Advisor and Professor.

o Carolyn Stem – New York Academy of Medicine.

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Introduction

With the proportion of the population

ageing increasing across our

communities, services and infrastructure

are needing to adjust to address the

needs and wants of this growing

demographic. As we live longer, health

services are seeing increasing numbers

of older people with an increasing

number of chronic and complex

conditions.

Being in hospital is generally not a

positive experience for older people with

the potential of leaving hospital more

disabled than when they arrived. As a

health service leader who strives to

establish the best care possible for the

community, I wished to explore a new

way of thinking and framing of care for

older people in and out of our health

system.

I am currently the Executive Director of

Community Health, Partnerships and

Well Ageing at Northeast Health

Wangaratta. I have a diverse background

with an undergraduate degree in

Podiatry, Masters in Public Health and

Masters in Health Service Management,

with experience in community

development from bushfire and drought

recovery to working with men who use

domestic violence.

I am a key driver of the Well Ageing

Vision & Engagement (WAVE) initiative in

Wangaratta, the outcomes of which have

stimulated age friendly research,

community information, education and

support in government, health and

community sectors across northeast

Victoria.

Contact details

David Kidd

Email: [email protected]

Phone: (+61) 0429 803 354

Twitter: @davidkiddtweets

Keywords

Age Friendly Health Systems

Acute Care for the Elderly

Quality Improvement

Improvement science

General Practice

Older people

Age Friendly

Health care

4Ms

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Table of Contents

Acknowledgement Page 2

Key words Page 4

Contact details Page 4

Introduction Page 4

Table of Contents Page 5

Executive Summary Page 7

Highlights Page 7

Major learnings Page 8

Conclusion and Recommendations Page 8

Itinerary Page 9

Aim Page 13

Context Page 13

Boston, Massachusetts Page 16

Institute of Health Care Improvement Page 16

Improvement leadership Page 17

Senior view of Boston Page 20

Massachusetts Councils on Ageing,

Small and Rural Conference 2019 Page 20

Executive Office of Elder Affairs for the

Commonwealth of Massachusetts Page 21

Age Friendly Massachusetts Page 22

AARP Page 23

Age Friendly Boston Page 24

2Life Communities Page 25

Retirement Jobs Page 26

Masachussets Institute of

Technology – AgeLab Page 27

Health Coverage Fellowship Page 30

New York City Page 32

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Age Friendly Health System Page 34

Age Friendly Health System Pioneer sites Page 41

Anne Arundel Health System. Annapolis, Maryland Page 42

Ascension, St. Vincent Health System. Indianapolis, Indiana Page 46

Providence Health and Services, St. Joseph Health

System Portland, Oregon Page 49

Trinity Health, St. Alphonsus Health System. Boise Idaho Page 53

Kaiser Permanente Page 55

Conclusion Page 60

Recommendations Page 62

Dissemination Page 63

Appendices

Appendix 1 Masachussets Institute of Technology

AgeLab Research areas Page 64

Appendix 2 Ascension, St. Vincent Health System.

Indianapolis, Center for Healthy Aging

Geriatric Assessment Clinic overview Page 68

Appendix 3 IHI Age Friendly Health System Action

Community Wave 2 - Boston Gathering Page 71

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Executive Summary

The 2018 Sir William Kilpatrick Churchill

Fellowship to improve the quality of care

of older people in our health system.

This project is a journey of two distinct

parts. One is the exploration of some

distinct issues that relate to older people

in Boston, USA and an exploration the

leadership, partnerships, thinking,

systems and services that can support

older people to thrive. The second is an

exploration of healthcare quality

improvement and the success factors of

implementation and scaling of a health

improvement framework – Age Friendly

Health Systems.

The intended audience for this report are

the policy makers, health service leaders

and health professionals that are in the

business of care for older people. Local

government and broader services and

individuals who are in the business of

making our communities more age ready

and age friendly. Individuals and groups

who see the strength of older people as

resources and assets to develop

individuals and communities to live

longer and better.

Highlights

• Immersion at the Institute of Healthcare Improvement and being exposed to the inner workings of health improvement initiatives like the Conversation project, 100 Million Lives project, The Playbook and of course, the Age Friendly Health Systems framework.

• Meeting and learning from IHI Emeritus and former Institute of Healthcare Improvement CEO, Don Berwick; former Institute of Healthcare Improvement CEO, Maureen Bisognano; Chief Medical and Scientific Officer Don Goldmann, and Institute of Healthcare Improvement Executive Director Karen Baldoza and Institute of Healthcare Improvement Chief Innovation and Education Officer, Kedar Mate.

• Exploring the broader issues and thought leadership relating to ageing and older people in Boston, as a guest of Alice Bonner, who revealed to me the power of informal relationships in leadership.

• Meeting the amazing Lil Banchero who changed the way I think health care for older people should be.

• Meeting the passionate geriatricians Drs Diane and Pat Healy in Indianapolis

• Being a guest of Linda Murphy and her husband to a practice session at the Indianapolis 500.

• Mountain biking in Oregon, bushwalking in Idaho and running in Boston

• Heading to Seattle and meeting Carrie Rubenstein and being experiencing the drive and passion of an individual in a large health system.

• Being able to attend the second wave Action Community in Boston, just prior to my departure home.

• Having a Double Double at In’n’Out on my last day in the USA. A cultural experience

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Major learnings

Leadership is crucial in the implementation of change, transformation and improvement.

Partnerships raise leadership to new heights.

Partnerships come in three forms:

• Strategic partnerships – alignment for mutual and future gain.

• Formal partnerships – agreed combined or integrated action to achieve a desired mutual outcome.

• Informal partnerships – personal relationship based alignment and connection based on mutual values and genuine care for one another. This I witnessed being as the strongest and most influential determinant of outcomes.

Values based leadership provides the greatest vision, engagement and personal

fulfilment.

Engagement of people and staff based on values creates dynamic environments for

growth, care and outcomes.

Conclusion and Recommendations

The aim of my Churchill Fellowship was to explore how to improve the quality of care of

older people in our health system. To do this I ventured to the United States (US) to

explore a framework of care for older people that is evidenced based, causes no harm

and aligns with What Matters to the older adult and their family caregivers. Through my

exploration of this framework, I learned the essentials from imminent leaders, thinkers

and authors of improvement science, implementation science, scaling and sustainability.

Combined with lessons in leadership and partnerships, I now have established networks,

resources and experience to share and support the improvement of care of older people

in our health system.

I have made eight recommendations as an outcome of my Churchill Fellowship:

1. Reframe ageing 2. Self-actualisation of older people 3. Utilise the strength in the community 4. Promote the Age Friendly Health System framework 5. Implement the Age Friendly Health System framework 6. Develop and promote values based leadership 7. Engagement in the advancement of care for older people. 8. Build trust and relationships

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Itinerary

Date Location Organisation Meetings

April 23, 2019 Boston,

Massachusetts

Institute of

Healthcare

Improvement

• Leslie Pelton, Director of

Innovation

• KellyAnne Johnson, Senior

Project

• Kimberly Mitchell, Project

Manager

• Derek Feeley, Chief

Executive Officer

• Middle East and Asia Pacific

Team

• Kedar Mate, Chief

Innovation and Education

Officer

April 24, 2019 Sturbridge,

Massachusetts

Small & Rural Conference: Massachusetts Council on

Aging

April 25, 2019 Boston,

Massachusetts

Executive Office of

Elder Affairs,

Commonwealth of

Massachusetts

• Home Care Discussion –

Lynn Vidler & Devon Garon

• Community Programs –

Asst. Sec. Carole Malone,

Annette Peele, and Emmett

Schmarsow

• Leadership and Age-

Friendly Network – Acting

Secretary Robin Lipson,

Amanda Bernardo, Pam

MacLeod, and James

Fuccione

American

Association of

Retired Persons

(AARP),

Massachusetts State

Office

• Mike Festa, State Director

2Life – Housing and

Health Care • Amy Schectman, President

& CEO

Boston Medical

Center Board of

Visitors

Attended the Board of Visitors,

Injury Prevention presentations

April 28, 2019 Boston,

Massachusetts

Health Coverage

Fellowship Session

• Visit to HEARTH – Elder

Homeless Program

• Health Coverage Fellowship

presentations by Alice

Bonner, Len Fishman & Dr.

Dorene Rentz.

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April 29, 2019 Boston,

Massachusetts

Massachusetts

Institute of

Technology: AgeLab

• Joseph Coughlin MD,

Director and team

Retirementjobs • Tim Driver, CEO

City of Boston • Emily Shea, Commissioner

of the Age Strong

Commission

Institute of

Healthcare

Improvement

• Karen Baldoza, Executive

Director

Chinese Golden Age

Center

• Ruth Moy – CEO and Team

April 30, 2019 Boston,

Massachusetts

Institute of

Healthcare

Improvement

• Playbook Team

o Catherine Mather,

Director

• Emergency Department

Avoidance

o Cory Sevin, Senior

Director

• 100 Million Healthier Lives

Aging Hub

o Soma Stout, Vice

President

• IHI Emeritus

o Don Berwick,

former CEO

o Maureen

Bisognano, former

CEO

o Don Goldmann,

former Chief

Medical Officer

May 1, 2019 Boston,

Massachusetts

Institute of

Healthcare

Improvement

• The Conversation Project

o Kate DeBartolo,

Senior Project

Director

o Naomi Fedna,

Project Coordinator

Massachusetts

General Hospital

• Susan Edgeman-Levitan,

Executive Director of John

D. Stoeckle Center for

Primary Care Innovation

May 2, 2019 Boston,

Massachusetts

Institute of

Healthcare

Improvement

• Age Friendly Health

Systems

o KellyAnne Johnson,

Senior Project

Manager

• The Conversation Project

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o Kelly McCutcheon

Adams, Senior

Director

• Paul Levy, Advisor and

Professor

May 6, 2019 New York City,

New York

John A Hartford

Foundation

• Terry Fulmer – President &

CEO

• Rani Snyder – Vice

President

• Jane Carmody – Project

Officer

• Marcus Escobedo, Vice

President, Communications

and Senior Program Officer

Communications

May 7, 2019 New York City,

New York

The New York

Academy of

Medicine

• Carolyn Stem

• Diane Kolack

May 9-10, 2019 Annapolis,

Maryland

Anne Arundel Health

System

• Lil Banchero, Senior

Director

• Pharmacy Department

• Barbara Jacobs , Director of

Nursing

• Andrew McGlone MD,

General Practitioner

• Rae Leonard, Domestic

Violence Coordinator

May 13, 2019 Washington,

District of

Columbia

• Emmarie , Journalist –

Kaiser Health Report

May 15-17, 2019 Indianapolis,

Indiana

Ascension Health

System -

St. Vincent Hospital

• Diane Healy

• Denise

• Dr Shumacher

• Suzanne Engle, Director of

Coordinated Care

• Judy , Navigator/Care

Coordinator

• Dr Mason Goodman

• Dr Wagner ,

Neuropsychologist

May 20 -22, 2019 Portland,

Oregon

Providence Portland

Medical Centre

• Marian Hodges

• Collen Casey

• Attended Geri Mini

Fellowship – Mobility

sessions 1-3

May 23-24, 2019 Seattle, Swedish Health • Carrie Rubenstein, Director

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Washington • Iyobo

May 29-30, 2019 Boise,

Idaho

Trinity Health – Saint

Alphonsus Health

System

• Chad Boult

June 3, 2019 Woodland

Hills,

California

Kaiser Permanente –

Woodland Hills

• Shant Bairian

June 4-5, 2019 Boston,

Massachusetts

Institute of

Healthcare

Improvement

Attended the Age Friendly

Health System – 2nd Wave

Action Community gathering

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The Sir William Kilpatrick Churchill Fellowship to improve the quality of

care of older people in our health system.

Aim

To improve the quality of care of older people in our health system.

Ageing is an inevitable process. You live,

you age. Every day the challenges, joy

and adventures of life bear witness to us

ageing. The changes that occur to us as

we age are neither linear nor consistent.

Age is therefore only a loose association

to one’s physical or social wellbeing. It is

both a physical occurrence and a social

construct and there is no place where

this intersects more strongly that in our

health services. Whether they be the

primary care settings of general practice

and the allied health services or the

emergency department and acute

hospital care.

Considering the increasing level of

ageing across Australia and the world,

being appropriately ready and

supportive of approaches that enrich

ageing, need to be the norm. Therefore

reframing ageing away from its negative

connotations to that of opportunity and

potential of longevity needs to occur.

The USA is a snapshot of a multitude of

these innovations and expansions in

thinking, infrastructure and social

movements to support population

longevity.

I have a deep interest in the vision of

well ageing, enabling greater levels of

older people’s contribution in our

communities and improvement in the

quality of care of older people in our

health system, I wished to explore the

variety of activities and achievements

across the USA. In particular, I was

1 https://www.who.int/news-room/fact-sheets/detail/ageing-and-health 2 Covinsky KE, Pierluissi E, Johnston CB. Hospitalization-Associated Disability: “She Was

interested in exploring a framework for

care of older people in hospital and

primary care settings, known as Age

Friendly Health Systems, in addition to

how communities and their assets,

namely services and infrastructure,

supported older people to thrive. As

such my Churchill Fellowship exploration

across the USA was one of two parts,

interconnected by older people’s health

and wellbeing.

