the south cornwall branch of the ms society october 2013 magazine "the lifeboat"
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This is the October 2013 edition of "The Lifeboat" the monthly magazine from the South Cornwall Branch of The MS Society of Great Britain. Inside - Benefit test tells people with progressive conditions they'll recover. One of Cornwall's Health Care Professional's MS Nurse, Julie Collingbourne nominated for MS Professional of the year. From Nikki Jenkin, Mike May, The power of the internet and who reads our Lifeboat magazine.TRANSCRIPT
South Cornwall Branch
Monthly Magazine
The Lifeboat
October 2013
Picture by kind permission from Lola Lamour
1
Page 11 Recipe from Judy Reed
A message from Karen Moore Page 12 Jasper finds the facts!
Jasper, the magazine, Mike
George and the budgie cage. Page 13 My “Little Mon-e-me” FromFromFromFrom
Susan CreeseSusan CreeseSusan CreeseSusan Creese
MS Nurse, Julie Collingbourne
nominated for MS Professional
of the year Page 14 From Nikki Jenkin
Mike May, The power of the
internet and who reads our
Lifeboat magazine Page 15 Megan’s page Page 16 Youth group Page 17 Young MS and Friends Page 18 Events Page 19 Information page
Inside the Lifeboat
this month
Front cover: This months front cover is of Lola Lamour
Lola is a singer & entertainer that specialises in music
from the 1920's to the1950's. From Gershwin to
Porter, Dance Band melodies to the magic of the
Movies. Lola is well known for many shows on the
1940's re-enactment scene. as we are holding our
1940’s night I thought it would be appropriate to
feature Lola. The LamoursThe LamoursThe LamoursThe Lamours
The Lamours are a fabulous 13 piece band featuring
Lola Lamour as lead vocalist performing their own
unique vintage style of music and putting their own
stamp on swing, soul, tango, blues, rockabilly and
much more with a repertoire ranging from the 30s to
modern day. Unfortunately Lola and her band will not be at our
1940’s night but Mike George might do a turn!! Now
that’s a frightening thought. “See you there”.
MS News
Page 3 Benefit test tells people with
progressive conditions they’ll
‘recover’
Top 10 MS research priorities
identified
Page 4 New daily tablet licensed for
people with relapsing remitting MS
Page 5 19th October
Page 6 Fire walk
Page 7 Read-A-Thon news.
Reported on Sky News: Multiple
Sclerosis: MS Treatment
'Breakthrough'
Page 8 PIP reassessments delayed
Page 9/10 Quiz page
2
Chairman’s Report
Editors Note
Hello everyone,
It looks like the summer
is fading out now, it will
soon be Christmas so do
you have your place
booked for the Christmas
lunch? There are one or two new faces on
the committee and they are very welcome,
constructive replacements and additions
are important to the future of our branch. I
will have more information about them in
next months magazine.
Our 40’s night is coming up fast and we
need to establish numbers if the event is to
take place so please book your tickets by
the 20th October, if there is insufficient
numbers by then we will have to cancel or
perhaps scale down the venue.
I must thank those who responded to the
Physiotherapy clinic project, your replies
have been collated and will be discussed at
the next committee meeting. I will report
back in Novembers Lifeboat.
Any takers for the branch Read-A-Thon?
I have reported the schools project on page
7 but it would be good to run a branch
Read-A-Thon. I am sure that many of you
read at home, so why not get sponsored
for it and raise funds for your branch?
Social events: Social events: Social events: Social events:
We are still trying to arrange social events in
different parts of our area but as you can
imagine finding venues and making
arrangements takes time, but we are still
working on it.
Young MS and Friends Group:Young MS and Friends Group:Young MS and Friends Group:Young MS and Friends Group:
We need to support Lauren and Alex with
the Young MS and Friends group, if you
know of anyone who would like to help or
get involved in the group then contact us
and we will put you in touch.
Invitation page 5:Invitation page 5:Invitation page 5:Invitation page 5:
Please read the invitation on page 5, this
will be an informative afternoon and you are
all invited. We will be giving a ten minute
presentation on South Cornwall so get
there if you can.
MalcolmMalcolmMalcolmMalcolm
Hi everyone I
must say I have
noticed Jasper is
getting cheeky
lately and I like
his humour. I will remind everyone about
our theme night on the 2nd of November
and let's make it a night to remember. Our
car booting team has nearly given a
thousand pounds to our branch and I
personally would like to thank Amanda and
Richard for giving out leaflets and flying the
flag around Cornwall.
Our neighbour Janet Mogie felt she should
do something to help
and you can see Lin and myself with Janet
down at Frogpool car boot on page 11. It
was a lovely day and nearly a hundred
pounds was raised. If you have anything for
us to sell please give me ring and I can if
you want collect it.
