saturday, may 21, 2016€¦ · walk sites! this year, a total of 44 cities will host walks....

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Angelman Syndrome Foundation, Inc. 75 Executive Drive, Suite 327 Aurora, IL 60504 Phone: 800-432-6435 International: 630-978-4245 Fax: 630-978-7408 Email: [email protected] www.angelman.org facebook.com/AngelmanSyndromeFoundation twitter.com/Angelman pinterest.com/angelmansyndfdn/ instagram.com/Angelman_ASF# Statement: To comply with IRS regulations, the Angelman Syndrome Foundation receipts all donors of $250 or more. State of Arkansas: The headquarters of this organization is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. The Arkansas address is that of a located in the state. State of Florida: A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE, 1-800-HELPFLA, OR VIA THE INTERNET AT WWW.800HELPFLA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. REGISTRATION #CH4382. State of Maryland: For the cost of copies and postage, documents and information submitted under this title are available from the Secretary of State. State of Michigan: MCIS No.29799. State of Mississippi : The official registration and financial information of Angelman Syndrome Foundation may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement by the Secretary of State. State of Nevada: The state of incorporation of Angelman Syndrome Foundation is Florida. Your donation may be tax deductible for federal income tax purposes. State of Minnesota: Your donation is tax deductible. State of New Jersey: INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (973) 504-6215 AND IS AVAILABLE ON THE INTERNET AT http://www.state.nj.us/lps/ca/charfrm.htm. REGISTRATION WITH THE ATTORNEY GENERAL DOES NOT IMPLY ENDORSEMENT. State of New York: a person may obtain from the Angelman Syndrome Foundation (75 Executive Drive, Suite 327, Aurora, IL 60504) or from the attorney general (The Capitol, Albany, NY 12224-0341), a copy of the last annual report filed by the organization with the attorney general. State of North Carolina: Financial information about this organization and a copy of its license are available from the State Solicitation Licensing Branch at 1-888-830-4989 (within North Carolina) or (919) 807-2214 (outside of North Carolina). The license is not an endorsement by the State. State of Ohio: The principal office of the Angelman Syndrome Foundation is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. State of Oregon : Angelman Syndrome Foundation registration with the Attorney General of Oregon in no way constitutes or implies any endorsement, sanction or approval of the solicitation, its purposes, the manner in which it is conducted or the person or organization conducting it, by the Attorney General or any other governmental agency or officer. “The headquarters of this Angelman Syndrome Foundation is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. State of Pennsylvania: The official registration and financial information of Angelman Syndrome Foundation may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement. State of Rhode Island: Donations are deductible for federal income tax purposes in accordance with applicable law. State of Virginia: A financial statement is available upon request from the State Office of Consumer Affairs in the Department of Agriculture and Consumer Services, P.O. Box 1163, Richmond, VA 23218. State of Washington : You man obtain additional financial disclosure information from the office of the Secretary of State at 1-800-332-4483. State of West Virginia: West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, WV 25305. Registration does not imply endorsement. The Angelman Syndrome Foundation (ASF) is a national 501(c)(3) not-for-profit organization made up of families, caregivers and medical professionals who care about those with Angelman syndrome. Our mission is to advance the awareness and treatment of Angelman syndrome through education, information, research, advocacy and support. Angelman syndrome (AS) is a neuro-genetic disorder that occurs in 1 in every 15,000 live births. Individuals with AS exhibit symptoms such as: developmental delay, lack of speech, seizures, inappropriate laughter, and walking and balance disorders. SATURDAY, MAY 21, 2016

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Page 1: SATURDAY, MAY 21, 2016€¦ · Walk sites! This year, a total of 44 cities will host Walks. Fundraising Incentive Program Our 2016 Walk will still offer fundraising incentives. However,

Angelman Syndrome Foundation, Inc. 75 Executive Drive, Suite 327 Aurora, IL 60504

Phone: 800-432-6435 International: 630-978-4245Fax: 630-978-7408Email: [email protected]

facebook.com/AngelmanSyndromeFoundation

twitter.com/Angelman

pinterest.com/angelmansyndfdn/

instagram.com/Angelman_ASF#

Statement: To comply with IRS regulations, the Angelman Syndrome Foundation receipts all donors of $250 or more.