Context

Across the world, the number of persons

aged 60 years will nearly double by

20501 and this will be reflected also in

Australia over the coming decades.

According to the Australian Institute of

Health and Welfare 20% of those aged

65 and over experienced disability in the

form of a severe or profound core

activity limitation3.

Older Australians see their general

practitioner more than twice as many

times than those under 65 years3.Being

in hospital is generally not a positive

experience for older people. Up to third

of older people leave the hospital more

disabled than when they arrived, even if

they recover from the illness or injury

they were originally hospitalised for2.

Add in dementia and older people are at

higher risk from death in hospital,

nursing home admission, long lengths of

stay, as well as intermediate outcomes

such as delirium, falls, dehydration,

Probably Able to Ambulate, but I’m Not Sure”. JAMA. 2011;306(16):1782–1793. https://doi.org/10.1001/jama.2011.1556

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reduction in nutritional status, decline in

physical and cognitive function and new

infections in hospital3.

With twenty years of experience in

health care, I have been seeing this shift

first hand. This caused me to investigate

better ways as I considered that this

cannot be new ground. I looked across

Australia and found limited

documentation of frameworks for the

care of older people that have been

implemented and were effective.

In the local government area of

Wangaratta, Victoria, the health service

at which I work, asked the community

what would make Wangaratta the place

to “age well”. What they said was not

related specifically to health or health

care. The community said they wanted

access to information and they wanted

access to education and learning

opportunities about ageing well.

From this grew the Well Ageing Vision

and Engagement (WAVE) initiative4,

which established a volunteer driven

Well Ageing Info Hub and Well Ageing

Info Sessions providing information and

insights into areas like preparing for

retirement, how to read your utility bills

or advance care planning.

The WAVE initiative came to the

attention of the Victorian health

department who brought ageing expert,

Dr Kathleen Brasher, to support age

friendly initiatives across northeast

Victoria. Highlighting my concerns re our

health systems approach to the ageing

population, Dr Brasher introduced be to

Alana Officer, Senior Health Adviser,

Ageing and Life Course at the World

3 Fogg, C, Griffiths, P, Meredith, P, Bridges, J. Hospital outcomes of older people with cognitive impairment: An integrative review. International Journal of Geriatric Psychiatry. 2018; 33: 1177– 1197. https://doi.org/10.1002/gps.4919

Health Organisation (WHO), who

introduced me to Dr Terry Fulmer, CEO

and President of The John A Hartford

Foundation, a private, nonpartisan, US

philanthropy dedicated to improving the

care of older adults.

Dr Terry Fulmer had initiated a

framework to enable health systems to

support the complex needs of older

people and reduce the disproportionate

amount of harm while in the care of the

health system.

Extending on the WHO’s Age Friendly

Communities in 2017, The John A.

Hartford Foundation and the Institute for

Healthcare Improvement (IHI), in

partnership with the American Hospital

Association (AHA) and the Catholic

Health Association of the United States

(CHA), set a bold vision to build a social

movement so that all care with older

adults is age-friendly care, which:

• Follows an essential set of evidence-

based practices;

• Causes no harm; and

4 Well Ageing Vision and Engagement initiative. Northeast Health Wangaratta. https://www.northeasthealth.org.au/wave/

David Kidd at the Well Ageing Info Hub

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• Aligns with What Matters to the older

adult and their family caregivers5.

Dr Fulmer, I was soon to learn, is an

impressive leader. Passionate, insightful

and extremely giving in her knowledge

and aspiration to improve the care of

older people. So, before I even

embarked on my US exploration, I

became fascinated in the influence of

leadership in health transformation

Following the virtual introductions and

further correspondence with Dr Fulmer,

my journey began to explore the Age

Friendly Health System framework in

action and bring the learnings back to

Australia through my Sir William

Kilpatrick Churchill Fellowship to

improve the quality of care of older

people in our health system.

5 Age-Friendly Health Systems: Guide to Using the 4Ms in the Care of Older Adults. April 2019. Institute of Health Care Improvement. Accessed at http://www.ihi.org/Engage/Initiatives/Age-

Friendly-Health-Systems/Documents/IHIAgeFriendlyHealthSystems_GuidetoUsing4MsCare.pdf

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The Journey

Boston, Massachusetts

23rd April – 2nd May 2019

Institute of Healthcare Improvement

I arrived in Boston early on the “red eye” from Los Angeles. I was promptly identifying

myself at the desk of the Institute of Healthcare Improvement (IHI), in State Street,

Boston. This would be my base for the next week and half. The building foyer was a

renovated period building with a cavernous glass ceiling that housed the original

architecture.

Knowing IHI as a world leader in healthcare quality improvement and admiring from afar

the work they, being at IHI was very significant to me. Once in the IHI offices, Allison Luke,

Age Friendly Health Systems Project Coordinator, meet me and provided me with my

itinerary and my adventures truly began. Fifteen minutes after my arrival, I entered my

first meeting welcoming me to IHI with Leslie Pelton, Director of Innovation, KellyAnne

Johnson, Senior Project Manager and Kimberly Mitchell, Project Manager. Here I was

introduced to the Age Friendly Health Systems model and the key drivers of the

framework development.

Following this I met IHI’s CEO, Derek Feeley. As previous Chief Executive of the National

Health Service of Scotland, Derek Feeley, joined IHI in 2013 to lead IHI’s growing

international work and further drive leadership in key areas of program growth. My

discussion with Derek Feeley explored leadership and the fundamentals of IHI’s

philosophy of healthcare improvement. Derek Feeley noted that he had been accused at

the NHS of developing the system as a business. He went on to note, that yes he did run it

like a private company, as he felt the Service should be accountable to its shareholders

the Government and community, and responsible for its outcomes and financial viability

as a service provider.

IHI was officially founded in 1991, but commenced in the late 1980s as part of the

National Demonstration Project on Quality Improvement in Health Care, Dr. Don Berwick

and a group of visionary individuals set about redesigning health care into a system

without errors, waste, delay, and unsustainable costs. Since then, IHI has grown from an

initial collection of grant-supported programs to a self-sustaining organisation with

worldwide influence6.

IHI now partners with Safer Care Victoria (SCV) with a staff member located in the SCV

office in Melbourne. The visit to IHI was an exploration into the world of improvement on

a scale like no other. The thinking, culture and output of IHI is clear, defined and

systematised.

While at IHI, I spent some time with five leaders in improvement and implementation

science. I was honoured to meet with former CEO and IHI Emeritus Don Berwick; former

CEO, Maureen Bisognano; Chief Medical and Scientific Officer, Dr Don Goldmann; IHI

Executive Director, Karen Baldoza and Chief Innovation and Education Officer Dr Kedar

6 Institute of Healthcare Improvement history – accessed at http://www.ihi.org/about/pages/history.aspx on 30/06/2019

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Rogers Diffusion of Innovation model

Mate. Here, I will share the most valuable lessons in the science and art of quality

improvement form these eminent leaders in healthcare quality improvement.

The IHI philosophy of improvement is built on three key areas of improvement science;

• The work of W Edwards Deming (the essential implementation of the Plan, Do,

Study, Act (PDSA) cycle),

• Rogers Diffusion of Innovation and

• Kotter model of change.

The Age Friendly Health

System is an example of the

use of these key elements of

improvement.

The use of the diffusion model was key to implement the framework with a small group of innovators to test the framework, modify it and then scale it up to a larger group of early adopters who would further test and redesign the framework.

Improvement leadership In meeting with Dr Goldman, I asked why quality improvement is feared in the day to day working of the health system. This is something that can be transformed, he noted, by doing rigorous quality improvement research as a part of the routine work by appealing

Don Berwick, David Kidd and Maureen Bisognano at IHI, Boston

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to people’s curiosity and make the data collection part of what they do anyway. Consequently, as Maureen Bisognano reiterated, curiosity questioning (CQ) needs to be developed as a new leadership skill to support enquiry on the floor, in interviews for new staff and around the board table. Partnerships were highlighted as a core improvement leadership competency. Importantly, this allows the key driver to give up control, as no one person can implement improvement solely on their own. The leader therefore needs to therefore create an environment to enable people to do their best work in their key role. To keep human behaviour in balance.

To do this, trust is crucial. As the key driver, trusting the people to do their best work while listening, understanding and provoking.

Karen Baldova, pointed out that the fundamental principles of improvement science are the systems, concepts, methods and tools. The elements of which include: • Understanding Deming’s lens of profound knowledge • Understanding Systems thinking • Understanding variation • Understanding how we learn • Understanding Theorist knowledge • Understanding Psychology of human behaviour

Frameworks are helpful in quality improvement, however, improvement is very much an art and a science. How these are finessed enables the art and the science to work together embedding it in real work. Quality improvement therefore needs curiosity, partnerships, systems, concepts, methods and tools. Figuring out how to bring the right elements of this together, to achieve what you are looking for, there must be an outcome. Date collection Dr Goldman noted, if you have to hire somebody to help do it or collect data, your systems are likely not designed for improvement. If you have the right system, the data would flow out of the daily work. So, if you spend more than 10% of your time collecting and analysing data, it is a waste of time not spent on actually making things better. At this point the project has become about the data rather than the outcome that is trying to be achieved. Conversely, we need to be aware of implementing tactics becoming the primary exploit and forgetting the measurement. This is not reflective practice and as such will not lead to improvement.

If the project you are thinking of doing means you have to hire somebody to

help do it or collect data – your systems are not designed for improvement. Dr Don Goldman

IHI

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Karen noted to be careful not to over plan and hence never get started on the testing and implementing. Do not postpone the action until you have the perfect data. Use whatever data you have available. Don’t wait for IT to get the data to you, meanwhile people are dying. Ask the people on the ground what they know or see. It may well be the information that trumps the data. Dr Goldman made it very clear that,”if the quality improvement study is so designed that you can’t learn anything from it, then it is not ethical”. Quality can be for free but it needs to be of value. So, we need to ask does what you are doing bring value? Does it bring care up to the existing standard? This can be done by knowing a patient’s satisfaction in their care is high, but asking them whether there was anything that got them angry, can add value by singling out a process, action or experience that needs attention. In the health system today, Karen Baldova explained, the reporting of errors is a measure of performance, not improvement. We need to ensure that the focus is on understanding variation in the measures to create improvement. The key elements to understanding this are:

• What is the question we are trying to answer?

• What is the data that is going to help us answer this? o Understanding whether this is normal variation, whether it is acceptable or

not acceptable or is this something special. o How do we get it in control? Control being getting it consistent. This is

where and control chart is useful. This is where the process does the talking. Leaders are responsible for the process. They are responsible for making it possible for people to do what is being asking them to do. Leaders therefore need to understand the data and act accordingly. Accepting whether something is good enough and acknowledging when something is not good enough and then to stop is essential. There is no reason to be wasting the time and energy analysing when the outcomes will not be achieved, Karen reinforced. Scaling an improvement Scaling is the hard part of any quality improvement. Karen Baldova highlighted the importance of implementation capability, the knowledge and skills and the alignment from leaders to know what is important to do, as essential.

Age Friendly Health System framework is a good example of implementing a quality improvement at an acute ward level and then scaling up to implementing as an organisation and national scale. They are the same elements of improvement and scale, just bigger and more complex as it grows.

When scaling, the emphasis however shifts from quality improvement to quality control and sustainability. They are all related but different systems. Sustainability is to determine what is the key metric we have to continue to look at over time? It is not the family of measuring being done at the improvement phase. Planning for sustainable quality improvement Collaborative learning and learning systems need to be in place in improvement science. Therefore organisations that create the learning environment to increase what is already

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happening and bring people together to learn from one another around the concepts, methods and tools, increase the power rate of adoption. Karen reinforced the psychology of people is important. The language used, the way things are done needs to be modified to be appreciative of the individual and cultural understanding mechanisms. Some people love jargon and jargonsistic structures. Others need the straight language and structures. The aim is to make improvement natural for people as we are ultimately working with people. There is no end point for improvement. It is a continuous journey.

Senior view of Boston

On my first day at IHI I met, a humble and powerful leader, who would teach me lessons

in leadership every day I was in Boston and ever since. Dr Alice Bonner is Senior Advisor,

Ageing and innovation at IHI. She is also the Director of Strategic Partnerships at the

Center for Innovative Care in Aging, a collaboration between the Johns Hopkins

Bloomberg School of Public Health and the Institute for Healthcare Improvement.

Through my week and half with Dr Bonner and the people she was able to introduce me

to, my learning about how to enable older people to thrive were significant.

Before IHI, Dr Bonner was Secretary of the Executive Office of Elder Affairs for the

Commonwealth of Massachusetts. Whilst Secretary, Dr Bonner oversaw the significant

shift in Massachusetts fulfilling, the Governor of Massachusetts, Governor Charlie Baker’s

vision to make Massachusetts the most age-friendly state7.