To end I have good news that our web
page editor Mike May has now got
someone to help him. Max has joined our
society and together I am sure we will soon
have a fantastic Web Page which I feel is
so important. Now just sit back and enjoy
Malcolm’s fantastic magazine which I feel is
getting better and better. . MikeMikeMikeMike
3
News from the MS National Centre
Benefit test
tells people
with
progressive
conditions
they’ll
‘recover’
Almost half of people with a progressive
condition who put in a claim for
Employment Support Allowance (ESA) have
been told they will ‘recover’ enough to look
for work in the future. 45% of people with the progressive
conditions MS, cystic fibrosis, Parkinson’s
and rheumatoid arthritis who put in an ESA
claim in the last five years were placed in
the Work Related Activity Group (WRAG) –
meaning assessors believe they’ll be able
to return to work at some point.
Seven out of 10 new claimants (70 per
cent) with these conditions have also been
reassessed two or more times on the same
claim, causing unnecessary stress and
anxiety for people who are already in poor
health.
Charities call for changeCharities call for changeCharities call for changeCharities call for change
The MS Society is today one of four
charities calling for the Government to
rethink the flawed assessment for the
benefit, known as the Work Capability
Assessment.
Claire Nurden, Senior Policy and
Campaigns Officer at the MS Society, says:
“The benefits system was set up to support
the most vulnerable in our society –
but the current system is failing them.
“It is vital that the assessments for disability
benefits properly take into account
professional evidence about people’s
conditions. If assessments conclude that a
person will ‘get better’, then the evidence
should be shown to prove it."
A dossier has been sent to Dr Paul
Litchfield, who is carrying out an
independent review of the ESA assessment
process. You can download the dossier
from the MS website.
The MS Society, in partnership with the
James Lind Alliance, has identified the top
10 research questions that matter most to
people affected by MS and healthcare
professionals.
After a year of extensively canvassing the
views of a wide range of people, over a
thousand questions were narrowed down
to the top 10:
1. Which treatments are effective to slow,
stop or reverse the accumulation of
disability associated with MS?
2. How can MS be prevented?
Which treatments are effective for
fatigue in people with MS?
4. How can people with MS be best
supported to self-manage their
condition?
5. Does early treatment with
aggressive disease modifying drugs
improve the prognosis for people with
MS?
6. Is Vitamin D supplementation an
effective disease modifying treatment
for MS?
7. Which treatments are effective to
improve mobility for people with MS?
8. Which treatments are effective to
improve cognition in people with MS?
9. Which treatments are effective for pain
in people with MS?
10. Is physiotherapy effective in reducing
disability in people with MS?
Top 10 MS research priorities identified
4
The manufacturer of Aubagio (also known
as teriflunomide),
Finding the answersFinding the answersFinding the answersFinding the answers
We are now working to ensure these
priorities are addressed. As it stands, 75
per cent of our current research reflects
priorities in the top 10, which is a great
start. For example we are funding MS-
SMART, a ground-breakingclinical
trial investigating whether three drugs can
alter progression in people with secondary
progressive MS.
These priorities will complement our
existing research strategy. We will continue
to support research into the causes of MS,
and treatments and care for people
affected by MS.
Previous partnerships using this process in
other conditions have a track record of
turning priorities into research projects by
securing other funding. This is encouraging
news and we will work to make this happen
with the MS top 10.
Why did we do this?Why did we do this?Why did we do this?Why did we do this?
Since 1956, we have invested over £144
million of today’s money in research. This
has advanced our understanding of MS,
improved diagnosis and supported the
development of treatments such as Botox
for bladder problems and alemtuzumab,
which may soon be licensed for people
with relapsing-remitting MS.
Until we find a cure, we’ll continue to fund
world-class research to develop the
treatments and services that people with
MS need.
But the field of MS research is vast, as is
the number of projects that could be
funded, and we need to support research
that matters most.
Thank you to everybody who contributed to
the process – this wouldn’t have happened
without you.
New daily tablet licensed for people with
relapsing remitting MS
has received marketing authorisation in
Europe for a 14mg once a dayoral
treatment for people with relapsing
remitting MS.
Aubagio was shown to be safe and
effective in two phase 3 (late-stage) clinical
trials in people with relapsing remitting MS.
The trials showed that 14mg once-daily
tablets resulted in around a 30 per cent
reduction in annualrelapse rate.
14mg of Aubagio also reduced lesion
volume - as measured by an MRI brain
scan - by 67-80 per cent, and reduced
sustained disability progression over a 12
week period by around 30 per cent.
What happens now?What happens now?What happens now?What happens now?
This means that Aubagio now has a licence
in Europe. We now await Sanofi (the
manufacturer) to launch the drug in the UK,
so that it can be available for neurologists
to prescribe.
Before the drug can be prescribed on the
NHS, the National Institute for Health and
Clinical Excellence (NICE) and the Scottish
Medicines Consortium (SMC) will need to
undertake appraisals to judge its
cost-effectiveness.
How does Aubagio work?How does Aubagio work?How does Aubagio work?How does Aubagio work?
