self advocacy and leadership goal subcommittee meeting 03 03...the self advocacy goal...

Self Advocacy and Leadership Goal Subcommittee Meeting

Hilton Garden Inn

7300 Augusta National Drive

Orlando, FL 32822

Friday, March 3, 2017

124 Marriott Drive, Suite 203, Tallahassee, Florida 32301-2981 Phone: (850) 488-4180 | (800) 580-7801 • Fax: (850) 922-6702

TDD: (850) 488-0956 | (888) 488-8633 • www.fddc.org

124 Marriott Drive, Suite 203, Tallahassee, Florida 32301-2981 Phone: (850) 488-4180 | (800) 580-7801 • Fax: (850) 922-6702

TDD: (850) 488-0956 | (888) 488-8633 • www.fddc.org

Susan Kabot, Ed.D., Chair

To: Self-Advocacy and Leadership Goal Subcommittee From: Ann Smith, Program Manager Date: February 24, 2017 Subject: March Goal Subcommittee Meeting Materials Greeting, The following materials are for your participation in the March 3, 2017 Self-Advocacy and Leadership Goal Subcommittee Meeting. Our meeting will take place at the Hilton Garden Inn, 7300 Augusta National Drive, Orlando, FL 32822. We will meet in the Magnolia Board Room at 9:00 am. This will be our first face to face meeting of the year and we will be welcoming our new Resource Members. As you review the enclosed agenda, please take note of the Action Items, particularly the Goal Worksheets. Your input on the Self-Advocacy and Leadership Goals and Objectives are essential the Council’s annual State Plan Review. For the new resource members, we are having a new member orientation Friday morning, March 3, 2017 at 8:00 am. Please do not hesitate to contact me if you have any questions. I sincerely appreciate your time and dedication to the Self-Advocacy and Leadership Goal Subcommittee. I look forward to seeing you on March 3, 2017. Sincerely, Ann Smith

Florida Developmental Disabilities Council, Inc. Self-Advocacy Goal Subcommittee Meeting

Hilton Garden Inn 7300 Augusta National Drive, Orlando, FL 32822

Friday, March 3, 2017 9:00 AM (EST)

Conference Number: 1-888-670-3525 – Conference Code: 5957558807

Time* Voting Item? Subject Presenter Page

Yes No

9:00 AM Call to Order Eddie Hall, Goal Subcommittee Chair

9:05 AM Introduction of Members

9:10 AM Approval of Minutes

• February 1, 2017 Conference Call • February 17, 2017-Conference Call

9:15 AM Budget Update Lisa Taylor, Chief Financial Officer

9:30 AM Public Policy Update Margaret Hooper, Public Policy Coordinator

9:45 AM Communications Update Richard Bivens, Communications Coordinator

10:00 AM Florida SAND IAFP The Route to Self-Determination Discussion

Ann Smith/Sheila Gritz-Swift

Project Updates: • Current initiative status • Project liaisons

10:30 AM Break and Hotel Checkout

11:00 AM State Plan and Emerging Issues consideration Logic Model

12:00 PM Working Lunch • State Plan Review (continued)

State Plan Review

1:00 PM

Upcoming Calls and Meetings Council Meeting Dates: • May 4-5, 2017-Orlando • September 14-15-Orlando-FL Hotel Next Goal Subcommittee Meeting: TBA

1:15:PM Old Business or New Business

Public Comment Eddie Hall

Florida Developmental Disabilities Council, Inc. Self-Advocacy Goal Subcommittee Meeting

Hilton Garden Inn 7300 Augusta National Drive, Orlando, FL 32822

Friday, March 3, 2017 9:00 AM (EST)

Conference Number: 1-888-670-3525 – Conference Code: 5957558807

*All agenda times are approximate.

Adjourn Eddie Hall

FLORIDA DEVELOPMENTAL DISABILITIES COUNCIL, INC. 2017 SELF ADVOCACY GOAL SUBCOMMITTEE MEMBERS

Council Members: Eddie Hall, Chair 1123 Walt Williams Road Lot # 188 Lakeland, Florida 33809 Home: 863-255-6422 Email: [email protected] Cassandra G. Pasley, Director Division of Children’s Medical Services 4052 Bald Cypress Way, Bin A06 Tallahassee, Florida 32399 Work: 850-245-4218 Fax: 850-413-8782 Email: [email protected] Alternate: Lois P. Taylor, Bureau Chief Bureau of Early Steps and Newborn Screening Work: 850-245-4670 Email: [email protected] Assistant: Megan Moran Work: 850-245-2213 Email: [email protected] Catherine Anne Avery, PN LNC Bureau Chief of Elder Rights Department of Elder Affairs 4040 Esplanade Way Tallahassee, Florida 32399 Phone: 850-414-2180 Phone: 850-363-3835 Email: [email protected] Assistant: Kayla Taylor Email: [email protected] Phone: 850-414-2389 Denise Arnold Deputy Director of Programs, Agency for Persons with Disabilities 4030 Esplanade Way, Suite 380 Tallahassee, FL 32399-0700 Work: 850-414-9247 Fax: 850-414-7412 Email: [email protected] Secretary: Doria Moody Email: [email protected] Kathy Leigh 702 Cypress St. Starke, FL 32091 Home: 904-966-0252 Email: [email protected] [email protected]

Thomas (TJ) Moon 100 NW 23 Avenue, Apt. 201 Ocala, FL 34475 Home: 352-502-5994 Email: [email protected] Frank Shalett 2161 Cove Lake Rd. N. Lauderdale, FL 33068 954-804-2535 Email: [email protected] Victoria Zepp 121 N. Monroe Street, Suite 9007 Tallahassee, FL 32301 Cell: 850-241-6309 Email: [email protected] Resource Members: Enrique Escallon 4371 SW 150 Court Miami, Florida 33785 Phone: 305-761-7201 Email: [email protected] Email: [email protected] Jason (Jay) Hahr 7451 SE 24th Terrace Ocala, FL 34480 Phone: 814-403-3437 Email: [email protected] Mark Henry Kelly 1627 Gallahad Drive Lakeland, Florida 33810 Cell: 863-604-3635 Email: [email protected] Patty Houghland 7070 North Blue Angel Parkway Pensacola, Florida 32526 Work: 850-488-9071 ext. 9753 Cell: 850-516-9177 Email: [email protected] Email: [email protected]

Ann Smith, Program Manager 124 Marriott Drive, Suite 203, Tallahassee, FL 32301-2981 850-488-4180 (Main); 800-580-7801 (Toll-Free); 850-922-6702 (Fax); 850-921-7263 (Direct) Email: [email protected]

mailto:[email protected]

















of 2

Florida Developmental Disabilities Council, Inc.

