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NASDDDS ANNUAL REPORT 2013-14 National Association of State Directors of Developmental Disabilities Services

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  • NASDDDS

    ANNUAL REPORT

    2013-14

    National Association of State Directors of Developmental Disabilities Services

  • NASDDDS StAff

    Nancy Thaler Executive Director

    Chas Moseley Associate Executive Director

    Robin Cooper Director of Technical Assistance

    Katherine Karol Snyder Director of Administrative Services

    Dan Berland Director of Federal Policy

    Barbara Brent Director of State Policy

    Rie Kennedy-Lizotte Director of State Employment Leadership Network

    Mary Sowers Director of Special Projects

    Mary Lee Fay Director of National Core Indicators

    Jeanine Zlockie SELN Program Specialist

    Megan Rose Office Manager

    Nicole Orellana Office Associate

    MiSSioNThe mission of the National Association of State Directors of Developmental Disabilities Services (NASDDDS) is to assist member state agencies in building person-centered systems of support for people with intellectual/developmental disabilities (I/DD) and their families.

    GuiDiNG PriNciPleSThe guiding principles for the association’s activities reflect the position of the membership that individuals with developmental disabilities have the right to:

    • Be treated with respect and dignity;

    • Be independent and make individual choices;

    • Participate in family and community life;

    • Have opportunities to maximize their full potential, and receive outcome-based services and supports.

    StrAteGic PlANThe association’s Strategic Plan connects our mission and guiding principles to priorities for action, research, and policy development. The Strategic Plan is a dynamic document that adapts to changing expectations and new challenges.

    StrAteGic GoAlS• Assist states in developing systems of services that effectively support

    people living with their families and in other relationship-based arrangements.

    • Promote the use of data to make policy and program decisions.

    • Promote the use of promising and evidence-based practices.

    • Assist states in developing finance strategies for home and community- based services (HCBS).

    • Promote employment.

    • Assist states in the development and use of information technology.

    • Conduct state leadership development to keep members current in the field.

    • Advocate for public policies that will enable states to provide high quality, person-centered services that result in people with developmental disabilities living a good life in the community.

    Cover Image: Grace Walker Goad, Tryptic, Fall Abstract Series I, Mixed Media on PaperGoad, b. 1994, is a Nashville, Tenn.– based artist with moderately severe autism, intellectual disAbilities, and severe speech/language impairment. Yet, her ability to create stunning art supersedes the limitations of labels and perceptions. She began painting at age four, exhibiting at age six, selling at age eight, and was featured on “The View” at age eleven. Her local and national electronic, newspaper, magazine, and online media exposure has continued to increase since. Her work is found online, GraceGoad.com and Grace Goad | Autism Art on Facebook, and in galleries and retail venues nationwide.

    NASDDDSNational Association of State Directors of Developmental Disabilities Services

    113 Oronoco Street Alexandria, VA 22314 Office: 703-683-4202 Fax: 703-684-1395 www.nasddds.org

  • 3annual report 2014

    Letter from Jane Gallivan, President, NASDDDS

    As NASDDDS celebrates 50 years of service, we have to marvel at the foresight of the eight public servants who had the vision to see the need for this national association. Charles E. Acuff from Kentucky; Van R. Hinkle from Washington; Maurice G. Kott from New Jersey; Bert Schmickel from Connecticut; Vernon Stehman from Michigan; J. Wylie McGough from Ohio and Louis Belinson of Missouri met in Columbus, Ohio on February 28, 1963 to form an organization representing state officials having administrative responsibility for “the complex problems of mental retardation.” The record shows that the Coordinators of State Programs in Mental Retardation saw a need for an organization that would be a “…a medium for the exchange of information on projects, programs, and experiences and achieve the maximum effectiveness of the budget dollars appropriated for mental retardation services” and “a vehicle for effective communication between the Federal agencies and the various states concerned with research, training, programs and finance.”

    Our predecessors recognized that change was coming. They knew that with the increased focus on what was then called mental retardation and the public support growing as a result of President Kennedy’s establishment of the President’s Committee on Mental Retardation, states would have increased responsibilities. They didn’t wait to see what would happen, they made the future happen. They established an organization that would enable an exchange among states, guide their thinking and practice and be a vehicle for communication with federal agencies. The foundation they created and their expectations of the organization they started are completely contemporary.

