spirituality and dementia - alzheimer's association · ©alzheimer’s association green-field...

©Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 1

This list is a reviewed collection of articles, books, web resources and videos

prepared by the Alzheimer's Association Green-Field Library staff. To borrow

items we own contact your local chapter or local library. Read more about

borrowing at https://www.alz.org/help-

support/resources/virtual_library/how_to_borrow.

On this resource list:

Persons Living with Dementia Care, Clinical

Care, Family

Care, Pastoral Diversity

Persons Living with Dementia

Articles, Journal

Dalby, P. The lived experience of spirituality and dementia in older people living

with mild to moderate dementia. Dementia (London). Jan 2012; vol. 11(1), pp.

75-94.

Abstract: http://intl-dem.sagepub.com/content/11/1/75

Green-Field Library owns.

Spirituality and Dementia

https://www.alz.org/help-support/resources/virtual_library/how_to_borrow

https://www.alz.org/help-support/resources/virtual_library/how_to_borrow

http://intl-dem.sagepub.com/content/11/1/75


Daly, L, Fahey-McCarthy, E; Timmins, F. The experience of spirituality from the

perspective of people living with dementia: a systematic review and meta-

synthesis. Dementia (London). Dec 9 2016, Epub ahead of print.

Abstract: https://www.ncbi.nlm.nih.gov/pubmed/27941158


Jolley, D.; Benbow, SM; Grizzell, M; et al. Spirituality and faith in dementia.

Dementia (London). Aug 2010; vol. 9(3), pp. pp. 311-325.

Abstract: https://journals.sagepub.com/doi/abs/10.1177/1471301210370645


Keady, Jessica, M. Dementia: living in the memories of god.

Urgesi, C.; Aglioti SM; Skrap, M; et al. The spiritual brain: selective cortical

lesions modulate human self-transcendence. Neuron. Feb 11, 2010; vol. 65(3),

309-319.

Full-text: http://www.sciencedirect.com/science/article/pii/S0896627310000528

Green-Field Library does not own.

Books

For additional book titles visit GoodReads and Amazon.com

Bjorck IL; Bjorck, J. Twilight meditations: one woman’s thoughts of God as

Alzheimer’s Advances.

Pasadena, CA: Jeffrey P. Bjorck, 2017.


MacKinlay E; Trevitt, C. Facilitating spiritual reminiscence for people with

dementia.

New York, NY: Jessica Kingsley, 2015


Sawatsky, J. Dancing with elephants: mindfulness training for those living with

dementia, chronic illness or an aging brain.

Toronto, ON: Red Canoe Press, 2017

Green-Field Library Call No.: WM 220 S271 2017

https://www.ncbi.nlm.nih.gov/pubmed/27941158

https://journals.sagepub.com/doi/abs/10.1177/1471301210370645

http://www.sciencedirect.com/science/article/pii/S0896627310000528

https://www.goodreads.com/search?utf8=%E2%9C%93&q=alzheimer%27s+spiritual&search_type=books

https://www.amazon.com/s?k=alzheimer%27s+spiritual&i=stripbooks&ref=nb_sb_noss


Swinton, J. Dementia: living in the memories of God.

Grand Rapids, MI: Eerdmans, 2012


Web Resource

Ehman, J. Spirituality & people with dementia/Alzheimer’s disease: select

bibliography of articles.

Penn Presbyterian Medical Center: Philadelphia, PA, 2011

http://www.acperesearch.net/Res_Alzheimers_and_Spirituality.pdf

Care, Clinical

Articles, Journal

Agli, O.; Bailly, N.; Ferrand, C. Spirituality and religion in older adults with

dementia: a systematic review. International Psychogeriatrics. May 2015; vol.

27(5), pp. 715-725.

Abstract: http://www.ncbi.nlm.nih.gov/pubmed/25155440


Carr, TJ.; Hicks-Moore, S.; Montgomery, P. What’s so big about the ‘little things’:

a phenomenological inquiry into the meaning of spiritual care in dementia.

Dementia (London). Aug 2011; vol. 10(3), pp. 399-414.

