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    Health-related Quality of Life of Persons with Cardiovascular Diseases1

    Table of Contents

    Page

    INTRODUCTION

    Background of the Study

    Cardiovascular diseases are illnesses that concerns the involvement of the heart

    and the blood vessels. The most common type of which is the coronary artery

    disease (CAD) also known as atherosclerotic heart disease, coronary heart disease(CHD), or ischemic heart disease (IHD), which cause heart attacks.

    (www.mountsinai.org) Heart attacks or arrest could mean the life of the patient anytime.That is why CHD is one of the leading causes of deaths in adults in developed countries.The overall rate of death in 2009 attributable to CVD was 236.1 per 100 000 (Go et al

    2012).

    In the USA, CAD accounted for killing more than 385,000 people annually eachyear (American Heart Association, 2008). Every year, still in the USA, almost 600,000

    people die of heart disease (Kochanek, Xu, Murphy, Minio, Kung 2011) and about

    715,000 Americans have a heart attack. Of these, 525,000 are a first heart attack and190,000 happen in people who have already had a heart attack (Go et al 2012). On this

    basis, more than 2150 Americans die of CVD each day, an average of 1 death every 40

    seconds (Go et al 2012).

    Deaths due to CVD also vary by ethnicity and Asians or Pacific Islanders rank 3rd

    among all other races (Heron, M. 2008). In the Philippines, as observed with theassociated fast-paced lifestyle, an increased in number of CHD patients is very likely. By

    the year 2001, 9 Filipinos die of cardiovascular illnesses every minute (Philippine Daily

    Inquirer- Science/ Health Section). While National Statistics Office (NSO, 2009) Manila

    enlisted the top 5 causes of deaths had remained on their posts and that of cardiovascular

    http://en.wikipedia.org/wiki/Heart_attackhttp://www.mountsinai.org/http://en.wikipedia.org/wiki/Heart_attackhttp://www.mountsinai.org/
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    Health-related Quality of Life of Persons with Cardiovascular Diseases2

    diseases is one enlisted there. Latest World Health Organization (WHO) data published

    in April 2011 CHD deaths in Philippines reached 57,864 or 13.73% of total deaths. The

    age adjusted death rate is 121.63 per 100,000 of population making the Philippines #79 inthe world rank for CHD. In line with this, Philippines top 20 causes of death is CHD

    ranking as the top 1 cause of mortality (http://www.worldlifeexpectancy.com/philippines-

    coronary-heart-disease).

    In the Baguio City alone, Department of Health- Cordillera Administrative

    Region (DOH-CAR) statistics 2011 shows that Saint Louis University Hospital of theSacred Heart (SLU-HSH) recorded 792 cases of CAD in the same year as the top 7 cause

    of morbidity and on the top 10 leading cause of mortality and as of September to

    December 2012 records, CAD ranked 5th both among the top 10 leading cases of

    morbidity and mortality in the same institution giving the impression of an increasingtrend. Furthermore, Baguio General Hospital and Medical Center (BGHMC) documented

    CAD ranked as 13th on the top 20 leading causes of morbidity and top 4 as a leading

    cause of mortality in the year 2011. In the same year, Notre Dame de Chartres Hospital,

    the only hospital with a cardiac laboratory in Baguio City, recorded CAD with 275 casesmaking it 3rd on the top 10 leading causes of morbidity and 2nd among the top 10

    leading causes of mortality (DOH-CAR, 2011).

    CAD in its many forms according to Lee (2010), is a chronic disease with

    symptoms that requires constant observation or examination and management to avoidfurther complications such as myocardial infarctions (MIs) and chronic heart failure

    (CHF). Having this chronic disease with a high mortality rate, holistic care work-up for

    the maintenance of these patients quality of life (QoL) specifically pertaining to their

    heart illness is a must. The term QoL references the general well-being of individuals andsocieties. The term is used in a wide range of contexts, including in the field of

    healthcare. Standard indicators of the QoL include not only wealth and employment but

    also the built environment, physical and mental health, education, recreation and leisuretime, and social belonging (Gregory, Johnston, Pratt, Watts, Whatmore, 2009 and

    Nussbaum, M & Sen, A. ed. 1993).

    Hence, HRQoL or QoL interchangeably, is a broad multidimensional concept

    encompassing self-reported measures of physical and mental health (Beck & Shah 2012).