Aubagio affects the immune system by
blocking the action of a specific set of
immune cells called T-cells, which are
thought to be responsible for causing
damage to the brain and spinal cord in
people with MS. Other cells of the immune
system are thought to be left intact,
affording people with MS some immune
protection against infections.
Nick Rijke, interim Director of Policy and
Research at the MS Society said:
“We are delighted that another oral tablet
has been licensed for people with relapsing
remitting MS. Once the drug has been
launched in the UK, we will do everything
we can to support people with MS to get
access to it.”
5
6 This is not a South Cornwall Branch event
Researchers say
they have found
the "holy grail" in
their quest to
prevent the
debilitating effects of MS.
The treatment stops cells attacking a
protective layer called myelin.
Read-A-Thon news
7
As of 2014 the Read-A-Thon will take on a
new look, although I have yet to finish the
documentation and associated DVD I will
make sure that it is completed on time.
I have learned many lessons during the first
round and I must thank all the schools that
took part, they have been amazing and
some instrumental in helping to improve the
project. I am talking to some schools who are
willing to complete the Read-A-Thon again
this year with a view to piloting some new
ideas that will encourage more
participation. Lanlivery and Darite schools
start again in November.
Changes to Read-A-Thon approach:
Apart from documentation changes the
following incentives are fair and more
appropriate to differing age groups.
1. Have reasonable incentive awards for
books read, irrespective of money raised.
This can be in the form of gift voucher
chosen by the student, this does not
exclude any student of any age as it is
based on the books read and not the
amount of money they raise.
2. Have a selection of age related Read-A-
Thon indicators that students wear to
raise awareness that they are completing
the Read-A-Thon
3. Offer the Read-A-Thon to siblings,
friends or parents: By offering the Read-
A-Thon to families it encourages
participation and raises awareness over
a wider area with the added advantage
that students can work in teams or
groups
4. Have a numbered registration form: At
the end of the Read-A-Thon those who
have completed have there registration
number put into a draw and the winner
gets a prize that will include the whole
family,
Reported on Sky News: Multiple
Sclerosis: MS Treatment 'Breakthrough'
i.e. go cart racing, skittle ally, leisure
weekends, Sport centre days,
attractions and Evening meals.
5. Competitions such as painting, writing or
the arts that run in line with the Read-A-
Thon, with prizes such as gift vouchers
of their choice.
6. The Oritse prize given for the most hours
of reading.
7. Promote the school through MS
channels which would included links to
the school websites
8. Awards for teachers for the most books
read in class. These could be in the form
of certificates or trophies.
These are just a few
ideas that I am
discussing with schools
at the moment, much of
course depends on the
student reaction and
money raised as to the
prize value but the
incentives are there to
enhance participation
and most importantly
awareness of MS in
schools.
I would also encourage people of all ages
to participate outside of the school
environment. What an easy way for
members to raise funds for their branch.
Just contact me for a Read-a-Thon pack or
if you require more information.
Malcolm GMalcolm GMalcolm GMalcolm G
8
"In the phase two trial we want to treat
patients as early as possible in the disease
before they have paralysis due to myelin
damage," said Prof Miller.
"Once the myelin is destroyed, it's hard to
repair."
Dr Susan Kohlhass, head of biomedical
research at the MS SocietyMS SocietyMS SocietyMS Society, said treatments
that prevent progression of the condition
are "urgently needed".
"Being able to specifically stop the immune
system attacking myelin but still keeping it
fully functional poses an exciting potential
therapy for people with MS," she said.
"More research is now needed and we
eagerly await the results of any future larger
clinical trials of this therapy."
PIP reassessments delayed
The DWP has announced it will delay, until
28 October 2013, the roll out of face to
face benefits assessments for people
moving from DLA to Personal
Independence Payments.
The test, which will eventually reassess
everyone of working age currently receiving
DLA and in need of PIP, has been pushed
back to allow the government more time to
respond to the recent consultation around
the mobility criteria of the benefit.
The assessment was originally due to start
at the beginning of October, and would
consider claimants on DLA who:
• Are approaching age 16, or
• Reported a change in their health
condition or disability, or
• Whose fixed term award was due to
expire soon
If over the next few weeks the DWP
decides changes are needed to the PIP
assessment then they’ll again delay the
start of the reassessments. The MS
Society is calling for an end to the 20
metre rule for the enhanced rate mobility
component of the benefit.
By Thomas Moore, Health Correspondent
Doctors hope a new experimental
treatment could halt the progression of
multiple sclerosis.
For the first time, researchers have
reprogrammed the immune systems of MS
patients to stop cells attacking the
protective layer around nerves in the spinal
cord.
The destruction of the insulating sheath
called myelin prevents normal transmission
of nerve signals, triggering symptoms of the
condition such as limb paralysis.
The clinical trial showed that patients'
immune systems learned to recognise
myelin as harmless. Further studies are
expected to start shortly to confirm whether
that in turn prevents relapses of the
condition.