State of Arkansas: The headquarters of this organization is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. The Arkansas address is that of a located in the state. State of Florida: A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE, 1-800-HELPFLA, OR VIA THE INTERNET AT WWW.800HELPFLA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. REGISTRATION #CH4382. State of Maryland: For the cost of copies and postage, documents and information submitted under this title are available from the Secretary of State. State of Michigan: MCIS No.29799. State of Mississippi: The official registration and financial information of Angelman Syndrome Foundation may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement by the Secretary of State. State of Nevada: The state of incorporation of Angelman Syndrome Foundation is Florida. Your donation may be tax deductible for federal income tax purposes. State of Minnesota: Your donation is tax deductible. State of New Jersey: INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (973) 504-6215 AND IS AVAILABLE ON THE INTERNET AT http://www.state.nj.us/lps/ca/charfrm.htm. REGISTRATION WITH THE ATTORNEY GENERAL DOES NOT IMPLY ENDORSEMENT. State of New York: a person may obtain from the Angelman Syndrome Foundation (75 Executive Drive, Suite 327, Aurora, IL 60504) or from the attorney general (The Capitol, Albany, NY 12224-0341), a copy of the last annual report filed by the organization with the attorney general. State of North Carolina: Financial information about this organization and a copy of its license are available from the State Solicitation Licensing Branch at 1-888-830-4989 (within North Carolina) or (919) 807-2214 (outside of North Carolina). The license is not an endorsement by the State. State of Ohio: The principal office of the Angelman Syndrome Foundation is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. State of Oregon : Angelman Syndrome Foundation registration with the Attorney General of Oregon in no way constitutes or implies any endorsement, sanction or approval of the solicitation, its purposes, the manner in which it is conducted or the person or organization conducting it, by the Attorney General or any other governmental agency or officer. “The headquarters of this Angelman Syndrome Foundation is located at 75 Executive Drive, Suite 327, Aurora, IL 60504. State of Pennsylvania: The official registration and financial information of Angelman Syndrome Foundation may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement. State of Rhode Island: Donations are deductible for federal income tax purposes in accordance with applicable law. State of Virginia: A financial statement is available upon request from the State Office of Consumer Affairs in the Department of Agriculture and Consumer Services, P.O. Box 1163, Richmond, VA 23218. State of Washington : You man obtain additional financial disclosure information from the office of the Secretary of State at 1-800-332-4483. State of West Virginia: West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, WV 25305. Registration does not imply endorsement.

The Angelman Syndrome Foundation (ASF) is a national 501(c)(3) not-for-profit organization made up of families, caregivers and medical professionals who care about those with Angelman syndrome. Our mission is to advance the awareness and treatment of Angelman syndrome through education, information, research, advocacy and support. Angelman syndrome (AS) is a neuro-genetic disorder that occurs in 1 in every 15,000 live births. Individuals with AS exhibit symptoms such as: developmental delay, lack of speech, seizures, inappropriate laughter, and walking and balance disorders.

SATURDAY, MAY 21, 2016

Page 2: SATURDAY, MAY 21, 2016€¦ · Walk sites! This year, a total of 44 cities will host Walks. Fundraising Incentive Program Our 2016 Walk will still offer fundraising incentives. However,

First Things First. Thank You!!! You are the reason 2016 is going to be our biggest National Walk Ever! We are super-excited at the amount of awareness and education that will take place in the days up to and including May 21, 2016! You are making a difference in many lives! Our National Walk has been an essential source of funding for the Angelman Syndrome Foundation since its start in 1999. What began as a single volunteer walk site, now includes more than 40 walks across the country and is recognized as the top fundraising event for the organization. Through education, information, research, advocacy and support, your participation in the National Walk directly helps improve the lives of those impacted by AS. We are moving closer to powerful treatments and an eventual cure for Angelman syndrome. We are continually grateful for you!

WHAT’ S NE W FOR 2016

New Walk LocationsASF is thrilled to welcome Mexico City, Mexico, Capitola, California, Atlanta, Georgia, Louisville, Kentucky, Grenada, Mississippi, Grand Island, Nebraska, Rye, New York, Greenville, North Carolina, Providence, Rhode Island, Smokey Mountains, Tennessee and Milwaukee, Wisconsin as new Walk sites! This year, a total of 44 cities will host Walks.

Fundraising Incentive ProgramOur 2016 Walk will still offer fundraising incentives. However, after receiving feedback from our generous participants, everyone will have the ability to opt out of the incentives. By doing this, more of the funds raised will go directly to helping our families. All of our fundraising incentives do have the ASF logo on them, which only serves to spread more awareness. So, either choice is a good choice.