Self-Advocacy Leadership Task Force Conference Call Meeting Minutes

February 1, 2017

Members Present: Members Absent: Staff: Eddie Hall-Chairman Cassandra Pasley Ann Smith Kathy Leigh Frank Shallet Sheila Gritz-Swift Denise Arnold Catherine Anne Avery T. J. Moon Victoria Zepp

I. Call to Order:

The Self Advocacy Goal Subcommittee conference call was called to order by Eddie Hall at approximately 4:00 pm and quorum was established.

II. Approval of Minutes from January 9, 2017 Conference Call The minutes from the January 9, 2017 Self-Advocacy and Leadership Goal Subcommittee Conference call was discussed.

Motion: It was moved (Kathy Leigh) and seconded (Denise Arnold) to approve the minutes from 01-09-2017.

III. Discussion of Potential Resource Members: Eddie Hall led the Resource Member discussion. Cultural diversity, geographic locations, sister agency representation were all items to consider for potential resource members. The following names of potential resource members were discussed: • Enrique Escallon (Miami) is a parent of a young man with disabilities. He is the past chair of the

FDDC and Partners in Policymaking graduate. (Application completed) Enrique is very involved with FAAST.

• Jairo Arana (Miami) is a self-advocate and current LEND trainee and Mailman consultant assisting with Project SALT and LEND.

• Nancy Torres (Miami) is a parent of a child with special needs and former ETLP graduate. Currently, she is a full-time employee overseeing our Family Navigator program.

• Jay Hahr (Ocala) is a Self-Advocate who has recently contributed an article to the Florida Self-Advocacy Central blog on the Florida SAND website. He would like to start a Self-Advocacy Group in the Ocala area. Jay served on as a co-facilitators for the Maryland Youth Leadership Forum for four years. (Application completed)

• Mark Henry Kelly (Lakeland) is a self-advocate and a soon to be graduate of Partners in Policymaking. He is interested in getting involved. (Application completed)

• Stacy Way (Lakeland) is a self-advocate, PIP graduate-2010 and president of the Polk Council Self-Advocacy Alliance in Lakeland, Florida. She is also a parent of a child with a disability. (Application completed)

• Brittany Kosik (Lakeland) is a self-advocate and a graduate of the 2015 Partners in Policymaking Class. She is a member of the Polk County Self-Advocacy Alliance. She is interested in getting involved.

of 2

• Patty Houghland (Pensacola) is a parent of an adult with multiple disabilities. Patty is the president of Area 1 Family Care Council, works for Disability Rights Florida and was the founder of the first and oldest support group for parents in Florida. Patty has been a resource member for the Self-Advocacy and Leadership Task Force.

• Susan Redmon (Tallahassee) is a parent of an adult with multiple disabilities. She served as a Council member and has recently retired from the Florida Department of Health as a program manager. (Application completed)

• Yolando Herrera (Miami) is a parent with child with significant disabilities. • Selina O’Shannon works for Disability Rights Florida. The following names would be submitted to the FDDC Chair as recommendations to serve as resource members: • Enrique Escallon • Jay Hahr • Patty Houghland • Mark Henry Kelly

Motion: It was moved (Kathy Leigh) and seconded (Victoria Zepp) to send the recommended names to the FDDC Chair for approval.

IV. Next Meeting:

The next meeting will be March 3, 2017 in Orlando, Florida at the Hilton Garden Inn-Airport.

V. Public Comment: None

VI. Adjournment: Having no other business to discuss, the meeting was moved to adjourn at 4:55 pm by Victoria Zepp and seconded by Kathy Leigh.

of 2

Florida Developmental Disabilities Council, Inc.

Self-Advocacy Leadership Task Force Conference Call Meeting Minutes

February 17, 2017

Members Present: Members Absent: Staff: Eddie Hall-Chairman Cassandra Pasley Ann Smith Catherine Anne Avery T. J. Moon Denise Arnold Kathy Leigh Frank Shalett Victoria Zepp Enrique Escallon Jason Hahr Mark Kelly Patty Houghland

I. Call to Order:

The Self Advocacy Goal Subcommittee conference call was called to order by Eddie Hall at approximately 11:30 AM and quorum was established.

II. Discussion of Florida SAND Implementing Activities Funding Proposal Eddie Hall asked for discussion of the Florida SAND IAFP by the goal subcommittee members. Eddie Hall asked if there were any member who would have a conflict of interest with this IAFP. Ann Smith explained that if there were any involvement with Florida SAND or a local self-advocacy group, the member would not be eligible to vote. Each member was provided a Conflict of Interest form and it was discussed that these forms should be sent in within fifteen (15) days of the conference call. The following were determined ineligible to vote: Eddie Hall Jason Hahr Mark Kelly Kathy Leigh Frank Shalett There was discussion regarding the IAFP and concern about the sustainability segment of the document and that the goal and objectives should have been clear. There were questions if there was enough funding for travel in this project. Motion: It was moved (Enrique Escallon) and seconded (Denise Arnold) that the Florida SAND IAFP be approved with the stipulation that the subcommittee would review the contract before it was executed. Those in favor were: Enrique Escallon, Denise Arnold, Patty Houghland and Victoria Zepp. Catherine Anne Avery abstained from the motion.

III. Next Meeting:

The next meeting will be March 3, 2017 in Orlando, Florida at the Hilton Garden Inn-Airport.

IV. Public Comment: Kathy Leigh announced that she was no longer able to participate in her local self-advocacy group for personal reasons.

of 2

V. Adjournment:

The conference call meeting was adjorned at 12:00 PM.

FDDC Budget StatusAs of February 6, 2017

2015- All funds must be paid out by 9/30/17Total 2015 funds 3,461,007$ Balance of 2015 funds to be paid out 309,062

2016 - All funds must be in contract by 9/30/17Total 2016 funds 3,742,691$ 2016 Funds not yet in Contract 604,765 A

A 2016 Funds Not yet in ContractSelf Advocate Leadership Training (Year 3) 82,720$ UDL Regional Trainings 60,000 Transition Svs Delivery 90,000 waiting on provider to executeRoute to Self Determination 54,000 Lighting the Way Addendum 41,562

Website update 18,500

Salary & Graduated Comptencies Study 31,000 Subtotal 377,782

Funds reserved 9/16 for office furn & phone sys 31,000 Funds reserved 1/17 for computers 30,000 Funds not yet allocated 165,983 Subtotal 226,983 Grand total 604,765$

2017 - All funds must be in contract by 9/30/18Total 2017 funds 3,664,684$ 2017 funds not yet in contract or reserved for Admin, Travel, etc. 2,033,064 B

B 2017 - Funds must be in contract by 9/30/18Projects are in progress.

