Social Media and Patient Advocacy

Nrip NihalaniPlus91 Technologies Pvt. Ltd.Adding Value to Healthcare

Social Media and Advocacy• Social media is not an

activity it's a strategy.

• Integrates Technology, Social Interaction and Media

• Social media such as blogs, social networks are all about speeding up & enriching communication.

• Social media has created an army of readily available brand advocates.

• Mostly just regular people who are talking about the things they like and in doing so are influencing their social circle to also check it out.

SocMed’s Impact on Patient Advocacy

• Advocacy groups have a powerful medium to reach local individuals

• Thus, work more with individuals online to effect change in local communities

• SocMed is disrupting the idea of Patient Advocacy Patients connecting with each other – Not just with Brands Patient Advocacy beyond Advocacy Groups

• Creation of both Online Patient Advocates as well as Online Patient Advocacy Communities

Online Communities• Mark Zuckerberg once said -

“You don’t start communities…Communities already exist. They’re already doing what they want to do. The question you should ask is how you can help them do that better.”

In Online Communities Patients support and learn from each other in Volumes in Real Time

Some Ideas which Work

• Online Support Groups• Online Coaches• Website/Portal/Library of Useful Information • Digital Animated Superheroes as Advocates• Quiz based Games• Social Dietician• “How To” Video Galleries on YouTube• Blog based Advocacy of Treatments/Preventive

Techniques

Examples of Social Media Advocacy

• Type 1 Parent shares experiences of being parents of a child with type 1 diabetes provides simple, straight-forward explanations to the fundamental aspects of diabetes helps parents help their children understand what is happening to them.

• Diabetic-Diet-Secrets was an on-line community of people who had well-controlled diabetes they helped other people with diabetes who were newly diagnosed or poorly controlled

Some Patient Advocates on Social Media

• Dave DeBronkart (@ePatientDave)• Regina Holliday (@ReginaHolliday)• Marie Ennis O’Connor (@jbbc)• Kari Ulrich (@FMDGirl)• Virna Elly (@VirnaElly)

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