we #makehealth fest presentation by james wedding
TRANSCRIPT
The Nightscout Project,
Patient-Driven Innovation,
& the Maker Movement James Wedding
President, The Nightscout Foundation
@JWinMcK
#makehealth2015 The Nightscout Foundation
The Nightscout Foundation exists to encourage and support the creation of open
source technology projects that enhance the lives of people with Type 1 Diabetes and
those who love them. This includes fundraising, advocacy, and direct software and
hardware development.
Technology
Nightscout (aka CGM in the Cloud) was
created by a group of parents who
needed tools, not already available, to
better manage the blood sugar of their
T1 child/ren. By identifying an existing
technology provided by the Dexcom
CGM, this group devised a way to make
the glucose information available to them
at a distance from their T1 child.
Advocacy
The Foundation meets directly with
members of the United States
Government’s Food and Drug
Administration, JDRF, Diabetes Hands
Foundation, Tidepool, and other
internationally recognized organizations
that support people with Type 1
Diabetes. The Nightscout Foundation
advocates for the expansion of existing
technologies to make life better for
people impacted by Type 1 Diabetes.
Fundraising
The Foundation raises funds to support
existing and new open-source projects
related to the T1 community, as well as
offering Awards and Scholarships to
members through the Visionary Awards
and funding attendees to conferences
such as Children with Diabetes Focus on
Technology.
What’s Next?
Partnership with Patient Centered Outcome Research Institute & U. Michigan
#OpenAPS
Microsoft Azure for Research
Why Continue?
This may be silly, but I need to ask. Is everyone still angry?
Some days are better than others, of course, but on the
"others" days, I'm just so damn mad that my kid has to deal
with this! Do the random tears ever just stop making surprise
visits to your eyes, or at least show up less frequently? Or,
am I being a giant baby and I should just grab the boot straps
and go to tugging?
Why Continue?