    The challenge is ours. As leaders today, we have the same opportunity to create the future. Through our national organization we can continue to shape the future; to create systems of support in our states that enable people with intellectual and developmental disabilities to reach their full potential and fully participate in their communities, and that support the families they live with and who support them. Full inclusion in the life of the community, employment in a competitive wage job, relationships with family and friends, opportunities to contribute to the community, and high quality services – these are the standards of excellence that we must strive to achieve.

  • 4 www.nasddds.org

    The year 2014 marks the 50th anniversary of the Association. Such a significant milestone compels us to look back and also to look ahead.

    The story of NASDDDS is the story of state agency leaders coming together, embracing the message of self-advocates and families, committing to a common cause, and creating systems of service that support people with developmental disabilities and their families. The association was launched in 1964 during a period of massive social change. The free speech movement, the Civil Rights movement, and the women’s movement are the back drop for the efforts of people with developmental disabilities and their families to secure their rights as citizens. The first sign of change was at the state level with state legislatures appropriating funds and passing laws creating services in the community. Passage of the federal Developmental Disabilities Act and President Kennedy’s appointment of national leaders to the President’s Committee on Mental Retardation brought the needs and rights of people with disabilities into the light nationally.

    As Congress appropriated funds for services such as vocational rehabilitation, education, and the construction of community mental health centers, the executive branch established federal agencies to guide the administration of those funds at the state level. The Rehabilitation Services Administration (RSA), the Administration on Aging (AOA), the Office of Special Education Programs and the Substance Abuse and Mental Health Services Administration (SAMHSA) established a direct relationship with state agencies operating services. However, the DD Act, which created the Administration on Developmental Disabilities, confined the scope of the federal agency to state entities authorized in the statute: the Developmental Disability Councils, the Protection and Advocacy Agencies and the University Centers for Excellence (UCEDs). No federal agency has been assigned the responsibility to support or guide state agencies providing services for people with developmental disabilities in states.

    NASDDDS has provided that national leadership for state DD agencies. Under the direction of a board of directors of state leaders, NASDDDS has guided the transformation of a national system that was almost exclusively institutional in 1964 to one in which today over 80% of people receiving services are living in the community. The story of the Association has been chronicled by Bob Gettings in a publication released with this Annual Report. It is a story of leadership and change and in looking at our past, we see what can be accomplished and are excited about the future.

    Letter from Nancy Thaler, Executive Director, NASDDDS

  • 5annual report 2014

    influencing federal Policy

    Federal Regulations: HCBS RuleNASDDDS has provided leadership on the implementation the response to the HCBS rule, representing state DD agencies’ perspectives on implementation opportunities and challenges. NASDDDS spearheaded communications with Cindy Mann, Director of the Center for Medicaid and CHIP Services (CMCS), regarding implementation issues. The association meets on a bi-weekly basis with CMS officials to develop transition plan guidance, communicate challenges in the states, and collaborate on solutions.

    NASDDDS is the states’ voice in the nation’s capital, ensuring that the perspective and collective knowledge of the members inform national policy. NASDDDS works closely with executive branch agencies; educates federal lawmakers; and provides member states with timely analysis of federal statutes, regulations and policies.

  • 6 www.nasddds.org

    Federal Regulations: Companionship Exemption RuleNASDDDS worked closely with the Department of Labor (DOL) to inform the DOL guidance on implementation of the third-party employment provision under the Companionship Exemption rule. NASDDDS was instrumental in the development of the DOL Guidance on Shared Living which clarifies the conditions under which an exemption from wage and hour requirements can be applied and preserves the service model for thousands of individuals. The association continues to work with DOL to ensure outreach to states and other stakeholders.

    NASDDDS achieves CMS Modifications to 1915(c) Waiver Quality Assurance ExpectationsAs the capstone to 18 months of work, CMS implemented a set of NASDDDS-led recommendations by making modifications to the section 1915(c) waiver quality assurance expectations that strengthen the oversight of the health and welfare of people receiving services and streamline state reporting requirements.