    This faade refers to how a health condition impacts a persons perception of their well-

    being. HRQoL consists several domains which includes functional ability, psychologicalstate, social function, overall life satisfaction and an individuals perception of his own

    health. Health is defined by WHO as being not only the absence of disease and infirmity

    but also the presence of physical, mental, and social well-being, and so quality-of-lifeissues have become steadily more important in health care practice and research. And by

    that definition, health is one of the main components defining the concept of QoL, along

    with other aspects of perceptions, social, experiences, expectations, economic andcultural; in which may be referred collectively as perceptions of health according to Testa

    & Simonson (1996). An importance of HRQoL measurement according to American

    Heart Association (AHA) is that HRQoL measurements can be used in measuring

    effectiveness of treatment and predict the long-term mortality after a cardiac event. This

    http://www.worldlifeexpectancy.com/philippines-coronary-heart-diseasehttp://www.worldlifeexpectancy.com/philippines-coronary-heart-diseasehttp://en.wikipedia.org/wiki/Martha_Nussbaumhttp://en.wikipedia.org/wiki/Amartya_Senhttp://www.worldlifeexpectancy.com/philippines-coronary-heart-diseasehttp://www.worldlifeexpectancy.com/philippines-coronary-heart-diseasehttp://en.wikipedia.org/wiki/Martha_Nussbaumhttp://en.wikipedia.org/wiki/Amartya_Sen
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    Health-related Quality of Life of Persons with Cardiovascular Diseases3

    is also in line with the main goals of treating CAD which is prolonging life and

    improving HRQoL (Klocek & Kawecka-Jaszcz, 2013). An improvement in HRQoL is

    considered to be important as a primary outcome and in the determination of therapeuticeffects. In addition, this could also serve as a means of secondary prevention strategies

    (Dempster, Donnelly, & O'Loughlin, 2004). This goal could be attained way through

    upon starting of HRQoL determination over CVD patients HRQoL assessment.

    As previously described, it is now safe to say that HRQoL assessment is an

    important measurement of the impact of the disease, effect of treatment and othervariables affecting peoples lives (Thompson & Yu, 2003). As mentioned earlier, Lee

    (2013) discussed that an advantage of QoL is that it not only takes physical health into

    consideration but emotional and social aspects of life and that of physicians' perspectives

    and patients' perspectives can be very different in which a physician may regard as asuccessful procedure may not be perceived in the same light as the patient or their family.

    Furthermore, examining both perspectives may ensure patients and healthcare

    professionals setting realistic goals about what to expect following interventions, in

    particular after any cardiac interventions including surgery. At this point of caring to ourpatients, advantage of measuring CVD patients HRQoL is worthy looking upon since

    Lukkarinen (2008) suggested that consideration of patients HRQoL should be takenalongside with the clinical severity of the disease.

    With the presence of a CVD, QoL is directly affected. Sawatzky et al. (2005)observed that those with chronic illness tend to participate in less physical activity which

    in turn can worsen their physical QoL and increase problems such as immobility and pain

    affecting how their overall HRQoL. The challenge seems to be balancing the symptoms

    of chronic illness from comorbidities and maximizing the benefits of cardiacinterventions. CAD is a progressive condition and while procedures only seek to relieve

    symptoms, they are not curative. The importance of monitoring and managing other

    comorbid conditions is essential to maximize QoL.

    Another importance of determination of CVD patients HRQoL is that some of

    the studies like that of Xie, Wu, & Zheng (2008) revealed that better treatments prolonglife expectancy of CHD patients but that quality of those extra years may be less than

    ideal. In this context, knowledge about patients HRQoL is a vital data for health care

    professionals which reflects the appropriateness of their given intervention for these

    patients in their attempt to improve HRQoL. Beck & Shah (2012) also agreed thatpatient-centered outcomes which includes HRQoL will become even more important as

    individuals adjust to living with chronic conditions such as in CAD.

    The challenge for healthcare professionals more importantly to the nurses since

    assessment is an innate role of the nurses in the area, is to assess patients QoL, recognize

    and manage these potentially confounding variables and ultimately improve apatient's QoL. The aforementioned task can only be done if health care professionals had

    a view of cardiac patients HRQoL. Nevertheless, in Baguio City, where as observed

    coronary patients are exponentially increasing, no available literature that I came across

    that focused on the said aspect of care. As a routine, some if not all of the cardiologists in

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    Health-related Quality of Life of Persons with Cardiovascular Diseases4

    the country assesses their patients with the different clinical signs and symptoms as

    expected from the said medical condition however, these assessments are not quantified

    as to per domains of QoL to determine whether they have poor or good QoL. Basing onrelated literatures which has already presented QoL and its importance to persons with

    CVD, no studies until at present had been made in Baguio City measuring the QoL of

    these specific patients.

    Objectives of the Study

    The objectives of the study are:

    To describe the global QoL of CVD patients

    To determine the QoL of CVD patients per domains or subscales of QoL

    To explore how dependent variables affects QoL of patients with CVD

    Research Problems

    1. What is the total QoL of persons with CVD in Baguio City?

    2. What is the QoL of persons with CVD in Baguio City along:a. Physical functioning

    b. Emotional functioning

    c. Socioeconomic functioningd. Psychological/ spiritual

    3. Is there a significant difference in the QoL of persons with CVD according to:

    a. Ageb. Gender

    c. Educational attainment

    d. Marital statuse. Socioeconomic status

    Framework of the Study

    Dorothea Orems Self-Care Deficit theory is the principle that guides the study.