Northwestern University in Chicago, which
took part in the research, hailed the study
as a "big breakthrough".
Researchers, working with scientists in
Switzerland and Germany, took billions of
white blood cells from nine patients and
processed them to carry tiny fragments of
myelin.
The cells were then re-injected, training the
immune system to tolerate myelin.
Lead researcher Professor Stephen Miller
said results showed the treatment stopped
the body turning against itself, without the
side effects of some other treatments that
suppress the entire immune system, leaving
patients vulnerable to infections and cancer.
"Our approach leaves the function of the
normal immune system intact. That's the
holy grail," he said.
Results published in the journal ScienceScienceScienceScience
show that reactivity to myelin fell by
between 50% and 75%.
Swiss authorities have already approved
the next stage of clinical trials to confirm
whether the treatment prevents progression
of the condition. Experiments on mice
show that it does.
9
October quizOctober quizOctober quizOctober quiz September Quiz answersSeptember Quiz answersSeptember Quiz answersSeptember Quiz answers
Target
£2,000.00
Actual
to date £950
Money Boxes
9
What’s this mystery object?
1 Pennsylvania
2 Greenland
3 Amazon
4 Pacific
5 8,000 miles
6 Liverpool, Glasgow, London and
Newcastle
7 Madrid
8 Czech Republic
Unscramble the letters to reveal boys
names
1 ILHMACE
2 EJIMA
3 YCRPE
4 LUAMCL
5 BTREOR
6 LIIMAWL
7 SALCRHE
8 RGOANM
9 YLLEES
10 AANNTH
Happy birthday to:
1st1st1st1st Simon Chevill
1st 1st 1st 1st Janet Jelbert
4th4th4th4th Julie Allen
4th4th4th4th John Froggatt
8th8th8th8th Brian Walker
9th9th9th9th Joyce Tyler
26th26th26th26th Mary Smith
Poetry CornerPoetry CornerPoetry CornerPoetry Corner
Cut out the pieces of jigsaw on these two
pages and put together a picture
10
September mystery object
Did you spot the 14 differences?
Can you spot the twelve differences?
11
GLUTEN FREE
COURGETTE & LEMON CAKE
250gm soft dark brown sugar
3 eggs
250ml vegetable oil
375gm gluten free self raising flour
1 teasp gluten free baking powder
1 teasp mixed spice
375gm coarsely grated courgette (end cut
off, peeled or unpeeled)
250gm mixed dried fruit
zest & juice of 1 lemon.
Whisk the eggs and sugar together until
thick and creamy, then gradually add the oil
while still whisking. Fold in the flour, baking
powder and spice, then carefully stir in the
courgette, dried fruit and zest and lemon
juice.
Pour into a lined 20cm square deep cake
tin, and bake at 140c(fan) for 1 hour and 45
-55 mins.
Thanks Judy, a good one for a cake break!
I thought that people might be interested
(as there is a 1940's night coming up) that
a new retro shop has just opened in Truro
and is full of 1940 clothes and is not
expensive. It is called 'Tootsie and Tiger'
and is opposite 'Fodders Restaurant' in the
walk through at the side of the market in
Truro. They have got some really good retro
clothes and don't charge a fortune. They
also will be taking clothes in to sell from the
1st of March. I thought that some of the
ladies would like to know. They have also
got gents
Karen and Keith
A message from Karen Moore
Recipe from Judy Reed Mike Lin and Janet at the Frogpool car
boot sale
A study launched this week by the English
Federation of Disability Sport (EFDS) has
found six in 10 disabled people (60%) in
England are not taking part in sport
because they don’t know what’s available
to them, or don’t have the opportunity.
However, 70% of people say they want to
do more physical activity.
Lottery of access: Lottery of access: Lottery of access: Lottery of access: The figures support
findings from the MS Society’s ‘Stop the
MS Lottery’campaign, launched earlier this
year, which found people with MS struggled
to access support to remain physically
active. The MS Society’s survey found
professionals were key; people who saw a
physiotherapist were twice as likely to have
their need to remain physically active met,
like attending exercise classes, than those
who didn’t see anyone.
Doing exercise with MS: Doing exercise with MS: Doing exercise with MS: Doing exercise with MS: There’s loads of
information on our website on exercising
with MS, including afree exercise DVD
fronted by Sally Gunnell. You can also
contact our helpline for more guidance and
information on exercising with MS: 0808
800 8000.
Disabled people struggle to participate in
sport
Well done you car booter’s, what a dazzling
display, keep up the good work!
12
You may have heard that the magazine fits
nicely in the bottom of your budgie cage,
indicating that this is the best use for it!
Well, this witty comment came from your
chairman Mike George who, I think, likes
the magazine. I Know that some may agree
with him, it does fit nicely into a budgie
cage.
In a previous life he was obviously a budgie
that loved to read.