    EmploymentNASDDDS staff were engaged by staff of the Energy and Commerce Committee to discuss possible reauthorization strategies for the

    Workforce Investment Act, later reauthorized through the Workforce Innovation and Opportunity Act.

    Coalition LeadershipDan Berland, Director of Federal Policy, serves as the Co-chair of the Long Term Supports and Services Task Force of the Coalition of Citizens with Disabilities, the nation’s largest coalition advocating for the rights of and services for people with all disabilities.

    Meeting with the Medicaid and CHIP Payment and Access Commission Chas Moseley was requested to present to the Medicaid and CHIP Payment and Access Commission (MACPAC), a non-partisan federal agency charged with providing policy and data analysis to the Congress and the Secretary of Health & Human Services (HHS) on the role of assessment in long-term supports and services.

    Dr. Moseley’s presentation described the wide spectrum of uses that assessments serve and the importance of matching the right type of assessment to the purpose. He also emphasized that no assessment can determine the types of services that should be in an individual plan. Person-centered planning and factoring the context of the family are important elements of delivering long-term services and supports.

  • 7annual report 2014

    Supporting State Membersthe association’s primary role and mission is to assist member state agencies in building person-centered systems of support for people with intellectual/developmental disabilities (i/DD) and their families.

    Technical AssistanceOne of the association’s primary functions is to provide technical assistance to state agencies. Technical assistance, as a standard membership service, includes responding to telephone and email inquiries, reviewing and commenting on draft proposals or plans upon request, providing resources, and linking members to other states and organizations that can be of assistance. NASDDDS staff respond to state agency representatives daily to provide technical assistance. Specialized technical assistance is also provided upon request. Major projects of FY 2013-2014 included:

    Arizona Developmental Disabilities Council Prepared a series of policy briefs on (a)

    supporting families (b) community-based non-work, (c) Arizona history, and d) the provisions of the HCBS 1915(i) state plan services.

    California Provided consultation on the development of

    Supports Waiver.

    Delaware Provided technical support to develop targeted case management, family networks, and a new supports waiver.

    Georgia Provided technical assistance to improve

    the state’s case management and quality management system.

    Illinois Assisted the state to improve waiting list

    management, individual planning, service implementation, and monitoring. Assisted in consumer and family outreach for individuals moving from private ICFs/DD to the community.

    Louisiana Provided consultation to the state on best

    practices in managed long-term care services and supports.

    Maryland Began projects in support of Maryland’s efforts

    to identify opportunities to improve HCBS waiver services and related structures.

    New Jersey Provided consultation services required by DRNJ v. Vellez settlement agreement.

    North Carolina Provided facilitation and subject matter

    leadership for a cross-disability stakeholder workgroup to learn about the fundamentals of managed care to enhance their capacity to provide input into systems change initiatives.

    Virginia Assisted Virginia with its implementation of

    the state’s settlement agreement with the U.S. Department of Justice with specific focus on the Virginia waiver and case management system.

    NASDDDS provided more than 5,059 hours of member services and

    technical assistance to the states in FY 2013-2014.

  • 8 NASDDDS.orG

    Federal Technical Assistance ProjectsNASDDDS had entered into contracts with several federal agencies directly or as subcontractors to provide technical assistance to states on behalf of federal agencies

    EmploymentEconomic Systems, Inc. (EconSys)NASDDDS staff served as subject matter experts to the Department of Labor Office of Disability Employment Programs (ODEP) on two projects: “Data Collection and Policy Analysis Related to Olmstead Compliance” and “Integrated Employment of Persons with Significant Disabilities and Technical Assistance Project” for the Employment First Leadership Mentoring Program Evaluation. NASDDDS staff also contributed to both a publication and presentation on managed care and employment

    CMS Technical Assistance Project for HCBS (Neweditions)Robin Cooper, Director of Technical Assistance, assisted states making improvements to their HCBS programs and/or applying for HCBS under 1915(i), (j), and (k). NASDDDS has provided assistance to 23 states through this project.

    PublicAtioNSNASDDDS published:

    Federal News Briefs on a weekly basisState News Briefs on a biweekly basis Federal Perspectives on a monthly basis Community Services Reporter (news about states’ developments) on a monthly basis

    2013-2014 NCI Data Briefs (NASDDDS/HSRI) www.nationalcoreindicators.org/resources/data-briefs/

    • What Do NCI Data Reveal About Individuals With Intellectual and Developmental Disabilities Who Receive Behavior Supports?

