ryan white hiv/aids program service report (rsr)discover.pbcgov.org/carecouncil/pdf/data...

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Ryan White HIV/AIDS Program Service Report (RSR) The RSR is an annual Client summary report required by our funders (Health Resources & Services Administration (HRSA)). Funded agencies, who provide services under the Part A program, are required to document and submit data on the clients they serve. Data is reported on a calendar year (January-December), not a grant year (March-February). These data sets are utilized by our program; To understand the types of clients we served, To make informed decisions on prioritizing needed services and allocating funds to services provided, To explain how we are using our funds and supporting health outcomes of our clients, in our annual grant application.

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Page 1: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Ryan White HIV/AIDS Program Service Report (RSR)

• The RSR is an annual Client summary report required by our funders (Health Resources & Services Administration (HRSA)).

• Funded agencies, who provide services under the Part A program, are required to document and submit data on the clients they serve.

• Data is reported on a calendar year (January-December), not a grant year (March-February).

• These data sets are utilized by our program;• To understand the types of clients we served,• To make informed decisions on prioritizing needed services and allocating

funds to services provided,• To explain how we are using our funds and supporting health outcomes of our

clients, in our annual grant application.

Page 2: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

2018 RSR Client Summary Report Data

3555

3573

2017 2018

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ts

Total # of Unduplicated Clts

Number of Clients by HIV Status•Reported an Increase of 18 clients

2276

1270

2671

892

CDC-defined AIDS HIV Positive

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CDC-defined AIDS(<200 CD4 Count)

2017 2018

Number of Clients by HIV/AIDS Status•Reported an Increase of 395 diagnosed with AIDS

Page 3: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

1370

2160

16

1381

2165

17

Female Male Transgender

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Gender Breakdown

2017 2018

Number of Clients by Gender and HIV Status•Largest group are Males

2018 RSR Client Summary Report Data cont.

3132

21

301

36

70

3309

20

53

9

27

Active

Deceased

Referred to another program ordischarged

Relocated

Removed due to violation of rules

Enrollment Status

2017

2018

Number of Clients by Enrollment Status•Referred and discharged increased due to data clean up, closing clients that were still designated as active but not receiving services.

Page 4: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

2018 RSR Client Summary Report Data cont.Number of Clients by Age and HIV Status•Largest group are 45-64 years old; increased by 3•65 years or older increased by 33

4107

1076

1980

379

4110

1054

1983

412

2-12 years 13-24 years 24-44 years 45-64 years 65+ years

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Age Breakdown

2017 2018

Number of Clients by Race, Ethnicity and HIV Status•Largest group are Black/African American; decreased by 5•Hispanic total increased by 41•White decreased by 21

603

2254

671

29

2017

Hispanic

Black or African American

White

Other

644

2249

650

34

2018

Hispanic

Black or African American

White

Other

Page 5: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

2018 RSR Client Summary Report Data cont.Number of Clients by Household Income and HIV Status•Largest group are Below 100% of the Federal Poverty Level (FPL)•Number of clients below 100% FPL decreased by 78

Below100% FPL

100-138%FPL

139-200%FPL

201-250%FPL

251-400%FPL

401-500%FPL

More than500% FPL

2017 1869 503 529 282 337 13 11

2018 1791 501 549 314 384 17 5

0

200

400

600

800

1000

1200

1400

1600

1800

2000

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Household Income

2017 2018

3281

265

3278

285

Stable/permanent Temporary, Unstable, Unknown

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HRSA Defined Housing Breakdown

2017 2018

Number of Clients by RSR Housing/Living Arrangement and HIV Status•Largest group are Stable/permanent•Temporary, Unstable, Unknown Increased by 20

Page 6: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Service Category # of Clients # of Visits

Early Intervention Services 519 2240

Home & Community Based Health

Services

7 33

Medical Case Management 2190 40,708

Medical Nutritional Therapy 352 594

Mental Health 114 551

Oral Health 816 3176

Outpatient Ambulatory Medical Care

(including Specialty Medical Care and Lab

services)

2279 14,486

Local Pharmacy Assistance Program 284 3119

Non-Medical Case Management 3254 14,665

Emergency Financial Assistance (including

EFA-Prior Authorization)

