star - south west healthcare · · 2013-11-26the system to aid recovery (star) provided by mental...
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STAR
Guide Number 9
Early Warning Signs Mental Health Services
January 2012
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Early Warning Signs
System To Aid Recovery 2
ACKNOWLEDGEMENTS
These Guides are derived from the contributions of many health
professionals, primarily the late Professor Ian Falloon.
This Guide Belongs To:____________________________________________
Clinical Therapist Name:
_________________________________________________________________
Contact Number:________________________________________________
Date Received:__________________________________________________
Date Completed:________________________________________________
Key Support Person:______________________________________________
Doctor/Psychiatrist:______________________________________________
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Early Warning Signs
System To Aid Recovery 3
INSTRUCTIONS FOR USE
The System To Aid Recovery (STAR) provided by Mental Health Services is
made up of a series of Guides. These Guides are designed to strengthen
your skills and knowledge and to support your treatment plan. They will be
of most benefit when you participate as fully as you can in the process. The
Guides are designed for you and your family and provide information about
how to manage mental disorders and their impact.
Reflective Questions
Questions designed to help you think about the information and begin
applying it.
Summary
A small review of what was covered in the Guide.
Worksheets
Activities designed to help with your recovery.
Education
Information on mental disorders and strategies for recovery.
Notes
These pages are designed for you to write down any questions and to write
notes that you find interesting or helpful.
The Goal of this Guide
To assist in the development of early warning signs.
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Early Warning Signs
INTRODUCTION
This Guide on Early Warning Signs (EWS) is designed to provide an overview
of how to recognise early warning signs that may lead to a relapse of
mental disorder. It will assist you to develop a plan for action and to work
toward preventing major relapses.
There are three sections in this Guide. The first section
discusses the concept of early warning signs. The second
looks at stress management and its part in preventing
relapse. In section three you can start to develop a plan
for what to do when you see these early warning signs
emerging.
Remember: This Guide will match a form that your Clinical Therapist will
keep on your file that records your Early Warning Signs and
Management Plan. This Guide is designed to support you and your
Clinical Therapist to develop this plan together. The plan you develop
together can be recorded in the plan in the back of this Guide
(Worksheet 9A) which will match the Clinical Therapist’s form.
This Guide is also designed to be used in conjunction with other Guides
related to Medication, Side Effects and Education about your diagnosis.
These Guides may take some time to work through. It is a good idea to take
your time and work with your Clinical Therapist and support people.
Caution: Having to think about times when you are
unwell can be distressing for some people and it is
understandable that you may be reluctant to
undertake this work. However there is significant
research that demonstrates that by developing an
early warning signs management plan, you will be able
to reduce or avoid relapse altogether. It is important to use the supports
available to you while doing this work and to talk about these feelings
rather than bottling them up. It may take a while to identify the early
warning signs and develop the plan.
1. WHAT ARE EARLY WARNING SIGNS?
Early warning signs are the very first changes that occur when a mental
disorder may be returning. They usually happen quite slowly and can be
noticed weeks or in some cases, months before relapse. Early signs typically
include changes in the way you may be thinking, feeling or behaving. Early
warning signs are important because they can help you to recognise signs
of relapse at the earliest possible stage. This allows you to take action early
to prevent relapse taking place or at least, to reduce its severity.
This Guide helps you to learn more about your early warning signs and what
you can do to intervene. The aim is to come up with a management plan
that will identify potential triggers for becoming unwell, what your unique
early warning signs are, what you and your support people will do if early
warning signs emerge.
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Early Warning Signs
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Identifying Your Early Warning Signs
Different mental disorders have different early warning signs and individual
warning signs will usually differ from person to person. Below are a few
examples of early warning sign.
Less enthusiasm for your work, hobbies or friends.
Not caring for your children or partner in the usual way.
Taking less care of your appearance.
Forgetfulness.
Not able to concentrate.
Missing meals.
Having special unusual worries.
Not being able to relax.
Particular problems with sleep.
Becoming less talkative.
Things looking different.
Your feelings seem to have changed.
Feeling tense and irritable.
Various aches or pains.
You will find that you have two or three special signs that you notice before
you have a major relapse. Sometimes your friends, family members,
teachers, workmates, or even your family doctors may notice that
something is not quite right even earlier. These unique changes are what
are called your Early Warning Signs (EWS).
What Do My Early Warning Signs Look Like? In order to start identifying your Early Warning Signs take some time to
answer the following questions. Use the list above as well as changes your
family can identify before you get unwell.
Q. What changes have you noticed before a major relapse?
_____________________________________________________
_____________________________________________________
_____________________________________________________
_____________________________________________________
_____________________________________________________
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Early Warning Signs
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Q. Do these changes follow any particular order? Put them in the order
you think.
