triangle area ostomy association · april 1 april fools day april 1 taoa meeting, rex, 7:15 pm...
TRANSCRIPT
Triangle Area Ostomy Association
April 2014
President’s Message: It has been my pleasure and honor to serve as President of the Triangle Area Ostomy Association since January of 2012. Following the April TAOA meeting, Sam DeAn-
gelo, current vice-president, will assume the position of President of TAOA. I plan to remain an active member of TAOA and look forward to seeing you at meetings in the
near future.
Thank you and best wishes, Sam Bundy, President
IN THIS ISSUE:
April Birthdays Page 1
Ostomy Inspirations Page 1
Local Support Group Info Page 2
Member Information Page 2
WOC Nurses Page 2
Minutes Page 4
Meet our April speaker Page 4
Upcoming UOAA meetings Page 4
TAOA Membership Form Page 5
TAOA Dues Policy Page 5
More News You Can Use Page 5
NEWS AND UPDATES
April Program: Dr. Matthew Milowsky with the urology oncol-
ogy program at UNC. Read more about Dr. Milowsky on Page 4.
May Program: Discussion groups by ostomy type led by
WOC nurses — Please join us for this informative sharing oppor-
tunity. There will be groups for urostomy, colostomy, ileostomy and
spouse/support person.
June Program — rescheduled from March: Terri Kuc-
zynski, a counselor with the Rex Hospital Palliative Care team, will
lead a discussion about dealing with your feelings about your
ostomy . Terri has spoken to our group often and always leads a
great discussion.
Still seeking a new newsletter editor - We are searching
now for a replacement for Jes Ormondroyd, newsletter editor for the
past two years. In the interim, Stephanie Yates will compile the
newsletter, but she is eager to pass it along to an interested member.
The Bypass is produced in Microsoft Publisher currently and a tem-
plate is set up. E-mail is essential to receive the content to include.
Please contact one of the board members if you are interested in
volunteering. CALENDAR OF EVENTS:
April 1 April Fools Day
April 1 TAOA Meeting, Rex, 7:15 pm
April 8 TBC Meeting Chapel Hill, 7 pm
April 13 Palm Sunday
April 15 Passover
Tax Day
April 20 Easter
April 21 CCFA Meeting Rex, 7:30 pm
Jack Lilie April 14 Fred Toms April 19 Diane Hill April 23
Thank you,
Sam, for your
service over
the past couple
of years!!!
TAOA MEETING INFO: MEETING:
The first Tuesday of the month, September – June.
Time: 7:15pm NO meeting in July or August.
LOCATION:
Rex Hospital, 4420 Lake Boone Tr., Raleigh, 27607.
Enter through Main Entrance from parking deck.
Immediately turn LEFT into the Main Waiting Room.
INCLEMENT WEATHER:
To verify a cancellation, call Rex Hospital at 919-784-3100
If the Wake Co. Schools are closed due to weather
conditions, there will be NO meeting that evening.
DISCLAIMER
Articles and information appearing in this newsletter are not necessarily en-
dorsed by the Triangle Ostomy Association and may not be applicable to every-
one. Always consult your physician or WOC Nurse for all medical advice.
TRIANGLE AREA OSTOMY ASSOCIATION (TAOA)
TAOA is a local chapter affiliate of The United Ostomy Associations of America, Inc. Membership is open to
ostomates, nurses and others who support our mission. The UOAA chapter affiliation fee is included in
membership dues paid annually to TAOA. Each member receives a subscription to THE BY-PASS, our
monthly newsletter publication. New members are always welcome.
GROUP OFFICERS AND CONTACT INFO: All officers are available for member support
President: Sam Bundy 919-876-0736
VP: Sam DeAngelo 919-552-7890
Secretary: Bonnie Sessums 919-403-7804
Treasurer: Ruth Rhodes 919-782-3460
Editor:
Webmaster: Ed Withers 919-553-9083
FOW Coordinator: Jeff Burcham 919-847-9669
Visitor Coordinator: Stephanie Hughes 919-480-1172
Prof. Advisor: Stephanie Yates 919-613-2035 Website: www.RaleighUOA.org or
www.triangleostomy.org
Email: [email protected]
CCFA SUPPORT GROUP
Date: Third Monday of the Month
Time: 7:30 pm – 9:00 pm
Place: Rex Healthcare
Contact: Reuben Gradsky
TRIANGLE BLADDER CANCER
SUPPORT GROUP
Date: Second Tuesday of the Month
Time: 7 pm – 8:30 pm
Place: Carolina Pointe, Chapel Hill,
NC
Contact: David Langham
919-948-0589
www.trianglebcs.com
2
WOC Nurses
Wake Med
Leigh Ammons 919-350-7668
Melanie Johnson 919-350-7668
Debbie Orr 919-350-7668
Wake Med, Cary
Joanna Burgess 919-350-5231
UNC Hospital
Donna Brickman 919-843-9234
Juliet Idiabonya 919-843-9234
Lisa Jenkins 919-843-9234
Barbara Koruda 919-843-9234
Lara Leininger 919-843-9234
John Maotko 919-843-9234
Donna Partin (outpt) 919-966-9344
Janet Rankin 919-843-9234
Duke Regional
Tom Hobbs 919-470-7215
Felicia Street 919-470-6145
Duke
Jane Fellows 919-681-7743
Michelle Rice 919-681-2436
Angela Richardson 919-681-7743
Leanne Richbourg 919-681-6694
Stephanie Yates (outpt) 919-613-2035
Duke Health Raleigh Hospital
Amanda Eltz 919-954-3725
Krys Dixon 919-954-3446
Maria Parham Hospital
Kathy Thomas 252-436-1700
Durham VA Medical Center
Reba Giles 919-286-0411 X 6177
Sara Harbison 919-286-0411 X 5297
Rex Hospital
Angela Joyner 919-784-2048
Rachel Breazeale 919-784-2048
Teri Ourada 919-784-2048
OUR MISSION
We strive to provide assistance to persons who have, or anticipate having, a surgical diversion of the intesti-
nal or urinary tract (Colostomy, Ileostomy, Urostomy, Continent diversion). We provide personal and family
support, educational services and interaction with our professional community. We support Friends of
Ostomates Worldwide by donating supplies for distribution to ostomates around the world.