    Accordingly, in the theory of self-care, the performance or practice of activities thatindividuals initiate and perform or the activities of daily living (ADLs) on their own

    behalf to maintain life, health and well-being. If there is a deficit that exists when the

    patient cannot carry out his ADLs, it is where the role of the nurses come in to fulfill theinsufficiency in activities of the patient. There are three nursing systems in the theory

    which include the supportive-educative nursing system or also known as the supportive-

    developmental system. Here, the patient is doing all of the self-care and is able toperform or can and should learn to perform required measures of externally or internally

    oriented therapeutic self-care but cannot do so without assistance and so patients require

    for help confined to decision making, behavior control and acquiring knowledge andskills.

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    Health-related Quality of Life of Persons with Cardiovascular Diseases5

    In relation to the study, patients QoL is a dual responsibility by the health care

    team and the patient in which CVD clients seek support from the nurses by way ofeducative means when they experience a deficit and so to make-up for that which in turn

    can improve CVD patients knowledge on QoL that may contribute to improvement of

    QoL (George, 1995).

    Significance of the Study

    Nursing Practice

    This study could provide a foundation in the promotion of a routine heart disease

    QoL assessment to our coronary patients with the utilization of some validated

    instruments. The interpreted measured QoL may be used for monitoring patient care,improvement of the patient, informing the health care team on patient wellness

    throughout the health care process. In the process, this may also contribute to thedevelopment of an algorithm for CVD patients assessment. The proposed algorithm isattached in the appendices.

    Nursing Education

    This piece of knowledge could be used in discussion of CVD management in

    Medical Surgical Nursing as well as on how to handle this patients. Nurses in the

    academe acting as clinical instructors as well as the student nurses will have their

    knowledge reinforcements regarding QoL, which may lead to their change in behaviortowards QoL of CVD patients therefore acting as a change agent in delivery of care

    improving QoL of their specified clients. Utilization of the different tools could also betaught so that proper QoL assessment could be facilitated.

    Nursing Research

    This study will be the basis of future research.

    Respondents

    This would be of significant to the patients because measurement of HRQoL isaim to determine the patients own experience of health and illness particularly CVD in a

    broad perspective. A persons QoL is greatly affected by his or her expectationsregarding health and their ability to cope with limitations and disability. With this study,

    CVD patients will further realize importance and maintenance of QoL despite CVD.

    Upon realization, patients would be receptive of their own health status and therefore

    may lead to continuous or attitude change towards positive perspective making themmore productive all throughout despite the disease process.

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    Health-related Quality of Life of Persons with Cardiovascular Diseases6

    METHODS and PROCEDURES

    Research Design

    The study will be using descriptive quantitative research. Quantitative researchinvolves the systematic collection of numerical information, often under conditions of

    considerable control and the analysis of that information using statistical procedure (Polit,

    2008).

    Locale and Population

    The respondents will be residents of Baguio City who seek for a medical

    consultation to a cardiologists. The inclusion criteria include those who are diagnose of

    any CVD, of legal age or consenting age so they can give their informed consent

    specifically those who are considered in their middle adulthood aging 40-65 years oldaccording to Ericksons developmental theory. The respondents will be those who are

    ambulatory and not in coma. Total enumeration will be used at the scheduled day of data

    gathering in a cardiologists clinic and in the outpatient department of selected hospitals.

    The total number of CVD incidence in Baguio City to be obtained in the Baguio

    Health Department as well as NSO Baguio City and the sample size is based on Cochranewhich dictates 385 respondents to be completed.

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    Health-related Quality of Life of Persons with Cardiovascular Diseases7

    Data Gathering Tool

    A closed-ended questionnaire will be used to gather data for the study, which is

    composed of 2 fully-adapted tools. The Short Form 36 (SF-36) and Quality of Life Index

    Cardiac Version IV (QLI) are copyrighted tools and are free for use, nevertheless, theresearcher sent an email to the authors notifying them for the utilization of the said tools

    in which they confirmed the permission to use the tool. Both tools are highly-reliable and

    valid for measuring QoL of patients with CVD and had been already used in a variousstudies in a wide variety of settings such as in the different countries mentioned earlier.

    The utilization of the said tools would be enough to measure or answer the research

    questions. The scores are directly related to QoL whereas the higher the scores, the betterthe QoL and lower scores signifies poor QoL.