_______________________________________________________
_______________________________________________________
________________________________________________________
_______________________________________________________
________________________________________________________
________________________________________________________
Q. How long would the gap be between noticing the first changes and
becoming unwell?
Same Day
Days How Many _______________
Weeks How Many _______________
Unsure
There is no easy way to identify your Early Warning Signs as it can be difficult
to remember everything that was happening around the time you were
unwell. With the help of people that you trust and know you well, you will
be able to build a very good picture of your Early Warning Signs.
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Early Warning Signs
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The changes you experience may come under the following headings:
Changes in your thinking:
Ideas you had.
Beliefs you had.
Thought about others.
Speed or ease of thinking.
Changes in the way you feel:
More or less happy than usual.
More changeable mood.
More easily irritated.
More anxious or fearful.
Feeling more sensitive.
Changes in your behaviour:
Levels of energy.
Change in routines.
Changes in eating and/or sleeping patterns.
Relationships with others (especially family conflict).
Doing unusual things.
Risk taking e.g. driving faster.
Taking less of your medication.
With some conditions your Clinical Therapist may undertake a card sort
exercise or questionnaire with you to help identify these changes.
It is important that these changes are specific and personal to you.
For example; before major relapses Anne had problems with her sleep,
concentration and did not want to go out with her best friends. These signs
were:
Reduction in sleep of 2 hours for 3 nights in a row.
Not being able to read for more than 5 minutes at a time.
Spending more than 4 hours alone in my room for three days
in a row.
Q. Which of your signs might be the clearest? Write down what they are.
Be specific about how long the changes might go on before you get sick.
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
________________________________________________________________________
Changes
in
Thinking
Feeling
Behaviour
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Early Warning Signs
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Developing a Timeline
In looking at timelines there are two methods which can help you in thinking
about Early Warning Signs. The first is to develop a timeline about the order
of events prior to becoming unwell. This first type of timeline is the first one
below (see Reflective Activity 1).
The second kind of timeline which is useful to consider is a timeline which
outlines the history of a disorder over time, often over years. There is an
example of this below as well (see Reflective Activity 2).
You may like to have a look at both of these timelines to help gain some
information and understanding about the events and feelings that have
occurred in the past. This can serve as a guide to possible future planning.
It is valuable to try and get an idea of the order in which these changes
occur so that you can respond at the earliest possible stage. You can refer
back to the reflective question, which asked about your early warning signs
following a particular order.
Reflective Activity 1:
Reflect on the signs you have identified and put them in order from the first
change you notice until the last change you notice.
Example;
Date: Early Warning Sign:
11th May Not able to sleep.
Waking up 2 hours early.
13th May Can’t concentrate, watch TV or read a book.
14th May Staying in bedroom and not going out.
16th May Feel sick and need to see a Doctor, Clinical Therapist
or Psychiatrist.
Your thoughts go here.
Date/Day: Early Warning Signs:
_____________ ________________________________________
_____________ ________________________________________
________________ ___________________________________________________
________________ ___________________________________________________
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Early Warning Signs
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Your Clinical Therapist will help you develop a timeline that links what was
happening at the time. For example being on holidays, studying for exams,
problems at work or relationship problems. This should help you identify your
relapse signature. It will also highlight stressful triggers that you may be able
to mange more effectively to prevent early signs occurring.
Historical Illness Timeline Reflective Activity 2:
Example:
Year:
95 96 97 98 99 00 01 02 03 04
Highs
________ _________________________________________
Lows
Events
Child Vacation Separation New Vacation
Born Job
Do your own timeline:
Year
Highs
_________________________________________________________________________
Lows
Events
Q. What have you learnt from looking at this timeline?
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
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Early Warning Signs
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2. STRESS TRIGGERS
This section relates to Worksheet 9A found in the back of this Guide. As
you fill out these activities and questions you may like to transfer some of the
information over to the worksheet.
For many people, there is often a specific trigger before a relapse. This
trigger might be moving house, sitting exams, having a baby, starting or
changing a job, personal disorder, relationship breakups, redundancy or
death of someone close to you.
Q. Looking at your timeline, what can you identify as possible stress triggers?
________________________________________________________________________
________________________________________________________________________
________________________________________________________________________
________________________________________________________________________
The signs of stress are similar for most people. The first signs may be changes
in sleep pattern or appetite, feeling tense and irritable, having headaches
and backaches or feeling exhausted. Each person will have their own
particular signals that indicate that they are under too much stress and may
need to take things a little easier for a day or two.
If you are experiencing these signs of stress you may find it helpful to discuss
this with your Clinical Therapist and your supportive friends and family.
One strategy to manage stress is to avoid trigger situations altogether
however this may not always be possible and can restrict your lifestyle. A
more helpful approach may be to anticipate possible trigger situations and
stress. This will help you to plan ahead as to how you will deal with them.