85 134

Food Bank (including Nutritional

Supplements)

694 7065

Health Insurance Program 300 2079

Housing 31 93

Medical Transportation 515 3688

Other Professional Services (Legal) 198 4419

2018 RSR Client Summary Report Data cont.

Number of Clients by Medical Insurance and HIV Status•Largest group are No insurance/uninsured; second largest is Medicaid/ CHIP/other public

1161

867

2111

370

628

6 37

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Health Insurance for 2018 Only

Number of Clients and Service Visits by Service Category•The 3 top services utilized are NMCM/Eligibility, OAMC, and MCM. •The 3 lowest utilized services are HCBHS, Emergency Housing, and EFA. Low utilization of these services could be due to lower “supportive” funding.

Page 7: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

2018 RSR Clinical Summary Report Data

Number of Clients by Risk Factor•Heterosexual contact is the most common risk factor reported, while hemophilia disorder is the least common risk factor reported.

3

1684

49 68

512

43 50

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Risk Factors for 2018

Number of New Clinical Clients•Decreased by 9.

304

295

2017 2018

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Total # of New Clinical Clients

* The Clinical Summary reports on clients who have had a clinical service. Therefore, the numbers from the RSR Client Summary Report and the RSR Clinical Summary Report are different.

Page 8: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

2018 RSR Clinical Summary Report Data cont.

Number of Clients by Number of Medical Care Visits•The most number of clients had 3-4 visits reported.

147 167

1040

925

1 Visit 2 Visits 3-4 Visits 5 or More Visits

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Medical Care Visits in 2018

Number of New Clients Having Viral Load Test During Reporting Period•Increased by 15.

259

274

2017 2018

# o

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New Clients having VL Tests

Page 9: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Minority AIDS Initiative (MAI)

• MAI formula grants provide core medical and related support services to improve access and reduce disparities in health outcomes in metropolitan areas hardest hit by HIV/AIDS.

• Our local MAI program is currently only supporting intensive targeted Medical Case Management (MCM) services, which are prioritized for African Americans (including Haitians) and Hispanic/Latino(a) clients that have elevated viral loads.

• Clients, in these 2 populations, who have complex health issues were enrolled in MAI services. MCM staff work closely with a team of the clients’ medical providers, to determine the best approach to assist the client in becoming healthier and maintaining better health.

Page 10: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

616

336

87

MAI Unduplicated Clients Served GY 18-19

Black/AfricanAmerican

Hispanic/Latino(a)

Haitian

MAI Data

* Haitian clients will count in more than one category on these reports.

83

87

88

84

Black/AfricanAmerican

Hispanic/Latino

Haitian

All MAI Clients

MAI HIV Viral Load Suppression Rate GY 18-19

83 83

86

87

89

88

GY 17-18 GY 18-19

% V

iral

ly S

up

pre

sse

d

MAI Viral Load Suppression Rate GY Comparison

Black/AfricanAmerican

Hispanic/Latino(a)

Haitian

Page 11: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

HIV/AIDS Bureau (HAB) Health Outcome Measures

• Recipients should analyze performance measure data to assess quality of care and health disparities and use the performance measure data to inform quality improvement activities. (HRSA PCN #15-02)

• In our program, the 2 performance measures we focus on for client health outcomes are the HAB measures of • Viral Load Suppression and • HIV Medical Visit Frequency (Retention in Care)

• As we collect and analyze these measures, low performance is identified and studied to determine how we can improve the low performance measures. This occurs through the quality improvement (QI) activities.