    Tool (1) Medical Outcomes Study Short Form-36 is a generic tool, meaning not a

    disease specific tool, was from a longer instruments which were completed by the

    patients who were participating in the Medical Outcomes Study, an observational studyof the different practice styles by the physicians and in different systems of health care

    delivery in relation with the patient outcomes and turned out to had a Cronbachs alpharanges between 0.64-0.92 (Thompson & Yu, 2003). This scale contains 36-item which

    has eight subscales namely: (1) Physical functioning; (2) bodily pain; (3) role limitations

    due to physical health problems; (4) role limitations due to personal or emotionalproblems; (5) emotional well-being; (6) social functioning; (7) energy/fatigue; and (8)

    general health perceptions. The scores are directly proportional to the Health-related

    Quality of Life wherein the higher the scores are, the better HRQL is.

    Physical functioning includes item numbers 3 to 12 while role limitations due to

    physical health problems are numbered 13 to 16. Role limitations due to personal oremotional problems consisted of items number 17- 19 while energy/ fatigue items arerandomly numbered as 23, 27, 29 and 31. Emotional well-being subscale has items

    number 24 to 26, 28 and 30. Social functioning subscale has items number 20 and 32

    while bodily pain or simply pain subscale is items number 21 and 22. Lastly, generalhealth subscale items are numbers 1, 2 and 33 to 36.

    Tool (2) Ferrans and Powers Quality of Life Index (QLI) Cardiac Version IVconsists 70 items. These 70 items were divided into 2 parts equally. Part 1 measures the

    patients satisfaction in relation with the different life domains, and Part 2 measures the

    significance of these domains to the patient. The QLI cardiac version-IV has domains

    of 4 namely health and functioning, socioeconomic, psychological and spiritual, family)and global QoL or total QoL. The scales and items have satisfactorily reliable and valid

    (Durmaz, Ozdemir, Keles, Akar Bayram, & Bozkuri, 2009). These subscales consisted of

    respective items. In the health and functioning subscale, this consisted of items number 1to 8, 12, 17 to 19, 26-27 and 35. Socioeconomic subscale included items number 14, 16,

    and 20 to 25. Items numbered 28 to 34 belongs to psychological and spiritual subscale

    and the remaining items numbered 9 to 11, 13 and 15 consisted the family domain.

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    Health-related Quality of Life of Persons with Cardiovascular Diseases8

    Computation of the

    Data-Gathering Procedure

    The researcher will make a communication letter to the BHD and NSO to be

    noted by the research adviser for the procurement of numerical data of incidences ofCVD in Baguio City. The researcher will also make a request letter to be shown to the

    different cardiologists, still to be noted by the research adviser, for the doctors

    permission for the researcher to be able to float the questionnaires to their patients. Thisprocedure would be repeatedly done until the required number of respondents are

    completed. The researcher may also go back again in a particular clinic to gather other

    CVD patients in a different occasion providing that the doctors have given permission.

    Upon face to face with the CVD patients, the researcher will establish rapport

    with the respondents and will give a consent letter asking for their approval to answer the

    questionnaire. They will be instructed to put a check mark on the boxes and encircle the

    numbers provided for their choice. The researcher will check the consent letter for theresponse. If the respondents agreed to participate, the administration of the questionnaire

    then follows. The researcher will explain the purpose of the research, the nature of thestudy and the likely risks and benefits that would be incurred. The respondents will be

    informed that their answers will be treated anonymously and confidentially. During the

    collection of the questionnaires, the researcher will maintain a distance enough for therespondents to approach if there would be some questions or clarifications regarding the

    research or the tool itself. After answering, the questionnaires will be check for the

    completeness of the answers before leaving the area. The data will then be tallied and will

    be organized for interpretation.

    Statistical Treatment

    After meeting- up the sample size, descriptive and inferential statistics will beutilized to treat data that will be gathered to answer the research questions. Students t-

    test and analysis of variance will be used in the statistical analysis. P

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    Health-related Quality of Life of Persons with Cardiovascular Diseases9

    APPENDICES

    Tools/ScaleMedical Outcomes Study: 36-Item Short Form Survey Instrument

    1. In general, would you say your health is:

    Excellent 1

    Very good 2

    Good 3

    Fair 4

    Poor 5

    2. Compared to one year ago, how would you rate your health in general now?

    Much better now than one year ago 1

    Somewhat better now than one year ago 2

    About the same 3

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    Health-related Quality of Life of Persons with Cardiovascular Diseases10

    Somewhat worse now than one year ago 4

    Much worse now than one year ago 5

    The following items are about activities you might do during a typical day. Does your

    health now limit you in these activities? If so, how much?