Abstract:

http://dem.sagepub.com/content/early/2011/05/27/1471301211408122.abstract?r

ss=1


Coin, A., Perissinotto, E.; Najjar, M.; et al. Does religiosity protect against

cognitive and behavioral decline in Alzheimer’s dementia. Current Alzheimer

Research. Aug 2010; vol 7(5), pp. 445-452.



http://www.acperesearch.net/Res_Alzheimers_and_Spirituality.pdf

http://www.ncbi.nlm.nih.gov/pubmed/25155440

http://dem.sagepub.com/content/early/2011/05/27/1471301211408122.abstract?rss=1

http://dem.sagepub.com/content/early/2011/05/27/1471301211408122.abstract?rss=1



Counted, V.; Possamai, A.; Meade, T. Relational spirituality and quality of life

2007 to 2017: an integrative research review. Health and Quality of Life

Outcomes. Apr 2018; vol. 16(1), p. 75.

Full-text: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5926536/


Dos Santos, S.; Rocha, G.; Fernandez, L.; et al. Association of lower spiritual

well-being, optimism and hope scores with mild cognitive impairment and mild

dementia. Frontiers in Psychology. Apr 2018; vol. 9, p. 371.

Full-text: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891611/


Ewing, WA. Land of forgetfulness: dementia care as spiritual formation. Journal

of Gerontological Social Work. 2005; vol. 45(3), pp. 301-311.



Gwyther, LP. Spirituality and caring for older family members. Southern Medical

Journal. Oct 1, 2006; vol. 99(10), pp. 1106-1107.

Abstract: http://sma.org/southern-medical-journal/article/spirituality-and-caring-

for-older-family-members


Hebert, RS; Dang, Q.; Schulz, R. Religious beliefs and practices are associated

with better mental health in family caregivers of patients with dementia: findings

from the REACH study. American Journal of Geriatric Psychiatry. Apr 2007; vol.

15(4), pp. 292-300.



Helen, S. The importance of spirituality for people living with dementia. Nursing

Standard. Feb 17, 2016; vol. 30(25), pp. 41-50.



https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5926536/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891611/


http://sma.org/southern-medical-journal/article/spirituality-and-caring-for-older-family-members/

http://sma.org/southern-medical-journal/article/spirituality-and-caring-for-older-family-members/




Hosseini, S; Chaurasia, A; Oremus, M. The effect of religion and spirituality on

cognitive function: a systematic review. Gerontologist. Apr 2019; vol. 59(2), e76-

e85.



Hovland, CA; Kramer, BJ. Barriers and facilitators to preparedness for death:

experiences of family caregivers of elder with dementia. Journal of Social Work

in End-of-Life and Palliative Care. Jan-Mar 2019; vol. 15(1), pp. 55-74



Kartupelis, J. Spiritual life in homes shared by older people. Working with Older

People. 2015; vol. 19(3), p. 150-156

Abstract: https://www.emeraldinsight.com/doi/abs/10.1108/WWOP-01-2015-0001


Katsuno, T. Personal spirituality of persons with early-stage dementia: is it

related to perceived quality of life? Dementia (London). Oct 2003; vol. 2(3), pp.

315-335.

Abstract: http://dem.sagepub.com/content/2/3/315.abstract


Kaufman, Y.; Anaki, D.; Binns, M.; et al. Cognitive decline in Alzheimer's

disease: impact of spirituality, religiosity, and QOL. Neurology. May 1, 2007; vol.

68(18), pp. 1509-1514.



Kevern P. The spirituality of people with late-stage dementia: a review of the

research literature, critical analysis and some implications for person-centred

spirituality and dementia care. Mental Health, Religion & Culture. Nov 2015; vol.

18(9), pp. 765-776.

Abstract: https://www.tandfonline.com/doi/abs/10.1080/13674676.2015.1094781




https://www.emeraldinsight.com/doi/abs/10.1108/WWOP-01-2015-0001

http://dem.sagepub.com/content/2/3/315.abstract


https://www.tandfonline.com/doi/abs/10.1080/13674676.2015.1094781


Kevern, P.; Stifoss-Hanssen, H. The challenges of dementia care and the

(un)making of meaning: analysis of an online forum on carer spirituality.