# 501

Page 1 of 11

IMPLEMENTING ACTIVITIES FUNDING PROPOSAL

____ New Project _X_ Continuation Project ___ Addendum

Section One: Scope of Work Analysis

General Information

1. Name of Project Florida Self-Advocates Network’D (FLSAND) and Local Grassroots Groups

2. Date Submitted to Council for Approval

3. Submitted by Goal Subcommittee

Self-Advocacy Leadership Goal Subcommittee

4. Collaborating Subcommittee N/A

5. Council Goal, Objective(s) and Activitie(s)

Self-Advocacy Leadership Goal 4: By the end of the five-year state plan, a minimum of 250 Floridians with intellectual and developmental disabilities and a minimum of 100 family members or allies who are not currently participating in leadership and advocacy will participate in leadership, advocacy and systems change activities in culturally diverse or cross-disability coalitions. Objective 1: In each year of the state plan, support the statewide self-advocacy organization, Florida SAND, to encourage its members and their circles of support to participate in at least one grassroots effort to inform the community of issues affecting full inclusion or advocacy and engage in at least one specific public policy activity. Key Activity 1: Facilitate State Self-Advocacy Organization activities that increase self-advocacy by conducting at least one public policy activity to promote inclusion annually, and by supporting local grassroots groups through education and training on fundraising, membership recruitment, retention, outreach and facilitating operation as an independent organization. Key Activity 2: Encourage members to participate in cross-disability leadership coalitions and support at least two (2) such members annually to mentor self-advocates in leadership.

6. Contract Period May 6, 2017 to – May 7, 2018 ( 12 months)

# 501

Page 2 of 11

Programmatic Information

7. Need for the Project

The origins of Self-Advocacy in Florida began in 1975 with the passage of the “Bill of Rights of Retarded Persons.” This legislative action codified a requirement that individuals with disabilities be involved in planning their lives. The roots of Florida’s Self-Advocacy Movement emerged from individuals with disabilities asserting their rights to independence, choice and control. Self-Advocates Becoming Empowered, a national self-advocacy organization, describes Self-Advocacy as individuals advocating for themselves versus having someone else speak for them, describing a grassroots civil rights movement where individuals participate on their own and within Self-Advocate led organizations or associations in a variety of activities designed to influence public policy and practice as it relates to equal opportunity. The first Self-Advocacy group in Florida, People First of Dade County, began in Miami in 1979. Many groups continued to form throughout Florida thereafter. The Florida Self-Advocates Network’d (Florida SAND) is comprised of fifteen local grassroots self-advocacy groups throughout Florida that have come together to form a statewide network. Florida SAND is governed by a Board consisting of one representative from each local group. The purpose of the coalition is to support local grassroots development, expand the Florida self-advocacy movement, provide a united voice for statewide issues and topics that are important to Florida's self-advocates, create community awareness and promote inclusion for all.

8. Description of the Project

This project is to support existing local self-advocacy groups throughout the state through activities that facilitate membership growth and retention and local grassroots advocacy initiatives and promote opportunities for members to join cross-disability and/or culturally diverse leadership coalitions. Each local group has a leadership structure composed of elected officers and an advisor. As the statewide leadership entity, the Florida SAND board includes representatives from each local group and supports the groups through development of legislative priorities and activities to increase the members’ capacity for self-advocacy. The Florida SAND Board became a non-profit organization in 2014. The communications hub of the network researches and develops news and editorial content based on Florida SAND’s mission to provide a united voice for statewide issues and topics of importance to self-advocates, creating community awareness and promoting inclusion for all. The primary purpose of this project is to allow for greater support to the local grassroots advocacy groups that will culminate in State Self-Advocacy Organization activities that increase self-advocacy by conducting at least one public policy activity to promote inclusion annually, by supporting local grassroots groups through education and training on fundraising, membership recruitment, retention, outreach and facilitating operation as an independent organization and; participation on cross-disability and culturally diverse boards, committees, and workgroups; and 2) provisions of training and/or mentoring by self-advocates for other self-advocates.

9. Project’s Services to be Provided

The provider will: I. Facilitate State Self-Advocacy Organization activities that increase self-advocacy by conducting at

least one public policy activity to promote inclusion annually, and by supporting local grassroots groups through education and training on fundraising, membership recruitment, retention, outreach and facilitating operation as an independent organization.

Action Steps: 1. Assist the Board in preparing Florida SAND’s legislative priorities for dissemination. 2. Determine dissemination methods (i.e., presentations, newsletters, traditional and social

# 501

Page 3 of 11

media) 3. Collaborate with the Public Policy Coordinator to provide resources and supports in

planning and executing a specific public policy activity identified by Florida SAND and the local grassroots self-advocacy groups.

4. Collaborate with the Communications Coordinator to promote Florida SAND’s activities. 5. Maintain regular updates, blog posts and interaction with self-advocates through the Florida

Self-Advocacy Alliance (FSAA) communication hub. a. Assisting and training up to three (3) Self-Advocates to keep the information in the self-

advocate communication hub website up-to-date and relevant with current events, trainings, research and news items related to Self-Advocacy and Self-Determination

b. Maintaining the communication hub handbook with current resources and policies; updating the handbook as needed

c. Assisting in preparing and uploading the information in formats suitable for various purposes and across a variety of communication platforms such as the FSAA (Florida Self Advocacy Alliance, now known as Florida Self Advocacy Central-FSACentral) website, newsletters, email blasts, social media sites and an interactive blog

d. Developing and maintaining an active email subscriber base and regularly disseminating information via email to members of the FSACentral list serve on a regular basis

e. Collecting analytics on FSACentral and Florida SAND website activity f. Gathering input on an ongoing basis from individuals with disabilities across Florida to

improve the effectiveness of the FSACentral communication hub.

6. Collaborate with DD Network Partners, state and local organizations to facilitate member awareness of and participation in cross-disability and culturally diverse leadership coalitions.

II. Encourage members to participate in cross-disability leadership coalitions and support at least

two (2) such members annually to mentor self-advocates in leadership.

Action Steps: 1. Create an inventory of cross-disability and culturally diverse boards and councils. 2. Provide resources and support for at least two members from each self-advocacy group to

serve on cross-disability and culturally diverse boards, committees, and workgroups. 3. Assess existing state and national training on self-advocacy, leadership, self-determination

and community organizing. 4. Provide resources and supports for self-advocacy group members to become trainers and

mentors, and to develop presentation skills. 5. Partner with Disability Rights Florida to expand training.