The following is an overview of the enormous information, passion and innovation I was

exposed to

Massachusetts Councils on Ageing, Small and Rural Conference 2019

I was fortunate to attend the Massachusetts Councils on Ageing, Small and Rural

Conference 2019 in Sturbridge, Massachusetts as a guest of Dr Bonners. This conference

7 Baker, Charlie, 2019. "AARP The Journal 2019: Guiding Massachusetts Toward an Age-Friendly Future." AARP International: The Journal, vol.12: 44-45. https://doi.org/10.26419/int.00036.013

“We need to think differently about aging in

Massachusetts. This isn’t just about

acknowledging a shift in demographics; it’s

about being intentional in our planning to

ensure that those who grew up here, raised

families and built communities, can continue

to contribute their energy experience and

talents where they live and make

Massachusetts the most age-friendly state”

Governor Charlie Baker,

2018 State of the Commonwealth Address

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provide me with insights into how the Councils on Ageing play a strong conduit for

implementation of Massachusetts’s ageing directions and in so doing support their

communities.

The Massachusetts Councils on Aging and Senior Centers (MCOA) are the 350 municipal

agencies that provide local outreach, social and health services, advocacy, information

and referral for older adults, their families and caregivers in the state of Massachusetts.

They serve as a link to and support for elders.

Acting Secretary of the Executive Office of Elder Affairs of the Massachusetts

Government, Robin Lipson opened the conference reinforcing that the state of

Massachusetts thinks of ageing as a priority and what it means to age is Massachusetts.

Robin Lipson highlighted the support of the Massachusetts Governor, Charles D. Baker,

who placed ageing on the state agenda in 2018 by noting; “We need to think differently

about aging in Massachusetts”. This has aligned Massachusetts to ReiMAgine8 it’s vision

of ageing in Massachusetts to “a movement, not a moment”.

The conference covered sessions on LGBTIQ programs at senior sessions, developing

dementia friendly communities and how to analyse data utilising the Massachusetts

Healthy Ageing Report and how to use it to help plan locally.

At the conference I met with James Fuccione, Senior Director, Massachusetts Health

Aging Collaborative, who highlighted (MCOA) as the driver of age friendly communities

across Massachusetts. These communities are addressing health systems, transport,

regional planning and even an age friendly university. Innovative programs have been

established such as Seniors Skip day, where 100 children “skip” school and support

seniors in daily activities, Community Compacts, Village to Village9 and supporting the

development Age Friendly Communities.

Whilst at the conference, I was fortunate to be on the agenda in a break out workshop

where I was able to present the work done in the Rural City of Wangaratta through the

Well Ageing Vision and Engagement initiative and Age Friendly Northeast Victoria.

Executive Office of Elder Affairs for the Commonwealth of Massachusetts

On ANZAC Day, I was a guest at the Executive Office of Elder Affairs for the

Commonwealth of Massachusetts. The Executive Office of Elder Affairs are the driving

force behind Massachusetts’ ReiMAgine Ageing agenda. Throughout the morning we

explored Dementia friendly Massachusetts and age friendly and how the Office is

coordinating technology development to assist care givers with assistive tech and

addressing ageing in Massachusetts.

The Executive Office also provide Home Care service including haircare at home,

transport, housing, community engagement and access to food. These services are

8 Commonwealth of Massachusetts. 2019. ReiMAgine Ageing – Planning together to create an age friendly future for Massachusetts. https://www.aarp.org/content/dam/aarp/livable-communities/livable-documents/documents-2018/action-plans/massachusetts-state-action-plan-2019.pdf 9 Village to Village Network. Accessed at https://www.vtvnetwork.org/content.aspx?page_id=22&club_id=691012&module_id=248578

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provided under the Older Americans Act of 196510 which states the rights of older

Americans to access the basics to remain independent.

In addition to these services the Executive Office provide access to Aging Services Access

Points (ASAP), where a flat monthly fee enables access to personal care, meal prep,

dementia coaching, day programs (with the inclusion of access to a nurse). As is common

in the US, ASAP's are private non-profit agencies funded by the Government.

Age Friendly Massachusetts

As there are similar developments occurring in the north east Victoria, it was of great

interest to me to explore and learn about the motivations and processes that have

brought about Age Friendly Communities across Boston, Massachusetts and New York.

Massachusetts is proudly the second Age friendly state in the US AARP’s network of age-

friendly states. Governor Baker was keen to make Massachusetts the state to grow up

and grow old.

The Councils on Ageing played a key role in the move toward being Age Friendly with

their access to older people across the State and supporting local interest. Leadership

development continues to be provided with communities to strengthen the community’s

leaders.

10 AARP Public Policy Institute. 2014. The Older Americans Act. https://www.aarp.org/content/dam/aarp/research/public_policy_institute/health/2014/the-older-americans-act-AARP-ppi-health.pdf

Acting Secretary of the Executive Office of Elder Affairs of the Massachusetts Government, Robin Lipson (centre) and her team.

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In 2019, the State

of Massachusetts

became a member

of the second Age

friendly state in the

US AARP’s network

of age-friendly

states. The vision

continues to now

become Dementia

Friendly.

AARP

After my morning at the Executive Office, it was a

smooth transition into meeting Mike Festa, State

Director of AARP. Mike Festa shared with me the

incredible entity that is AARP, it’s membership and

services it provides.

Mike Festa, also a former Secretary of Elder Affairs and

ex Massachusetts House of Representatives member,

had a real presence and exuded passion for his role

and older people across the State. He shared that a

key area of AARP activity was to support carers. Care

givers account for up to 40 % of AARPs 840,000

members across Massachusetts, who bring some

USD$12bil in savings to the care system. This is

expected to increase as funding is shifted out of

nursing homes into the community to give the care

recipient more choice. As a consequence, AARP is

keeping a close eye on carers the ones with awareness

and the early warning alert for their care recipients.

AARP’s strength is in its

membership size and the

consequent political

impact. Added to this is

AARP’s policy

development,

contribution to research

to support older people

and myriad of products

including insurance, grants

for housing, tackling food

insecurity and health

insecurity.

Source: Baker, Charlie, 2019. "AARP The Journal 2019: Guiding Massachusetts Toward an Age-Friendly Future." AARP International: The Journal, vol.12: 44-45.

AARP

Formerly the American

Association of Retired

Persons, AARP is a US based

interest group whose stated

mission is "to empower

people to choose how they

live as they age". According

to the organization, it had

more than 38 million

members as of 2018. AARP is

a nonprofit, nonpartisan

organization that empowers

people to choose how they

live as they age.

Mike Festa, AARP Massachusetts State Director

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Partnering with the WHO, AARP leads the implementation of Age Friendly Communities

and Cities across the US.

This visit made me reflect on how we can better utilising an existing organisation to

greater support the care givers in our communities.

Age Friendly Boston

The following week, I met

with Emily Shea,

Commissioner of the Age

Strong Commission of the City

of Boston. In 2018, the

Commission on Affairs of the

Elderly changed its name to

Age Strong Commission. This

change was to reflect the new

thinking that has come through becoming the second US age-friendly city11. The Age

Strong Commission is Boston’s area agency on Ageing and Boston’s Council on Ageing,

making Boston inclusive, accessible and positive for people to age well.

It took five years to become an Age Friendly member. In May of 2017, the city released

the Age-Friendly Boston Action Plan aimed to address how Bostonians are ageing now

and their hopes for the future.

After two years the achievement were significant. I was provided with the soon to be

released Age-Friendly Boston Achievements Year Two report. This document contained

significant reporting of actions across the City. Significant highlights included Memory

Cafés, City of Boston’s second Civic Academy (six-week course emphasising advocacy skill

development), “Connect the Knocks” (door knocked 1,500 households to share resources

on economic security and how to prevent social isolation), an outreach strategy for

sharing tax-relief opportunities with older adults and “What Unites Us” cooking classes

(celebrating the immigrant experience and healthy aging through culture and food).

A significant shift to inclusive ageing

language. Reframing ageing with Age

strong, highlights that words matter in

making a powerful affirmation to

embrace ageing.

Following this meeting it was clear the Mayor Walsh, and that of Governor Baker were to

enable their vision across the State and City had in an integrated and unhindered way.

The Age Friendly Action Plan remains the city’s blueprint to achieve this to make Boston

the place to live and age in.

11 https://www.boston.gov/sites/default/files/document-file-07-2019/age-friendly_year_2_report_0.pdf

“We are committed to making Boston the

best place to live and age well”. Martin J Walsh

Mayor of Boston

January 2019

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2Life Communities

One thing that I came across in my exploration across the US was the significance of

retirement and the impact it has on the financial situation of many Americans. Not having

a superannuation system many lower income Americans transition into a significant

reduction of income in retirement. With 33% of those currently working in the US likely to

rely solely on Social Security for all of their retirement income, housing affordability

becomes a major issue and significant determinant of one’s health outcomes. With social

security paying around USD$12,000 per year, there is no State in the US where the

average monthly Social Security payment can pay the rent of a one-bedroom apartment.

Since 2000, the number of Massachusetts residents living in neighbourhoods where

poverty rates surpass 40 percent has more than doubled to nearly 165,0012. Add

additional burdens of pre-existing illness or a life-long struggle with mental illness and

homelessness becomes a closer reality than expected. This is the reality for 1,200

homeless adults in the Boston area over the age of 50 and this is expected to increase by

33% between 2010 and 2020 and more than double by 205013. Homelessness accelerates

the ageing process and reduces life expectancy to 55y ears, some thirty years lower than

the general population.

As a social determinant of health14, to explore the plight of older people and housing, I

visited 2Life Communities, one organisation truly making an impact to support those who

would otherwise be homeless. 2Life Communities is an affordable housing organisation in

Brighton, just outside Boston. There I met Amy Schectman, the organisation’s President &

CEO. Meeting Amy Schectman confirmed her profile on the 2Life Communities website

was extremely accurate15. Having worked for over 35 years in the public and nonprofit

sectors to advance affordable housing and social justice, Amy Schectman is a master at

establishing strategic partnerships and is a thought leader in holistic approaches to

housing for older people. Amy Schectman serves on Governor Charlie Baker’s Council to

Address Aging in Massachusetts, serves on several not for profit boards, has been invited

to The White House four times and has hosted U.S. Congressmen, U.S. Senate staff, and

state legislators.

I received an insight into leadership and the power of partnerships through my time with Amy Schectman. Massachusetts has the nation’s second largest shortfall between income and basic living expenses, meaning many older adults can’t afford housing. Some are forced to skimp on essentials like medicine and food, just to pay the rent.

During a tour of the of the Brighton campus, I was greeted by many Chinese and Russian Jewish residents, who emigrated to the US in the 1960’s and 1970’s and have become homeless since stopping work. The passion and joy shown by these residents upon Amy Schectman’s arrival was touching. What has been created with 2Life Communities is an organisation that provides more than 1,500 people with affordable house, safety and

12 Ben Forman Alan Mallach. 2019. Building Communities of Promise and Possibility. State and Local Blueprints for Comprehensive Neighborhood Stabilization. 13 The U.S. Department of Housing and Urban Development (HUD). Homelessness data exchange. https://hudhdx.info/Default.aspx 14 Wilkinson, R. and Marmot, M. (ed). 2003. Social determinants of health: the solid facts. 2nd edition. World Health Organisation. http://www.euro.who.int/__data/assets/pdf_file/0005/98438/e81384.pdf 15 2Life Communities website. https://www.2lifecommunities.org/

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comfort. Amy Schectman’s team are as passionate about her and their work as the residents.

As an organisation, 2Life Communities has support from City, State, and Federal Government to subsidise 93 percent of their apartments. With the median annual household income for those in 2Life Communities being $10,100, this is significant.

As a master of partnerships, Amy Schectman has established partnerships with major corporations, foundations, generous individuals, primary schools and universities, hospitals and health insurers and local businesses. The contribution may be through volunteering, sharing their expertise or making financial contributions. There was even a low cost convenience store, run by a local business, that only stocks healthy foods at cost price.

I was overwhelmed by Amy Schectman’s personability and leadership and her string conviction to “ageing in community”. As I waited for my ride back to Boston, my thoughts were reinforced by the enthusiasm of the young doorman. He was adored by the residents and he passionately told me about all the great things that 2lIfe Communities does.

Retirement Jobs

As evidenced at 2Life Communities, older people in the US can find it difficult to make

ends meet on social security if they have not saved enough over their lives. To combat

this some older people are required to or desire to remain in the workforce. Tim Driver is

the CEO of an employment agency, Retirement Jobs, provides employment placement for

older people across America16. Tim and I had lunch and chatted about his venture and

what it means for older people to remain employed.

Retirement Jobs targets jobs for older people. Tim Driver started the company because

the number of retirees was increasing and they were retiring with greater skills and

capabilities than ever before. In a reduced labour market, the availability of retirees is

able to full gaps in the workforce, especially as now the concept of retiring is changing.

Older people, Tim explains to me, bring to their role a three times reduction in turn over,

they are more dependable, have increased work ethics and have increased flexibility in

schedules and pay. Age friendly employment is beneficial as it adds purpose and

credibility of workers, addresses ageism in the community, caters to a person’s desire to

or not to retire, addresses employment issues of turnover and enables staff longevity and

increased customer satisfaction

There is a shift in the labour market with younger generations expecting a higher level of

remuneration with less skills, so it had made sense in many circumstances to employ and

older person. It has shifted the thinking as there is now such a strong shift in the

development in age friendly thinking and services like Tim Driver’s provide a platform for

older people to continue and thrive in the workforce.