Dementia (London). Aug 2018.



Koenig, TL. Caregivers’ use of spirituality in ethical decision-making. Journal of

Gerontological Social Work. 2005; vol. 45(1-2), pp. 155-172.



Lawrence, RM. Aspects of spirituality in dementia care: when clinicians tune into

silence. Dementia (London). Oct 2003; vol. 2(3), pp. 393-402.

Abstract: http://dem.sagepub.com/content/2/3/393.short


LoboPrabhu, S.; Molinari, V.; Arlinghaus, K.; et al. Spouses of patients with

dementia: how do they stay together “till death do us part”? Journal of

Gerontological Social Work. 2005, vol. 44(304), 161-174.

Abstract: http://www.tandfonline.com/doi/abs/10.1300/J083v44n03_10


Nelson-Becker, H.; Nakashima, MC; Edward, R. Spiritual assessment in aging: a

framework for clinicians. Journal of Gerontological Social Work. 2007, vol. 48(3-

4), pp. 331-334.



Snyder, L. Satisfaction and challenges in spiritual faith and practice for persons

with dementia. Dementia (London). Oct 2003; vol. 2(3), pp. 299-313.

Abstract: http://dem.sagepub.com/content/2/3/299.abstract


Spurlock, WR. Spiritual well-being and caregiver burden in Alzheimer's

caregivers. Geriatric Nursing. May-Jun 2005; vol. 26(3), pp. 154-161.

Full-text: http://www.ncbi.nlm.nih.gov/pubmed/15973342




http://dem.sagepub.com/content/2/3/393.short

http://www.tandfonline.com/doi/abs/10.1300/J083v44n03_10


http://dem.sagepub.com/content/2/3/299.abstract



Timmins, F; Murphy, M.; Begley, T; et al. The extent to which core nursing

textbooks inform holistic spiritual care. Nursing Management. Sep 2016; vol.

23(5), pp. 31 – 37.


Toivonen, K.; Charalambous, A.; Suhonen, R. Supporting spirituality in the care

of older people living with dementia: a hermeneutic phenomenological inquiry

into nurses’ experiences. Scandinavian Journal of Caring Sciences. Jun 2018;

vol. 32(2), pp. 880-888.


Green-Field Library does now own.

Volicer, L. Review of programs for persons facing death with dementia.

Healthcare (Basel). Apr 15, 2019; vol. 7(2), pp. pii: E62

Full-text: https://www.mdpi.com/2227-9032/7/2/62/htm


Watson, NM. Spiritual nurturance and the support for nursing home residents

with dementia. Dementia (London). Feb 2011; vol. 10(1), pp. 59-80.

Abstract: http://dem.sagepub.com/content/10/1/59.refs


Yoon, K.; Moon, Y.; Lee, Y.; et al. The moderating effect of religiosity on

caregiving burden and depressive symptoms in caregivers of patients with

dementia. Aging & Mental Health. Jan 2018; vol. 22(1), pp. 141-147.



Books & Book Chapters

Grollman, EA. The Alzheimer's patient. IN: Gilbert, R.B. Health care &

spirituality: listening, assessing, caring, 203-210.

Amityville, NY: Baywood Publishing Co., 2002.

Green-Field Library Call No.: BL 625 G465 2002.


https://www.mdpi.com/2227-9032/7/2/62/htm

http://dem.sagepub.com/content/10/1/59.refs



Grollman, EA. Spirituality and Alzheimer's disease. IN: Living with grief:

Alzheimer's disease, pp. 213-223.

Washington, DC: Hospice Foundation of America, 2004.

Green-Field Library Call No.: WM 220 L785 2004

Shamy, E. Guide to the spiritual dimension of care for people with Alzheimer's

disease and related dementias: more than body, brain, and breath.

London, UK: Jessica Kingsley Publishers, 2003.

Green-Field Library Call No.: BL 625.9 S53 2003.

Stolley, JM; Cholan, J. Professional sensitivity to religion-spirituality among male

caregivers. IN: Kramer, B.J.; Thompson, E.H. Men as caregivers: theory,

research, and service implications, pp 317-336.

New York, NY: Springer Publishing, 2002.