III. The provider will further strengthen the FL SAND Statewide network’s capacity for self-

determination and sustainability by:

1. Assisting the Florida SAND Board with implementation of its strategic plan which shall include but not be limited to:

a. Development of marketing, outreach and recruitment materials b. Further development of the Florida SAND nonprofit organization through necessary

provisions of technical assistance and training c. Other priorities as identified by the Board

2. Assisting the Florida SAND Board in planning and implementation of a Statewide Florida

SAND Conference program and regional meetings

3. Assisting with participation in and technical support of the SABE grant activity for the Our Community Standing Strong project.

4. Facilitating Florida SAND Advisory and Board meetings

# 501

Page 4 of 11

5. Facilitating travel authorization and reimbursement for participation of Florida SAND members as appropriate (e.g., annual conference, national conference, etc.)

IV. The provider will further strengthen the local grassroots groups capacity for self- determination

and sustainability by:

1. Conducting an on-site needs assessment with each new Florida SAND local group to determine each group’s current capacity and level of need for technical assistance. The assessment shall include but not be limited to membership and attendance statistics; short and long-term priorities; member interest, involvement and experience in leadership; and administrative and logistical needs

2. Facilitating the creation and implementation of individualized group action plans for new local groups

3. Working cooperatively with each group’s president, board representative and advisor to recruit regional allies with skill in facilitation, mentoring and community organizing

4. Providing assistance to local grassroots group leaders and advisors to identify opportunities for leadership, collaboration and membership with cross-disability and culturally diverse groups

5. Facilitating a minimum of two regional meetings per new local group to assess status of short and long-term goals and facilitate activities to achieve the goals

6. Facilitating partnerships with cross-cultural, membership-based leadership organizations

10. Anticipated Outcomes of the Project (include the Outcome as stated in the State Plan for this Objective)

Goal Outcomes: Outcome 1: The Florida SAND state self-advocacy organization led by individuals with intellectual and developmental disabilities will have developed the infrastructure to sustain as an independent, non-profit organization. Outcome 2: A cadre of trained leaders representative of the diverse geographic regions of the state will be established and available to provide leadership training to individuals with intellectual and developmental disabilities who desire to become leaders. Outcome 3: The number of individuals with intellectual and developmental disabilities and their family members participating in cross-disability and culturally diverse leadership coalitions, including participation on local- and state-level systems change boards, coalitions and teams representative of areas of emphasis, will be increased. Outcome 4: The number of individuals representative of outcomes 1 – 3 above will increase by a minimum of 250 Floridians with intellectual and developmental disabilities and 100 family members or allies. Objective Outcomes:

Activity 1: 1. Florida SAND, the state self-advocacy organization, will have led at least one grassroots effort to inform the community of issues affecting full inclusion or advocacy and engage in at least one specific public policy activity. 2. Florida SAND members will gain knowledge to increase their capacity for fundraising, membership recruitment, retention, outreach and facilitating their operation as an independent organization. Activity 2: 1. Florida SAND members will have knowledge of and participate in cross-disability and culturally diverse leadership boards, coalitions and councils. 2. Florida SAND members will have access to resources and supports to become trainers and mentors.

# 501

Page 5 of 11

Outputs: Activity 1: 1. An annual report will reflect 1) identification of legislative priorities; 2) dissemination methods (e.g., presentations, newsletters, traditional and social media) of information on legislative priorities; 3) collaboration with the Public Policy Coordinator to execute a minimum of one public policy activity; 4) collaboration with the Communications Coordinator to promote Florida SAND’s activities; and 5) education and training provided to Florida SAND on strategies to facilitate their operation as an independent organization. 2. The Florida Self-Advocacy Alliance communication hub will be updated and maintained. 3. A report on activities describing collaboration that facilitates awareness of and participation in cross-disability and culturally diverse leadership coalitions with DD Network Partners, state and local organizations. Activity 2: 1. An inventory of cross-disability and culturally diverse boards, coalitions and councils will be available for self-advocates and their family members. 2. An assessment of existing state and national training on self-advocacy, leadership, self-determination and community organizing will be available. 3. An annual report will reflect 1) resources and supports for at least two members from each self-advocacy group to participate in cross-disability and culturally diverse boards, coalitions and councils; and 2) resources and supports for self-advocacy group members to become trainers, mentors and to develop their presentation skills.

Sustainability

11. Plans for project beyond Council funding

Florida SAND has obtained 501(c) 3 status and intends to launch social entrepreneurial projects to solicit for funds as a typical nonprofit corporation. In order to continue funding beyond Council funding, the provider will maintain required corporate filings such as:

990 annual filing with the IRS Florida Department of State corporation annual filing Department of Agriculture annual solicitation filing

12. How will sustainability efforts be implemented?

The Florida SAND board intends to develop grant and fundraising projects related to sustainability. The provider will assist Florida SAND Board with implementation of its strategic plan which shall include but not be limited to: Development of marketing, outreach and recruitment materials Further development of the Florida SAND nonprofit

organization through necessary provisions of technical assistance and training

Leadership Board/governance training Financial management and sustainability

Ethical and effective fundraising Charitable giving

Financial management Identify and recruit allies proficient in fundraising and

charitable giving Other priorities as identified by the Board

Monitor progress and continue to build the infrastructure for

long-term sustainability by shifting responsibilities from the

# 501

Page 6 of 11

provider to Florida SAND

13.

Populations to be Served

13. Target population to benefit

The target population is self-advocates with intellectual and developmental disabilities in the State of Florida.

14. How will this project address the needs of unserved and underserved populations?

The Provider will assist the Florida SAND with recruitment of individuals who speak English as a second language, or are members of unserved, underserved and rural communities. The provider will integrate bilingual/bicultural professionals into project staff and advisory committee(s) and allies to the extent possible. The provider will be aware of the norms and cultural values of the population(s) being reached and will work to establish a working relationship with organizations serving Haitian, Caribbean, Latino/Hispanic, Asian and rural communities. The provider will facilitate collaboration with individuals representing underserved communities who are engaged in leadership.

15. How will cultural diversity be addressed?

The Florida SAND Board will continue to engage individuals with culturally diverse backgrounds by participating in, joining and partnering with cross-disability and culturally diverse leadership coalitions such as Chambers of Commerce, postsecondary organizations that are geared toward cultural groups and leadership development organizations.

Public Policy

16. What public policy effort(s) and impact will this project have?

Florida SAND will advocate for public policy that promotes inclusion and supports self-determination.

17. How will this project contribute to the Council’s public policy efforts?

Florida SAND consistently contributes to the Council’s public policy efforts by building relationships with policymakers, attending advocacy events and educating lawmakers on shared priorities.

Project Evaluation

18. Brief description of Evaluation plan / activities for this project

Data Evaluation and Measurement: Evaluation methods from state plan: Activity 1: 1. Agendas and minutes will be reviewed. 2. Quarterly monitoring will be conducted to ensure the Florida Self-Advocacy Alliance (FSAA) communication hub is maintaining regular updates, blog posts and interaction among self-advocates and any other communication efforts. 3. The number of referrals to the Council’s systems change efforts based on interest in specific areas of emphasis will be collected.