16 Retirement Jobs. https://www.agefriendly.com/

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This discussion reinforced my thinking about the potential of this market in Australia.

Many community and regional development programs focus on bringing younger people

to the region to provide skills and create demand, when an existing workforce may well

be already there. Jobs create income which creates economic activity, older people may

be the new economy opportunity.

Massachusetts Institute of Technology - AgeLab

An absolute highlight of my time

in Boston was meeting Dr

Joseph Coughlin and his team. A

researcher, teacher, speaker

and advisor, Dr Coughlin’s work

explores how global

demographics, technology and

changing generational

behaviours are transforming

business and society. He teaches

in MIT’s Department of Urban

Studies & Planning and the

Sloan School’s Advanced

Management Program. He is a

Senior Contributor to Forbes magazine, Dr Coughlin is also the author of the book, “The

Longevity Economy: Unlocking the World’s Fastest Growing, Most Misunderstood

Market”17.

The MIT AgeLab was created in 1999 to invent new ideas and creatively translate

technologies into practical solutions that improve people's health and enable them to “do

things” throughout the lifespan. Equal to the need for ideas and new technologies is the

belief that innovations in how products are designed, services are delivered or policies

are implemented are of critical importance to our quality of life tomorrow18.

Dr Coughlin shared with me some of his thinking on what is and what could be in the

world if we looked at ageing, or as he preferred to call it, longevity, as the opportunity

and for communities to get age ready, rather than age friendly. Dr Coughlin believes age

friendly reflects what should already be in place anyway for all ages.

But, oldness is a social construct at odds with reality. It stifles business thinking, it limits

opportunities and thinking. Older age has us withdrawing, pulling back, living on the

financially limit. “Seismic shift”, “age wave”, “perfect storm”, these re not books of

optimism, but a coming calamity.

Old age and retirement are mere stories. There is no objective law of physics that says 65

years of age is retirement or that you must slow down. We made that up. There is no

objective reality in the images, the stories, the myths or the rituals that structure what we

think that old age is supposed to be.

17 Coughlin, J., F.. 2017 The Longevity Economy: Unlocking the World's Fastest-Growing, Most Misunderstood Market. PublicAffairs. https://longevityeconomy.com/ 18 http://agelab.mit.edu/

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Dr Coughlin highlights that society loses its creativity when you hit retirement age – there

are no more rituals, no more events, no more birthday cards. It is a strong indication that

we have no idea what to do with older age. Therefore, it is a problem, rather than looking

at it as one third of your adult life and what you can make of it. We are swayed by all the

parents, peers, advisors, employers, books and movies telling us what to do, what to buy,

how to live all your life. Then you get to 65 years of age and it is all walking beaches and

seating at cafes.

Retirement equates to one third of one’s adult life - 8,000 days 0-21 years of age, plus

8,000 days to midlife (where there are structures and institutions – guide posts of life

achievements – study, family, work development), plus 8,000 days from midlife to

retirement. Then retirement is 8,000 days. One third of your adult life, assuming you life

the average lifespan.

An AgeLab study asked people what “life after work” meant to them19. Older people

reported that they had no idea how much time there would be. In Naples Florida, the

highest density of retired CEOs in the US, two thirds of the older population were

unhappy. One person stated that when they were a CEO, the world came to them – they

needed their permission, they wanted their opinion, the information flowed in. Now, a

business magazine is the only briefing material they get, it’s months old in a glossy

19 Lee, C. & Coughlin, J.F. 2018. "Describing Life After Career: Demographic Differences in the Language and Imagery of Retirement," Journal of Financial Planning 31(8): 36–47 https://www.onefpa.org/journal/Pages/AUG18-Describing-Life-After-Career-Demographic-Differences-in-the-Language-and-Imagery-of-Retirement.aspx

Dr Joseph Coughlin and his MIT AgeLab team

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magazine. Their partners noted that their cycle of life was now play golf, have lunch, then

go back to the club for dinner,…. Every single day.

Younger men reported death came after work and older age. Young women used words

like successful, accomplish, achievement. Older men said golf, beaches and spending time

with their spouse. Older women didn’t mention their spouse. They stated time for me,

given there is time for me.

Over the total words in the modern vocabulary – 29 words explained 60% of responses.

This concise vocabulary articulates the vagueness of what retirement looks like.

The future is female – the real innovators are the care givers, often younger, often

female, addressing ageing at a young age as care givers – adult daughters, spouses,

daughter’s in law. They are neglected. Innovators will no longer be seen as a disruptor in

sneakers writing code. The greatest number of new business developers in the US today

are older females.

Real innovators are hacking

problems. Making sure mum is

taking her medication. Making

dad can stay in his own house,

but engage with life. These are

the people that know ageing far

better than researchers,

clinicians or engineers.

MIT AgeLab is exploring the integrated way to live in old age or with greater longevity. As

opposed to just how to take your medication and drive safe.

How you define the problem determines the obtainable, desirable and affordable

solutions. So, if we describe older age as providing for their pensions, we immediately

frame the thinking. Conversely, asking, how many are innovators, how many can do what

they used to do? How many can volunteer with verve? How do we create a whole new

housing system by stealth that is attractive to young people as matter of convenience but

provides care when older? Young people buy it because it is cool, older people buy it

because it provides care. Across this we reframe how we think of older people.

Dr Coughlin explained if you develop something specifically for older people - Young

people won’t touch it and older people won’t touch it.

The AgeLab started looking at mobility for older people. It found that transportation helps

hold life together. If you don’t get there, it is not happening. Technology is a great

support, but it cannot provide the presence. Dr Coughlin notes that there needs to do

good research in these areas, but what was missing was how the consumer interacts with

them. Integration is key. People only look at transportation as getting to a destination,

solving a task, not a life.

When I ask Dr Coughlin, where to from here, he noted that looking forward society needs

to use this unprecedented shift of people with different education, income and political

demand, to reshape society in such a way that it improves life from zero to one hundred.

Rather than saying we need to improve life for people 65 and over. It can be used as a

trigger event to change what we perceive to be quality of life. Which means rethinking

“Birthdays don’t kill, health conditions do.” Dr Joseph Coughlin,

AgeLab

Massachusetts Institute of Technology

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housing and education across the life span not just into your twenties. If we do it now, we

can look a society from 0-100, not 25yrs of people off the grid at young age and 25 years

of people off the grid at older age. Meaning there is only 50% of your life where you are

allegedly productive, engaged and supported.

The age of university participants is getting older. The degree currently held is no longer

important to older people. They are thinking about what additional degree or certificate

would be fulfilling. Enabling people to learn how they learn for a lifetime makes education

obtainable. Being mindful of the physical worker who at 50 years old is physically done,

but is searching for opportunities to find fulfilment. It’s not about more people needed in

the workforce for example, what’s needed are more skills.

From here we need to change the narrative to older people being articulate and

courageous. We need to rewrite the social contract for government, institutions, families

and individuals. Realise that there are new expectations and new opportunities.

We need to live longer, better. To do so this there needs to be a shift in perspective,

leadership beyond the election cycle, provide the products people want and good story

telling.

Health Coverage Fellowship

Lastly in Boston I was invited to participate in a different side of health for older people,

the Boston Health Coverage Fellowship. This is a fellowship for journalists, which helps

the media do a better job reporting on critical issues like public health, mental health and

high-tech medicine. Launched in 2001 and supported by a series of foundations, the

fellowship trains a dozen medical journalists a year from newspapers, radio stations, and

TV outlets nationwide.

Larry Tye is a New York Times bestselling author whose most recent book is a biography

of Robert F. Kennedy, the former attorney general, U.S. senator and presidential

candidate along with numerous other books on the public relations pioneer Edward L.

Bernays, the Jewish renewal underway from Boston to Buenos Aires, the birth to today’s

African-American middle class and the nearly-real life story of Superman, the most

enduring American hero of the last century.

Over the day I spent with the Health Coverage Fellowship, three presentations were

made by three very distinguished authorities on the health of older people;

Dr Len Fishman, a nationally recognised leader in the field of aging policy and the director

of the Gerontology Institute at UMass Boston’s John W. McCormack Graduate School of

Policy and Global Studies.

Dr Alice Bonner, Older Persons advisor at IHI and the Director of Strategic Partnerships for

the Center for Innovative Care in Aging, a collaboration between the Johns Hopkins

Bloomberg School of Public Health and the Institute for Healthcare Improvement.

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Dorene M. Rentz, Associate Professor of Neurology at Harvard Medical School with dual

appointments in the Departments of Neurology at Brigham and Women’s Hospital and

Massachusetts General Hospital, Boston, Massachusetts.

The presentation explored the issues relating to dementia and the cost to society, carers

and families. The audience was made of print, TV and online journalists from across the

US from organisations including CNN, the Boston Globe, Kaiser Health Report and NPR.

The fellowship was a great experience to understand the level of insight journalist have

around health, provided insights in how to engage journalists and the current dilemma of

fact checking in a rapid news environment.

Dr Len Fishman presenting to the Boston Health Coverage

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The Journey

New York City

6th May – 7th May 2019

Visiting New York is always an absolute adventure. Made up of the five boroughs, New

York City is a city of diversity and like other major centres has an increasingly ageing

population. In 2007, the New York City Council partnered with the New York Academy of

Medicine (NYAM) to create a blueprint for New York City to become a model age-friendly

city. In 2008, the NYAM, in conjunction with the Bloomberg Administration released a

report, “Toward an Age-Friendly New York City,” which outlined the major themes that

emerged from a yearlong assessment and conversation with New York’s older residents20.

I met with Project Assistant, Age-friendly NYC, Center for Health Policy and Programs,

Carolyn Stem and Policy Associate, Advancing Prevention Project, Diane Kolack at the

NYAM. I was pre warned about the NYAM and was expressly advised to have a tour of the

old book library. Established in 1847, The New York Academy of Medicine is dedicated to

ensuring everyone has the opportunity to live a healthy life. Through their research,

policy and program initiatives, the NYAM aims to provide the evidence base to address

the structural and cultural barriers to good health and drive progress toward health

equity.

With New York City being home to 1.3 million older New Yorkers, a number expected to

increase by close by 50 % by 2030, NYAM seemed to be ideally positioned to create the

research, partnerships and lead to make New York City age friendly. Since becoming the

US’s first age friendly city in 2012, Age-Friendly New York City was since awarded the

“Best Existing Age-Friendly Initiative in the World” by the International Federation on

Aging in 2013. In addition, NYAM now provides strategic assistance to more than 50 cities

worldwide seeking to replicate the Age-Friendly NYC model.

20 https://nyam.org/age-friendly-nyc/about/history/

"As we continue to support community development efforts that deliver health and

wellness opportunities for residents, we are honored to be recognized by two of the

world's most prestigious organizations, AARP and the World Health Organization,

for establishing New York as the first age-friendly state in the nation."

Andrew M. Cuomo

Governor New York

December 2017

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In 2017, the drive continued beyond New York City with Governor Cuomo’s

announcement in his 2017 State of the State address, to make more liveable communities

for people of all ages and enable more New Yorkers to age comfortably in their homes21.

In December 2017, Governor Cuomo

announced that New York has been

designated the first age-friendly state in

the nation.

The drive to achieve such high

aspirations for the largest city in the US,

Age-friendly New York City successfully

implemented solutions to prevent the

social isolation of older adults in the

City. The introduction of policy changes

and programs and infrastructure to

support older people changed the face

of the City. Arts were targeted are a

community building tool through an

Arts and Culture plan and increased

seniors programs and infrastructure

along the Museum mile (5th Avenue

adjacent to Central Park). Added to this,

social connection programs created

better neighbourhoods and successful

solutions to prevent social isolation of older adults.

The clear planning and spread of partners across New York City, along with a top

down/bottom up approach has seen a strong emphasis on the voice of the community

through to the drive and support of Governor Cuomo.

The breadth of the plan was immense with strategies that even saw a 16% reduction in

senior fatalities due to infrastructure changes such as increasing traffic islands and

extending "walk" signal time at pedestrian crossings.

The utilisation of

technology as a tool

to connect and

enhance the older

people’s lives was

encouraged. The

latest initiative is

Image NYC

21 Cuomo, A., 2017. M. New York State: Ever Upward. 2017 State of the State https://www.governor.ny.gov/sites/governor.ny.gov/files/atoms/files/2017StateoftheStateBook.pdf

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map.org22. This interactive Map of Aging provides interpretive awareness of community

data. The aim was to increase equity and access to services to support ageing in place and

providing access to information about what older people may want and need in their

neighbourhood or in the borough next door. Phase 2 of the Image NYC map is to map

access points for Medicare and Medicaid services.

OATS Older Adults Tech Services harnesses the power of technology to change the way

people age by using older people to teach older people how to use technology age23.

It was interesting to discuss the details

of what NYAM had achieved. But the

deeper knowledge of how it happened

was drawn out when Carolyn Stem

and Diane Kolack explained simply

that it came about by champions at

high levels, the passion of Governor

Cuomo, the visionary that was Mayor

Bloomberg and partners across

communities, the Department of State

and Department of Health.