Green-Field Library Call No.: WY 200 M534 2002

Journal Issues

Buddhist and Native American Spirituality and Aging. Journal of Religion,

Spirituality, and Aging. 2013, vol. 25(1), pp. 1-66.

Special issue: https://www.tandfonline.com/toc/wrsa20/25/1?nav=tocList


Spirituality and dementia. Dementia: The International Journal of Social

Research and Practice. Oct 2003; vol. 2(3), pp. 1-448.

Special issue: https://journals.sagepub.com/toc/dema/2/3


Spirituality and nursing. Journal of Clinical Nursing. Jul 2006; vol. 15(7), pp.

801-930.

Special issue: https://onlinelibrary.wiley.com/toc/13652702/2006/15/7


https://www.tandfonline.com/toc/wrsa20/25/1?nav=tocList

https://journals.sagepub.com/toc/dema/2/3

https://onlinelibrary.wiley.com/toc/13652702/2006/15/7


Web Resources

Religions, spirituality and dementia.

Sandra Stimson

Sparta, NJ: Alternative Solutions.

http://www.theactivitydirectorsoffice.com/AlternativeSolutionsPage_Archive20080

7.html

Spiritual and religious needs of people with dementia.

Catholic Medical Quarterly: Journal of the Catholic Medical Association, 2011.

http://www.cmq.org.uk/CMQ/2011/04-spiritual-needs-dementia.html

Spiritual care of the person with dementia [presentation]

Janice Hicks

Spirituality, Religion and Health Interest Group-Penn Medicine, 2018

http://www.uphs.upenn.edu/pastoral/events/Spiritual_Care_of_the_Person_with_

Dementia_Hicks_no_videos_Jan2017.pdf

Care, Family

Articles, Journal

Batz, J. How do we know what they know? – decision to withhold communion

from Alzheimer's patients questioned. National Catholic Reporter (online). Jan

31, 1997.

Full-text: http://natcath.org/NCR_Online/archives2/1997a/013197/013197f.htm


Damianakis, T.; Wilson, K.; Marziali, E. Family caregiver support groups: spiritual

reflections’ impact on stress management. Aging & Mental Health. Jan 2018; vol.

22(1), pp. 70-76.



http://www.theactivitydirectorsoffice.com/AlternativeSolutionsPage_Archive200807.html

http://www.theactivitydirectorsoffice.com/AlternativeSolutionsPage_Archive200807.html

http://www.cmq.org.uk/CMQ/2011/04-spiritual-needs-dementia.html

http://www.uphs.upenn.edu/pastoral/events/Spiritual_Care_of_the_Person_with_Dementia_Hicks_no_videos_Jan2017.pdf

http://www.uphs.upenn.edu/pastoral/events/Spiritual_Care_of_the_Person_with_Dementia_Hicks_no_videos_Jan2017.pdf

http://natcath.org/NCR_Online/archives2/1997a/013197/013197f.htm



Deist, M.; Greeff, A. Living with a parent with dementia: a family resilience study.

Dementia (London). Jan 2017; vol. 16(1), pp. 126-141.



Hoppe, S. A sorrow share is a sorrow halved: the search for empathetic

understanding of family members of a person with early-onset dementia. Culture,

Medicine and Psychiatry. Mar 2018; vol. 42(1), pp. 180-201.

Full-text: https://www.ncbi.nlm.nih.gov/pubmed/28779277


Lopez, J.; Romero-Moreno, R.; Marquez-Gonzalez, M. et al. Spirituality and self-

efficacy in dementia family caregiving: trust in God and in yourself. International

Psychogeriatrics. Dec 2012; vol. 24(12), pp. 1943-1952.

Abstract:

http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=8721

933


Mahdavi, B.; Fallahi-Khoshknab, M.; Mohammadi, F.; et al. Effects of spiritual

group therapy on caregiver strain in home caregivers of the elderly with

Alzheimer’s disease. Archives of Psychiatric Nursing. Jun 2017; vol. 31(3), pp.

269-273.



