The Family Role in RehabilitationPSRT 4271, Summer 2012Department of Psychiatric Rehabilitation, School of Health Related Professions, University of Medicine and Dentistry of New JerseyT.H. Pyle, Instructor

WHEN THE ILLNESS COMES…

The impact on the family is like…

To the family, it feels like…(“Hurricane Destruction”, NatGeo, 0:40)

http://video.nationalgeographic.com/video/environment/environment-natural-disasters/hurricanes/hurricane-montage/

And often like…(“Storm Surge”, NatGeo, 1:16)

http://video.nationalgeographic.com/video/environment/environment-natural-disasters/hurricanes/storm-surge/

Because sometimes it’s like…(Bellevue Inside Out Trailer 0:17)

http://www.youtube.com/watch?v=Ojd_fsHbGl8

And maybe more often like…(Smiley, Out of the Shadows, 2:41)

http://www.youtube.com/watch?v=fCWGdUFyT8Q

Thus, families need help like…(Bridgeway, 3:22)

http://www.youtube.com/watch?v=VCJWp0ZkmKk

So their loved ones can live like…(NAMI Los Angeles, 4:20)

http://www.youtube.com/watch?v=Q7DHfolWaSQ

So families can then feel like…(Vermont Public TV, 2009, 34 secs.) (“One Episode Away From Crisis”)

http://www.youtube.com/watch?v=p109LTHCPrw

And be empowered like…(Bring Change 2 Mind, 2011)

http://www.youtube.com/watch?v=Fwu5F-T3814

And they can be together like…

http://www.youtube.com/watch?v=WUaXFlANojQ

Evolving Family Role in Care(Park et al., 2006)

Course Objectives

1. Empathize with family’s efforts to cope with disability.

2. Recognize what families want and need.

3. Learn how to inform and support family members.

4. Help families help their loved ones and themselves.

Course Particulars• Part of UMDNJ/Kean University dual major course• Upper level elective course• Summer, 2013 offering: 11 weeks• Classes: 1 x per week (3 hours)• “Web enhanced” on UMDNJ’s Moodle Platform• Mid-term and final exams• Projects: • Psychoeducation observation• Family interview

• Expert guest speakers

Course Themes• Severe Disability: A Family’s Dreadful New Reality• History of The System and Its Perceptions• What Is Family? A Conceptual Overview• Crisis Moments and Their Aftermaths• Confronting Grief, Burden, Stigma, Violence• Managing Expressed Emotion and Stressors• Cultural Differences of Impacts and Responses• Evidence-based Practices• Family Education• Family Psychoeducation• Family Consultation• Family Assertive Community Treatment

Questions, Comments…• Instructor• Tom Pyle, e. pyleth@umdnj.edu, h: 609-924-7895, c. 609-658-

2008

What is… Psych Rehab?

What is… Psych Rehab?

• Comprehensive services…

• …to develop skills and supports…

• …to live, love, learn, and work …

• …in the community as, how, and where desired…

• …with least professional support…

• …so to be in, and get to, recovery.

Muhlbauer’s 3 Processes

20

• Cycles

• Spirals

• Sequences

Muhlbauer’s Six Phases

21

Warnings Storm Drift Realign-

ment Mastery Growth

1. Warnings

22

• The “awareness spiral”Recognition

Concern Alarm Help seeking Negation

2. Storm

23

Exacerbation

Confrontation

Distress

Suppression

Depletion

3. Drift

24

• Instability, Recurrence• Anger, Grief, Loss• Questing• Depletion ($)• Dissatisfaction• Stigmatization

4. Realignment

25

• Regaining “control”• Managing feelings• Changing perceptions, expectations• Managing symptoms• React Act

5. Mastery

26

• Develop expertise• Increase supports• Manage better• Share with others• Maintain control• Navigate The System

http://www.youtube.com/watch?v=zzG4K2m_j5U

6. Growth

27

• Empowerment• Advocacy• Transcendence

True Life: I Have Schizophrenia

http://www.mtv.com/videos/true-life-i-have-schizophrenia/1586145/playlist.jhtml