social media for research opportunities for collaboration and knowledge translation

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ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa Children s Hospital of Eastern Ontario Ottawa, ON. SOCIAL MEDIA FOR RESEARCH Opportunities for Collaboration and Knowledge Translation. JAY HOCHMAN, MD - PowerPoint PPT Presentation

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  • ERIC BENCHIMOL, MD, PhD, FRCPCAssistant Professor of Pediatrics & EpidemiologyUniversity of OttawaChildrens Hospital of Eastern OntarioOttawa, ONSOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and Knowledge Translation

    JAY HOCHMAN, MDPediatric Gastroenterologist GI Care for KidsAtlanta, GA

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  • ERIC BENCHIMOL, MD, PhD, FRCPC@ericbenchimolca.LinkedIn.com/in/ericbenchimolResearchGate.net/profile/Eric_BenchimolSOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and Knowledge Translation

    @uOttawaMed

    ca.linkedin.com/in/ericbenchimol/

    JAY HOCHMAN, MD@gutsandgrowthPediatric Gastroenterology Blog:GutsandGrowth.wordpress.com

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  • SOCIAL MEDIA (DEFINITION)Any technology that facilitates communication or collaboration between humans.

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  • CRITICISMS OF SOCIAL MEDIAGrowth of technologyPrivacyBanalityPeripheralityLoss of authoritative perspectiveInformation overloadWork/life balance

    Cann, Social Media: A Guide for Researchers, 2011

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  • Bik and Goldstein, PLoS Biology, 2013

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  • OBJECTIVESReview the use of social media to convey knowledge to the public (blogs)

    Review opportunities to use social media for research knowledge translation (Twitter)

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  • KNOWLEDGE TRANSLATION

    (or Why I Tweet)

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  • KNOWLEDGE TRANSLATIONDefinition:the exchange, synthesis, and ethically-sound application of knowledgewithin a complex set of interactions among researchers and usersto accelerate the capture of the benefits of research for Canadians through improved health, more effective services and products, and a strengthened health care systemCanadian Institutes of Health Research (2004)

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  • TIMELINEFeb/2009: Attending KT course at the Hospital for Sick Children (Toronto)

    Mar/2009: Started Twitter accounts @ericbenchimol (professional, general), @NewInIBD (IBD-related)

    Jan/2011: Changed @NewInIBD to @CHEOIBD to reflect CHEO IBD Centre

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  • TIMELINE

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  • KNOWLEDGE TRANSLATION (SCIENTIFIC)Bik and Goldstein, PLoS Biology, 2013

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  • 10 Rules of Tweeting@blakehounshell (editor, Foreign Policy)THINK before you TweetBe indispensable.Be a real person.Dont overshare.Dont be a me-tweeter.Credit your sources.Be transparent about what you know, how you know it.Bring the non-Twitter world into Twitter.Dont get into flame wars. Dont poke the trolls.Engage your readers theyre smarter than you.

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  • KNOWLEDGE TRANSLATION (SCIENTIFIC)Twitter:@NASPGHAN: #naspghan2013@GIKidsOrg@AmerGastroAssnDebate:Usefulness of micro-bloggingAccuracyUnpublished, non-peer review information

    Nature Methods 2011;8(4):273Winstead, NCI Cancer Bulletin, 2011Social Media Guidelines for AACR Conferences

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  • KNOWLEDGE TRANSLATION(PUBLIC)Medical knowledge IS being disseminated using social mediaSurvey of tweets on antibiotic use:29.8% on general use16.2% advice/information11.6% on effects/negative reactions10.5% on diagnosis9.5% on resistance5.6% misunderstanding/misuse

    Scanfeld et al., Am J Infect Control, 2010

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  • Chafe et al., Nature, 2011

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  • KNOWLEDGE TRANSLATION(PUBLIC)Chafe et al., Nature, 2011

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  • KNOWLEDGE TRANSLATION(PUBLIC)Chafe et al., Nature, 2011Scientists use:ReportsBriefing notesPress releases, news conferences

    Patient groups:Social media

    Clinical Equipoise vs. Facebook Equipoise!