Fortunately, I have been able to trace the
history and indeed managed to obtain a
photo. The likeness is
incredible and
it’s obvious
where he gets
his chirpiness
from. As an ex
magistrate he
is used to
being up in
front of the
beak!
The only comment I would make is that if
you use the magazine at the bottom of your
budgie cage please don’t have my picture
facing up.
DONT TALK TO MY DONT TALK TO MY DONT TALK TO MY DONT TALK TO MY
PARROT!PARROT!PARROT!PARROT!
Wanda’s dishwasher quit
working so she called a
repairman. Since she
had to go to work the
next day, she told the
repairman, ‘I’ll leave the
key under the mat. Fix the dishwasher,
leave the bill on the counter, and I’ll mail
you a cheque.’ ‘Oh, by the way don’t worry
about my bulldog Spike. He won’t bother
you.
But, whatever you do, do NOT, under ANY
circumstances, talk to my parrot!’
‘I REPEAT, DO NOT TALK TO MY
PARROT!!!’ When the repairman arrived at
Wanda’s apartment the following day, he
discovered the biggest, meanest looking
bulldog he had ever seen.
Just as she had said, the dog just lay there
on the carpet watching the repairman go
about his work. The parrot, however, drove
him nuts the whole time with his incessant
yelling, cursing and name calling. Finally
the repairman couldn’t contain himself any
longer and yelled:
‘Shut up, you stupid, ugly bird!’ To which
the parrot replied, ‘Get him, Spike!’
So, you see, men just don’t listen !
Jasper finds the facts!
Jasper, the magazine, Mike
George and the budgie cage.
JasperJasperJasperJasper
Computer awareness day 16th NovemberComputer awareness day 16th NovemberComputer awareness day 16th NovemberComputer awareness day 16th November Want to know more about your computer or how to use a
specific programme, maybe you want a problem solved. Come to the computer awareness day at Mike Georges on
the 16th November 10.00am til 2.00pm
Phone Mike George with your requirements:
01872 862031
Spike and Parrot
13 5 5 13
Thought for October
It’s been quite a month – I’ve
been keeping the medical
profession busy, having two
cataracts removed and wow,
what a difference that has made!
If anybody reading this is awaiting a
cataractomy or whatever ‘they’ may call it,
be prepared for a miracle. Not only are
things looking clearer now but I hadn’t
realised how different things were beginning
to look, before I had it done. When we
decorated our lounge a few years ago we
chose wild primrose emulsion, which was a
lovely pale yellow. Recently though, I told
my husband we needed to choose
something paler as it had darkened with
age. The day I came home after the second
eye had been operated on, I took one look
at the walls and realised it was my eyes
that had been the trouble, and not the paint
at all. Result? One happy husband who
doesn’t have to start painting – YET! Apart
from my two eye ops I had my yearly visit to
Dr Mate at Marie Therese House and a not
too painful tooth extraction. It’s a wonderful
thing we have, the NHS, isn’t it?
So, this month, why don’t you join me in
offering a prayer for all the medical people
we come into contact with day by day and
week by week. Until next time, may your
God watch over them and you. Ros
My “Little Mon-e-me” From Susan CreeseFrom Susan CreeseFrom Susan CreeseFrom Susan Creese
I look out from my window
And see nothing but smog and white mist
Blocking the ocean sea, leaving nothing left
to view
Except a historical Pilchard ruin and several
homestead roof top tiles
Pink cerise and white dog roses on an
overgrown green leafed hedge row
Grappling with the wind -
A green grass space, where dog lovers
roam with their pooches’
And they leave dark brown patches on the
landscape
A lamp extravaganza is protruding and
intruding into nanny’s front room
Such an ugly sight
How this lazy hazy Sunday,
Keeps her writing and fighting, wanting to
be free
From Old Age Pension Slavery
And a stairway to heaven some may say
But best of all sleeping, eating, resting and
being with my family!
How I hope you have many happy fun filled
memories of you and me
My little ‘Mon-e-me’!
© Susan Creese 2012
MS Nurse, Julie Collingbourne nominated
for MS Professional of the year
Congratulations to Julie Collingbourne for
being one of the nominations for MS
Professional of the year.
The MS Professional of the year award
recognises an individual, or team, that has
consistently gone above and beyond the
call of duty for people affected by MS.
This year there were 250 nominations
across ten award categories; each one
highlighting the remarkable dedication of
groups and individuals who do so much to
improve the lives of people living with MS.
Unfortunately Julie was not the chosen
nominee but what an achievement to be
nominated for such a prodigious award.
Christmas LunchChristmas LunchChristmas LunchChristmas Lunch
Christmas lunch
2013 is on the 7th
December at the
Membly Hall Hotel
Falmouth. Book
your places with
Chris
Tel: 01209 315386
Free for people with
MS
£5.00 for carers
£13.00 for guests
14 6 14
MEMO; To all non-pet owners who visit and
like to complain about our pets:
1 They live here. You don't.
2 If you don't want their hair on your
clothes, stay off the furniture ( that's why its
called fur-niture)
3 I like my pets a lot better than I like most
people.
