self-determination presentation
TRANSCRIPT
The Individuals and their self-directed activism toward what they want to
achieve:A Training for Brokers and Medicaid Service
Coordinators
by theamazinJ (Jason Ross)
Individualitytheamazinj
IDENTITY
Objects,Possessions Creations Choices
Genetics
Interests
Friends &Family
Work andHobbies
Practices andHabits
Ethnicity
Appearance
Beliefs
Values
Identity First Language vs. Person First Language
theamazinj (Jason Ross)
Language is important
not only for a Disabled person, but
for any person
Speak to any Person
the way they want to be
Identified as instead of
giving people an ID
the way society or you wants
What is Self-Advocacy
andWhy is it so important?
theamazinj
Self-Advocacy is important because it is a basic human right.
No one gets to say what other people cannot do, think, say, or
represent ourselves as.
Being Human means having the individual rights to be whoever we
want to be.
Self-Determination
freedom to live as one chooses, or to act or decide without consulting another or others without being influenced by others
theamazinJ
An Individual’s Path to Self-determinationEveryone has their own agendas. It is important not to influence the individual to what you think they should
want.
The individual has to advocate for themselves constantly when the agencies and others want to maintain their own agendas for what they think is
right for the individual.
I must make sure I maintain my own self-advocacy to get what I want and need for my
success in my life.
The stronger self-advocate I become, the more I get what I want and need.
Don’t be afraid to say ‘NO’ when something does not feel right from an agency or person.
Tell everyone what you want and need! theamazinj
The Person Centered, Self-directed Services, maintaining Self-Determination• It is important that the whole circle of
support maintains the Individual’s own self-determination
• The individual makes decisions based on what they believe feels right for them without being directed by other people telling them what to do
• The individual is in charge of their own life who knows what fits, what feels right, and knows what they want and the success they need. The circle of support assists the individual to maintain that success.
• No one tells or influences the individual, but offers support
• The Individual gets to make their own mistakes too and learns from those mistakes
For example, if an individual chooses to
further their education to enable themselves toward their activism,
let them!
theamazinJ
The Individual Self-directing their own life
theamazinj
The Individual calls their own meetings The Individual creates their own circle of support which includes mostly the Broker, the individual’s choice of
supportive people, and partly the Medicaid Service Coordinator
The individual tells the circle of support what they want in their life, what they need,and what success looks like.
The Circle of Support is only there to support the decisions of the individual’s wants and needs in their life
while helping to make those things possibleThe Individual makes all the decisions
The Individual is an adult who IS taking responsibility for their own life.
This is about supportive decision making, not influencing or telling
Self-Direction
theamazinj
Self-determination from what the individual wants, needs, and says. Basically, the individual
leads!Without the head, body, and feet,
the system cannot functionHead : Fiscal
Intermediary, takes care of the money in
the budgetBody: person who works the most with the individual: The Broker with the circle of support
Feet : Medicaid Service
Coordinator
The Head: Fiscal Intermediary
theamazinj
This person allocate the money in the budget for the individual
They work closely with the broker to function by allocating money for the different things
within the approved budget
Without the The Fiscal Intermediary no broker, staff, or other things gets paid
The Body: The Broker
theamazinj
The Broker is the MAIN person who works with the Individual
The Broker gets to know the individual the most and helps construct the budget
and must be creative to think outside the box of how to get the individual
what they want and needThe Broker works closely with the individual to make sure all the needs and wants are met by the plan that is
approved
The Feet: Medicaid Service Coordinator
theamazinj
The person who does the least, but still important factor in maintaining the needs of
the individual
This person maintains medicaid, health insurance, social security
benefits, food stamps, the Individualized Service Plan, and helps provide support within the
circle of support to maintain that the services are centered
around the individual
Helping Disabled People Build Community and Direct Their Own Lives:
My meet up group
theamazinJ
Disabled People’s Rights + Civil Rights = Human
Rights
theamazinJ
We need to view disabled people as part of the human race too without
prejudicial thinking
or tragic burden thoughts
[email protected]@gmail.com
Disabled people are NOT Your Inspiration, we are people too, and need to be respected with what we want out of our life just as much as everyone
else,respect what we want, and we will respect you.If non-disabled people get paid for work being done, please concur with disabled people too.
theamazinJ
Supported Decision-Making New York
What Is SDM?
It’s something that we all do every day!• Supported decision-making (SDM) is a process by which a person with an intellectual or developmental disability can be supported in making his or her
own decisions • We call them decision-makers
• There is no “one-size-fits-all” model for SDM• It generally occurs when people receive assistance from one or more trusted friends, family members, professionals or advocates to help them understand the situations they face and choices and options they have so they can make
their own decisions
Not Just Pie In The Sky!
In Texas, SDM is already the law
“A process of supporting and accommodating an adult with a disability enable the adult to make life
decisions, including decisions related to where the adult wants to live, the services, supports and medical care the adult wants to receive, whom the adult want
to live with, and where the adult wants to work without impeding the self-determination of the adult.”
Texas established code 1357.002 (3); 1357.003other states like DE
and MA, are catching on, too!
Key Concepts for SDM• Put decision makers in the driver’s seat
• Value the will and preferences of decision makers
• TRUST decision makers to take risks
• Create Meaningful Choices
• Recognize decision making supports as a right
• Recognize decision making supports as a right
SDMNY’s Theory of Change1) Education - spreading the word about how supported
decision making improves the lives of decision-makers2) Diversion - Helping people avoid guardianship and
uses alternatives3) Restoration - Helping people under guardianship have
access to alternatives and get their rights back4) Sustainability - Ensuring that supported decision
making will be here to stay
National Resource Center for Supported Decision Making -supporteddecionmaking.org
Northampton, MA Supported-Decision-Making Pilot Project
-supporteddecisions.org/pilot-projectMaine’s Supported Decision Making
Coalition-supportmydecision.org
Supported Decision-Making New York-sdmny.org
-Yuri Kochiyama
“Consciousness is Power,Consciousness is Education and Knowledge,
Consciousness is Becoming Aware,Tomorrow’s World is yours to Build!”