These champions and leadership were

able to address the challenges of the

diversity of communities, source funding and build and support leadership at community

level. Challenges still remain in addressing homebound older people, employment of

older people and infrastructure and cost of housing into the future.

22 Image NYC map.org http://www.imagenycmap.org/ 23 Older Adults Tech Services https://oats.org/

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The Journey

Age Friendly Health Systems across the USA Boston Annapolis Indianapolis Boise Portland Woodland Hills Introduction Age Friendly Health Systems framework was an initiative developed initially by Dr Terry Fulmer, President and CEO or the John A Hartford Foundation. I met with Dr Terry Fulmer and her team at in New York and discussed the evolution of the framework and the immerse amount of work across multiple organisations to establish the framework. Dr Fulmer had developed numerous models of care, the most wide spread was the Nurses Improving Care for Healthsystem Elders (NICHE). NICHE is a nursing education and consultation program designed to improve geriatric care in 710 health organisations across the 5 countries24. The models Dr Fulmer has developed had similar principles but with different localities and demographics. Dr Fulmer wished to development a broader framework across broader heath systems and the Age Friendly Health System framework was born. In 2017, Dr Fulmer strategically determined the key organisations to bring on board to assist in the development of the framework. These organisations included the American Hospital Association (AHA) and the Catholic Health Association of the United States (CHA). The John A. Hartford Foundation also brought along the Institute of Healthcare Improvement (IHI), a Boston based health improvement organisation known for system change and quality improvement and set the aim of 20% of US hospitals and health systems (1000 hospitals and 1000 general practices) will be Age-Friendly Health Systems by December 31, 2020. The Age Friendly Health System framework was established to build a social movement so that all care of older adults is age-friendly care:

• Guided by an essential set of evidence-based practices;

• Causes no harms; and

• Is consistent with What Matters to the older adult and their family. The development of the framework The IHI set about to establish the framework:

• 150 articles were reviewed of care for older people.

• 17 models of older persons care were determined through extensive research

• Creators of models, health systems and the associations were invited to contribute, critique and evolve the model.

24 Nurses Improving Care for Healthsystem Elders (NICHE). https://nicheprogram.org/

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• 90 elements were established, which were reduced down to nine principles by industry experts, an esteemed group of Faculty members (see Appendix 1.).

• Redundant concepts were removed and 13 discrete features were determined.

• Faculty deliberation led to the selection of the “vital few”: the 4Ms of What Matter, Medication, Mentation and Mobility.

As there is a very strong medical community that drives and manage health care systems across the US, addressing the medical needs was seen as essential to the models success25.

The Age Friendly Health System Team

25 Personal interview – Rani Snyder, Vice President – John A Hartford Foundation – 7/5/2019

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Success features of the Age Friendly Health System framework

The IHI leaders driving the implementation of the Age Friendly Health System (AFHS)

framework are Dr Kader Mate and Leslie Pelton. Along with the AFHS team they have

established multiple documents that provide step by step awareness and implementation

guidance of the framework. Dr Kader Mate and Leslie Pelton lead me through the

implementation of the framework that any health service could master.

The framework features four key elements as the primary “content” theory or

intervention set - the 4Ms. The implementation of the framework in the US utilised an

“execution” theory of its implementation which included resource development, the use

of Action Communities and state-based facilitation. IHI’s role was to set out the approach

to executing the framework at scale. IHI remained as a neutral, non-subject matter

expert, as they were not wedded to the full breadth of geriatric interventions. IHI

contributed further by defining the scalable framework, designing of the testing

framework, integrating the improvement science, designing and driving the national

scale-up capitalising on the deep trust and credibility IHI have with health systems. IHI

also developed leaders to inform policy with 4Ms, development of tools to support a

team and health system’s testing and describing and counting of 4Ms.

The added advantage of the framework is that the cost of implementation is fairly

negligible. Almost no systems are adding personnel to carry out the 4Ms and the AFHS

implementation. It is more about redirecting existing personnel to think and act

differently. IHI incurs costs to coordinate and execute the initiative and provides all the

written resource free of charge on their website.

The 4Ms as a framework has been

acceptable and engaging to health systems

from the start. The key resource for this is

“The Guide to Using the 4Ms” 26, which

describes the recipe for reliable

implementation of the 4Ms as a set:

1. Get ready to assess and act on the 4Ms

2. Define what it means to provide care consistent with the 4Ms

3. Design/adapt your workflow to deliver care consistent with the 4Ms, including how you will document the 4Ms

4. Provide care consistent with the 4Ms

26 Age-Friendly Health Systems: Guide to Using the 4Ms in the Care of Older Adults. April 2019. Institute of Healthcare Improvement. http://www.ihi.org/Engage/Initiatives/Age-Friendly-Health-Systems/Documents/IHIAgeFriendlyHealthSystems_GuidetoUsing4MsCare.pdf

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5. Study your performance – how reliable is your care? What impact does your care have?

6. Improve and sustain care consistent with the 4Ms

IHI set about developing the 4Ms of the AFHS as a framework, rather than a model, to be

clear there is room for local adaptation, skilling local health systems to run their own local

version of the framework. This is evidenced by the implementation testing at the five

pioneer sites. The variation across the five is tremendous and it came down to two

distinct variables:

1. Leadership – Did the leader have the will and ability to execute on the ideas in the

4Ms framework? Could they engage necessary stakeholders such as front line

staff, IT or the Executive leadership?

2. Whether the Age-Friendly Health System framework was mapped to a strategic

priority – Do the 4Ms advance what already matters to the health system? It died

if it was something new to the organisation and this happened.

Interestingly, the outcomes were also impacted but these two variables.

As could be expected, IHI have supported the

measurement of the impacts and outcomes

as well. The outcomes of the framework are

multiple and measures are provided in

measurement guides provided by IHI.

Measurement of the Framework

The measures outlined in the Measurement Guide help the health service with studying their performance such as how reliable is their care? What impact does your care have?27

Action Communities

To scale the framework, IHI established what they call an Action Community. These are the next waves of framework implementation following the pioneer site. The Age Friendly Health Systems Action Community Measure Guide was hot off the press when I visited IHI. This resources provides the outcome and process measures for improvement and their operational definitions when implementing the AFHS framework.

The Action Community enables the ability of new organisations to the framework to share their outcomes to develop together. It is also encouraged that each Action Community team test and study results from a small number of conversations with older adults or their caregivers as valuable qualitative data for learning.

27 Age Friendly Health Systems Action Community Measure Guide. April 2019. Institute of Healthcare Improvement.

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I met with the IHI AFHS Senior Project Manager, KellyAnne Johnston to learn more about

the Action Communities.

The Action Communities are aimed at scaling the AFHS to enable the achievement of the

aim of 20% of US hospitals and health systems being Age-Friendly Health Systems by

December 31, 2020. The second wave Action Community of some 160 sites was

underway during my visit. During the last two days of my Fellowship I was invited to

attend a two day in person gathering of this second wave in Boston.

The second wave followed IHI principles of

test and retest with the design and

development of the framework being

amended as a result of the feedback from the

first wave Action Community and now being

implemented by second wave Action

Communities.

The second wave Action Community

implementation saw an improved change

package focusing on the psychology of

change as a result of initial implementation

feedback and a new resource focusing on

how to address what matter - when it can be

asked, how it asked. With this came a focus

on the organisation’s own narrative and

story.

The third wave Action Community, is due to commence in September 2019. Keeping with

the science of improvement and the diffusion of innovation, the following waves will

attempt to bridge the gap to engage the late adopters. As a consequence the spread and

scale is now being taken over by the American Healthcare Association to capitalise on

AHA’s trust and “market” penetration.

Business Case for becoming an Age-Friendly Health System The Business Case for becoming an Age-Friendly Health System report document was released in April 2019 developed by IHI and Victor Tabbush, Adjunct Professor Emeritus, UCLA Anderson School of Management. The business case report sets out the six steps to establishing the business case for becoming an Age-Friendly Health System and its financial returns: 1) Adopt a perspective; 2) Determine additional costs; 3) Estimate financial benefits; 4) Estimate the return on investment (ROI); 5) Compare the ROI to a hurdle rate; 6) Conduct sensitivity analysis.28

28 The Business Case for Becoming an Age-Friendly Health System report – Institute for Healthcare Improvement, April 2019 – accessed at http://www.ihi.org/Engage/Initiatives/Age-Friendly-Health-Systems/Documents/IHI_Business_Case_for_Becoming_Age_Friendly_Health_System.pdf - 30/06/2019.

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The business case modeller is developed specifically for determining the financially returns of an Age-Friendly Health System based on the US health service remuneration funding models. Communications Plan Finally, whilst in New York at the John A Hartford Foundation, I met with Marcus Escobedo, Vice President and Senior Program Officer Communications. Marcus and I discussed over lunch the details of the communications around the AFHS model. Marcus noted the details of the communications plan which was targeted in the first instance to help the target audience of health care teams to be able to describe the concept and value to the organisation. From this they could address what is important to them and to build on the strengths and change the narrative with their organisation such as shifting from focusing on falls to focusing on mobility. The change that is the AFHS framework, being supported in action by the communications in language and resources. I naively asked the communications expert why a communications plan was needed. Marcus laughed and responded to my nativity with comforting clarity. Because communications establishes credibility, he noted. However, he then added, to do so on such a scale, one needs to have heavy weight partners. That is where IHI, AHA, Catholic Health Association of the United States, one of the biggest health care providers in the US, come in. Marcus went on to explain the technical aspects of the AFHS communications plan of the key communications tool to build and disseminate the model. These included the writing of papers, creating peer review commentary or editorials which are strongly favoured and using other outlets including use of the partners, blogging, general media, conferences, local activity in local media, health specific media and publications such as Kaiser Health News, media partnerships for advertising and associations and advocacy groups. From this my thoughts immediately went to the dissemination of my Churchill Fellowship learning and how I best plan these. From here Marcus explained the campaign design. To do this John A Hartford Foundation used an advertising agency to support the information roll out as they had the capability to design a campaign and provide follow up theming and market research. This enabled rapid turnaround timeframes and a theming of all AFHS material and resources in use today.

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Age Friendly Health Systems Pioneer Sites

In 2017, to test and establish the Age Friendly Health Systems framework of care, five

innovator US health system pioneers partnered with IHI to test, refine and scale up the

Age Friendly Health Systems Framework.

The five pioneer health systems were:

1. Anne Arundel Medical Center - Annapolis, Maryland.

2. Ascension, St. Vincent Health System - Indiana, Indianapolis.

3. Providence Health and Services, St. Joseph Health System - Portland, Oregon.

4. Trinity Health, St. Alphonsus Health System - Boise, Idaho.

5. Kaiser Permanente - Woodland Hill, California

Five pioneer Age Friendly Health Systems

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Anne Arundel Health System

Annapolis, Maryland

8th – 10th May 2019

Overview

Anne Arundel Medical Centre (AAMC) was the first Age Friendly Health System pioneer

site I visited. It was an exemplar in the implementation of the Age Friendly Heath System

framework and passionate providers of care for older people.

Located in the Maryland’s state capital and naval academy town (think An Officer and a

Gentleman) of Annapolis, AAMC is a major health care provider in eastern Maryland.

The other major centres nearby include Baltimore and Washington DC, both around 45

minutes away. AMMC is a 340 bed hospital and multiple provider primary care health

system. The concentration of my visit was the AAMC Acute Care for the Elderly (ACE)

Unit, a 30 bed medical ward concentrating on the care of people over 65 years of age.

The AAMC ACE unit is led by Lil Banchero, the Senior Nursing Director for the Institute for

Healthy Ageing & Senior Director for the Acute Care for the Elderly Unit and openly

supported by president and chief executive officer, Victoria W. Bayless and Vice

President, Nursing and Chief Nursing Officer, Barbara Jacobs. The introduction of the

AFHS framework came with Executive leadership support, noting that the AFHS

framework “is the right thing to do and it is what we should be doing!”

Lil Banchero has been able to capitalise on this lead, assisted by Deborah Cockerel,

Clinical Director of the ACE Unit and Denette Redley, Clinical Educator, to establish a

passionate care team, build upon the previous work based around the NICHE (Nurses

Improving Care for Healthsystem Elders) program and coordinate the implementation of

the AFHS framework.

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In 2016, IHI and John A Hartford Foundation sought out AAMC to assist in the

development and testing of the AFHS framework. As a result, AAMC became one of the

five AFHS pioneer sites.

The frameworks implementation was carefully crafted by Lil Banchero, supported by IHI.

Organisation leadership valued the framework which supported it embedding as normal

practice. Lastly, the framework aligned with the organisation’s vision of Living Healthier

Together and mission, to enhance the health of the people we serve.

Patient bedside communication board with “What Matters” at the centre

Lil Banchero and the AAMC ACE Unit team

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Anne Arundel Health System

Annapolis, Maryland

8th – 10th May 2019

Implementation factors

Primary implementation in Acute Care for Elderly (ACE) unit/ward

Priority elements

1. What matters to the patient, what the patient wants to achieve by being in the ACE unit (What Matters)

2. Pharmacy reconciliation (Medication) 3. Hydration (Mentation) 4. Mobility (Mobility)

• Greatest impact - asking the question What Matters

• Staff engagement - all the staff were asked what to do and they have continued to drive the change.