    • What do NCI data tell us about the racial and ethnic disparities in healthcare utilization experienced by adults with intellectual and developmental disabilities?

    • Working in the Community: the Status and Outcomes of People with Intellectual and Developmental Disabilities in Integrated Employment – an Update

    • What Do NCI Data Reveal About Individuals With Intellectual and Developmental Disabilities Who Communicate Nonverbally?

    • NCI Performance Indicators: Evidence for New HCBS Requirements and Revised HCBS Assurances www.nationalcoreindicators.org/

    upload/files/HCBS_Reqmts_and_CMS_Assurances_Crosswalk_with_NCI_May_2014_FINAL.pdf

    • Highlighting data findings and trends across states on key individual and

    service related outcomes. www.nationalcoreindicators.org/

    resources/reports/

  • 9annual report 2014

    ListServs NASDDDS hosted

    two ListServs

    1.For state intellectual/

    developmental disabilities (I/DD) services directors

    and their staff.

    2.For state I/DD attorneys

    Teleconferences/Webinars

    NASDDDS holds teleconferences and webinars for member state agencies on topic areas of interest. Recordings and materials are made available on the website for state agency staff unable to participate the day of the event. Nine events were held in 2013-2014. • Teleconference on the new CMS regulations directly with CMS (held twice)• Teleconference on the new CMS regulations held by Ms. Robin Cooper• Teleconference on Medicaid authorities• The Changes in the Department of Labor Regulations as Applied to

    Shared Living (held twice)• Department of Labor Regulation Webinars on Joint Employment (held twice)

    Membership Meetings and Conferences

    2013 Annual Conference and Directors Forum Rising Expectations – A Systemic Response to the Community Integration Mandate November 13-15, 2013 Hotel Monaco, Old Town Alexandria, Virginia

    2014 Mid-Year Conference and Directors Forum Supporting People with Challenging Behaviors: Making Community Work for People with Co-Occurring I/DD and Mental Illness June 4-6, 2014 Royal Sonesta Hotel, New Orleans, Louisiana

    2014 Annual NCI Conference Sharing Strategies for Quality Assurance August 6, 2014 Renaissance Harbor Hotel, Baltimore, Maryland

  • 10 www.nasddds.org

    Data-based Decision MakingNASDDDS promotes the use of data in policy making and program performance measurement.

    National Core IndicatorsThe National Core Indicators (NCI) system has documented the quality of state developmental disabilities agencies’ systems for 16 years. The NASDDDS-HSRI partnership, in collaboration with participating state agencies, gathers in-depth information on key system performance indicators and individual outcomes essential to effective policy planning, program operations, and systems development.

    The NCI Program continues to expand to additional states with funding through a contract with the Administration on Intellectual and Developmental Disabilities. Six new states joined the program in 2013-2014, bringing the total to 40. NCI is also expanding to the aging and disabilities populations

    through the support of NASUAD. Three states piloted the NCI-Aging and Disabilities (NCI-AD).

    The project provides technical assistance and funding to enable new states to join the program each year. All participating states receive an annual report of state performance, as well as national summary reports, consumer-friendly reports and targeted data briefs on areas of importance.

    Interested parties can download copies of the NCI annual reports. Consumer, family and provider reports can also be accessed from the website at www.nationalcoreindicators.com. Individuals can also make their own charts and summaries at the on-line Chart Generator at www.nationalcoreindicators.org/charts.

    40 states, the District of

    Columbia and 22 sub-state regions

    NCI State Participation 2013-14

    CA* – Includes 21 Regional CentersOH* – Also includes the Mid-East Ohio Regional Council

  • 11annual report 2014

    Supporting Individuals and Families Systems Project (FISP)

    fisp.umn.eduNASDDDS staff continued collaboration with staff from the University of Minnesota Research and Training Center on Community Living, Institute on Community Integration and the Human Services Research Institute on the Family Information Systems Project. In this multi-year initiative, the NASDDDS Research Committee functioned as the project’s Technical Users Group. The Research Committee provided detailed advice and feedback on the nature and extent of data gathered by the university from state DD agencies on the services and supports furnished to individuals with disabilities living in the family home and the families who support them. NASDDDS staff contributed to the project throughout the year, sharing important learning from other projects, including the Supporting Families Communities of Practice.