    (Circle One Number on Each Line)

    Yes, Limited

    a Lot

    Yes, Limited

    a Little

    No, Not

    limited at All

    3. Vigorous activities, such as running, lifting

    heavy objects, participating in strenuous sports

    [1] [2] [3]

    4. Moderate activities, such as moving a table,

    pushing a vacuum cleaner, bowling, or playinggolf

    [1] [2] [3]

    5. Lifting or carrying groceries [1] [2] [3]

    6. Climbing several flights of stairs [1] [2] [3]

    7. Climbing one flight of stairs [1] [2] [3]

    8. Bending, kneeling, or stooping [1] [2] [3]

    9. Walking more than a mile [1] [2] [3]

    10. Walking several blocks [1] [2] [3]

    11. Walking one block [1] [2] [3]

    12. Bathing or dressing yourself [1] [2] [3]

    During the past 4 weeks, have you had any of the following problems with your work or

    other regular daily activities as a result of your physical health?

    (Circle One Number on Each Line)

    Yes No

    13. Cut down the amount of time you spent on work or other activities 1 2

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    Health-related Quality of Life of Persons with Cardiovascular Diseases11

    14. Accomplished less than you would like 1 2

    15. Were limited in the kind of work or other activities 1 2

    16. Had difficulty performing the work or other activities (for example, it took

    extra effort)

    1 2

    During the past 4 weeks, have you had any of the following problems with your work or

    other regular daily activities as a result of any emotional problems (such as feeling

    depressed or anxious)?

    (Circle One Number on Each Line)

    Yes No

    17. Cut down the amount of time you spent on work or other activities 1 2

    18. Accomplished less than you would like 1 2

    19. Didn't do work or other activities as carefully as usual 1 2

    20. During the past 4 weeks, to what extent has your physical health or emotional

    problems interfered with your normal social activities with family, friends, neighbors, or

    groups?

    (Circle One Number)

    Not at all 1

    Slightly 2

    Moderately 3

    Quite a bit 4

    Extremely 5

    21. How much bodily pain have you had during the past 4 weeks?

    (Circle One Number)

    None 1

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    Very mild 2

    Mild 3

    Moderate 4

    Severe 5

    Very severe 6

    22. During the past 4 weeks, how much did pain interfere with your normal work

    (including both work outside the home and housework)?

    (Circle One Number)

    Not at all 1

    A little bit 2

    Moderately 3

    Quite a bit 4

    Extremely 5

    These questions are about how you feel and how things have been with you during the

    past 4 weeks. For each question, please give the one answer that comes closest to the way

    you have been feeling.

    How much of the time during the past 4 weeks . . .

    (Circle One Number on Each Line)

    All of theTime

    Most ofthe Time

    A Good Bitof the Time

    Some ofthe Time

    A Little ofthe Time

    None ofthe Time

    23. Did you feel full of

    pep?

    1 2 3 4 5 6

    24. Have you been a very

    nervous person?

    1 2 3 4 5 6

    25. Have you felt so down

    in the dumps that nothingcould cheer you up?

    1 2 3 4 5 6

    26. Have you felt calm

    and peaceful?

    1 2 3 4 5 6

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    Health-related Quality of Life of Persons with Cardiovascular Diseases13

    27. Did you have a lot of

    energy?

    1 2 3 4 5 6

    28. Have you felt

    downhearted and blue?

    1 2 3 4 5 6

    29. Did you feel wornout?

    1 2 3 4 5 6

    30. Have you been a

    happy person?

    1 2 3 4 5 6

    31. Did you feel tired? 1 2 3 4 5 6

    32. During the past 4 weeks, how much of the time has your physical health or emotional

    problems interfered with your social activities (like visiting with friends, relatives, etc.)?

    (Circle One Number)

    All of the time 1

    Most of the time 2

    Some of the time 3

    A little of the time 4

    None of the time 5

    How TRUE or FALSE is each of the following statements for you.

    (Circle One Number on Each Line)

    Definitely

    True

    Mostly

    True

    Don't

    Know

    Mostly

    False

    Definitely

    False

    33. I seem to get sick a

    little easier than other

    people

    1 2 3 4 5

    34. I am as healthy as

    anybody I know

    1 2 3 4 5

    35. I expect my health toget worse

    1 2 3 4 5

    36. My health is excellent 1 2 3 4 5

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    Health-related Quality of Life of Persons with Cardiovascular Diseases14

    Ferrans and Powers QUALITY OF LIFE INDEX CARDIAC VERSION - IV

    PART 1. For each of the following, please choose the answer that best describes how

    satisfied you are with that area of your life. Please mark your answer by circling the

    number. There are no right or wrong answers.

    HOW SATISFIED ARE YOU WITH:

    VeryD

    issatisfied

    ModeratelyDissatisfied

    SlightlyDissatisfied

    SlightlySatisfied

    ModeratelySatisfied

    Very

    Satisfied

    1. Your health? 1 2 3 4 5 6

    2. Your health care? 1 2 3 4 5 6

    3. The amount of chest pain (angina) that you 1 2 3 4 5 6

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    Health-related Quality of Life of Persons with Cardiovascular Diseases15

    have?