Things to do could include:
Problem solving the cause of the stress trigger.
Making sure you stick to routines of eating and sleeping.
Relaxation strategies.
Share you feelings with someone you trust.
Have a break from demands.
Q. What stress reducing strategies do you think would be useful for you?
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
_________________________________________________________________________
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Early Warning Signs
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Preventing Relapse
It is important to realise that these signs are warnings that your body is under
strain, and even if you have no serious health worries at present that
continued stress and strain on your body may lead to major health
problems eventually.
Many mental and physical health problems are made worse by continued
high stress. Heart disease, asthma, stomach ulcers, diabetes, epilepsy and
even cancer can be made worse by stress.
For a person who is prone to having relapses of a mental disorder it is
particularly important to deal with and solve any problems that may have
led to high stress promptly. Otherwise the high stress is likely to lead to the
beginnings of another major relapse.
3. EARLY WARNING SIGNS AND THE IMPORTANCE OF
REGULAR MEDICATION
It used to be thought that almost all relapse of mental disorder occurred
because the people were not taking their medicine regularly, or not in the
correct dose. Although this is one of the common causes of a major
relapse, it is not the only one.
Even when you are taking medicine in the best way, you may still
experience periods of relapse. This may happen as a result of high stress,
from hormone problems or for reasons that are hard to identify.
Most of these relapses begin after early warning signs have been present for
at least a few days. One early warning sign for many people is that they
have difficulty taking medicine regularly. This might be a sign of loss of
concentration or becoming more concerned about worrying thoughts. This
is a very important sign, because it occurs when it is most important to be
getting the maximum benefits from the medicine.
Any reduction in taking your medication (even missing a few tablets) should
be addressed quickly, and efforts made to address this concern to help you
stay well.
Understanding Stress
This Guide has looked at the importance of solving any
problems that have caused a stress reaction. If you
become skilled at solving problems in life, it is possible
to avoid relapse. However, not all major relapses are
caused by stress.
Many may be caused by changes in your brain and
body chemistry that you cannot always clearly
understand. Listed over the page are some other
possible reasons for major relapses.
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Early Warning Signs
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Take a minute to review these:
Taking street drugs.
Not taking medicine as prescribed.
Smoking a lot.
Physical health problems.
General Health
Physical health problems may affect brain and body functioning in many
ways. But they can also add considerably to overall life stress. So it is
important to do your best to keep healthy and to go to your family Doctor
whenever you need their advice or help with health problems.
When your brain chemistry is disturbed, either by continuous high levels of
stress, changes due to taking street drugs, or reducing your medicine, or for
any other reason you may begin to develop the signs of a major relapse.
The early signs of a major relapse may be rather similar to the signs of stress,
but they may have some features that you can recognise as rather
different, and can help you decide whether this is an every day stress
reaction or the beginning of a major relapse.
Developing an Early Warning Signs Plan
A note about the process: As you go through the process of developing an
Early Warnings Signs plan it is important to know that your clinical therapist
has a form called an Early Warning Signs and Management Plan Form
which is designed to have similar information to what you identify in this
Guide.
By going through this Guide together the goal is to have a plan that both
you and the Clinical Therapist are aware of. This plan can also be shared
with your supportive family and friends where appropriate. The Clinical
Therapist puts a copy of the plan on your clinical file.
It is important to have a plan of action clearly worked out before early
warning signs appear. The exact details may depend on your life situation at
that time. For example, if a very stressful event has just occurred, such as a
death in your family. Alternatively, if the early warning signs appear shortly
after your doctor has recommended a lower dosage of medicine, the
response may be to increase the dosage to the earlier level. Sometimes the
doctor will prescribe a small amount of short term medication that you can
use when early signs appear.
High levels of everyday stress are often present when people are out of
work, have little money, or where there are continued problems finding
enough support with family and friends from the community. In such cases
a small increase in stress may overwhelm a person's ability to cope and
lead to a high risk of a major relapse.
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Early Warning Signs
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Your plan can include the things to be done by you, your Clinical Therapist,
your doctor and your family and friends. It is important that everybody
involved in the plan has a copy and knows what to do. You will need to
contact your Clinical Therapist or Doctor without delay. Any early warning
sign is an emergency and you must arrange a meeting without delay.
Now you can make an action plan on your
Early Warning Signs Management Plan. Some
suggestions to consider are listed below. Tick
the ones that you think are helpful.
Whenever I Notice My Early Warning Signs I Will:
Contact my Clinical Therapist or Doctor immediately – (If they are
not available straight away, contact a family member or support
person who is familiar with your plans for early warning signs).
Make sure I am taking my medicine as recommended.
Avoid taking any street drugs.