# 501

Page 7 of 11

Activity 2: 1. An annual report will include data of 1) dissemination of the inventory of cross-disability and culturally-diverse boards, coalitions and councils; 2) provision of resources and support for at least two members from each self-advocacy group to serve on cross-disability and culturally diverse boards, coalitions and councils; and 3) provisions of resources and supports for self-advocacy group members to become trainers, mentors and develop their presentation skills. 2. Surveys, structured interviews and/or focus groups will be conducted with self-advocates and their family members to assess the impact of information that enabled them to become trainers and mentors and serve on cross-disability and culturally diverse boards, coalitions or councils.

Performance Measures: IFA 1.1 The number of people with developmental disabilities (25) who participated in Council supported activities designed to increase their knowledge of how to take part in decisions that affect their lives, the lives of others, and/or systems IFA 1.2 The number of family members (5) who participated in Council supported in activities designed to increase their knowledge of how to take part in decisions that affect the family, the lives of others, and/or systems IFA 2.1 After participation in Council supported activities, the percent of people with developmental disabilities (15) who report increasing their advocacy as a result of Council work. IFA 2.2 After participation in Council supported activities, the percent of family members (3) who report increasing their advocacy as a result of Council work. IFA 2.2.1 The percent of people (20) who are better able to say what they want or say what services and supports they want or say what is important to them IFA 2.2.2 The percent of people (30) who are participating now in advocacy activities IFA 2.2.3 The percent of people (2) who are on cross disability coalitions, policy boards, advisory boards, governing bodies and/or serving in leadership positions. IFA 3.1 The percent of people with developmental disabilities (25) satisfied with a project activity

# 501

Page 8 of 11

IFA 3.2 The percent of family members (5) satisfied with a project activity.

19. Evaluation Methods Check all that apply:

X X X X X

FDDC Customer Satisfaction form Work plan regularly updated Participation in mid-term review Formal QA/QI System State Plan Evaluation Methods

20. FDDC Monitoring Check all that apply:

X X X X

Evaluate deliverables Conduct mid-term review Advisory Committee oversight On-site review Participation in project activities Other: Group evaluation of the quality of assistance provided

Communications/PR

21. How will communications/PR be utilized to market the project and/or its outcomes?

The provider will develop and maintain materials to support the groups’ recruitment and grassroots awareness efforts. These may include, but are not limited to, social media, printed materials, videos and articles.

22. Copyrighted material to be used

Original material will be developed for this project; copyrighted materials will be utilized only as a resource

23. Communication/PR Materials to be Developed

The provider will produce flyers and outreach materials to support member recruitment and promotion of self-advocacy events.

24. Potential audience for materials or PR efforts

X X X X

FDDC Website or List Serv Relevant state agencies Relevant support or advocacy groups Legislators Media outlets Other:

25. Review Process Check all that apply:

X X X

Program Manager Project Liaison Task Force Members Communication Coordinator Communications Committee Other: Advisory Committee

Reviewers Comment Section: In preparation for the State Plan Committee meeting, in the section below you may note some comments on building upon the project as described above or questions regarding the implementation of this project …………..

26. State Plan Committee Member Comments

# 501

Page 9 of 11

IMPLEMENTING ACTIVITIES FUNDING PROPOSAL

Section Two: Background Information

Continuation or Sole Source Projects Only

30. Legal Applicant

31. Address

32. Phone

33. Email Address

# 501

Page 10 of 11

34. FDDC Funding Year

Yr 1 Yr 2 Yr 3 Yr Yr

35. FDDC $ $163,198/$263,198 $263,198 $ $ $

36. Match $ $82,424/$89,725 $89,725 $ $ $

37. Grand FDDC Total

$352,923 $352,923 $ $ $

38. Indicate the outcomes of previous project & indicate if met

Procurement

39. Procurement Method Continuation

40. Procurement Justification N/A

41. FDDC Funds Requested $263,198

42. Match $89,725

43. Total $221,120

Estimated Budget

44. Category FDDC Funds Match Match Source Total Cost

Salaries $163,375 $70,000 Provider $233,375

Administrative Assistant $8,494 $1,345 Provider $9,839

Travel $6,624 $1,000 Provider $7,624

Annual FL SAND Conference Travel and Cost

$25,500 $25,500

Self Advocates Support for travel and training

$29,220 $29,220

Self-Advocacy Group Financial Support

$18,000 $18,000

Meeting and Training Supplies

$1,500 $580 Provider $2,080

FSAA News Correspondents (Journalists)

$7,500 $7,500

SABE Conference Expenses

$1,405 $1,405

Self-Advocate Conference Scholarships

$500 $500

Consultant/Professional Fee

$580 $580

Web-Support and Hosting Fee

$500 $500 Provider $1,000

Survey Monkey $300 Provider $300

Marketing Consultant $1,000 Provider $1,000

Indirect costs $15,000 Provider $15,000

TOTAL $263,198 $89,725 $352,923

Budget Justification

45. Personnel percentage of time on project

Personnel will facilitate all major components of the project including evaluation and facilitation.

46. Travel Travel costs include staff and ally travel as needed to support groups regionally and locally.

# 501

Page 11 of 11

47. Personnel Fringe

Reviews and Approvals

48. Program Manager Ann Smith

49. Subcommittee Self-Advocacy and Leadership Task Force

50. Date Subcommittee Review 03/03/2017

51. Date Subcommittee Approved

52. Subcommittee Comments or Stipulations

Continue funding for Florida’s iBudget services to meet the new Department of Labor