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  • GRANT-WRITING KT STRATEGY#1 Establish a social media presenceThemeTarget audienceCollaborationsBoil-down research to 140 characters?

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  • GRANT-WRITING KT STRATEGYQuestions to answer:Who is your target audience?How will you engage them and when?What do they need to know?How will your message be packaged?How will your message be delivered to the targeted audience?What do you hope to achieve by sharing your message?

    Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health Research Transfer Training Program, 2003

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  • GRANT-WRITING KT STRATEGYQuestions to answer:Who is your target audience?How will you engage them and when?What do they need to know?How will your message be packaged?How will your message be delivered to the targeted audience?What do you hope to achieve by sharing your message?

    Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health Research Transfer Training Program, 2003

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  • GRANT-WRITING KT STRATEGYExample:The investigators have established a focused social media presence on ________ (>xxx followers) in order to disseminate knowledge to the public and interested parties. Additionally, the groups most affected by this studys findings will receive specific information on how study results may impact them using Facebook groups, Twitter and other social media outlets. We will evaluate responses to our messages and the extent of propagation of results to guide future knowledge translation efforts.

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  • Bik, PLoS Biology, 2013GETTING INVOLVED

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  • BOTTOM LINESocial media is here to stay

    Far reach

    Influencing science

    DEVELOP A STRATEGY

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  • REFERENCESocial Media: A Guide for Researchers

    http://www.rin.ac.uk/our-work/communicating-and-disseminating-research/social-media-guide-researchers

    Bik and Goldstein. An Introduction to Social Media for Scientists.PLoS Biology 2013; 11(4): e1001535

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  • PATIENT RECRUITMENT

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  • Another real life exampleStudy on assessment of complementary feeding Recruitment via old mechanisms: 1 in one yearRecruitment via new mechanisms:https://www.facebook.com/AssessmentofComplementaryFeeding?ref=stream45 children in 5 months!!

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  • PATIENT RECRUITMENTLots of evidence for effectivenessUse of Twitter to survey about dental pain

    Use of MySpace to monitor HPV vaccine debate

    Patient opinion after NIH Consensus Statement on VBACsRomano et al., J Perinatal Educ, 2010Keelan et al., Vaccine, 2010Heaivilin et al., J Dent Res, 2011

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  • PATIENT RECRUITMENTLots of evidence for effectivenessCCFA Partners Internet cohort (n=7819)

    Patient Assessment of Chronic Illness Care94.5% response rate!Randell et al., Inflamm Bowel Dis, 2013Long et al., Inflamm Bowel Dis, 2012

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  • PATIENT RECRUITMENTLots of evidence for effectiveness

    Also lots of evidence for concern:EthicsPrivacySelection bias

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    Growth of technology some people feel that the encroachment of technology into every aspect oflife has potentially damaging implications. Privacy social media are built on a culture of active personal and professional disclosure. Thereare concerns about how this is changing the interface between public and private spaces, andabout misuse of our data. For researchers, putting your professional life online can feel exposing,particularly if you express opinions and ideas that have not been subject to the normal process ofpeer review. Banality many social media tools are based on the exchange of many small bits of informationsuch as status updates or the sharing of links. These short-form individual contributions have ledto the charge that social media are trivial in nature and suitable only for entertainment rather thanprofessional research. Peripherality many researchers stress that social media are still peripheral in research, and thisleads some to argue that it is therefore not worth engaging. Loss of an authoritative perspective traditional publishing aims to provide a filter for qualitywhereas social media allow everyone to publish anything that they have to say. This inevitablymeans that it is more difficult to identify which contributions are valuable or authoritative. Information overload social media have dramatically increased the amount of publicly-availableinformation: 24 hours of video are added to YouTube each minute. Work/life balance social media has the potential to extend your working day and blur thedistinction between work and other aspects of your life. Rese