    Evidence-Based Policy

    The collaboration with the Association of University Centers on Disability is designed to result not only in the preparation of a series of comprehensive, objective literature summaries on key policy topics, but also in the expansion of the use of outcome based research and evaluation within state policy.

    National Residential Information Systems Project (RISP)

    risp.umn.eduNASDDDS staff continued close collaboration with the University of Minnesota Research and Training Center on Community Living, Institute on Community Integration on the National Residential Information Systems Project (RISP), funded under a grant from the Administration on Intellectual and Developmental Disabilities. NASDDDS’ Research Committee provides ongoing recommendations to ensure the report meets the needs of state DD directors and their staff, Developmental Disabilities Councils, State Protection and Advocacy Agencies and University Centers on Developmental Disabilities. Importantly, NASDDDS actively engaged with the University of Minnesota in making adjustments to the 2013 RISP survey to capture key information to reflect the changing landscape of Medicaid authorities through which individuals with Intellectual and Developmental Disabilities are served, and to inform the FISP project.

    National Residential Information Systems Project (RISP) andSupporting Individuals and Families Systems Project (FISP)

  • 12 www.nasddds.org

    Supporting families through the life Span community of Practice

    the community of Practice for Supporting families grant from the Administration on intellectual and Developmental Disabilities (AiDD) is designed to pursue the development and implementation of policies and practices that support families of individuals with i/DD.

    The Community of Practice is jointly managed by NASDDDS and the University of Missouri-Kansas City – Institute on Human Development. The Human Services Research Institute is conducting the evaluation.

    The Community of Practice states are:•Connecticut•District of Columbia•Oklahoma•Tennessee•Washington•Missouri collaborates as a mentor state

    The overarching goal of the grant is to develop, test, and learn from states how to recognize and support families so that they can continue to support their family member to be fully engaged in the community, whether that person is living at home or elsewhere in the community.

    States are focusing on policies and practices that reach across an individual’s life span, thinking about all people with I/DD regardless of their connection to the formal systems and working across agencies and communities to impact the trajectory of information. Early system changes

    in the states are being seen in retooling the “front door” to I/DD supports, developing family networks, and using lifecourse planning tools to map and align state driven projects and services.

    Updates on the project are posted on the Supporting Families website

    www.supportstofamilies.org

  • 13annual report 2014

    Keeping employment a Priority

    thirty state developmental disability agencies participated in the State employment leadership Network (SelN) during the 2013-2014 membership year with florida and New York being the newest member states.

    The State Employment Leadership Network is a joint initiative of the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Institute for Community Inclusion (ICI) at the University of Massachusetts Boston. Launched in 2006, the SELN is a membership-based network of state intellectual and developmental disabilities agencies committed to making changes in their service systems to

    improve opportunities and integrated competitive employment outcomes for adolescents and adults with developmental disabilities.

    NASDDDS subcontracts with the Institute for Community Inclusion, UMass Boston as partner in two Projects of National Significance funded by the Administration on Intellectual and Developmental Disabilities (AIDD) to improve employment outcomes.

    The SELN 2013-2014 annual accomplishment report is available at www.selnmembers.org

    State Employment Leadership Network

    Members as of 4/2013

    OR

    MT

    ID

    NV

    CA

    AK

    HI

    ME

    NYMI

    PA

    WVVA

    NC

    SC

    GA

    FL

    AL

    KY

    TN

    OHIN

    WI

    IL

    IA

    MO

    MN

    ND

    WA

    SDWY

    UTCO

    AZNM

    OK

    TX LA

    AR

    MS

    NE

    KS

    MA

    RICTNJ

    DE

    MD

    DC

    NHVT

  • 14 www.nasddds.org

    Employment Learning Community

    The Employment Learning Community provides technical assistance to states implementing employment first policy and practices; encouraging innovative practices and facilitating their implementation at both the workforce system and individual levels, which includes providing technical assistance and training to workforce-related entities.