Monteiro, A.; Santos, R.; Kimura, N.; et al. Coping strategies among caregivers

of people with Alzheimer disease: a systematic review. Trends in Psychiatry and

Psychotherapy. Jul-Sep 2018; vol. 40(3), pp. 258-268.



Padmaprabha, D.; Sperlinger, DJ; Boddington, S. The lived experience of

spirituality and dementia in older people living with mild to moderate. Dementia

(London). Feb 2012; vol. 11(1), pp. 75-94

Abstract: http://intl-

dem.sagepub.com/content/early/2011/11/01/1471301211416608








http://intl-dem.sagepub.com/content/early/2011/11/01/1471301211416608

http://intl-dem.sagepub.com/content/early/2011/11/01/1471301211416608


Ødbehr, L.; Hauge, S.; Danbolt, L.; et al. Residents’ and caregivers’ views on

spiritual care and their understanding of spiritual needs in person with dementia:

a meta-synthesis. Dementia (London). Oct 2017; vol. 16(7), pp. 911-929.



Slape, J. Dementia and palliative care: the spiritual needs of family members.

Journal of Religion, Spirituality and Aging. Apr-Sep 2014; vol. 26(2/3) pp. 215-

230.

Full-text: http://www.tandfonline.com/doi/pdf/10.1080/15528030.2013.830237


Books and Book Chapter

Dunlop, J. Finding grace in the face of dementia.

Wheaton, IL: Crossway, 2017

On order

Ewing, WA. Tears in God's bottle: reflections on Alzheimer's caregiving.

Tucson, AZ: Whitestone Circle Press, 1999.

Green-Field Library Call No.: BL 625.9 E95 1999

Hall, ET. Caring for a loved one with Alzheimer's disease: Christian perspective.

New York, NY: Haworth Pastoral Press, 2000.

Green-Field Library Call No.: BL 625.9 H175 2000

Hobilitzelle, OA. Ten thousand joys & ten thousand sorrows: a couple’s journey

through Alzheimer’s.

Los Angeles, CA: Tarcher, 2010.

On order

Hornbacjk, PM. God still remembers me: devotions for facing Alzheimer’s

disease with faith.

Seattle WA: Createspace, 2015



http://www.tandfonline.com/doi/pdf/10.1080/15528030.2013.830237


Jade CA. Seasons of caring: meditations for Alzheimer’s and dementia

caregivers.

Chevy Chase, MD: Clergy against Alzheimer’s network, 2014.


Leder, S. More beautiful than before: how suffering transforms us.

Carlsbad, CA: Hay House Inc., 2017


Maddux, C. A path revealed: how hope, love and joy found us deep in a maze

called Alzheimer’s

Brewster, MA: Paraclete Press, 2016

Read for free with KindleUnlimited


McLeod, BW. And thou shalt honor: the caregiver’s companion.

New York, NY: St. Martin’s Press, 2002.

Green-Field Library Call No.: HV 1461 A535 2002

Pearce, N. Inside Alzheimer's disease: how to hear and honor connections with

a person who has dementia.

Nashbille, TN: Forrason Press, 2007.

Green-Field Library Call No.: WM 220 P359 2007

Pray with me still: rosary meditations and spiritual support for persons with

Alzheimer's, their caregivers, and loved ones.

Notre Dame, IN: Ave Maria Press, 2006.

Green-Field Library Call No.: BV 4910.6 P73 2006

Roche, L. Coping with caring: daily reflections for Alzheimer caregivers.

Forest Knolls, CA: Elder Books, 1996.

Green-Field Library Call No.: BL 625.9 R673 1996

Simpsom, R. Through the wilderness of Alzheimer's disease: a guide in two

voices.

Minneapolis, MN: Augsburg Fortress Press, 1999.

Green-Field Library Call No.: WM 220.5 S613 1999


Strecker, TR. Alzheimer's: making sense of suffering.

Lafayette, LA: Vital Issues Press, 1997.

Green-Field Library Call No.: BL 625.9 S914 1997

Videos

Caring for a loved one with Alzheimer’s: an emotional journey.

Brester, MA: Paraclete Video Productions, 2012

Three experts, Mary Ellen Geist, Kenneth Doka, and Joanne Koenig Coste

discus grieving and losses in their lives and yours, what it feels like when your

love no longer helps, feelings of failure and guilt, handling frustration and anger,

caring for yourself, and courage and sacrifice in Alzheimer caregiving.