wage requirements The Council believes it is critical to include funding to meet the federal Department of Labor minimum wage requirement in the regular base budget of the Agency for Persons with Disabilities on a recurring basis. Last year the Florida legislature approved funding for rates for Florida’s iBudget services to meet the new Department of Labor (DOL) minimum wage requirement that became effective on October 13, 2015. The reimbursement rates affected by the DOL changes include the following services: Live-In Residential Habilitation daily rate, Personal Supports daily rate, and Companion services. This funding was provided to adjust these rates so that individuals with intellectual and developmental disabilities would continue to have choices and options for residential living services. Unfortunately this allocation was only provided for one year as nonrecurring funding and the Florida Developmental Disabilities Council believes it is critical for this funding to be included in the regular base budget of the Agency for Persons with Disabilities on a recurring basis. To fully understand this issue, one has to go back to 1974, when the Fair Labor Standards Act (FLSA) was amended to add a companionship exemption, and many community agencies used this provision to serve individuals with intellectual disabilities in their own homes. In practice, the amendment created specific exemptions for “domestic service workers who provide companionship services” and “live-in domestic service workers.” The referenced exemption was applicable if employees were providing services to an individual in his or her private home. A provider did not have to pay hour-for-hour for services provided, did not have to pay overtime, and could also exempt all sleep time. On September 17, 2013, DOL issued a Rule, which altered application of the FLSA for domestic service. The rule was to go into effect on January 1, 2015, but was delayed until October 13, 2015, because of legal challenges. Per the new rule, the “companionship exemption” that previously exempted individuals who provided home care and companionship services from wage and overtime laws that applied to other workers was discontinued for agencies that employed home care and companion staff. Providers now have to pay employees hour-for-hour for all hours worked and, unless certain limited conditions are met, have to pay sleep time. The rate structure is being evaluated again this year and, hopefully, the increased reimbursement that is needed will be allocated on an ongoing and recurring basis. Without these rates, the likelihood of the continuation of the Live-In model for individuals who require overnight staffing is in great jeopardy. If these rates are not adjusted, individuals with intellectual and developmental disabilities will have fewer options for residential living and many will likely require placement in more costly residential placements, including nursing homes.

10/2016

FLORIDA DEVELOPMENTAL DISABILITIES COUNCIL, INC. 124 Marriott Drive, Suite 203, Tallahassee, Florida 32301-2981

Phone (850) 488-4180 ● Toll-Free (800) 580-7801 Fax (850) 922-6702 ● TDD (850) 488-0956/(888) 488-8633

Increase Provider rates for The Individual Budgeting/Home and Community Based

Services Waiver

The Council urges the Florida Legislature to increase provider rates so that individuals with intellectual and developmental disabilities and their families who receive the Individual Budgeting/Home and Community Based Services Waiver have stable and qualified service provider staffing for delivering waiver services.

o Provider rates are so low that providers are offering fewer services or going out of

business. As a result, families are often unable to obtain the services their loved ones need.

o Providers need greater compensation. A 3% increase in provider rates for this fiscal

year was a good start that must be increased for next year. The Individual Budgeting Home and Community Based Services waiver administered by the Agency for Persons with Disabilities offers supports and services to assist almost 30,000 individuals with intellectual and developmental disabilities to live in the community by ensuring that their health and safety needs are met, as well as providing services to improve their access to their community and a meaningful life. However, the rates paid to providers of these services remain well below 2003 levels. Providers are struggling to make ends meet because of inadequate service rates, rising business expenses and costly federal mandates. Unable to provide adequate wages, providers are faced with constant turnover and marginally qualified employees. For families, the combination of concerns about the quality of care, less provider availability and fewer service options poses a distinct threat to the health and safety of individuals with disabilities. Remaining on the current path will continue the deterioration of a network that exists to provide for Florida’s most vulnerable citizens. Florida has seen a 29.8% drop in the number of providers actually providing services since FY 07-08. The Florida Legislature started to address provider compensation during the 2016 legislative session. Funding was allocated to provide compliance with the Department of Labor Rule that calls for the provision of minimum wage and overtime for home care services and there was a 3% increase in provider rates for several major services. While this was a step in the right direction, much more is needed. Due to new wage requirements and lack of employees, providers are limiting their services, hiring less qualified staff or even shutting down. A shrinking service system for individuals with intellectual and developmental disabilities may place their health, safety and well-being at risk. To help control this vicious cycle as well as maintain and expand current services, provider rates must increase.

9/23/16



Reinstate the Statewide and Local Advocacy Councils for the protection of individuals with intellectual and developmental disabilities

The Council urges the legislature to reinstate the Statewide and Local Advocacy Councils to offer protection to individuals with intellectual and developmental disabilities from abuse and neglect.

Nearly 90% of individuals with intellectual and developmental disabilities will be the victims of abuse, neglect or exploitation. One in five individuals served by the Agency for Persons with Disabilities (APD) has been the subject of a report to the abuse hotline in the last five years. However, Florida currently does not have sufficient mechanisms in place to monitor, prevent, and detect abuse and neglect.

In the past and as recently as 2010, the Legislature had worked with a system that included the Florida Statewide Advocacy Council (SAC) and local advocacy councils that served as an independent consumer protection mechanism. The local advocacy councils were made up of volunteers with training and expertise who monitored settings serving vulnerable individuals to discover, monitor, investigate and determine conditions that constitute a threat to the rights, health, safety and welfare of these individuals. The Statewide Advocacy Council provided oversight and supervision to the operation of local advocacy councils and served as the body for complaints that the local advocacy councils were not able to resolve. The SAC was defunded in 2010. In its 2009 OPPAGA report, it was noted that the main advantage to continuing to fund the SAC was that they provide an independent check and balance on the provision of state services to vulnerable clients. The statutory framework still exists and can be changed to focus the program on APD. A modest budget appropriation to reinstate this program will provide a critical protection mechanism of volunteers, with training and expertise, who can monitor all APD services settings, whereas APD only routinely monitors facilities they license, such as community residential homes (“group homes”). Volunteer services will provide an opportunity to increase the monitoring of providers through citizen involvement without growing government. 9/23/16



Transportation for Individuals with Intellectual and Developmental Disabilities

The Council urges the Florida Legislature to provide resources for employment-related transportation for individuals with intellectual and developmental disabilities. Safe, affordable, and reliable transportation is a critical component to community inclusion for individuals with intellectual and developmental disabilities. Research has shown that having access to the community is the key to employment, education and training, independence, and self-sufficiency. The Council supports the Employment First policy that states that integrated employment is the first priority and preferred outcome for people with intellectual and developmental disabilities. A primary barrier identified as an impediment to employment for individuals with intellectual and developmental disabilities is the lack of transportation for competitive employment according to the 2014 Commission Report, from the Commission on Jobs for Floridians with Disabilities There are three major factors that should be considered to address this problem. The first is the Florida Commission for the Transportation Disadvantaged (CTD). The CTD annual report indicates that employment trips are not as high a priority in many counties and that lack of funding is the reason most often given for the denial of an employment trip request. For several years, extra funding has been allocated to CTD and community transportation coordinators to be used to provide transportation services to persons with disabilities, older adults, and people with low income to access health care, employment, education and other life-sustaining services. Each region decides how they want to prioritize the use of this funding. The Council wants to see more funding available for the Transportation Disadvantaged Program that will be prioritized for individuals with intellectual and developmental disabilities who will use this funding to obtain and maintain their employment. Another factor to consider is representation on Community Transportation Coordinating Boards. All individuals with intellectual and developmental disabilities need to have representation on these boards. These individuals can help to prioritize rides for employment, especially for those with disabilities, set up vanpools, and coordinate volunteer drivers. The last factor to consider is to gain resources for employment- related transportation by seeking a Waiver Amendment for the iBudget Waiver to redefine both Supported Employment and Transportation services as broadly as permissible by the Center for Medicaid Services (CMS), in order to give waiver recipients (and those on the waitlist)the opportunity to access transportation to maintain competitive employment. Additional funding for transportation is part of the solution but access to transportation is important and can be facilitated by increasing the number of Mobility Managers and replicating best practices around the state. The Florida Developmental Disabilities Council is working to promote a mobility management system. Mobility Managers provide personalized services to individuals: trip and travel training, customer service, and advocacy. The coordination of transportation services is cost-effective and can lower costs to individuals and the system. More funding for the Transportation Disadvantaged Program, expansion of transportation access through the iBudget Waiver, board representation by individuals with disabilities, and effective mobility management for reliable transportation are essential to obtain and retain employment. 9/23/16