4 To you, they are animals. To me, they are
adopted sons/daughters who are short,
hairy, walk on all fours and don't speak
clearly.
REMEMBER;
Dogs and cats are better that kids because
they:
1 Eat less
2 Don't ask for money all the time
3 Are easier to train
4 Normally come when called
5 Never ask to drive the car
6 Don't hang out with drug-using people
7 Don't smoke or drink
8 Don't want to wear your clothes
9 Don't have to buy the latest fashions
and 10 If they get pregnant you can sell
their children.....
Well done to those who got it
right, it was Malcolm G during a
Cabaret Fire ‘n’ Ice held for MS in
around the year 2001
What a night, we had 212 people
attending, why can’t we get that
many to come out now? Nikki
From Nikki Jenkin
Of course I new it all
the time, I recognised
the podgy front. He
must have been Elvis
during his bad days!
It was a good night
though, it raised
nearly £1000.00, do
you think we could get
over 200 people at another one?
Call me on my rabbit phone
Mike May, The power of the internet and
who reads our Lifeboat magazine
Mike MayMike MayMike MayMike May
Mike May is our Website
manager and very much
an unsung hero, for many
months now there have
been enormous
problems with the South
Cornwall Branch website, mainly due to the
fact that changes have taken place in
London who control the main MS website
through which branch websites operate. Mike has completed some great work for
South Cornwall with some exceptional
displays for our Magazine, Read-A-Thon
and Branch Activities, he is currently in
communication with London to get his
work loaded onto our website.
Through Mikes initiative we have
information currently available to be viewed
and read on the internet with regard to our
Magazine, the Read-A-Thon and the
schools Roll of Honour, in fact it is safe to
say that our magazine and documentation
is being read in the following countries:
India, North America, Canada, Spain,
United States, Egypt and Alaska.
South Cornwall Branch has gone
international!
If you want to see Mikes work google
“issuu” on the issuu page search “ms
readathon” and the South Cornwall
documents will appear, select a document
and turn the pages at will. DVD’s : DVD’s : DVD’s : DVD’s : I have spent many hours working
with Mike on the school awareness DVD,
he is our camera man and video splicer,
cutter/editor, together we have been
putting together the video takes from our
filming at Cape Cornwall School.
Thanks Mike for you efforts and thanks to
Ellen for letting you spend the time.
MalcolmMalcolmMalcolmMalcolm Mike and Ellen May
15
Megan’s pageMegan’s pageMegan’s pageMegan’s page
15
JasperJasperJasperJasper
7. Then you need to grease the tin. To do
this you need to grease and line the tin with
the greaseproof paper and margarine
8. Next you can pour in the mixture. Once
you’ve done that you can make it all even
and if you like you can bang the bottom on
the worktop to release any air bubbles.
9. Next put the oven on to 180 degrees
and wait to heat up, when it’s done that put
in the cake and leave for about 20-25 mins
to bake
10. Once the cake has finished baking you
can take it out of the tin and wait for it to
cool.
11. Next you need to make your icing you
can make it however you like but it needs
to be of a thick consistency.
12. Once the cake cools you can slice of
the top making the lid and the chest.
13. Next you need to ice the chest part of
the cake completely. Followed by the lid.
14. Then you need to cut the straws in to 4
pieces. Placing one in each corner. Making
the ones at the front slightly taller to keep
the chest open. You could put sweets on
the chest part of the cake to look like
treasure.
15. After this lift the lid onto the straws
giving the chest a lid and then decorate the
top of the cake as you wish.
Wooden spoon
A sieve
Scales
Icing
Sweets of choice
Straws
How to make at treasure chest cake!!! You will need:
A loaf tin
3/ 4 eggs
Flour
Sugar
Margarine/butter
A mixing bowl
Method:
1. Weigh the desired number of eggs on
the scales. They should weigh around 8oz.
2. Next weigh the flour to the same weight
as all of the eggs together. And sieve into
the mixing bowl.
3. Then weigh out the sugar again to the
weight of the eggs. After add these to the
mixing bowl.
4. After this weigh the margarine/butter to
the same weight again. You may want to
break this into smaller pieces with your
hands or a knife to make it easier to mix
together.
5. Next you need to crack the eggs into the
bowl. If you want you could break them into
a bowl first to make sure you don’t get any
shell in with the mixture.
6. Once you’ve done that, you can mix it all
together, making sure everything gets
mixed in including the flour on the bottom
and sides.
From what I hear Megan
makes a pretty good cake
and this recipe should be
no exception.
I am in fact expecting a
cake from Megan so I can
report back in future
magazines on the quality,
texture, taste and look. I am of course an
expert due to my tea and cake hobby. Just a bit of gossip, I heard
that Megan has been made
a school ambassador.
16 16
South Cornwall branch MS Youth Group West
“Making Sense”
I would like to thank our
branch for our day out at BF
Adventure we had a great
day.