    4. Your ability to breathe without shortness

    of breath?

    1 2 3 4 5 6

    5. The amount of energy you have for

    everyday activities?

    1 2 3 4 5 6

    6. Your ability to take care of yourselfwithout help?

    1 2 3 4 5 6

    7. The amount of control you have over your

    life?

    1 2 3 4 5 6

    8. Your chances of living as long as youwould like?

    1 2 3 4 5 6

    9. Your familys health? 1 2 3 4 5 6

    10. Your children? 1 2 3 4 5 6

    11. Your familys happiness? 1 2 3 4 5 6

    12. Your sex life? 1 2 3 4 5 6

    13. Your spouse, lover, or partner? 1 2 3 4 5 6

    14. Your friends? 1 2 3 4 5 615. The emotional support you get from your

    family?

    1 2 3 4 5 6

    16. The emotional support you get from

    people other than your family?

    1 2 3 4 5 6

    17. Your ability to take care of family

    responsibilities?

    1 2 3 4 5 6

    18. How useful you are to others? 1 2 3 4 5 6

    19. The amount of worries in your life? 1 2 3 4 5 6

    20. Your neighborhood? 1 2 3 4 5 6

    21. Your home, apartment, or place where

    you live?

    1 2 3 4 5 6

    22. Your job (if employed)? 1 2 3 4 5 6

    23. Not having a job (if unemployed, retired,or disabled)?

    1 2 3 4 5 6

    24. Your education? 1 2 3 4 5 6

    25. How well you can take care of your

    financial needs?

    1 2 3 4 5 6

    26. The things you do for fun? 1 2 3 4 5 6

    27. Your chances for a happy future? 1 2 3 4 5 6

    28. Your peace of mind? 1 2 3 4 5 6

    29. Your faith in God? 1 2 3 4 5 6

    30. Your achievement of personal goals? 1 2 3 4 5 6

    31. Your happiness in general? 1 2 3 4 5 6

    32. Your life in general? 1 2 3 4 5 6

    33. Your personal appearance? 1 2 3 4 5 6

    34. Yourself in general? 1 2 3 4 5 6

    35. The changes in your life that you havehad to make because of your heart problem

    1 2 3 4 5 6

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    Health-related Quality of Life of Persons with Cardiovascular Diseases16

    (for example, changes diet, physical activity,

    and/or smoking?)

    PART 2. For each of the following, please choose the answer that best describes howimportant that area of your life is to you. Please mark your answer by circling the

    number. There are no right or wrong answers.

    HOW SATISFIED ARE YOU WITH:

    VeryUnimportant

    ModeratelyUnimportant

    SlightlyUnimportant

    SlightlyImportant

    ModeratelyImportant

    VeryImportant

    1. Your health? 1 2 3 4 5 62. Your health care? 1 2 3 4 5 6

    3. Having no chest pain (angina)? 1 2 3 4 5 6

    4. Having no shortness of breath? 1 2 3 4 5 6

    5. Having enough energy for everyday

    activities?

    1 2 3 4 5 6

    6. Taking care of yourself without help? 1 2 3 4 5 6

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    7. Having control over your life? 1 2 3 4 5 6

    8. Living as long as you would like? 1 2 3 4 5 6

    9. Your familys health? 1 2 3 4 5 6

    10. Your children? 1 2 3 4 5 6

    11. Your familys happiness? 1 2 3 4 5 6

    12. Your sex life? 1 2 3 4 5 613. Your spouse, lover, or partner? 1 2 3 4 5 6

    14. Your friends? 1 2 3 4 5 6

    15. The emotional support you get from your

    family?

    1 2 3 4 5 6

    16. The emotional support you get from

    people other than your family?

    1 2 3 4 5 6

    17. Taking care of family responsibilities? 1 2 3 4 5 6

    18. Being useful to others? 1 2 3 4 5 6

    19. Having no worries? 1 2 3 4 5 6

    20. Your neighborhood? 1 2 3 4 5 6

    21. Your home, apartment, or place whereyou live?

    1 2 3 4 5 6

    22. Your job (if employed)? 1 2 3 4 5 6

    23. Having a job (if unemployed, retired, or

    disabled)?

    1 2 3 4 5 6

    24. Your education? 1 2 3 4 5 6

    25. Being able to take care of your financialneeds?

    1 2 3 4 5 6

    26. Doing things for fun? 1 2 3 4 5 6

    27. Having a happy future? 1 2 3 4 5 6

    28. Peace of mind? 1 2 3 4 5 6

    29. Your faith in God? 1 2 3 4 5 6

    30. Achieving your personal goals? 1 2 3 4 5 6

    31. Your happiness in general? 1 2 3 4 5 6

    32. Being satisfied with life? 1 2 3 4 5 6

    33. Your personal appearance? 1 2 3 4 5 6

    34. Are you to yourself? 1 2 3 4 5 6

    35. The changes in your life that you have

    had to make because of your heart problem(for example, changes diet, physical activity,

    and/or smoking?)

