sandra rowlands macmillan cancer support recovery package change project manager recovery package-...
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• Sandra Rowlands• Macmillan Cancer Support
Recovery Package Change Project Manager
Recovery Package- the way forward
The cancer story is changing
Improvements in early detection and diagnosis
More advanced treatments
Move from acute to long term condition
Increasing numbers of people living with and beyond cancer
Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 2012; 107: 1195-1202.
The survival rates are changing
Macmillan Cancer Support (2011) identified median survival times based on research by the Cancer Research UK Cancer Survival Group at the London School of Hygiene and Tropical Medicine research.
The survival rates are changing
Total Prevalence - now
Total Prevalence - 2030
Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 2012; 107: 1195-1202.
Not everyone is living well
Cancer Patient Experience Survey 2014
Cancer and other morbiditiesSource: Macmillan’s Routes from Diagnosis programme
The English National Cancer Survivorship Initiative
The Five Survivorship Stages
1. Recovery package
2. Physical activity
3. Consequences of treatment
4. Redesigning follow-up
The NCSI defined four priorities
The Recovery Package Holistic Needs
Assessment and Care Planning
to date by September 2014
completed (1 July 2013 – 27 June 2014)
completed (1 July 2013 – 27 June 2014)
• Worry, fear or anxiety(breast, ovarian, head & neck, endometrial, melanoma)
• Tired/exhausted or fatigued(breast, kidney, non-hodgkin’s lymphoma, ovarian, head & neck)
• Sleep problems/nightmares(breast, head & neck, lung, melanoma, ovarian
• Pain(breast, ovarian, head & neck, kidney, melanoma
• Eating or appetite(head & neck, kidney, ovarian, breast, lung)
Treatment Summary
Cancer Care Review • Post-treatment with GP -
assessment and care planning• Financial impact of cancer• Patient awareness of
prescription exemptions• Possible late effects of cancer
and treatment• Information needs in primary
care
Health and Wellbeing events
Types of Health and Wellbeing Clinics?
•Generic
•Tumour specific/area specific
•Part of Stratification of the Pathway
How can a Health and Wellbeing Clinic benefit PLWC and their families?
Evidence from pilots in 2010-2011 has shown that patients who attended a Health and Wellbeing Clinic event had:
•Better knowledge of the signs and symptoms of cancer recurrence and consequences of treatment.
•More confidence to question or challenge information and make informed decisions about their health.
Benefits to patients and their families continued
•More confidence to deal with the physical discomfort and emotional distress associated with cancer and its treatment from interfering with their everyday life.
•A strong sense of reassurance- even if they don’t need services at that time, they know what’s available and how to access it in the future.
How can a HWBC benefit my practice and organisation?
Help provide better patient outcomes, reduce unplanned admissions helping meet quality agenda by:
•Providing an effective atmosphere for delivering health and wellbeing messages in an informal and relaxed setting.
•Empowering patients by providing knowledge and boosting confidence, leading to earlier intervention and improved outcomes.
Having discussions about work and financial concerns early on in someone’s cancer journey can be vital in preventing problems
You don’t have to be an expert to start a conversation about work and finance, and it doesn't have to be time consuming
Macmillan has developed a range of online and offline resources to support you to have conversations and direct patients to information on work and finance and relevant services
www.macmillan.org.uk/workandprofessionalswww.macmillan.org.uk/financialsupport
1. Recovery package
2. Physical activity
3. Consequences of treatment
4. Redesigning follow-up
The NCSI defined four priorities
Physical Activity improves health and wellbeing outcomes
Macmillan Cancer Support (2011). The importance of physical activity for people living with and beyond cancer.
Available: • Evidence reviews • How to guide, • Macmillan Partnership Application template for physical activity • Standard Evaluation Framework
Tools and resources
1. Recovery package
2. Physical activity
3. Consequences of treatment
4. Redesigning follow-up
The NCSI defined four priorities
1. Recovery package
2. Physical activity
3. Consequences of treatment
4. Redesigning follow-up
The NCSI defined four priorities
Redesigning Follow-Up
•Breast 80% patients•Colorectal 50% patients•Testicular 95% patients
•Project management•Clinician engagement•Patient support•Remote Surveillance
Resources
Provides confidential, impartial information by phone & email. In 2013 responded to over 146,000 queries and accessed over £47.7 million of benefits and
financial packages. Awarded Contact Centre
Association Global Standard. 0808 808 0000
Q e Quality-assured cancer information, in 2013 reached over 4.7 million with booklets, leaflets and 3,000 pages online.
Visits local communities with Pods and Information Units. In 2013 they reached 60,851 people, promoting cancer awareness & local services.
In 2013 32,500 people received Grants of over £9.5 million for a wide range of items and services, like extra heating and clothing.
Email addresses and web links