I liked kayaking best I
touched a wall of slime
kayaking is harder than it
looks. We also did canoeing, that’s easy
but we had fun.
We jumped off a platform
and swam back to the
other side, we wore our
wetsuits to do all this.
We ate our packed lunch
in the club house, Malcolm picked us up at
3 o clock. He then took us to Mc Donalds.
It was great.
Malcolm then took us all home. We
dropped Jamie & Lauren in St. Buryan then
took Megan & me back to St. Just.
Thank you Malcolm
From Ben You are welcome Ben, I had a great time You are welcome Ben, I had a great time You are welcome Ben, I had a great time You are welcome Ben, I had a great time
too, we appreciate the work of the youth too, we appreciate the work of the youth too, we appreciate the work of the youth too, we appreciate the work of the youth
group and the awareness you all provide as group and the awareness you all provide as group and the awareness you all provide as group and the awareness you all provide as
well as the funds raised.well as the funds raised.well as the funds raised.well as the funds raised.
MMMMaaaallllccccoooollllmmmm
The BF Adventure
I’d like to thank our branch
for funding the trip to BF
adventures.
The first activity we did was
going to an assault course and
completing team challenges to
complete the course.
After this we had a break and then went to
do kayaking/canoeing. It was really fun and
afterwards we got to jump of the pontoon
into the quarry.
Next we had lunch followed by going to the
adventure quarry where again we had to
work as a team to cross the water using
just three planks. Then we went to do
archery where we had small competition
then it was time to go home. I had a really
good day and recommend going there to
anyone.
Megan
As you can see I was there
to look after these young
people on their adventure,
we have yet to hear from
Lauren and Jamie who are
very busy with school work
at the moment, so hopefully
we will get a report for
November.
BF Adventure is an outdoor activity centre
(open to the public) and charity based near
Falmouth and Penryn.
Their Mission: “Inspiring, challenging and
motivating people, especially young people,
to develop their life skills to bring about
positive change” Every year BF Adventure,
helps hundreds of disadvantaged and
disabled children and adults in Cornwall to
believe in themselves and gain the skills
and accreditations to succeed at school or
to find employment.
On 60 acres of land including three former
granite quarries, they also offer exciting
adventure activities, corporate team
building days, private parties, school's &
clubs and their very popular holiday
adventure days for children aged 7+ years.
17
MS Society blog for Young MS and Friends MS Society blog for Young MS and Friends MS Society blog for Young MS and Friends MS Society blog for Young MS and Friends
GroupGroupGroupGroup
There are quite a number of people within
the UK that live with MS, and we are
trying to find those people that are younger
and have MS. Are aims are too bring a
group of young people together to provide
support and encourage new and inspiring
friendships. The group is about listening to
people’s experiences with MS, and using
their own experiences pass on advice and
much needed support. Understanding that you have the potential!Understanding that you have the potential!Understanding that you have the potential!Understanding that you have the potential!
-it’s important for us at the young MS and
friends group headquarters that we can
bring people together to make individuals
understanding that just because they have
MS doesn’t mean they should stop doing
the things they love to do. There is always a
way of progressing in something even if
physically they are unable to do it, being an
achiever and to have ambition is important
in life! Looking for other ways of achieving
rather than stopping something altogether
shows dedication and bravery!
By not allowing a condition such as MS get
in your way of progressing academically or
physically shows that you are a determined
individual and for which you will gain a great
level of respect, and other people are also
more likely to look up to you as a role
model. The way in which you choose to live
your lives has the potential to influence
others. Helping someone can simply be
encouraging them to try hard and never
give up always strive to reach their full
ability You could be individual to have
helped the young girl with MS to continue
doing her best at physio, and know
because of the support you have given her,
her walking has improved and she is now
able to play with her friends outside of
school. As much as being diagnosed with
MS is a shock and you may thing that it’s
the end of the world, by having friendships
and kind-hearted support around, your
attitude towards the condition can change.
Becoming a team together means that you
can talk about your emotions and how they
make you feel. Everyone within the young
MS and friends groups will all be given the
same opportunity’s to do fun and exciting
activities and try new things. We are hoping
that together everyone can help each other
to have great experiences outside of their
normal day to day life which will help them
to learn things about themselves, which in
time will help them to come to terms with
their condition and allow them to
acknowledge who they are, and have the
understanding that everyone has the
capability to do well in no matter what
obstacles that life throw at us. Keep
working hard and we hope to see some
young and refreshing faces at the young
MS and friend’s group meeting soon, all the
best everyone!