Continue to transition individuals off the iBudget waiver waitlist

The Council urges the Florida Legislature to continue their support of a meaningful long-term commitment to transition individuals with intellectual and developmental disabilities off the waiver waitlist for Individual Budgeting/Home and Community Based Services.

The iBudget waiver is how Florida pays for community-based services for people with intellectual and developmental disabilities. Advocates want to thank the legislature for funding services for those in Categories 3 (intensive needs), 4 (caregivers over age 70) and 5 (transition from school). However, there are approximately 20,000 individuals on the waitlist for iBudget waiver services primarily in the two remaining Categories 6 (age 21 and over)and 7(age under 21), many of them have been waiting for more than 5 years. The problem of the iBudget waiver waitlist is a longstanding one and serving the number of people on this waitlist requires continued long-term support.

A lot has been done to help people on the waiting list, but many needs cannot be met without more funding to allow individuals with intellectual and developmental disabilities to receive the full range of services they need to be included into the community.

People with intellectual and developmental disabilities who are on the waitlist will continue to go without many critical services. Without services, these individuals could lose some of the abilities they have now or they could be institutionalized, which is more costly than providing home and community-based services.

Most Floridians with intellectual and developmental disabilities live at home with their families. But families of those on the waitlist struggle with heavy financial, physical and emotional burdens. These families often spend more than half of every dollar they earn to care for the needs of family members with intellectual and developmental disabilities.

The legislature has done a good job of funding services for those in waitlist categories 3, 4, and 5, and some of the individuals in Category 6 (age 21 and over and further prioritization this year to those who have been on the list for over 10 years , have high needs and who are over 30). Continued waitlist funding is needed to provide waiver services to individuals with intensive needs, aging caregivers and for those who are transitioning to school who have come on to the waitlist and additional waitlist funding is also needed to address the needs of the 9,540 individuals who remain on the iBudget Waitlist Category 6. An example would be a 34-year-old man with intellectual and developmental disabilities who has completed high school and was not able to take advantage of the employment training initiatives that are available now for younger people. In addition, health benefits that were available when he was school age are not available to those over the age of 26 and he has mild physical challenges. This man wants to get a job and move out of his parents’ home. The iBudget Waiver would give him a supported employment coach , a supported living coach to help him learn the skills he needs to live on his own and access to physical therapy to help him maintain the use of his legs.

Advocates are grateful that funding was allocated during the 2016 legislative session to take about 1500 individuals off the waitlist. The Council wants to maintain the positive waitlist reduction momentum from the past few years. Therefore, the Council requests funding to transition new individuals in categories 3, 4, and 5 and to start serving more individuals in Category 6.

9/23/16



FDDC 5-Year Plan Logic Model: Self-Advocacy Leadership

Inputs

Resources to support activities

Outputs

Products of activities; items delivered

Outcomes – Impact Florida SAND becomes a fully independent organization; trained leaders are available statewide to engage in advocacy efforts; and self-advocates and family members become members of diverse leadership coalitions.

Activities Outputs Short-term 1-2 years

Long-term 3-4 years

Impact 5+ years

- AIDD Funding - Council staff - Council members - Individuals with intellectual and developmental disabilities - Family members of individuals with intellectual and developmental disabilities - Policy-makers - Service providers - General public - Grantees – time, leveraged resources - Council listserv, website and social media - State Protection and Advocacy System – Disability Rights Florida - University of South Florida Center for Inclusive Communities - The Mailman Center at the University of Miami - Agency for Persons with Disabilities - Family Network on Disabilities - Family Care Council of Florida

1. Support and strengthen Florida SAND and its grassroots groups, the State Self-Advocacy Organization, to conduct public policy activities and become an independent organization 2. Support Partners in Policymaking and build Partners in Policymaking Plus 3. Collaborate with DD Network Partners to build a leadership training program 4. Collaborate with Disability Rights Florida to strengthen and implement Project VOTE 5. Collaborate with the FCIC on high priority issue policy briefs

1. Annual reports, communication hub, inventory of participation on boards, coalitions, councils, assessment of training 2. Reports on satisfaction, graduate activities and outcomes, technical assistance, new leaders providing leadership training, Partners Plus curriculum 3. Documentation of training; completed assessments matching interests to Partners’ goals; list of mentors; resources, support and activities 4. Final report and list of trained trainers and trainings 5. Policy briefs and report of use in advocacy efforts

1. Florida SAND begins to undertake public policy activities, gains knowledge to operate independently, assumes responsibility for the communication hub and begins to gain knowledge and resources to serve in leadership roles and as trainers and mentors 2. Graduates share information with policy-makers and complete projects to impact systems change, and a curriculum for Partners Plus is developed and piloted 3. A trained DD Network Leadership Cadre is available to assist with systems change efforts and train another cadre of leaders 4. Growing number of Project VOTE self-advocate trainers and larger number of self-advocates voting 5. Self-advocates and family members have policy briefs for use in advocacy efforts

1. Florida SAND is fully engaged in public policy activities and assuming greater responsibility toward full independence; members are serving in leadership roles and as trainers and mentors 2. Partners Plus becomes fully established with leaders providing training and Partners in Policymaking and Partners Plus graduates engaging in advocacy efforts 3. The original DD Network Leadership Cadre is established and assisting with training of a second tier Leadership Cadre 4. Project VOTE is becoming self-sustaining with a team of trained trainers 5. High priority issues addressed through changes to policies, practices, rules and/or statutes

The Florida SAND state self-advocacy organization will have developed the infrastructure to sustain as an independent, non-profit organization. A cadre of trained leaders will be established and available to provide leadership training to individuals who desire to become leaders. The number of individuals and their family members trained to participate in cross-disability and culturally diverse leadership coalitions, including local- and state-level systems change boards, coalitions and teams, will be increased.