    1 2 3 4 5 6

    ALGORITHM

    Specific diagnostic

    work-ups forestablishment of CVDNegative Positive

    Not managed as CVD

    patients

    Managed as CVD

    patients

    SF-36 & QLI

    cardiac v. IV

    administratioFollow-up check ups

    Various domains affectingQoL (physical, emotional,socioeconomic,

    psychological/ spiritual)

    QoL interpretation

    and classificationaccording to

    Determination of QoL

    according to preferredscales

    Health teaching provision or reinforcement of knowledge asnecessary depending upon which domain of QoL results in low

    QoL

    Improvement of QoL

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    A patient should be fully established of any CVD diagnosis and have already sought for

    treatment or management and the assessment of QoL should be administered upon

    follow-up check-up in using the SF-36 and QLI cardiac version IV and be monitoredthereafter. Classification of QoL will then be facilitated using the preferred scaling. The

    degree for the need of educative function of nurses in the various QoL domains can be

    initiated depending from the patients QoL results.

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    Health-related Quality of Life of Persons with Cardiovascular Diseases19

    REFERENCES

    American Heart Association, 2008

    Asadi-Lari, M., Packham, C., & Gray, D. (2003). Patient's Satisfaction and Quality of

    Life in Coronary Artery Disease.Health and Quality of Life Outcomes .

    Beck, C., & Shah, S. (2012). Research on Health-related Quality of Life and Cardiac

    Conditions.Medline .

    Brown, N., Melville, M., Gray, D., Young, T., Munro, J., & Skene, A. (1999). Quality of

    Life Four Years After Acute Myocardial Infarction: Short Form 36 Scores Compared

    with a Normal Population.Heart.

    Constitution of the World Health Organization. In: World Health Organization.

    Handbook of basic documents. 5th ed.

    Dempster, M., Donnelly, M., & O'Loughlin, C. (2004). The Validity of the New Quality

    of Life in Heart Disease Questionnaire.Health and Quality of Life Outcomes .

    Dunderdale K, T. D. (2005). Quality-of-life measurement in chronic heart failure: do we

    take account of the patient perspective?European Journal of Heart Failure , 572-582.

    Durmaz, T., Ozdemir, O., Akyunak Ozdemir, B., Keles, T., Akar Bayram, N., & Bozkurt,

    E. (2009). Factors Affecting Quality of Life in Patients with Coronary Heart Disease.Turk J Med Sci.

    George, JB (1995), Nursing Theories- The base for professional Nursing Practice, 3rd ed. Norwalk, Appleton

    & Lange.

    Go AS, Mozaffarian D, Roger VL, Benjamin EJ, Berry JD, Borden WB, Bravata DM,

    Dai S, Ford ES, Fox CS, Franco S, Fullerton HJ, Gillespie C, Hailpern SM, Heit JA,

    Howard VJ, Huffman MD, Kissela BM, Kittner SJ, Lackland DT, Lichtman JH, Lisabeth

    LD, Magid D, Marcus GM, Marelli A, Matchar DB, McGuire DK, Mohler ER, Moy CS,

    Mussolino ME, Nichol G, Paynter NP, Schreiner PJ, Sorlie PD, Stein J, Turan TN, ViraniSS, Wong ND, Woo D, Turner MB; American Heart Association Statistics Committee

    and Stroke Statistics Subcommittee. Heart disease and stroke statistics2013 update: a

    report from the American Heart Association. Circulation. 2013 Jan 1;127(1):e6-e245.

    doi: 10.1161/CIR.0b013e31828124ad. Epub 2012 Dec 12. Retrieved from HYPERLINK

    "http://circ.ahajournals.org/content/127/1/e6.long"

    http://circ.ahajournals.org/content/127/1/e6.long

  • 7/27/2019 1st revision3 - 97-03

    20/22

    Health-related Quality of Life of Persons with Cardiovascular Diseases20

    HYPERLINK "http://en.wikipedia.org/wiki/Derek_Gregory" \o "Derek Gregory"

    Gregory, Derek ; Johnston, Ron; Pratt, Geraldine; HYPERLINK

    "http://en.wikipedia.org/wiki/Michael_Watts" \o "Michael Watts" Watts, Michael

    ; Whatmore, Sarah, eds. (June 2009). "Quality of Life". Dictionary of Human

    Geography (5th ed.). Oxford: Wiley-Blackwell. Retrieved from: pwias.ubc.ca. 2013

    Kiessling, A. (2005). Quality of Care anf Quality of Life in Coronary Artery Disease.

    Karolinska, Institutet at Danderyd University Hospital, Department of Internal Medicine,

    Stockholm, Sweden.