    Participating states are: District of Columbia, Idaho, Kentucky, Maryland, Minnesota, New Hampshire, and North Dakota.

    FloridaNASDDDS provided the state of Florida with technical assistance on employment services under contract with the University of Boston.

    2013-2014 marked the third year of the Partnerships in Employment Project, a five-year systems change initiative to increase employment and post-secondary outcomes for youth and young adults with intellectual and developmental disabilities.

    ICI and the NASDDDS are providing training and technical assistance (TA) to eight state projects in Alaska, California, Iowa, Mississippi, Missouri, New York, Tennessee, and Wisconsin.

    Information on each state’s activities and progress can be found at:

    www.partnershipsinemployment.com/

    Partnerships in Employment Project

  • 15annual report 2014

    collaborating to Achieve our Missions

    National Leadership Consortium on Developmental Disabilities (NLCDD)The consortium convenes week-long Leadership Institutes twice a year and the NASDDDS board of directors awards two scholarships annually to employees of member state agencies.

    www.nlcdd.org Collaboration to Promote Self-DeterminationThis effort is a network of approximately 12 national organizations that have come together to promote employment opportunities and self-direction for those with I/DD.

    www.thecpsd.org

    The Consortium for Citizens with Disabilities (CCD)The consortium is the nation’s largest disability stakeholder’s coalition and informs and advocates for people with disabilities at the state and federal level. Dan Berland serves as co-chair of CCD’s Long-Term Supports and Services Task Force.

    www.c-c-d.org

    National Association for the Dually Diagnosed (NADD)NADD developed standards for a Quality Services Program to provide for the accreditation of services and the certification of staff involved in the delivery of supports to adults with co-occurring developmental disabilities and mental illness.

    www.thenadd.org/

    Quality MallThe mall is an online information clearinghouse providing resources and materials showcasing promising practices and innovations that promote quality of life for persons with developmental disabilities.

    www.qualitymall.org/main/

    Reinventing Quality ConferenceThe Reinventing Quality conference is planned in collaboration with the Human Services Research Institute, the American Association on Intellectual and Developmental Disabilities, the University of Minnesota, ANCOR, and the University of Delaware.

    www.reinventingquality.org/upcoming/

  • 16 www.nasddds.org

    Denise Sleeper, Administrator, New Hampshire Department of Health and Human Services, Bureau of Developmental Services.

    Valerie Yin, Planner for the Hawaii State Department of Health Developmental Disabilities Division (DDD).

    recognizing outstanding Achievement

    Ben Censoni Award for Excellence in Public Service

    The Censoni Award is the only award that recognizes public officials who strive to improve the lives of people with developmental disabilities and is named after the late Ben Censoni, former developmental disabilities director for Michigan and chair of the association’s Governmental Affairs Committee. Ben’s motto was “people are what really matter.”

    2013-2014 Recipients:

    2013 Recipient of the Censoni Award:Delaware Governor Jack Markell, honored for his outstanding

    leadership in promoting the employment of people with disabilities.

    Robert M. Gettings Compass Award

    The Robert M. Gettings Award recognizes the achievements of persons other than public officials who, through creativity and a strong commitment to bettering the lives of people with disabilities, have helped to positively shape the course of disability policy in the United States.

    Gary Smith Scholarship to the National Leadership Consortium on Developmental Disabilities

    The Gary Smith Scholarship Fund was established to support the participation of one participant from state government at each University of Delaware Leadership Consortium, held twice yearly. The scholarship fund in Gary Smith’s name is a legacy to support others who work for the state, local, or the federal government in their pursuit to improve the lives of people with disabilities and their families.