New for 2016If you register by the April 27th deadline, we can guarantee that all online registrants will receive a t-shirt and SWAG BAG. Yeah! Unless you are a child or an individual with AS, $25 will be required to register online. This change, undoubtedly, will generate some questions. We hope the following helps:

Q. Do I HAVE to pay to participate?

A. Nope! Everyone is welcome to attend and participate in our National Walks. We understand that our Annual Walk also serves as a ‘family reunion’ of sorts. The National Walk is also a resource and respite for our families. So many life-long connections are made at these walks! We don’t want that to change – EVER!

If you want to participate without paying, simply come to the event. There is no need to register online if you do not intend to fundraise for the ASF. Don’t forget, however, that children and individuals with AS can register free of charge. Be sure to go online and register them, so their free shirt and SWAG BAG will be waiting for them on Walk Day.

Q. What’s the deadline? And Why do you have one?

A. The deadline to be guaranteed a t-shirt and bag is April 27th. Promotional orders have to be turned in with final numbers in order to get merchandise to all the sites on time. If we over-order, we waste our constituents’ money.

Q. What if I register after April 27th – can I still get a t-shirt and SWAG BAG?

A. Qualifying participants received after the cut-off date are not guaranteed a t-shirt and SWAG BAG. T-shirts and SWAG BAG will be given to ‘late arrivals’ only while supplies last! A few extras will be ordered based on an educated estimate, but this cushion will be slim.

Q. What about my child with AS? What about my children under 11 years? What about the volunteers?

A. Children with AS, children under 11 years and all volunteers will receive a t-shirt and SWAG BAG regardless. This has been and will be our policy for the foreseeable future.

You may have a question we didn’t address. If so, please contact Kitty Murphy at Angelman Syndrome Foundation, Inc. –[email protected], or 800-432-6435.

Vendor FairWe are encouraging all Walk sites to host Free Vendor Fairs. This ‘free’ privilege is specifically for vendors that provide resources or support items designed for individuals with AS. Vendor examples include government entities, community organizations, product manufacturers, topical subject matter experts, and a variety of professionals who are familiar with the needs of individuals with AS. If you have a suggested vendor who you feel should participate at your Walk site, contact your local Walk site coordinator.

Your Donations SupportFunds raised from the Angelman Syndrome Foundation National Walk support research, educational and informational opportunities, and support programs and services that enhance the quality of life for individuals with Angelman syndrome and their families.

SATURDAY, MAY 21, 2016 – Join us as together we walk throughout the continent!Canada (Ontario)

Mexico (Mexico City)

Alabama (Huntsville)

Arizona (Tempe)

California (Capitola)

California (Los Angeles)

California (Sacramento)

California (San Diego)

Colorado (Denver)

Connecticut, (Hartford)

Florida (Orlando)

Georgia (Atlanta)

Illinois (Naperville)

Indiana (Indianapolis)

Kansas (Olathe)

Kansas (Wichita)

Kentucky (Louisville)

Massachusetts (Boston)

Michigan (Linden, MI)

Minnesota (Twin Cities)

Mississippi (Grenada)

Missouri (Lake of the Ozarks)

Missouri (St. Louis)

Nebraska, (Grand Island)

Nevada (Las Vegas)

New York (Buffalo)

New York (Middletown)

New York (Rye)

North Carolina (Durham)

North Carolina (Greenville)

Ohio (Cincinnati)

Oregon (Eugene)

Pennsylvania (Philadelphia)

Pennsylvania (Pittsburgh)

South Carolina (Columbia)

Tennessee (Nashville)

Tennessee (Smokey Mountains)

Texas (Dallas)

Texas (Houston)

Utah (Salt Lake City)

Wisconsin(Milwaukee)

Washington D.C.

Washington (Seattle)

DONATION REQUEST FORMSATURDAY, MAY 21, 2016

Please print. Complete all information for each participant. Please only use one form per address.

WALKERS

Full Name Full Name

❒ Adult ❒ Child ❒ Has AS? ❒ Adult ❒ Child ❒ Has AS?

Date of Birth Date of Birth

Full Name Full Name

❒ Adult ❒ Child ❒ Has AS? ❒ Adult ❒ Child ❒ Has AS?

Date of Birth Date of Birth

Full Name Full Name

❒ Adult ❒ Child ❒ Has AS? ❒ Adult ❒ Child ❒ Has AS?

Date of Birth Date of Birth

Address

City State Zip

Home Phone Email

Sponsor Name Street Address City State Zip Code Check Number

Amount Collected

1

2

3

4

5

6

7

8

9

10

11

12

13

14

15

16

17

18

19

20

21

22

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25

PLEASE CONVERT ALL CASH DONATIONS TO CHECKGrand Total