• The staff training around the AFHS framework, focused the specialised care that is geriatric care.

• Every two weeks something different was planned for implementation. It was tested and assessed what worked. Then work on the next things while further developing the first thing following the PDSA cycle for each change.

• Key Mentation goal was delirium. Targeted patient hydration. The unit tried different cups and measured the amount of water consumption. It was found that more water was drunk with a cup with a lid and straw. So, the unit ordered cups with a lid and straws for all patients. The cost is more, but as a result hydration of patients increased by 73%.

• What matters to the patient is the centre of the patient’s bedside communication boards.

• Patient care was everyone’s role, from the nurses to the cleaners.

• AAMC ACE unit is the only unit in the hospital that is screening for delirium. Followed recent work by Donna Fick’s work29 from the Pennsylvania State University College of Nursing on dementia and delirium – positive impact by not missing, mislabeling or mistakenly attributing delirium to the underlying dementia or “sundowning”. As delirium can occur four to five times more often in a person with dementia and can subsequently increase hospital stays, increase cognitive decline and rehospitalisation, addressing it as part of the 4M framework upon admission can improve a patient’s health outcomes.

• Falls reduction by increasing mobility.Use of the Johns Hopkins Activity and Mobility Promotion model30. This identifies how much mobility the patients is to perform each day. The higher the level of mobility, the greater the range of staff who can support the patient. Such as a level eight mobility task can be supported by all staff.

29 Fick, D. M., Hodo, D. M., Lawrence, F., & Inouye, S. K. (2007). Recognizing delirium superimposed on dementia: assessing nurses' knowledge using case vignettes. Journal of gerontological nursing, 33(2), 40–49. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2247368/ 30 The Johns Hopkins AMP Program https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/education_training/amp/index.html

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Despite the demographic being older and more frail than any other unit in the hospital (average age of 82 year old), no falls with injury in over four years and no falls in the four month prior my visit. Across the hospital the rate averages 18 falls a month for a 340 bed hospital. This was achieved by no additional staff and no extra expertise needed.

• Daily exercise sessions are also run where patients participate in a 40-minute group session. These sessions are part therapy and part socialising.

• Electronic medical record (EMR) Incorporating “what matters” into the centre of the electronic medical record, translates what is now on the patient’s bedside whiteboard.

• Beers Criteria was introduced into the electronic medical record31.

• 4Ms in shift reports and to guide patient handovers between shifts.

• Team rounding to drive this mindset change. During team meetings, physicians, nurses and care managers discuss how to prioritise each patient’s preferences and needs. What matters to the patient is discussed as part of planning their care.

Success factors

• The AFHS framework and IHI support – user friendly, well researched, allowed overview of the patient’s needs and addressed all complex issues.

• Use the PDSA cycle for each change

• Executive leadership support, ward level leadership support and staff support of the framework.

• Passionate ward leadership that engaged staff in the vision. Lil Banchero has been able to harness the passion people had and focused on the people passionate about the work. Through this at every meeting and opportunity the vision was reinforced.

• Measure the progress against the 4Ms, a scorecard is displayed which includes falls numbers, the percentage of patients mobilised, the percentage patients reported on and the number of staff incidents. Watch measures were created that measured the patient’s length of stay and patient’s 30 day readmission rates.

Barriers

• Data collection - insufficient data mining and data analysis occurred at the start of the initiative. This meant that there was limited

baseline data to measure the overall improvement of care on the ward.

• No geriatrician on the ward.

• Capturing the hearts and the minds of the doctors and the majority of medical are not geriatric minded.

Unintended Success

• AMMC ACE unit has the highest staff satisfaction across AAMC, the best patient satisfaction results. While I was visiting AAMC, I had the

pleasure of joining the staff at the health system’s International Nurse Day celebration dinner and the staff were clearly cohesive,

passionate and love what they do. The only staff not attending the dinner were working in the unit.

31 American Geriatrics Society Updated Beers Criteria® for Potentially Inappropriate Medication Use in Older Adults. 2019. https://geriatricscareonline.org/ProductAbstract/american-geriatrics-society-updated-beers-criteria-for-potentially-inappropriate-medication-use-in-older-adults/CL001

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Ascension St Vincent’s Health System

Indianapolis, Indiana

15th -17 May 2019

Overview

Next stop the largest motor sport event in the USA, the Indianapolis 500. I had the good

fortune to head to Indianapolis a week before this major event to visit St. Vincent’s

Medical Centre and explore their implementation of the AFHS framework. And I attended

a practice session of the Indianapolis 500, which was washed out by rain and the stands

had to be evacuated due to lighting and I witnessed the start of a tornado – an eventful

afternoon.

St. Vincent is a member of Ascension, the largest Catholic, mission-driven, not-for-profit

health care system in the United States. Their vision is to care for the mind, body and

spirit of their community. St Vincent’s health system has over 16,000 staff and 3,000

medical staff across 24 sites in Indiana.

While at St Vincent’s, I spent two days embedded with their geriatric team and the Center

for Healthy Aging, which was made up of geriatric medicine physicians, geriatric

psychologists, nurse practitioners, registered nurses and social workers. The St. Vincent

geriatric team is a very experienced multidisciplinary patient centred team who focus on

the diagnosis and treatment of senior health concerns, especially medical symptoms that

are disguised as an “aging” complaint.

I spend time with geriatricians Dr Diane Healy and Dr Pat Healy, Director of Care

Coordination, Suzanne Engle and the manager of the Center for Healthy Aging, Jennifer

Allbright. Supported by the AFHS project lead, consultant Linda Murphy, this core team

became key leaders in the introduction and implementation of the AFHS 4M framework.

St Vincent’s have been able to implement a small yet effective approach to the AFHS

framework. Implementation in the Center for Healthy Aging is positive and the primary

care Fellowship is developing. General practice uptake of the framework is limited to one

practice and it is very early days. Once again Executive leadership was a strength and their

willingness to address the ageing population’s need despite the cost – at this point in

time. In addition, the clear leadership and guidance provided by the project lead, Linda

Murphy. The passion of the geriatrician leadership was obvious and the relationship that

they held with their staff was positive and rewarding.

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Ascension St Vincent

Indianapolis, Indiana

16th May – 18th May 2019

Implementation factors

• Focus on Primary Care (general practice).

• Integration of the AFHS framework into the electronic medical record. This allowed the Medicare annual wellness assessment to be completed around the 4Ms framework.

• Strong geriatric assessment model of care that addressed issues and communicated with patients around the 4Ms. The individual and their family, or carer, would then attend the clinic for a geriatric assessment which runs over three consultations over three weeks.

• 4Ms Primary Care Fellowship at the Johnson Nichols Primary Care Clinic in Spencer, some 95 kilometres out of Indianapolis. St Vincent’s developed professional development program for primary care practice staff. Attended by a nurse practitioner, two practice nurses and four practice administrative staff. The sessions included:

o Session 1 – What Matters o Session 2 – Medication o Session 3 – Mobility o Session 4 – What Matters o Session 5 – Funding o Session 6 – QI project

• Medication reconciliation, use of the BEERS criteria and teaching general practitioners to calculate creatinine clearance calculations, the rate at which waste, measured by creatinine, is cleared from the blood by the kidneys was presented as a means to understand medication clearance rates in an older people.

• No diagnosis of a person’s cognitive status is made without a full Neuropsychologist assessment. I met with Neuropsychologist, Dr Patrick Wagner, who reinforced to me too many people are misdiagnosed for dementia. No cognitive diagnosis is valid unless a repeatable battery of assessments is performed using neuro cognitive assessment standard and composite scores. Too much depression and anxiety is confused and misdiagnosed as dementia. The new current language of major neuro cognitive disorder is now replacing the use of the term dementia, due to the potential overuse and misdiagnosis.

Success factors

• Supportive Executive leadership

• Structured implementation process implemented by an AFHS champion

• Geriatric assessment costs more than the potential Medicare or insurance repayments. Senior Executive support is willing to address the ageing population’s need over the viability of the model – at this point in time.

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• Use of innovator primary care clinic to roll out and test 4Ms Primary Care Fellowship.

• Passionate geriatric leadership, operational leader and Executive leadership.

• Inclusion of practice staff in Fellowship - Fellowship session on medication discussed de-prescribing inappropriate medications. It was noted by the practice’s administrative staff that they assumed that once you were prescribed a medication, you stayed on it. This was a powerful message for the administrative staff as patients would often share with them their concern when a doctor de-prescribes a medication. As a result of this session, administrative staff were empowered to support the Doctor’s de-prescribing by reassuring patients it was a positive action.

Barriers

• General practitioner (primary care provide) engagement

Unintended Success

• Increased patient engagement, improved staff satisfaction, increased health service remuneration and increased patient and families’ understanding of their care.

Dr Diane Healy and Dr Pat Healy.

Just prior to my departure from Indianapolis, I had the pleasure of sitting down for an

insightful discussion with geriatricians, Dr Diane Healy and Dr Pat Healy at a Starbucks

across the street. Drs Diane and Pat Healy met me on their day off to share their passion

for the Center and their roles. In our discussion they noted that the current success in

health ageing provided by medicine has created extra burden on individuals and the

system due to people having multiple conditions at once. With specialists in the US

accounting for 80% of the medical workforce, there are very few looking at the general

health care of people. The US system is now so underprepared for the change in

population demographics, the introduction of the AFHS framework could now enable

general practitioners to be in the driver’s seat of older persons care. However, they

urged, this requires a change in

mindset and a degree of urgency.

Drs Diane and Pat Healy, now

work part time to maintain the

lifestyle balance and their passion

for their roles as geriatricians.

They love the AFHS framework

because “it is what we as

geriatricians have been doing for

thirty years, but now makes it

digestible and therefore a great

way to structure assessments,

communication and engagement

with patients”.

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Providence Health & Services

Portland Oregon

20th – 24th May 2019 I was now on the west coast of the US, in Portland, Oregon. I was here to visit the Providence St. Joseph Health. Providence St. Joseph is part of Providence Health & Services, a non-profit Catholic health care system operating multiple hospitals across five states. In Oregon, they operate some eight hospitals, 90 general practice clinics and a health insurance plan.

I was honoured to be invited by Providence St. Joseph Health Oregon region executive director of the Senior Health Program, Ruth Johanson, to observe the Providence Health & Services Geriatric Mini Fellowship in action. The Geriatric Mini Fellowship is a four week fellowship provided to selected general practitioners. Providence Health & Services senior leadership allows for the participating fellows to be offline out of their clinics for four one week blocks. The offline time is fully paid and not penalised as part of the Providence productivity model. Once graduated, the fellows get two hours per week administrative time from Providence to work on a project or initiatives related to improving the care for seniors. The aim is to increase the knowledge, self-efficacy, skills and competencies of participating fellows and in return for them to become geriatric “clinic champions”.

The clear vison of the Senior Program to use this fellowship as a unique, effective and comprehensively strategic way of implementing AFHS into general practices across Providence’s catchment, was brilliant to see. The use of implementation science, change management and strategic communication with senior leadership has provided great opportunity. The passion and leadership of the small team of the Senior Program at Providence is admirable. The program has used its strengths in clinical knowledge, research and group facilitation to provide a remarkably professional and structured program that touched the hearts of the fellows, open their thinking and reinforced their ability to make significant difference in people’s lives.

Marian Hodges, MD, MPH and Colleen Casey, PhD, ANP are the Course Co-directors with David Kidd.

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Providence Mini Fellowship in action

Falls in focus – GPs patient’s falls incidence and outcomes

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Providence Health & Services

Portland Oregon

20th – 24th May 2019

Implementation factors

Geriatric Mini Fellowship for Primary Care (general practitioners) from across the Providence Oregon catchment.

o 2018 – Seven general practitioners o 2019 – Six general practitioners and three nurse

practitioners across three geographical medical directorate areas of Oregon.

• Fellowship implementation – waiting list of general practitioners GPs wanting to do the program. 2019 and 2020 fully committed at end of 2018.

• Fellows selected by regional medical directors

• Fellowship noticed when Over the four weeks, this practitioner reengaged with the professions. The fellows reported that the fellowship re-engaged them with why they went into medicine in the first place.

• Four week release of the fellows

• Each week, of the four week fellowship, focuses on one of the 4Ms each week.

• Fellowship covers the foundations of the care of seniors plus overview of how you approach an older adult, what’s normal ageing, normal ageing physiology. Last day of week one is on driving – could be mobility or what matters.

• Mobility work developed around recognised standards.

• During the week the fellows were trained in assessments across mobility, which included fall risk screens, awareness of falls risk areas such as vision, medication, orthostasis (drop in blood pressure when standing up), vestibular (inner ear) issues, gait and footwear.

• Expanding the geriatric expertise within each clinic among all providers. A weekly performance improvement assignment is developed by the participating fellow, to identify ways to incorporate the fellowship learnings into their own practice patterns.

• Sharing stories with the regional directors has been very powerful. The regional directors have requested more fellowships. Group size is desired to remain at eight or less to maintain positive group dynamics.

• Very careful with observers in the room as it changes the group dynamic after establishing group trust.

• Used the fellow’s clinics as a pilot sites for a falls study run by Dr Casey. 120 patients – graduated fellows understood and easily adopted the study concepts.

