To Share or Not to Share? IGR16th October 2013

Janet Davies, Director of Nursing & Service Delivery

Focus on Patients

Essential for Care

Information

Critical for Governance

Can restrict good practice

Rules and Guidance

Citizens Said

Powerful stories reinforcing what the Future Forum heard

Strong support for – more sharing of information to support their care– anonymous data to be used “for the public good”– research but plea to be asked before information is used

Antipathy to their identifiable information being used for other purposes

No surprises and the complex area when carers are involved

Organisations Said

Anxious about sharing

Concerns about organisations’ reputation

Causes:– The Caldicott principles especially number 4– Large fines from ICO for data breaches– Greater awareness of data protection– More care pathways cross organisational boundaries

Increased caution among health & care professionals

Nurses Said Prevented from communicating with patients using technology

of choice

Concerns about sharing information between health and social care causing problems where teams interface

Sharing with independent/third sector problematic

Families are treated differently in health and social care

Rules and Guidance are all different – and creating confusion

Training not fit for purpose for all

Rules go beyond Caldicott principles

Challenge

To make recommendations that change the culture while staying within the law and maintaining focus on good IG practice

The Final Report - Purpose

Enhance trust

Better balance the risks of failure to maintain confidentiality, and failure to share

Simplify information governance, and for it to be seen as more closely aligned to clinical governance, not as a technical issue

14 Chapters

26 Recommendations

A new Principle

The duty to share information can be as important as the duty to protect patient confidentiality

ISOG – take forward work

IIGOP – Oversee activity

THE GOVERNMENT RESPONSE

HSCIC: Treating confidential information with respect

Rule 2: Members of the Care team should share confidential information when it is neededfor the safe and effective care of anindividual

NEW RULES