    2014 Recipient of the Compass Award:Charlie Lakin, Ph.D., honored for his significant contributions to the development of publicly funded state services for people with developmental disabilities

  • 17annual report 2014

    NASDDDS board of Directors

    Jane GallivanPresident

    November 2012 – November 2014

    Laura NussVice President/President Elect

    November 2012 – November 2014

    Bernie SimonsSecretary/Treasurer

    November 2012 – November 2014

    John MartinMember-at-Large

    November 2013 – November 2017

    Beverly BuscemiMember-at-Large

    May 2013 – May 2016

    Alex BartolicMember-at-Large

    November 2012 – November 2015

    Courtney TarverMember-at-Large

    November 2011 – November 2014

    Alumni AssociationContact information and links to the current alumni association

    members are available on the NASDDDS website. www.nasddds.org/alumni/

    Peter BisbecosMax ChmuraSteven CookCatherine CrabtreeNorm Davis

    Jim DeBeaugrineRoger DeshaiesKathryn Du PreeSharon JacksiLynda Kahn

    Julia KennyGary LindGerry MorrisseyJames NicholsonPeter O’Meara

    Kenneth RitcheyWanda SeilerShane SpottsShirley YorkRic Zaharia

    Research Committee Association Members John Martin (Chair) OhioNicole Norvell IndianaBernie Simons MarylandAlex Bartolic MinnesotaTerry Macy ConnecticutPaul Smith UtahChris Adams Texas

    Non-Association MembersAmy Hewitt, Ph.D. University of MinnesotaBill Kiernan, Ph.D. UMass BostonVal Bradley Human Services Research InstituteRick Hemp University of Colorado

    National Policy Work GroupJane Gallivan (Chair) DelawareAlex Bartolic MinnesotaLaura Nuss Washington, D.C.Dawn Apgar New JerseyCourtney Tarver AlabamaJim Martin MaineBarb Ramsey ColoradoDan Lusk South Dakota

  • 18 www.nasddds.org

    financialsNASDDDS Balance Sheet – June 30, 2014

    ASSETS CURRENT ASSETS Cash $378,476.19Investments 1,399,226.47Accounts Receivable 595,120.26Prepaid Expenses 8,483.56

    Total Current Assets 2,381,306.48 FIXED ASSETS Furniture & Equipment - Net 57,092.26Building - Net 213,867.18

    Total Net Fixed Assets 270,959.44 TOTAL ASSETS 2,652,265.92 LIABILITIES & NET ASSETS LIABILITIES Accounts Payable 203,744.86Accrued Expenses 379,970.74Accrued Vacation 120,987.55Other Employee Payable 3,812.79Deferred Dues 290,921.00Deferred Grant 7,429.46

    TOTAL LIABILITIES 1,006,866.40 NET ASSETS Unrestricted 1,486,544.95YTD Income 158,854.57

    TOTAL NET ASSETS 1,645,399.52 TOTAL LIABILITIES & NET ASSETS 2,652,265.92

  • 19annual report 2014

    FY 2013 –14: Source of RevenueTotal $3,920,601

    Administration 2%

    SELN & Employment 27%

    Membership 25%

    Family Support

    8%

    Technical Assistance 13%

    Nat. Core Indicators 24%

    Federal Policy 0%Publication 1%

    Programs Revenue

    Administration $66,956 (2%) 66,956

    Federal Policy $436 (

  • 20 www.nasddds.org

    NASDDDS MembersOctober 3, 2014

    ALABAMA Courtney Tarver, J.D. Associate Commissioner, Division of Developmental Disabilities

    ALASKA Duane Mayes Director, Senior and Disabilities Services

    ARIZONA Dr. Larry Latham Assistant Director, Division of Developmental Disabilities

    ARKANSAS Jim Brader Interim Director, Division of Developmental Disabilities Services

    CALIFORNIA Santi J. Rogers Director, Department of Developmental Services

    COLORADO Barbara D. Ramsey Director, Division for Intellectual and Developmental Disabilities

    CONNECTICUT Terrence W. Macy, Ph.D. Commissioner, Department of Developmental Services

    Contact information and links to the state agencies are available on the NASDDDS website.

    www.nasddds.org/state-agencies/

    DELAWARE Jane J. Gallivan Director, Division of Developmental Disabilities Services

    DISTRICT OF COLUMBIA Laura Nuss Director, Department on Disability Services

    FLORIDA Barbara Palmer Director, Agency for Persons with Disabilities

    GEORGIA Dan Howell Director, Department of Developmental

    Disabilities

    HAWAII Dr. Jeffrey Okamoto Interim Chief, Developmental Disabilities Division

    IDAHO Arthur Evans DD Bureau Chief, Developmental Disabilities

    Program

    ILLINOIS Kevin T. Casey Director, Division of Developmental Disabilities

    INDIANA Nicole Norvell Director, Indiana Family and Social Services

    Administration

  • 21annual report 2014

    MISSISSIPPI Matt Armstrong Director, Bureau of Intellectual and Developmental Disabilities