For more information contact our
Customer Interaction Center at
1-800-422-8811 Monday – Thursday,
8:30 a.m. – 8:00 p.m., ET
Friday, 8:30 a.m. – 6:00 p.m., ET
www.ConvaTec.com
3
MINUTES OF THE MARCH 4, 2014
MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION
(Meeting was cancelled due to inclement weather)
4
2014 UOAA Mid-Atlantic Regional Conference (Hosted by Ostomy Support Group of Northern Virginia, LLC and it's satellite: Ostomy Connections Support Group, Freder-icksburg, Virginia
Friday/Saturday/Sunday, May 2-4, 2014 Holiday Inn Washington Dulles International Airport, Dulles, Virginia
Upcoming UOAA conferences
Meet Dr. Matthew Milowsky — Speaker at our April meeting
My career focus is the development of novel treatments for patients with genitourinary (GU) malignancies. I previously led
the Genitourinary Oncology Research Program at New York Presbyterian Hospital-Weill Cornell Medical College fol-
lowed by the development of a premiere clinical and translational research program in urothelial cancer at Memorial Sloan-
Kettering Cancer Center (MSKCC). In my role as Section Chief of GU Oncology at UNC, I am focused on the develop-
ment of a premiere translational and clinical research program in multiple GU-related cancers including prostate, bladder,
kidney and testicular cancer. The clinical trials program comprises investigator initiated, cooperative group (ALLIANCE),
and pharmaceutical sponsored trials. I work closely with the other members of the GU medical oncology service.
The specific aim of the translational research program is to design GU-specific clinical trials that utilize an integrated ge-
nomics approach to characterize tumors for genetic alterations. This goal is predicated on the concept that genomic altera-
tions predict sensitivity or resistance to novel targeted agents. The central tenet is that prospective characterization of tu-
mors in the laboratory will accelerate the development of promising novel agents in the clinic. A second, clinically ori-
ented goal of the GU program will be to design and conduct trials that specifically address the issues related to the treat-
ment of older adults with cancer.
5
TAOA MEMBERSHIP FORM
Date: ___________________
Name: __________________________________________________ Spouse:_________________
Address: _________________________________________________________________________
Phone: __________________________ Email: __________________________________________
Year of Surgery: ____________ Preference for Newsletter delivery: [ ] Email [ ] U.S. Mail
Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Urostomy (Ileal conduit)
[ ] Other _______________ [ ] Supporter of TAOA/No Ostomy
Comments: ______________________________________________________________________
ANNUAL DUES $20.00 PAY TO: TRIANGLE AREA OSTOMY ASSOCIATION (Abbreviation: TAOA)
PAYMENT ENCLOSED: $_____________ [ ] CASH [ ] CHECK [ ] MONEY ORDER [ ] I request Complimentary Membership. I cannot pay dues at this time. (Information is Confidential) MAIL COMPLETED FORM WITH PAYMENT OF DUES TO:
Ruth Rhodes, Treasurer / 8703 Cypress Club Drive / Raleigh, N.C. 27615
TAOA ANNUAL DUES POLICY
*YOUR ANNUAL STATEMENT FOR DUES is issued in the June edition of the BY-PASS Newsletter. *ANNUAL PAYMENT IS DUE PRIOR TO AUGUST 31
st EACH YEAR. Issue payment with TAOA Form.
*Please notify the Treasurer if your payment must delayed or if you are unable to pay. (Confidential) *Failure to reply will result in termination of membership. Reinstatement may be requested in writing.
More News You Can Use:
Welcome to Eric Webster, who attended his first TAOA meeting in February. Eric has had an ileo-stomy for over 30 years and learned about the association from the ostomy clinic at Duke Ra-leigh.
Best wishes to John Saunders for better health this spring. John had ostomy surgery in October but has had some complications plus the flu since then.
Visitor Training Session (held 2/22) was a suc-cess. Four members received training - Eric Webster, Dan Richards, Alison Lee, and Domenique Tanzini. Thanks to Stephanie Yates, WOC nurse for coordinating and presenting the training.
Cancellation of the March meeting was due to Wake County Schools being cancelled the day of our meeting. We adopted this policy due to the wide variation in road conditions and the school system is usually being safe when they cancel school. A great big THANK YOU to Ruth Rhodes and to Ed Winters, for e-mails and telephone calls to members reminding them of this policy on the day of the March meeting. Please be sure to in-form the TAOA Board of your phone and e-mail address changes.
NEXT MEETING: Tuesday, April 1, 2014 at 7:15 pm, Rex Hospital PROGRAM: Dr. Matthew Milowsky, co-director of the urologic oncology
program at UNC Lineberger Comprehensive Cancer Center
8703 Cypress Club Drive Raleigh, NC 27615
OUR THANKS TO
FOR PROVIDING THE PRINTING OF
THIS NEWSLETTER