Page 12: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

HAB Performance Measures Definitions

Viral Suppression:

• Denominator: Number of persons with an HIV diagnosis and who had at least one HIV medical care visit in the 12-month measurement period

• Numerator: Number of persons with an HIV diagnosis with a viral load < 200 copies/mL at last test in the 12-month measurement period

HIV Medical Visit Frequency:

• Denominator: Number of persons with an HIV diagnosis with at least one HIV/medical care visit in the first 6 months of the 24-month measurement period

• Numerator: Number of persons with an HIV diagnosis who had at least one HIV medical care visit in each 6 month period of the 24 month measurement period, with a minimum of 60 days between the first medical visit in the prior 6 month period and the last medical visit in the subsequent 6 month period

Page 13: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Service Category Viral Load Suppression % N/D HIV Medical Visit Frequency % N/D

AOMC 87% 743/854 75% 481/638

Labs 87% 840/963 72% 544/755

APA (LPAP) 90% 319/355 79% 226/287

Specialty Medical Care 86% 400/466 78% 292/372

Oral Health 89% 828/930 81% 671/824

Medical Nutritional Therapy 94% 177/188 88% 133/151

Mental Health 88% 121/138 66% 119/138

Health Insurance Assistance 91% 381/418 72% 259/361

EIS 81% 352/435 56% 126/227

Home & Community Based Health Care

100% 8/8 63% 5/8

MCM 84% 1781/2113 70% 1186/1697

NMCM 88% 531/606 71% 330/466

Eligibility 84% 2483/2968 70% 1640/2346

EFA-PA 85% 35/41 71% 22/31

EFA 85% 80/94 64% 48/75

Food- Nutritional Supplements 80% 55/69 68% 43/63

Food Bank 87% 594/683 80% 487/612

Medical Transportation 79% 481/605 77% 412/533

Emergency Housing 93% 38/41 65% 17/26

Legal Services 85% 232/273 75% 183/241

Substance Abuse Residential 100% 2/2 100% 2/2

All Services All Funded Agencies 84% 2494/2982 69% 1642/2382

GY 18-19

(3/1/2018 through 2/28/2019)

Page 14: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement Projects (QIP)

• Quality improvement involves the development and implementation of activities to make changes to the program in response to the performance data results. To do this, recipients are required to implement quality improvement activities aimed at improving patient care, health outcomes, and patient satisfaction.

• Once QIPs are created and tested, we are then able to understand if specific changes or improvements had a positive impact on patient health outcomes or if further changes in RWHAP funded services are necessary.

• Current Projects:• Improving HIV Health Outcomes with Data (Case Managed, Non-Suppressed)

• CQII ECHO Collaborative (Youth 13-24, Non-Suppressed)

Page 15: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement ProjectImproving HIV Health Outcomes with Data

Page 16: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement Initiative: Improving HIV health outcomes with data

Project Objective

Develop a quality improvement collaborative to increase the number of

People Living with HIV (PLWH) who have suppressed HIV Viral load from 82%

to 90% within the measurement period (2019 calendar year).

Setting

Medical Case Management Sub-recipients receiving Ryan White (RW) Part

A funding in Palm Beach County

Performance Measure: HIV Viral load Suppression

Percentage of patients, regardless of age, with a diagnosis of HIV with a

HIV viral load less than 200 copies/ml at last HIV viral load test during the

measurement year.

Page 17: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement: Baseline Data

HIV Viral Suppression rates during Calendar year 2018 (January – December)

Baseline data as of December 2018:

162 Non- Virally Suppressed Case Managed(CM) clients

82% Viral Suppression Rate

Total Number of CM clients Non-Virally Suppressed 162

Black African American 126

White 33

Asian 3

American Indian 0

Native Hawaiian 0

Haitian 35

Hispanic/Latino 18

Male 96

Female 65

Transgender 1

Page 18: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Demographic Profile of non- virally suppressed CM clients

126

33

3 0 00

20

40

60

80

100

120

140

Black

African

American

White Asian American

Indian

Native

Hawaiian

Non virally suppressed CM by race35

18

Haitian

Hispanic/Latino

0 5 10 15 20 25 30 35 40

Non virally suppressed CM by ethnicity

Haitian Hispanic/Latino

65

96

1

0 50 100 150

Female

Male

Transgender

Non virally suppressed CM by gender

Page 19: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

0

7

14

141

0

Non-permanently housed

Temporary

Unstable

Stable

other

Non-virally suppressed CM by housing

status

Demographic Profile of non- virally suppressed CM clients

100

35

11 94 2 1 0

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Non-virally suppressed CM by risk factor

Page 20: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement Activities

Recipient Provided Medical Case

Management (MCM) sub-recipients baseline data(detailed registry).