1 DVD (50 min.)

Green-Field Library Call No.: WM 220 DVD no. 162 2012

Care, Pastoral

Articles, Journal

Barclay, A. Psalm 88: living with Alzheimer's. Journal of Religion, Disability &

Health. Jan-Mar 2012; vol. 16(1), pp. 88-101.

Abstract: http://www.tandfonline.com/doi/abs/10.1080/15228967.2012.645607


Farr, ED; Bute, J. Dementia: good living in our churches. Working with Older

People. 2015; vol. 19(3), pp. 134-139.

Abstract: https://www.emeraldinsight.com/doi/abs/10.1108/WWOP-10-2014-0031


Finlay, MR. Righteousness in the land of forgetfulness. Journal of Religion and

Health. 2015; vol. 54, pp. 279-286.



http://www.tandfonline.com/doi/abs/10.1080/15228967.2012.645607

https://www.emeraldinsight.com/doi/abs/10.1108/WWOP-10-2014-0031



McGee, JS; Myers DR. Sacred relationships, strengthened by community, can

help people with mild or early stage Alzheimer’s. Generations. Spring 2014; vol.

38(1), pp. 61-67.

Abstract:

https://www.ingentaconnect.com/content/asag/gen/2014/00000038/00000001/art

00012


McGee, JS; Zhao, HC; Myers DR; et al. Spiritual diversity and living with early-

stage dementia. Clinical Gerontology. May-Jun 2018; vol. 41(13), pp. 261-267.



Moore KJ; Goodison, H. Sampson, EL. The role of the memory service in

helping carers to prepare for end of life: A mixed methods study. International

Journal of Geriatric Psychiatry. Feb 2019; vol. 34(2), pp. 360-368.



Post, SG. Alzheimer's & grace. First Things. Apr 2004; vol. 142, pp. 12-14.

Full-text: http://www.firstthings.com/article/2004/04/alzheimers-amp-grace


Swinton, J. What the body remembers: theological reflections on dementia.

Journal of Religion, Spirituality and Aging. Apr-Sep 2014; vol. 26(2/3), pp. 160-

172.

Abstract:

http://www.tandfonline.com/doi/full/10.1080/15528030.2013.855966#abstract


Journal Issue

Ellor, JW (ed.). Still waters run deep: theological reflections on dementia,

faithfulness, and peaceable presence. Journal of Religion, Spirituality & Aging.

2016; vol. 28(1-2), pp. 67-135.

https://www.ingentaconnect.com/content/asag/gen/2014/00000038/00000001/art00012

https://www.ingentaconnect.com/content/asag/gen/2014/00000038/00000001/art00012



http://www.firstthings.com/article/2004/04/alzheimers-amp-grace

http://www.tandfonline.com/doi/full/10.1080/15528030.2013.855966%23abstract


Books & Book Chapters

Campbell, J. A chaplain's pastoral care activity book for persons with severe

communication disorders.

Radium Springs, NM: Geriatric Resources, Inc., 1998.

Green-Field Library Call No.: BV 4580 C464 1998

Crowther, D. Sustaining persons, grieving losses: a fresh pastoral approach for

the challenges of the dementia journey.

Eugene, OR: Wipf and Stock, 2017

On order

DeGidio, S. Prayer services for the elderly.

Mystic, CT: Twenty-Third Publications, 1996.

Green-Field Library Call No.: BV 169 D317 1996

Gwyther, L. You are one of us: successful clergy/church connections to

Alzheimer's families.

Durham, NC: Duke University Medical Center, 1995.

Green-Field Library Call No.: WM 220 G995y 1995

Hudson, R. Disabled or enabled: ethical and theological issues for dementia

care. IN: MacKinlay, E. Ageing, disability and spirituality: addressing the

challenge of disability in later life, pp 81–93.

New York, NY: Jessica Kingsley, 2008.

Green-Field Library Call No.: BL 625 M158 2008

Jewell, A. (ed). Spirituality and personhood in dementia.