• The Senior Program team is the only geriatric service within Providence. Senior Program made up of pharmacist,

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physiotherapists, nurse practitioner and analytics. Partners include social work and nurses.

Success factors

• All fellow’s practice staff attend one day of each week’s sessions.

• Mini fellowship AFHS implementation strategy - The fellows are the mechanism to scale AFHS across the system.

• The fellowship emphasises the use of data to support change. Through the use of the right metrics you can prove the worth of the work.

• Fellows learn about system level change that helps them identify facilitators and barriers to clinic change and choose and implement operational strategies to improve their care of patients using the 4Ms.

• Using Kotter’s model of change - the strategy is to provide a consultative service to build the will and identify early adopters and the skills needed to train up staff.

• It is all about relationships. Developing relationships and identifying the threads of a collaboration are key Senior Program activities.

• The Senior Program team and partners believe in the work and are therefore able to catalyse other teams.

• The fellows believe in the framework and go on to advance the work while improving the care for seniors.

Barriers

• Providence Senior Program is a small program, so has limited access and influence in the acute setting. Only 4.5 effective full time (EFT) staff levels. Can only do so much due to workforce limitations.

• Lack the funds to expand.

• Future is not bright re bringing on new geriatricians and nurse practitioners into the system as they are the least paid medical profession.

Unintended Success

• Creation of the fellowship as a product for dissemination model of the 4Ms – potential opportunity within Providence and across the country.

• Outside of the expected improvements in the quality of care, reduced burn out and an increase in patient donations to the health system foundation were unexpected.

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Trinity Health System – St Alphonsus

Regional Medical Center

Boise, Idaho

29th – 30th May 2019

A one hour flight inland from Portland brought me

to Boise, Idaho. Famous for potatoes, Idaho is a

mix of alpine Rockies and prairie land. Bordered

by iconic states like Wyoming and Montana, Idaho

has some 1.7 million people. The capital of the

state is Boise, with 730,000 people.

I was here to explore the AFHS roll out at St

Alphonsus Regional Medical Center, part of the

Trinity Health System, a not-for-profit Catholic

health system operating 93 hospitals in 22 states.

St Alphonsus is an acute, level II

emergency/trauma centre and primary care system with a focus on cardiac, maternity,

orthopaedic and emergency care.

There I met with Director of

Medical Services – Geriatrics,

Chad Boult, MD, who led me

through the AFHS

implementation at St

Aplhonsus. Dr Boult has

extensive experience in

developing and testing new

models of comprehensive

health care for persons with

chronic conditions, has

published two books and more than 100 articles in biomedical scientific journals.

The framework implementation appears to have been less successful at St Alphonsus.

This was put down to several factors, namely limited support from senior management,

the role of care of older people did not fit the current organisational business model and

lastly, there was no clear data collected during the project and as a result they were

unable to prove positive progress.

An unintended outcome was the development by Dr Boult and IHI of five new questions

to be added to the Clinician & Group Consumer Assessment of Healthcare Providers and

Systems (CGCPS) patient satisfaction surveys. Four new questions align with the 4Ms and

one aligns with general age friendly care. The CGCPS measures patient satisfaction in

outpatient and general practice settings. As a result of this there is potential for a new

study to measure the questions outcomes and effectiveness.

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Trinity Health System St Alphonsus Regional Medical Center Boise, Idaho 29th – 30th May 2019

Implementation factors

• Project officer worked across seven team in four program areas. 1. Inpatient services 2. Outpatient services 3. Post-acute services – three teams 4. Hospice services – two teams

• Team attended IHI training

Success factors

• Motivated teams involved

Barriers

• Limited support from Executive leadership and not reinforce implementation.

• Determining “what matters” takes time and fit within the current business model.

• Multiple medical records system – so no organizational connectivity.

• Implementation not fully structured or integrated. Teams worked independently.

• Nursing staff were positive of the new direction - but initiative overload was very real - ”there are enough initiatives we are tackling”.

• Data collection – no clear data was collected and as such were unable to prove positive progress.

• No champion currently across the organization,

• Framework not seen as part of core business model.

Unintended Success

• Establishment, in partnership with IHI, of patient satisfaction measures for national that target the 4Ms as part of Press Gainey’s Clinician & Group Consumer Assessment of Healthcare Providers and Systems (CGCPS). This is a standard survey to assess patient perceptions of care provided in both primary care and specialty care settings

Five new questions will be included into the CGCPS. Four covering the 4Ms and one for age friendly care. Potential for a new study to measure the questions outcomes and effectiveness.

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Kaiser Permanente

Woodland Hills, California

3rd April 2019

Overview

Kaiser Permanente

Woodland Hills is located

some 46 kilometres

northwest of Los Angeles. It

is a 280 bed health service

that services 160,000 Kaiser

Permanente Health

insurance members. The

Woodland Hills campus is

part of the large not-for-

profit Kaiser Permanente

health plans and health

system. Operating across

eight states and the District

of Columbia.

I was hosted by Shant

Bairian, Managerial

Consultant - Performance

Improvement and Karineh

Moradian, Assistant Medical

Canter Administrator - Performance Improvement.

During my day at Kaiser Permanente, I participated in “The Spread”, the staff training

program around the 4Ms. The implementation at Kaiser Permanente Woodland Hills of

the AFHS framework was to date been successful due to;

• Extensive change management effort,

• Multiple bed side tools to assist the framework implementation with patients,

• Strong Executive leadership support,

• Passionate operational leadership and staff,

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Kaiser Permanente Just Like Home place mat

Kaiser Permanente Exercise place mat

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Kaiser Permanente

Woodland Hills, California

3rd April 2019

Implementation factors

• Initial Roll out – Acute for Elderly (ACE) unit/ward

• The goal to reach 41,000 people across the catchment.

The Spread

• One hour intensive training on the 4M’s for all nursing staff across Kaiser Permanente Woodland Hills. Also 3 Ds training provided to support care of dementia, delirium and depression.

• Focus deeply across the ACE unit to cover all staff on the floor.

• Implementation across remaining wards to occur from July 2019 onwards.

• Implementation with medical staff to occur separately. Physician training will be lighter with a greater focus on the AFHS language and terminology rather than the full model implementation. This is to enhance referral opportunities and to enable receipt of referrals.

Age Friendly Tools The following tools were created by Kaiser Permanente and tested and implemented across the health service.

1. Admission Packet – received by all new patients across Kaiser Permanente

• Just like home information pack – providing information for patients to bring in what you wish – No weapons please.

• Medications – list of medications

2. Place mats – All patients regardless of age. Food tray placemat each patient.

• Crossword and mind games – Mentation

• My Daily Exercises – Mobility plan for individual patients i. Precautions advised ie lower limb orthopaedics

patient restricted exercises. ii. Inclusion and exclusions - wounds etc

iii. Patient expectations noted iv. Nursing expectations noted

• Educate

• Motivate and promote

• Assess

• Remove barriers to exercise

• Documentation of all of the above.

3. All about me cards - addresses mentation

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a. Extra questions asked and held in medical record. i. What do you fear about your visit?

ii. What matters today?

Unit culture

• Mobility is a priority on the ward.

• Preventing and treating delirium a strength.

• Nurses trained in BEERs criteria

• Call don’t fall implemented across the ward

• Inhouse research found delirium prevented by mobility – presented as a 2017 NICHE conference poster.

• Volunteers on the wards – Patient activity room manned by volunteers all day for ad hoc patient drop in and activities.

• Encourage patient’s family to be with their loved ones as much as possible during their stay.

• Patient’s bedside board – family encouraged to add to it.

• What matters on care board

• Patient rounding on what matters

• All about me forms – Completed by patient to provide personal details, interests and background they are willing to share encourages a conversation and connection with patient.

Patient rounds

Geriatrician and Nurse Practitioner split patient’s cases and review patients with lead nurses off the floor.

Process for rounds:

• History o Medical o Living – ADL/IADL o Medication o Specialist needs ie. O2 etc o Mobility o Diet o Sleeping o Mentation

• Objective update

• Any concerns for the patient or patient concerns

Success factors

• Highly engaged and motivated teams.

• Senior Management support very strong – “we should be doing this”.

• Videos of a patient story has been a strong way to sell the concept and successes up to senior management.

• “No pass zone” – no one owns a patient. If something needs doing with a patient then it is everyone’s business.

• Teamwork across the ward due to combined commitment to the framework and desire to achieve positive patient outcomes.

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• No pass zone – No one’s patient – every patient is every ones patients

• Teamwork – Open communication, consensus decisions

• Kaiser Permanente ratio 1:4. Health department recommends 1:5

• Doctors always at the table with planning and implementation.

• Fortnightly meetings held with physicians and nurses to develop what Kaiser would introduce.

• Work was marketed through the right forums – therefore was accepted – ie. used Geriatrician to get approval and this enabled medical staff to accept it such as exercises despite it being straight form the PT.

• IHI do not provide direction, but rather allowed the site develop the approach they wanted to make “Trust the process”.

• The feedback provided by regional leadership and medical and nursing informants enabled feedback loop to improve the model whilst in action. “what can we do, what can we remove form our practice”. There was a strong open mindset of all involved.

• “The Spread” and the tools.

Who is on the floor

• Geriatrician

• Pharmacist

• Physiotherapists,

• Nurse practitioner

Barriers

• Need champions and key drivers in the team to keep pushing the framework again and again.

• Patient voice on the team difficult to implement.

• Having enough staff to fully implement.

• ACE unit stands alone with regard to AFHS roll out – not implemented in any other part of the health system to date. Need to justify to management.

• Space to have patients eat together.

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Conclusion

The aim of my Churchill Fellowship was to explore how to improve the quality of care of

older people in our health system. To do I visited a significant international contributor to

healthcare improvement. There I was able to be immersed in the key elements of

improvement science, scaling and sustainability of healthcare improvement. I was then

able to explore this in action across five health systems. The key finding from this were

that leadership support for improvement is critical and that any improvement is linked a

strategic priority or core value. To grow and sustain any improvement, partnerships are

crucial. Strategic partnerships, formal partnerships and the most powerful of all, informal

partnerships.

My exploration enabled me to witness an evidence based framework of improving care

for older people that has been researched, evaluated, tested and scaled. This framework

is available and able to localised and implemented with significant implementation and

improvement science embedded. I was privileged to have been the only person who has

explored this framework and visited all of the five pioneer implementation sites. The

learnings and tools from this, embedded in the report, are the opportunity to reorient

how we care for older people in Australia.

The openness of IHI to share their resources and findings along with the introduction to

multiple leaders in ageing research, communicators, influencers, clinicians and service

providers, has enabled me to exceed my fellowship aims.

I now bring to Australia a network of people and framework insights and research that

can change care for older people in hospitals and in general practice. Along with partners

locally that include Safer Care Victoria who have now a strategic relationship with IHI and

Better Care Victoria’s funded applicability scoping project in northeast Victoria of the

localisation of the Age Friendly Health System Model to Australian conditions, introducing

this movement to Australia will be supported and localised.

The overall value of the Fellowship experience was meeting incredible leaders in health

care, health care research, health care leadership thinking, leaders and authors in quality

improvement science and implementation science.

The overall passion of the people I met and experiencing their challenges and successes in

changing cities, towns, hospitals, general practices and thinking about older people was

inspiring. Age Strong, Longevity, Elders, Age Friendly, SenAgers – the abilities, economy,

employment, sharing, insights, learning, teaching and the social capital and positive

presence of older people in our community brings so many opportunities.

The recommendations are addressed to:

• Health care services

• Aged Care services

• Local Government

• General Practice

• Employment agencies

• Researchers

• Policy makers

In addition to:

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• Members of the community

• Other industries that work with, employ and service older people in our

communities.

To realise my recommendations they must be aligned with the vison and values of who

every wishes to partake or assist in their realisation. There would minimal resourcing of

initiatives to implement significant change in thinking and health care practice.

Resources would benefit the capability development in improvement and

implementation science, the implementation of the Age Friendly Health System

framework across health services.

There is a movement current occurring in Australia, especially in rural areas, where the

value of older people’s contributions and presence is becoming increasingly appreciated.

Now, is an opportune time to explore and realise the potential in every community.

The findings in my report should be controversial.

The framework in the health care setting that I explored not only enables savings in

healthcare costs, it also provides value by improving the outcomes of older people in

health care. Reducing falls, delirium, medication usage or errors reduce healthcare and

personal costs.

.

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Recommendations

1. Reframe ageing The value of older people must be recognised in our communities and society. We need to change the narrative to acknowledge older people as a significant contributor, with significant skills, are articulate and courageous.

2. Self-actualisation of older people Ask and act on what matters to older people. Older people need to be included, consulted and participants in the design, development and implementation of things that affect them. Ask then what matters and what they will tolerate.

3. Utilise the strength in the community Utilise the existing skill, awareness and diversity that is our older population. The provision of employment, opportunities and inclusion as a community resource that is underutilised.

4. Promote the Age Friendly Health System framework Disseminate and promote the Age Friendly Health System framework to better engage and care for older people in our health services and general practices to reduce unnecessary harm and better communicate with health professionals, individuals, families and cares.