FDDC 5-Year Plan Logic Model: Self-Advocacy Systems Change

Inputs

Resources to support activities

Outputs

Products of activities; items delivered

Outcomes – Impact Individuals with intellectual and developmental disabilities will be able to

independently control their income.

Activities Outputs Short-term 1-2 years

Long-term 3-4 years

Impact 5+ years

- AIDD Funding - Council staff - Council members - Individuals with intellectual and developmental disabilities - Family members of individuals with intellectual and developmental disabilities - Policy-makers - Service providers - General public - Grantees – time, leveraged resources - Council listserv, website and social media - University of South Florida Center for Inclusive Communities - Agency for Persons with Disabilities - Family Network on Disabilities - Florida Agency for Health Care Administration - Florida Department of Children and Families

1. Systems design and redesign to impact waiver income limits and facilitate Medicaid Buy-in for Florida 2. Support advocacy and communication efforts that empower self-advocates and their family members to engage in advocacy

1. Review of needed legislative changes 2. Self-advocates, family members and other stakeholders interested in engaging in advocacy for waiver income limits and Medicaid Buy-in identified; 10 new policy-makers educated; communication materials available and disseminated in accessible formats

1. Policy-makers and stakeholders informed of the critical issue’s impact on the lives of individuals with intellectual and developmental disabilities; changes in legislative policies impacting Medicaid Buy-In and income limits identified 2. Self-advocates and family members begin to engage in advocacy efforts

1. Key stakeholders and policy-makers support and initiate systems change efforts to mitigate income limits and facilitate Medicaid Buy-in for Florida

2. Self-advocates and family members fully engaged in advocacy efforts on behalf of waiver income limits and Medicaid Buy-in

A minimum of one systemic change to federal and/or state statutes, rules, policies or procedures mitigating the income limits on people with intellectual and developmental disabilities will be implemented resulting in restoration of their ability to independently control their income.

Communications Plan Of Action 2017-2018

Self Advocacy/Leadership Goal: By the end of the five year state plan a minimum of 500 Floridians with intellectual and developmental disabilities and a minimum of 200 family members or allies who are not currently participating in leadership and advocacy will participate in leadership, advocacy and systems change activities in culturally diverse or cross-disability coalitions.

Objective: In each year of the state plan; 1-Support the statewide self-advocacy organization, Florida SAND, to encourage its members and their circles of support to participate in at least one grassroots effort to inform the community of issues affecting full inclusion or advocacy and engage in at least one specific public policy activity. 2- By the end of the five-year state plan, a minimum of 200 individuals who have intellectual and developmental disabilities and 50 members of their circles of support will increase their knowledge related to self-advocacy, public advocacy and leadership. 3- a minimum of 100 individuals with intellectual and developmental disabilities and people in their circles of support will increase their knowledge of self-determination.

Year 1 Broad Communication Focus

Description: For almost any business or non-profit, public relations and social media marketing provides a solid foundation and baseline for brand awareness and general marketing campaigns. The overall communications plan of action is necessary in developing and coordinating the Council’s social media, marketing and public relations activities in order to achieve the Self Advocacy/ Leadership State Plan goals. By utilizing an FDDC Website, Facebook, and ListServe as well as hosting an annual Disability Day At The Capitol and multiple exhibits at DD related conferences, potentially thousands of people are going to see our information. These methods will influence people’s decisions and educate them on numerous topics that affect the daily lives of people with disabilities. The added benefit is that the people who react to our programs and other materials will share this with their friends and in essence, increase the power of the FDDC goals and objectives. Plan Of Action: This plan will revolve around a well maintained website that allows information and other items to be easily accessed by the public.

Disseminate materials to stakeholders on a weekly basis - Postings on website, sending

announcements via Constant Contact, and posting on Facebook.

Assist with recommendations from workgroup – Annually: Op-Ed pieces distributed

throughout Florida newspapers & media, providing information at conference exhibits,

3 e-newsletters will be produced and distributed each year.

As Needed - Prepare press releases for newspapers & media.


General Strategies that can be used to convey messaging of Self Advocacy/Leadership Goals:

Build the network: Nurture relationships with prospective “supporters” within relevant local

organizations to include: the Chamber of Commerce, Florida SANDS, Partners In

Policymaking, Disability Rights Florida, Family Care Council, and the Arc of Florida.

Newsletters – Two E-Newsletters will be produced and sent each year to help create a more

personal and intimate connection with those in the DD industry.

Internet sites - In addition to the FDDC’s website, interactive sites like Facebook, Twitter, and

YouTube will be used to let the public know about Self-Advocacy and Leadership programs.

Facebook monthly notice and daily thoughts campaign – Each month to focus on a selected

topic of discussion.

Letters to the Editor and OpEd’s - sent annually during special events such as DD Day at the

Capitol, National DD Employment Month and Disability Awareness Month.

Press releases and press conferences – sent annually to alert the public of events such as DD

Day at the Capitol.

Presentations and or, being present at local events and statewide conferences, exhibit

opportunities, and meetings; The FDDC will have a presence at a number of events such as:

Family Café, Chamber of Commerce Workforce One Clinic, and Disability Employment

Month.

Assist the Public Policy Coordinator with developing and disseminating the message,

including legislative.

Community outreach - Advocates, their friends and family members, as well as others

interested in Intellectual and Developmental Disabilities want to connect with the

organizations they like. Connecting with these groups in person is a matter of being

personable, presentable, and professional.


Activities Specific To Self-Advocacy/Leadership Goals:

Based on the strategies of Subcommittee

Message Planning—Audience research; write positioning statement, tagline, talking points;

develop style guide and launch.

Message Development: Shape and deliver messages that will connect with, and engage the

Intellectual and Developmental Disability audience. Consistent, memorable messaging that will

help to keep the FDDC recognized with information worth spreading the word about it.

Suggest that a discussion of the messages to be used in 2017 be scheduled for the Goal

Subcommittee meeting after January.

When Requested – Oversee the development and printing of Related FDDC Self-Advocacy and

Leadership fliers and brochures with RB Oppenheim & Associates, to be made available through

the FDDC website, downloads, TCB Marketing, exhibits and other statewide agencies.

Assist the Self-Advocacy/Leadership Subcommittee with the development and dissemination of

relevant topics, communication PSA’s, or other means to promote systems change that will

improve outcomes for individuals with intellectual and developmental disabilities.

Develop a one-page “leave behind” flyer including QR Code summarizing the value of the FDDC

for prospective partners, legislative, exhibiting and personal contacts.

Ideas for Future Strategies:

Public Service Broadcasting (local television and or, PBS television through the Public

Broadcasting Association).

Facebook Ads Campaign.

Additional (Program Specific) flyers and or brochures.

self advocacy and leadership goal subcommittee meeting 03 03...the self advocacy goal...

Documents