New York: Jessica Kingsley Publishers, 2011.


Kirkwood, NA. Pastoral care in hospitals.

New York, NY: Morehouse Publishing, 2005


Linthicum, D; Hicks, J; Redeeming dementia: spirituality, theology, and science.

New York, NY: Church Pub Inc., 2018



McFadden, SH.; Brennan, M.; Patrick, JH. (eds.). New directions in the study of

late life religiousness and spirituality.

Binghamton, NY: Haworth Pastoral Press, 2003.


Manson, D. Book of worship: hymns, liturgies, psalms.

Dubuque, IA: Luther Manor, 1993.

Green-Field Library Call No.: BV 4580 L37 1993

Manson, D. Large print book of worship II: hymns, liturgies, psalms, bible stories.

Dubuque, IA: Luther Manor, 1997.

Green-Field Library Call No.: BV 4580 L322 1997

Mast, BT. Second forgetting: remembering the power of the gospel during

Alzheimer’s disease.

Grand Rapids, MI: Zondervan, 2014

On order

McKim, D. God never forgets: faith, hope, and Alzheimer's disease.

Louisville, KY: Westminster John Knox Press, 1997.

Green-Field Library Call No.: BL 625.9 M216 1997

Otwell, P. Guide to ministering to Alzheimer's patients and their families.

Florence, KY: Routledge, 2008.

Green-Field Library Call No.: BV 4335 O92g 2008

Purnell, D; Anderson, H. Conversations as ministry: stories and strategies for

confident caregiving.

Cleveland, OH: Pilgrim Press, 2003


Shamy, E. Guide to the spiritual dimension of care for people with Alzheimer's

disease and related dementia: more than body, brain, and breath.

New York, NY: Jessica Kingsley Publishers, 2003.

Green-Field Library Call No.: BL 625.9 S53 2003


Stanford, MS. Grace for the afflicted: a clinical and biblical perspective on mental

illness.

Downers Grove, IL: IVP Books, 2017


Trevitt, C. Finding meaning in the experience of dementia.

Philadelphia, PA: Jessica Kingsley Publishing, 2012.


VandeCreek, L. Spiritual care for persons with dementia: fundamentals for

pastoral practice.

New York, NY: Haworth Pastoral Press, 1999.

Green-Field Library Call No.: BV 4435.5 S65 1999

Web Resources

Education links on faith & health - Duke Center for Spirituality Theology and

Health.

Durham, NC: Duke University.

http://www.spiritualityandhealth.duke.edu/index.php/education/other-links

Faith-related programs in dementia care, support, and education.

Shuman, SB; Yuen, P; Gordon, K.

Washington, DC: RTI International

https://nadrc.acl.gov/sites/default/files/uploads/docs/FaithRelatedDementiaProgr

ams%20FINAL%20FullRpt%20021317.pdf

Healthcare professional: licensed professional pastors.

Tuscaloosa, AL: Alzbrain.org, 2008.

This web page contains a handout on pastoral care and dementia and Just the

Facts for Pastors.

http://www.alzbrain.org/health_care_professional.cgi?pg=lp_pastor

http://www.spiritualityandhealth.duke.edu/index.php/education/other-links

https://nadrc.acl.gov/sites/default/files/uploads/docs/FaithRelatedDementiaPrograms%20FINAL%20FullRpt%20021317.pdf

https://nadrc.acl.gov/sites/default/files/uploads/docs/FaithRelatedDementiaPrograms%20FINAL%20FullRpt%20021317.pdf

http://www.alzbrain.org/health_care_professional.cgi?pg=lp_pastor


Reaching out to the spiritual nature of persons with dementia.

Waco, TX: Department of Gerontology, Baylor University, 2008.

A paper presented at the 2008 annual meeting of National Council on Aging and

The American Society on Aging. Includes recommended order of worship,

scripture and hymns for Protestant congregations, and a link to a worship bulletin

provided for an interfaith service for persons with Alzheimer's disease and their

families.

http://www.baylor.edu/content/services/document.php/60623.pdf

Worship for people with dementia

Glasgow, Scotland: Iona Community

Leveson.org is a foundation based on a philosophy to care for older people within

a Christian context.

http://www.leveson.org.uk

Diversity

Articles, Journal

Heese, K. Ageing, dementia and society – an epistemological perspective.