Check on any stressful things that have happened.
Check on any continuous high stresses in my life as you go through
this process.
You may be able to remember the early warning signs and plans that you
have made today, and even tomorrow. But you may need to remember all
these things many months or years from now. So it is important that you
make several copies of the Early Warning Signs Management Plan
Worksheet 9A and put these in places that will help you and those people
who you have involved in the plan to remember exactly what you would
like them to do.
This Guide provides an Early Warning Signs Management Plan at the end so
that you can develop your early warning signs plan. A good way to start your
plan is to consider the things that you will do when you notice one of your
early warning signs occurring. There are a few suggestions above you might
like to consider. Write a few below.
Families and Early Warning Signs
Your family can be a great help when identifying Early Warning Signs and
developing a plan. There is a section at the back of this Guide for your family
to work through.
….Think
about ways
that you can
remember
your plans in
the future.
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Early Warning Signs
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Plan
Whenever I notice one of my early warning signs I will:
1. __________________________________________________________________
__________________________________________________________________
2. __________________________________________________________________
__________________________________________________________________
3. __________________________________________________________________
_________________________________________________________________
4. __________________________________________________________________
__________________________________________________________________
5. __________________________________________________________________
__________________________________________________________________
Some people who might need to know about the
Early Warning Signs Management Plan are the
people you live with, close friends and family,
neighbours, workmates or fellow students, teachers,
your family doctor, in addition to your Clinical
Therapist and doctor, and most important of all, YOU!
Plans to help you remember may include:
Making copies of the Early Warnings Signs Management Plan and put
them in places where they cannot be missed. Maybe on a notice
board at home, behind the toilet door or on the refrigerator.
Putting the plan in a special envelope for your support people to take
their own copy home and put it in a place where they can access it
easily.
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Early Warning Signs
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You may want other people to put the sheet somewhere special as well.
Write down what you will do to make sure each person will remember the
plan. Write this next to his or her name on the list below.
Remember the Plan:
Person
Name
Plan to help them remember
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Early Warning Signs
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Your Clinical Therapist and your Doctor will check on your Early Warning
Signs Management Plan regularly when they meet with you.
Make Sure That Everybody Who Might Need To
Help Recognise Your Early Warning Signs, Knows
About The Plan And Will Be Able To
Remember It In The Future
Summary:
Reflect on what your early warning signs are and record them
on the plan.
Ask other people in your support network to help you with this
plan and to help you when any early warning signs are noticed.
Be clear about the benefits and how important this plan is!
be clear about the unwanted effects that can occur if early
warning signs are let go.
As soon as you start to miss doses of medication find the
problem and sort it out.
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Early Warning Signs
Worksheet 9A –
EARLY WARNING SIGNS AND MANAGEMENT PLAN
FOR THE CONSUMER:
What are your stress triggers and sense the time it takes to
develop Early Warning Signs?
What are the coping strategies I can use to manage the stress
triggers?
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Early Warning Signs
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My Early Warning Signs that my disorder might be returning are:
1. _____________________________________________________
2. _____________________________________________________
3. _____________________________________________________
4. _____________________________________________________
5. _____________________________________________________
What are the coping strategies I can use to manage the Early
Warning Signs?
My support people are:
1. ___________________________Ph: _______________
2. ___________________________Ph: ________________
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Early Warning Signs
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FOR THE FAMILY
Planning a Response to Early Warning Signs
As a family member your involvement and support is very valuable in
understanding and developing a response to Early Warning Signs. You may
like to take some time to work with your family member and their Clinical
Therapist to develop a support and action plan.
What are the stress triggers you are aware of for your family
member?
What are the ways you can help identify the stress triggers for
your family member?
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Early Warning Signs
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What will you do when you notice Early Warning Signs
appearing in your family member?
What are the ways you can assist your family member in
avoiding relapse?
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NOTES: _____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
_____________________________________________________________
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Early Warning Signs
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We Value Your Feedback Date: _____/______/_____
This evaluation is designed to provide feedback regarding the System to
Aid Recovery (STAR). Please take a moment to fill in this form and return it to
either your Clinical Therapist or to the reception desk. You may like to post it
in by sending it to South West Healthcare Mental Health Services, Koroit
Street, Warrnambool, Vic 3280.
1. Did you complete most of the activities in this Guide with your
Clinical Therapist or did you complete them in your own time?
Clinical Therapist Completed in own time
Did not complete most of the activities
2. Were there any problems with this material?
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3. What were they?
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4. What recommendations do you have for improvements?
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If 1 is the worst it could possibly be and 5 is the best, rate the following
statements about this STAR Guide and associated activities
Was the Guide…. 1 2 3 4 5
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Were the activities in the Guide… 1 2 3 4 5
Useful
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Did they work