5. Implement the Age Friendly Health System framework Disseminate and promote the Age Friendly Health System framework to better engage and care for older people in our health services and general practices to reduce unnecessary harm and better communicate with health professionals, individuals, families and cares.

6. Develop and promote values based leadership Leadership that is values based is driven and evaluated on values rather than specific metrics. In healthcare, values based leadership will drive care that is inclusive, outcome based and will contribute and participate in the wellbeing of the community as a whole.

7. Engagement in the advancement of care for older people. Establish and support participation in interstate and international networks and exchanges that promote knowledge, sharing and lessons learned about the care of older people and their specific needs.

8. Build trust and relationships Create the environments within our health care system where people can develop deep collaborative relationships to address the needs of the community. This must go beyond the normal understanding of external relationship management and will require new methods of engagement to create enduring personal and professional relationships.

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Dissemination

This content of this report will be disseminated through the Victorian Healthcare

Association, the Department of Health and Human Services, Safer Care Victoria, chronic

disease, age relate and health care improvement conferences and communications

channels.

I have already presented my findings to colleagues across Victoria and plan to extend this

through COTA and other organisations that support older people.

I am currently developing an organisational approach to Age Friendly Health System

implementation where I work and am supporting neighbouring health services to do the

same.

My Churchill Fellowship has been the subject of several newspaper and radio interviews

prior to my departure and since my return.

I plane to work with the Victorian Department of Health and Human Services, Seniors,

Ageing and Aged Care Branch to disseminate my findings.

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Appendix 1

AgeLab Research

Mapping the caregiver journey

http://agelab.mit.edu/sites/default/files/caregiving/

A large portion of the population is involved in providing unpaid care for a family member.

However, not much is known about what caregivers are doing on a daily basis, what services

and resources they use, and how they balance caregiving with work and personal life.

Researchers at the MIT AgeLab has conducted an exploratory study to learn more about

caregivers and the caregiving experience. The research process and results are presented in

this website.

People desire to age in place. This is creating carer pressure.

Panel to look more broadly – infuse data to create products that can support caregivers.

What is the day in the life of a caregiver? What caregiving jobs, tasks, and responsibilities

pose the biggest burden? How does caregiving affect an individual's health and wellbeing?

Where do caregivers need help?

Use of interactive dashboards to illustrate specific caregiving tasks.

Caregiving and Tech

http://agelab.mit.edu/home-services-and-logistics

The home is more than simply a place to live; it is a platform to engage with new

technologies and services, and enable a better life tomorrow. Unprecedented changes in

household composition call for innovative approaches to social and service connectivity. At

the AgeLab, we are exploring the future of technology-enabled home services integrated

into everyday living to enhance well-being and safety and what types of services will be

desired by older users, and their families and care providers to facilitate aging in place.

Further research examines the impact of home design and the decision-making processes

regarding whether to move or age in place.

Product offerings available and the role they play and how they are accessed by older

people.

• Voice activated support (ie Alexa) and how they can benefit older people

• Access to tech explored

• Impact on isolation being explored

Retirement viability

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Financial planning is critical to enabling individuals to address traditional long term planning

questions, however, ensuring quality in longevity is equally important. How will you stay

involved in your community or grab coffee with a friend? Do you want to volunteer or work

part-time? Are there opportunities for lifelong learning?

AgeLab works with financial service firms, banks, and insurers to explore how people think

about longevity issues throughout the lifespan and take action to plan for life tomorrow.

Furthermore, we examine the role of engagement, advice and trust across generations to

ensure financial preparedness for a variety of paths.

http://agelab.mit.edu/prompting-savings-behavior-through-social-comparison

Imagine being 70 – Hopes vs Tears

Health is the biggest fear of ageing.

Findings: Connection to self – Those with a stronger sense of their future self had greater

financial planning

The Language of Retirement

https://www.onefpa.org/journal/Pages/AUG18-Describing-Life-After-Career-Demographic-

Differences-in-the-Language-and-Imagery-of-Retirement.aspx

Lee, C. & Coughlin, J.F. (2018). "Describing Life After Career: Demographic Differences in the

Language and Imagery of Retirement," Journal of Financial Planning 31(8): 36–47

How we plan for retirement is dictated by what we think retirement is, which is far from

uniform or universal. To obtain a better understanding of how people visualize the phase of

life called retirement, the AgeLab asked individuals to provide five words for how they

imagined their "life after career" - a phrase lacking the built-in connotations of the word

"retirement."

The results uncovered an impoverished cultural vocabulary around how people think about

their lives after their career. Just 28 words accounted for half of all responses received.

Females tended to be more relationship based. People not really sure of what their

descriptions of retirement, indicating both an ambiguity and limitation in relating their

current selves to possible future states.

Student Loan Debt & Longevity Planning study

The effect of student loan debt on decisions such as moving out of the family residence,

buying a home, getting married, and having children has been well-documented. But there

may be further impacts of large-scale student debt that have gone relatively unexplored.

College costs are extending across the lifespan. Retirement savings are being affected by

student loans.

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The AgeLab is holding focus groups of student loan borrowers, organized by age group and

by level of debt, to better understand how student debt is shaping peoples' life decisions

and relationships across the life course.

In particular, the study will explore the information-gather and decision-making that people

undergo prior to taking out loans, the effect of student loan debt on family relationships,

the way that debt affects how people plan for and save for retirement, and how the burdent

of debt impacts their socioemotional and physical health and financial well-being.

This study will be one of the first studies to explore the intersection of student debt and

retirement planning, and will be the first to explore these concepts through a mixed

methods approach and with borrowers of different ages.

Machine Learning

This study explores the level of trust in decision support?

• Decision making support tools

• Image recognitions

Decision support decreases bias, but will doctor’s feel undermined or supported by decision

support?

Multiple expert assessment is currently underway.

Diagnostic support is also being explored.

MIT influenced entities.

Care Coach

Person works behind an avatar to establish on screen relationships. Piloted at Element Care.

Element Care initiated a four-month pilot in which participants received a care.coach™

avatar to provide 24x7 support, wellness coaching, and intelligent reporting. Element Care

used the devices in participant’s homes to improve continuity of care and social support,

and to encourage better self-management of chronic conditions. The devices, which each

get named by their owners, appear as a virtual dog or cat on a touch-screen device.

Participants interact with the avatar by speaking with it or touching it. This interface allows

even older adults who have complex functional impairments to be engaged effectively and

in a joyful way, regardless of ability, or technical inclination. The goals of the program were

to reduce nursing visits, reduce ED utilization and provide additional social support and

health education .

https://www.care.coach/

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Rendever

Virtual Reality headset. Rendever is overcoming social isolation through the power of

virtual reality and shared experiences. In the past three years, Rendever have installed their

virtual reality platform in more than 100 senior living communities across the US and

Canada. Rendever’s resident engagement platform has been used by hundreds of staff

members and provided more than 400,000+ experiences to thousands of residents.

https://rendever.com/

Gogograndparen

Massachusetts Institute of Technology that connects older people to ride sharing services

like Lyft. Looking to expand the program for meals, groceries and medicine.

GoGoGrandparent aims to be a virtual caregiving platform that delays or even ends the

need to hire a caregiving agency or move into a retirement community.

https://gogograndparent.com/

People walker

People Walker is a digital platform that connects people with safe and reliable walking

partners on-demand. It’s marketed as a quick and easy way to get people moving, improve

wellbeing and get connected .

https://www.peoplewalker.com/

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Appendix 2

Ascension St Vincent

Indianapolis, Indiana

16th May – 18th May 2019

Center for Healthy Aging Geriatric Assessment Clinic overview

The model of care at the Center for Healthy Aging was quite comprehensive. Referrals were

received from an individual, family member or general practitioner has concerns regarding

the individual’s cognitive and/or functional health. The individual and their family, or carer,

would then attend the clinic for a geriatric assessment which runs over three consultations.

Initial Appointment 1. Functional review of patient with family

2. “What matters” survey is completed by the patient to determine what matters

to the patient.

3. Neuropsychological appointment is organised if required, such as when it is

suspected that there cognitive impairment. No dementia diagnosis is ever made

without neuropsychological assessment.

4. Pharmacy reconciliation is organised of the patients medications.

5. A medical review is performed by the geriatrician with the assessment following

the 4Ms framework utilising the Annual Older Persons wellness assessment

payable under Medicare and includes Patient Health Questionnaire (PHQ) self-

administered assessment for common mental disorders32 and development of an

advance care directive33.

Following this consultation, the geriatric team meet and discuss the patient and confirm a

plan moving forward.

Second Appointment (week two) A nurse review of the patient is performed with family members in attendance. This would

include:

1. A mobility review using SLUM and STEADI and therapy prescription of required. 2. Pathology test results are reviewed. 3. A diagnosis discussion with the patient and family. 4. Recommendations are then discussed with the patient and family. 5. Resources and referrals are organised for the patient and family

32 Kroenke, K., Spitzer, R. L., & Williams, J. B. 2001. The PHQ-9: validity of a brief depression severity measure. Journal of general internal medicine, 16(9), 606–613. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/ 33 An instructional direction that articulates ones legally binding instructions about future medical treatment, should they lose decision-making capacity. https://www2.health.vic.gov.au/about/publications/FormsAndTemplates/advance-care-directive-for-adults

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A dementia education session is run monthly which is oriented toward family members to

help them understand and meet the needs of their loved ones with dementia. The series is

free and open to anyone who is interested to learn about dementia and how to navigate

through the progression of the disease.

Third Appointment (week three) 1. Geriatrician and patient get together and discuss the diagnosis and the plan

moving forward. 2. A social work review and discussion with family also occurs at this point. 3. Then the patient, their family, the nurse, social worker and geriatrician all come

together to discuss recommendation and future plan. 4. Generally, a 6-8 week follow-up will be scheduled at this time.

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Appendix 3

IHI Age Friendly Health System Action Community Wave 2

Boston Gathering

5th & 6th April 2019

The following are some notes of the highlights of the IHI Age Friendly Health System Action Community Wave 2 Boston Gathering.

People don’t buy what you do; they buy why you do it.

Simon Sinek

Deep Dive: Asking and Acting on What Matters

Mary Tinetti, MD, Gladys Phillips Crofoot Professor of Medicine (Geriatrics); Professor, Institute for Social and Policy Studies; Section Chief Geriatrics, Yale University. Kevin Little, PhD, Improvement Advisor, IHI

This session provided tactical ways to get started asking and acting on what matters, based on lessons learned from different perspectives highlighting the key support provided in the IHI Age Friendly Health Systems What Matters to Older Adults Toolkit . Determining What Matters. For patients

• What matters most….. as there may be so many things to consider – all are relevant.

For Health Systems

• Determine unnecessary and harmful utilisation. How are we reliably to determine What Matters?

• Purpose: General getting to know person and what important

• Purpose: Inform care

Patient centred care = Relationship centred care Acting on What Matters…

• Use patient’s preferences

• Collaborative negotiations may need to be entered into

• Understanding that just attending a clinic can cause anxiety for patients. So to relive this anxiety

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IHI Psychology of Change Framework Julie Trochchio – Health Research & Educational Trust (HRET) American Hospital Association.

This session stepped through the IHI Psychology of Change Framework White Paper as an approach to advancing and sustaining improvement together with the people directly and indirectly affected by that improvement. The session introduced this Framework and practiced an approach to begin engaging others in their age-friendly efforts. Technical fix Vs Adaptive change Bridges’ Managing transitions – transitions and emotions – our work is to move people into exploration to move toward. The main strength of the model is that it focuses on transition, not change. The model highlights three stages of transition that people go through when they experience change. These are:

• Ending, Losing, and Letting Go.

• The Neutral Zone.

• The New Beginning. Need to shift our language;

From: How can I get all these people to do what I want them to do? To: How can I get all these people to what they want to do?

It was emphasised that there is a clear need to understand W Edward Deming’s learnings and tap into people internal motivations. Using Stories to Accelerate Change

Kate Hilton, JD, MTS, Faculty, IHI This session introduced the art of change through the use of stories to emphasis a point, engage or support change; Psychology of change: Science and Art of change

Agency Unleash intrinsic motivation

Power Courage Imagine a patient that you have cared for that you remember that was treated in a way that was not ideal – this is what we are here to change.

Reach into your heart: Consider the faces of those that you care for…. Partnering with patients and families to improve quality of example being Anne Arundel: given back 9.95 years of life to patients through the framework reducing negatives health outcomes.

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Ask three questions 1. If not for myself, who will be for me? 2. If I am for myself alone, what am I? connect with others and their influence and

success 3. If not now, then when? Learning does not proceed action. We learn from doing.

Use Authenticity

It’s not about a gloss outside but the glow inside Use of detail – images of detail “leaning into his ear”, “siting on the mower” Use reflection:

Why are you called to take action in this effort? Why you? What is valuable about story telling? How can stories help with adaptive barriers to change and unleash people’s intrinsic motivation?

The Work of Leadership To be key primary drivers

• Priority driver – Integration into strategic plan and executive Future AFHS leadership support through IHI leader calls

• Strategy

• Spread Rush Video Rush Health released their new video which give a good seven minute overview of the AFHS framework. https://aging.rush.edu/professional-older-adult-family-care/age-friendly-health-system/4ms-framework/