Springerplus. Mar 2015; vol. 20(4), pp. 2 – 20.



Heo, GJ; Koeske, G. The role of religious coping and race in Alzheimer’s disease

caregiving. Journal of Applied Gerontology. Aug 2013; vol. 32(5), pp. 582-604.

Abbreviated version:

https://kb.osu.edu/bitstream/handle/1811/45762/22_3_heo_paper.pdf


Hodge, DR; Sun, F. Positive feelings of caregiving among Latino Alzheimer's

family caregivers: understanding the role of spirituality. Aging & Mental Health.

2012; vol. 16(6) pp. 689-698.


Green-field library owns.

http://www.baylor.edu/content/services/document.php/60623.pdf

http://www.leveson.org.uk/stmarys/resources/service-for-dementia.pdf


https://kb.osu.edu/bitstream/handle/1811/45762/22_3_heo_paper.pdf



McGee, JS. Understanding end-of-life decision-making terminology among

African American older adults. Journal of Gerontological Nursing. Feb 1, 2018;

vol. 44(2), pp. 33-40.



McGee JS, Zhao HC, Myers DR, et al. Spiritual Diversity and Living with Early-

Stage Dementia. Clinical Gerontology. May-Jun 2018; vol. 25(2), pp. 734-742.



Parveen S, Peltier C, Oyebode JR. Perceptions of dementia and use of services

in minority ethnic communities: a scoping exercise. Health and Social Care in the

Community. Mar 2017; vol. 25(2), pp. 734-742.



Richardson VE, Fields N, Won S, et al. At the intersection of culture: Ethnically

diverse dementia caregivers' service use. Dementia (London). Jan 1, 2017; pp. 1

– 20.



Skomakerstuen, OL, Kvigne, K; Hauge, S; et al. A qualitative study of nurses’

attitudes towards’ and accommodations of patients’ expressions of religiosity and

faith in dementia care. Journal of Advanced Nursing. Feb 2015; 71(2), pp. 359-

369.


Green-Field Library does not own

Sun, F; Hodge, DR. Latino Alzheimer’s disease caregivers and depression: using

the stress coping model to examine the effects of spirituality and religion. Journal

of Applied Gerontology. Apr 2015; 33(3), pp. 291-315.


Green-Field Library does not own








Van Wezel, N; Francke, AL; Kayan Acun, E; et al. Explanatory models and

openness about dementia in migrant communities: a qualitative study among

female family carers. Dementia (London). Oct 2018; vol. 17(7), pp. 840-857.



Wilks, SE; Spurlock, WR; Brown, SC; et al. Examining spiritual support among

African American and Caucasian Alzheimer’s caregivers: a risk and resilience

study. Geriatric Nursing. Nov 2018; vol. 39(6), pp. 663-668.



Web resources

Dementia and minority ethnic carers [briefing paper].

Sahdia Parveen; Jan R. Oyebode

London, UK: Race and Equality Foundation, 2018

http://raceequalityfoundation.org.uk/wp-content/uploads/2018/07/REF-Better-

Health-463.pdf

Spirituality.

New York, NY: SAGE; National Resource Center on LGBT Aging

Contains free articles on spiritual care and themes for LGBT elders, end-of-life

issues related to spirituality, when dignity is denied, religion/HIV, and ministries

dedicated to LGBT populations.

https://www.lgbtagingcenter.org/resources/resources.cfm?s=26



http://raceequalityfoundation.org.uk/wp-content/uploads/2018/07/REF-Better-Health-463.pdf

http://raceequalityfoundation.org.uk/wp-content/uploads/2018/07/REF-Better-Health-463.pdf

https://www.lgbtagingcenter.org/resources/resources.cfm?s=26


Spirituality and Dementia

A selected list of references

Compiled by

Alzheimer’s Association Green-Field Library and Resource Center Alzheimer’s Association National Headquarters Chicago, IL 60601

Updated July 2019

spirituality and dementia - alzheimer's association · ©alzheimer’s association green-field...

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