    Klocek, M., & Kawecka-Jaszcz, K. (2013). Quality of Life in Patients with Coronary

    Artery Disease. Springer-Verlag Italia .

    Kochanek KD, Xu JQ, Murphy SL, Minio AM, Kung HC.(2011) HYPERLINK

    "http://www.cdc.gov/nchs/data/nvsr/nvsr60/nvsr60_03.pdf" \t "_blank" Deaths:

    final data for 2009. National vital statistics reports.

    Lalonde, L., Clarke, A., Joseph, L., MacKenzie, T., & Grover, S. (2001). Health-related

    Quality of Life with Coronary Heart Disease Prevention and Treatment. Journal of

    clinical Epidemiology.

    Lau-Walker, M., Cowie, M., & Roughton, M. (2008). Coronary Heart Disease Patients'

    Perception of their Symptoms and Sense of Control are Associated with their Quality of

    Life Three Years Following Hospital Discharge.Journal of Clinical Nursing.

    Lee, G. (2010). Coronary Artery Disease and Quality of Life. Center for International

    Rehabilitation Research Informaion and Exchange (CIRRIE) .

    Lukkarinen, H. (2008). Assessment of Quality of Life with the Nottingham Health Profile

    among Patients with Coronary Heart Disease.Journal of Advanced Nursing.

    Mhaila, E. (2010). The Role of Avoidable Mortality in Health Assessment . Management

    in Health.

    HYPERLINK "http://en.wikipedia.org/wiki/Martha_Nussbaum" \o "Martha

    Nussbaum" Nussbaum, M and HYPERLINK

    "http://en.wikipedia.org/wiki/Amartya_Sen" \o "Amartya Sen" Sen, A. ed.

    (1993). The Quality of Life, Oxford: Clarendon Press. Retrieved fromhttp://www.oxfordscholarship.com

    Rosengren, A., Hawken, S., Ounpuu, S., Sliwa, K., Zubaid, M., & Almahmeed, W.

    (2004). INTERHEART study: Control Study.Lancet.

  • 7/27/2019 1st revision3 - 97-03

    21/22

    Health-related Quality of Life of Persons with Cardiovascular Diseases21

    Rumsfeld, J., MaWhinney, S., McCarthy, M. J., Shroyer, A., VillNueva, C., O'Brien, M.,

    et al. (1999). Health-Related Quality of ife as a Predictor of Mortality Following

    Coronary Artery Bypass Grafty Surgery.American Medical Association .

    Spertus, J., Jones, P., McDonnel, M., Fan, V., & Fihn, S. (2002). Health Status Predicts

    Long-Term Outcome in Outpatients with Coronary Disease. Circulation .

    Stafford, L., Berk, M., & Jackson, H. (2009). Are Illness Perceptions about Coronary

    Artery Disease Predictive of Depresssion and Quality of Life Outcome? Journal of

    Psychosomatic Research .

    Stafford, L., Berk, M., & Jackson, H. (2013). Tobacco Smoking Predicts Depression and

    Poorer Qualoty of Life in Heart Disease.BMC Cardiovascular Disorders .

    Staniute, M., & Brozaitiene, J. (2010). Changes in Health- Related Quality of Life among

    Patients with Coronary Artery Disease: A 2-year Follow-up.Medicina (Kuanas) .

    Tavella, R., & Beltrame, J. (2012). Cardiac Rehabilitation may not Provide a Quality of

    Life Benefit in Coronary Artery Disease Patients.BMC Health Services Research .

    Testa, M., & Simonson, D. (1996). Assessment of Quality of Life Outcomes. The New

    England Journal of Medicine .

    Thompson, D., & Yu, C. (2003). Quality of Life in Patients with Coronary Heart Disease-

    I: Assessment tools.Health and Quality of Life Outcomes .

    Tofighi, S., Kiadaliri, A., Sadeghifar, J., Raadabadi, M., & Mamikhani, J. (2012). Health-

    Related Quality of Life among Patients with Coronary Artery Disease: A Post-TreatmentFollow-Up Study in Iran. Cardiology Research and Practice .

    Ware, J. (2003). Conceptualization and Measurement of Health-Related Quality of Life:

    Comments on an Evolving Field.American Congress of Rehabilitation Medicine .

    Westin, L., Carlsson, R., Israelsson, B., Willenheimer, R., Vline, C., & McNeil, T.

    (1997). Quality of Life in Patients with Ischemic Heart Disease: A Prospective

    Controlled Study.J Intern Med.

    Xie, J., Wu, E., & Zheng, Z. (2008). Patient-reported Health Status in Coronary Heart

    Disease in the United States. Age, Sex, Racial and Ethnic Differences. Circulation.

  • 7/27/2019 1st revision3 - 97-03

    22/22

    Health-related Quality of Life of Persons with Cardiovascular Diseases22