Many thanks
Lauren and Alex xox
Young MS and Friends Group
18
1940’s Night on November 2nd1940’s Night on November 2nd1940’s Night on November 2nd1940’s Night on November 2nd
Get your tickets for this super event and
enjoy an evening in the 1940’s, 40’s dress
optional but preferred. Call for tickets:
01209 860754 Computer awareness day November 16thComputer awareness day November 16thComputer awareness day November 16thComputer awareness day November 16th
At Mike Georges, call 01872 862031 for
details and booking Christmas LunchChristmas LunchChristmas LunchChristmas Lunch
Christmas lunch 2013 is on the 7th
December at the Membly Hall Hotel
Falmouth. Book your places with Chris
Tel 01209 315386
Free for people with MS
£5.00 for carers
£13.00 for guests
Events taking place at Merlin MS Centre
Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon
TrekTrekTrekTrek---- 10101010thththth----17171717thththth May 2014 Trek.May 2014 Trek.May 2014 Trek.May 2014 Trek. Are you
ready to experience the breath taking
beauty of the Grand Canyon whilst raising
money for the Merlin Ms Centre?
With a year to fundraising you have plenty
of time to join us for this trek of a lifetime.
Contact the centre for more information
01726 885530.
Merlin MS Centre are looking for willing and
friendly volunteers to help with their
supermarket collection days throughout the
year and throughout the county. If you think
you can spare an hour or two to help then
please get in touch with the centre on
01726 885530. Ellie May,
Communications and Corporate Events Manager
Tel: 01726 885530
South Cornwall
Branch events 2013
Coffee morningsCoffee morningsCoffee morningsCoffee mornings
South Cornwall branch want to hold coffee
mornings throughout their area, if you want
to volunteer to hold a coffee morning to
raised funds for your branch please contact
me and we will help to advertise your event
and even provide relevant promotion
materials.
Look out for our fund raising pack pro-
posals in next months magazine.
In next months Lifeboat magazine: Members pages Youth Group page MS News Megan’s page Branch events Read-A-Thon news
Chairman: Chairman: Chairman: Chairman: Mike George
Telephone: 01872 862031
email: [email protected]
Treasurer: Treasurer: Treasurer: Treasurer: Hilary Merton
Telephone: 01872 863896
email: [email protected]
Address: 7 Agar Meadows, Carnon Downs, Truro,
TR3 6HS.
Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Christine Sargent
Telephone: 01209 315386
email: [email protected]
Secretary: Secretary: Secretary: Secretary: Christine Sargent
Telephone: 01209 315386
email: [email protected]
M S Support : M S Support : M S Support : M S Support :
Telephone: 01872 274911
Carer’s Officer: Carer’s Officer: Carer’s Officer: Carer’s Officer:
Karen Moore
Telephone 01872 274188
Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor:
Malcolm Glister
Telephone: 01209 860754
email: [email protected]
Branch Web manager: Branch Web manager: Branch Web manager: Branch Web manager: Mike May
Telephone: 01872 272 957
email: [email protected]
Membership: Membership: Membership: Membership: Betty Alderton
Telephone: 01872 270901
email: [email protected]
Minute Secretary: Minute Secretary: Minute Secretary: Minute Secretary: Moe Fisher
email: [email protected]
Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Nikki Jenkin
Telephone: 01736 787089
email: [email protected]
Events CoEvents CoEvents CoEvents Co----ordinator ordinator ordinator ordinator
Fund Raising Manager Fund Raising Manager Fund Raising Manager Fund Raising Manager Vacant
Branch contact details:Branch contact details:Branch contact details:Branch contact details:
Llawnroc, Mount Carbis Road,
Redruth, Cornwall,
TR15 2LD
Tel: 01872 274911
www.mssociety.org.uk/southcornwall Satellite eventsSatellite eventsSatellite eventsSatellite events
1st & 3rd Tuesday of each month:
Trelowarren Arms, Budock Water,
Falmouth, between 11.00am and
2.00pm approx. Coffee and/or lunch.
Open to all. Last Monday of each month: Last Monday of each month: Last Monday of each month: Last Monday of each month:
Helston & Lizard Group meeting:
Wheal Dream Restaurant, Helston
from 11.00am to approx 2.00pm.
Lunch at discounted rate. Every Thursday: Every Thursday: Every Thursday: Every Thursday:
Yoga at the Well Being Centre,
Nance Lane, Churchtown,
Illogan. 11.00am to 12.15pm. with
Carolyn Smith by appointment only. Every third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each month
Carers meeting at Mike George’s Useful contacts:Useful contacts:Useful contacts:Useful contacts:
MS National Centre: 02084 380 700
MS Helpline: 0808 800 8000
Care Direct: 0800 444 000
NHS Direct: 0845 4647
Editors Contact detailsEditors Contact detailsEditors Contact detailsEditors Contact details:
To send in articles or comments.
Malcolm Glister
Whispering Winds, Crellow Hill,
Stithians, Nr Truro,
Cornwall, TR3 7AQ
South Cornwall Branch Information
Need help or advice, call our
support number 01872 274911
All views expressed in this publication are individual and not necessarily the view or policy of the charity and its supporters.
Multiple Sclerosis Society Registered charity nos. 1139257 / SC041990
Registered as a limited company in England and Wales 07451571