using a community-inclusive framework to identify and ... · presentation; • engaging communities...
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Using a community-inclusive framework to identify and address
health disparities
Sandra Clark, MPHHealth Share of Oregon
Coordinated Care Model Summit - November 17, 2015
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Does it go without saying?
in·clu·sion (inˈkloo͞ZHən/)
1. the action or state of including or of being included within a group or structure.
com·mu·ni·ty (/kəˈmyoo͞nədē/)
1. a group of people living in the same place or having a particular characteristic in common.
2. a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals.
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What happens if we don’t include communities in identifying and addressing disparities?
• We become part of the problem
• Data aren’t turned into meaningful information
• We make “data-driven decisions” that aren’t relevant or meaningful
• We waste time and resources
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What will happen if we do?
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We established a foundation for equity and inclusion at Health Share
• Naming our commitment
• Developing our staff’s capacity
• Equitably allocating resources
• Continuous learning
• Team-based work
• Community engagement
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We selected a framework recommended by OHA
1. Team approach
2. Develop procedure
3. Identify priorities
4. Analyze
5. Present
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Health Share’s Disparities Analytics & Reporting Team (DART) is:
• Developing an organized, comprehensive disparities data analysis framework that promotes collaboration across Health Share’s partners and strategic initiatives;
• Assessing Health Share's race, ethnicity, language, and other disparity data quality;
• Testing & implementing practices and procedures for disparities data stratification, analysis, validation, and presentation;
• Engaging communities to understand disparities data, to make meaning, and take action.
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Creating our procedure:
• Multiple drafts and community input
• Testing different approaches: summer CAC presentation example
• Applying our principles early
• Bridging across data analysts and equity staff at Health Share through the DART
• Creating meaningful opportunities for community engagement
• Strengths-based approach
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How do we define “strengths-based data analysis”?
• A strengths-based interpretation and presentation of disparities refers to community and individual strengths.
• The community and their strengths are shared first
• Disparities are identified in context of the knowledge and wisdom of impacted communities
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Recommendations to CAC and CCO staff
• Work as a team – this isn’t a one or two person “project”
• Promote the adoption of a standard process for analyzing and interpreting data – this will help share responsibility and improve your team’s commitment
• Invest in the strengths of your team by allocating time and resources to improve your approach
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Recommendations for community inclusion in data analysis
• Share data before it is published – inclusion isn’t an afterthought
• Don’t ask your team, “Is our data perfect?” but instead ask, “Who did we consult with to make sure we’re getting this right?”
• Build trusting relationships with community members
• Show how your CCO is using their input. Document their stories.
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What we’re learning
• Organizational readiness takes time and effort
• It’s fun
• It’s necessary
• Trust can be built and rebuilt
• Communities experiencing health disparities know what they need to be healthy
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