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ABSTRACT FORM
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Pain and other symptoms
Palliative care for cancer patients
Palliative care for non cancer
patients
Paediatric palliative care
Palliative care for the elderly
The actors of palliative care
Latest on drugs
Pain
Illness and suffering through
media
Marginalisation and social stigma
at the end of life
Palliative care advocacy projects
Prognosis and diagnosis
communication in
different cultures
Communication between doctor-
patient and patient-
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Religions and cultures versus
suffering, death and
bereavement
Public institution in the world:
palliative care policies
and law
Palliative care: from villages to
metropolies
Space, light and gardens for the
terminally ill patient
End-of-life ethics
Complementary therapies
Education, training and research
Fund-raising and no-profit
Bereavement support Volunteering in palliative care
Palliative care for HIV people in Milan: three years of experience in Hospice
Author: Agostino Zambelli
Luigi Sacco Hospital has always been involved in caring AIDS last phases of life.Our hospital has 90 beds for infectious disease patients, and supported a strong burden during allthe HIV epidemic, in spite of the global number of HIV positive people followed in Milan (about10% of the whole Italian cases).The deaths of HIV people till 1995, year of introduction of HAART, were daily and personnelwas not prepared to face this problem.We started with experimental home care in 1992 and, finally we arrived to open the Hospice inapril 2005. This was an important event because, before the opening, all patients died in thehospital or had to be sent in the only Hospice which accepted HIV positive people, far fromMilan.Our Hospice was born for HIV positive patients, but from the first moment it was open to allterminal patients, trying to avoid the stigma that burden HIV people.
Our Hospice is a part of the network for AIDS patients, comprehending Shelters, Home Care,Outpatients and Day hospital.From the opening we followed in the Hospice 335 pts, mean age 66y, 212 males and 123Females. 123 HIV pos, 56 Infectious non HIV (hepatitis B, C, Creutzfeldt Jakob disease), and156 not infectious (neoplasm, cardiac failure, cerebral failure, etc).The most important differences we evidenced between HIV positive and the other terminal
patients in our Hospice could be resumed in four groups: prognosis (difficult to establish anddefine in HIV people), fever and other symptoms due to infections (opportunistic or not), privacy(a big problem in HIV patients), social burden (familial problems, strangers, transsexuals, etc)
Need of pain therapy is lower in HIV patients than in cancer patients, while the use of sedativedrugs is usually higher.A special training has been established for nurses, doctors, psychologists, volunteers working inthe Hospice, both initial and permanent.
Session: Non cancer palliative care
Chair: Dott. M. Fantoni
Antea Worldwide Palliative Care ConferenceRome, 12-14 November 2008
Agostino Zambelli
mailto:[email protected]:[email protected]:[email protected] -
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Rehabilitation in palliative care
Palliative care quality indicators
Neurology in palliative care