Provided MCM sub-recipients technical assistance to develop their individual quality improvement initiatives

Provided MCM sub-recipients 3 month follow-up data, with 89% Viral Suppression rate (after data updates).

MCM Sub-recipients Analyze registry data

Updated documentation of HIV Viral load and/or active status of clients not achieving viral load

Performed a root cause analysis

Completed a driver diagram to identify change strategies

All MCM sub-recipients will have completed a first quality improvement cycle (test) of selected intervention by July 30th,2019

Page 21: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement ProjectCQII end+disparities ECHO Collaborative

Page 22: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Quality Improvement Initiative: Youth (13-24) Non-Virally Suppressed

Project Overview:

The end+disparities ECHO Collaborative is a national initiative to reduce disparities in

disproportionately affected HIV subpopulations. Youth (13-24) is the population

focus for Palm Bach County participation. The 18-month collaborative aims to

increase viral suppression in the Youth HIV subpopulation and increase local quality

improvement capacities. The initiate is managed by the HRSA Ryan White HIV//AIDS

Program Center for Quality Improvement & Innovation (CQII), developed using the

Project Extension for Community Health Outcomes (ECHO) model, and is supported

by the HRSA HIV/AIDS Bureau.

The end+disparities ECHO Collaborative is about improvement of care for people

living with HIV, not performance measurement. However, measurement plays an

important role throughout the initiative. Data is submitted every other month, using

standardized measurement definitions.

Performance Measure: HIV Viral load Suppression

Percentage of Youth patients 13-24, with a diagnosis of HIV with a HIV viral load less

than 200 copies/ml at last HIV viral load test during the 12-month measurement year.

Page 23: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Definitions:

Numerator: Number of persons with an HIV diagnosis with a viral load < 200 copies/mL at last test in the 12-month measurement period

Denominator: Number of persons with an HIV diagnosis and who had at least one HIV medical care visit in the 12-month measurement period

Key Points:

Sub-recipients have been given baseline client level data for their non-suppressed Youth population.

Quality Improvement activities are being included in the individual sub-recipients improvement cycles for their overall populations. Specific initiatives will be created and tested, specifically for their Youth populations.

Data review and sub-recipients quality improvement projects will be shared during the Quality Management & Evaluation Committee for discussion on Recipient level activities.

Limitations:

Each reporting period is not reflective of the “date” reported. The data will not be present day information.

Youth populations are constantly in transition. Reporting periods might not include the same data set of clients each time. As the clients age past 24, they are no longer included in the reported data set.

Page 24: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

Data Points

HIV Viral Suppression (VS) Reporting Periods (determined by Collaborative)

September 2018 Reporting period: 7/1/2017 through 6/30/2018

November 2018 Reporting Period: 9/1/2017 through 8/30/2018

January 2019 Reporting Period: 11/1/2017 through 10/31/2018

March 2019 Reporting Period: 1/1/2018 through 12/31/2018

Den:

Sept

Num:

Sept

VS%

Sept

Den:

Nov

Num:

Nov

VS%

Nov

Den:

Jan

Num:

Jan

VS%

Jan

Den:

March

Num:

March

VS%

March

Totals 2733 2281 83% 2717 2299 85% 2755 2368 86% 2860 2406 84%

Youth

(13-24)

52 44 85% 54 43 80% 49 42 86% 56 41 73%

Page 25: Ryan White HIV/AIDS Program Service Report (RSR)discover.pbcgov.org/carecouncil/PDF/Data Reports/Ryan_White_HIV_AIDS_Program_Service...379 4 110 1054 1983 412 2-12 years 13-24 years

83.4684.62

85.95

84.1384.62

79.63

85.71

73.21

65

70

75

80

85

90

Baseline 2nd Reporting 3rd Reporting 4th Reporting

Viral Suppression Rates (VS)

Total Youth

• In September 2018, there was a baseline Total VS rate of 83.5% reported and Youth

VS rate of 85%. At last reporting period, there was a .67% increase in Total VS and

11.41% decrease in Youth VS.

• The local overall goal of the quality improvement project is to reach 90% VS rate for both the Total clients and Youth subpopulation. This would result in an increase of a 4% VS rate across the board.