    MISSOURI Valerie Huhn Director, Division of Developmental Disabilities

    MONTANA Novelene Martin Bureau Chief, Developmental Disabilities Program

    NEBRASKA Jodi Fenner Director, Division of Developmental Disabilities

    NEVADA Jane Gruner Administrator, Aging and Disability Services Division

    NEW HAMPSHIRE Lorene Reagan Bureau Chief, Bureau of Developmental Services

    NEW JERSEY Elizabeth Shea Assistant Commissioner, Division of Developmental Disabilities

    NEW MEXICO Cathy Stevenson Director, Developmental Disabilities Supports Division

    NEW YORK Kerry A. Delaney Acting Commissioner, Office for People with Developmental Disabilities

    IOWA Rick Shults Division Administrator, Division of Mental Health and Disability Services

    KANSAS Kari Bruffett Acting Secretary, Department for Aging and Disability Services

    KENTUCKY Mary Reinle Begley Commissioner, Department for Behavioral Health, Developmental and Intellectual Disabilities

    LOUISIANA Mark Thomas Assistant Secretary, Office for Citizens with Developmental Disabilities

    MAINE Jim Martin Director, Office of Aging and Disability Services

    MARYLAND Bernard Simons Deputy Secretary for Developmental Disabilities, Developmental Disabilities

    Administration

    MASSACHUSETTS Elin Howe Commissioner, Department of Developmental Services

    MICHIGAN Lynda Zeller Deputy Director, Behavioral Health and

    Developmental Disabilities Administration

    MINNESOTA Alex Bartolic Director, Disability Services Division

  • 22 www.nasddds.org

    NORTH CAROLINA Dr. Courtney Cantrell Director, Division of Mental Health,

    Developmental Disabilities, and Substance Abuse Services

    NORTH DAKOTA Tina Bay Director, Developmental Disabilities Division

    OHIO John Martin Director, Department of Developmental

    Disabilities

    OKLAHOMA JoAnne Goin, LCSW Division Director, Developmental Disabilities Services

    OREGON Lilia Teninty Director, Developmental Disability Services

    PENNSYLVANIA Steve Suroviec Deputy Secretary, Office of Developmental

    Programs

    RHODE ISLAND Craig S. Stenning Director, Department of Behavioral

    Healthcare, Developmental Disabilities and Hospitals

    SOUTH CAROLINA Dr. Beverly A. H. Buscemi Director, Department of Disabilities and Special Needs

    SOUTH DAKOTA Dan Lusk Director, Division of Developmental

    Disabilities

    TENNESSEE Debbie Payne Commissioner, Department of Intellectual and Developmental Disabilities

    TEXAS Chris Adams Deputy Commissioner, Department of Aging and Disability Services

    UTAH Paul Smith Director, Division of Services for People with Disabilities

    VERMONT Camille George Director, Developmental Disabilities Services Division

    VIRGINIA Connie Cochran Assistant Commissioner for Developmental

    Services, Department of Behavioral Health and Developmental Services

    WASHINGTON Evelyn Perez Assistant Secretary, Developmental Disabilities

    Administration

    WEST VIRGINIA Beth Morriso Director, Division of Intellectual and

    Developmental Disabilities

    WISCONSIN Camille Rodriguez, MHA Chief, Developmental Disabilities Services

    WYOMING Chris Newman Senior Administrator, Behavioral Health Division

    thank You!

  • NASDDDS thanks charles (chas) Moseley

    chas Moseley, who joined NASDDDS in 2001 as the Director of Special Projects, retired from the position of Associate executive Director in 2014.

    chas’s accomplishments include developing and expanding National core indicators (Nci) and the State employment leadership Network (SelN), developing the association’s research committee and establishing the evidence based Policy initiative. He conducted research and published numerous articles for use by state i/DD agencies. chas served as the state director of Vermont’s Developmental Disabilities Program from 1988 to 1999.

    Chas is valued as a friend and colleague by the NASDDDS staff and membership.

    We wish him the best.

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