addressing psychosocial support needs of transitioning adolescents living with hiv since childhood:...
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Addressing Psychosocial Support Needs of
Transitioning Adolescents Living with HIV Since Childhood: A Global
PerspectiveRena Greifinger, MSIndependent Consultant
Director, One Love Project at Next Step
2012 International AIDS ConferenceWashington D.C. USA
ADHERING TO MEDS
Anatomy of an Adolescent Brain
DISCLOSURE
GETTING TO THE
DOCTOR
FEELING
ISOLATED
AND
DEPRESSED TAKING CARE OF OTHERS
Living with HIV
DEALING WITH
STIGMA
COPING WITH LOSS
What Does Psychosocial Mean?Unpacking our definition.
Psycho - Feelings, thoughts, beliefs, and attitudes.
Social - Interactions, culture, family, peers, school.
Psychosocial supportIndividual and group counselingPeer supportCase management
Psychosocial well being ICAP Adolescent HIV Care and Treatment
SOCIETY/POLICY
COMMUNITY
ORGANIZATIONAL
INTERPERSONAL
INDIVIDUALCoping w/diagnosisFear/anxiety about the futureMental health/substance useStigmapoverty
Weak social/family support
Loss/bereavement
Weak linkages to care
Weak referral systems Lack of
trained professionals
Stigma
Gender inequality
Stigma
Stigma
Stigma
Political inertia
Unsupportive schools
Workplace discrimination
Policies go unnoticed
Churches/religious institutions
Lack of funding
Disclosure
1. Provide psychosocial support that is holistic, intentional and sustainable
Address all clinical and psychosocial needs
Design programs for ALHIV specifically
Provide long-term support
Recommendations from the field, for the field
Recommendations from the field, for the field
2. Provide training and capacity-building
Clinical care needs
Sexual and reproductive health
Creating a youth-friendly environment
3. Critically involve ALHIV
Treat ALHIV as the experts that they are
Create meaningful partnerships with adults
Shift paradigm from survival to quality of life
Harness the power of peers
Recommendations from the field, for the field
4. Improve linkages to care & support
SRH services including PMTCT
Adult care services
Peer and psychosocial support
Education and employment support
Recommendations from the field, for the field
• Annual 5-day retreat for YPLHIV and health care providers
• Grounded in positive youth development
• Ongoing engagementmodel
No Longer Voiceless Conference
* disease progression * adherence * poetry interviewing * financial literacy * advocacy * yoga * complementary therapies * housing * college options * non-college options * substance use * sexual health * relationships * disclosure * zumba * music therapy * painting * public speaking * resume writing * social media * peer pressure * bullying * dancing * stress management * the law * nutrition *
2012 Agenda
Impact
• Improved confidence, attitude, self-efficacy
• Increased linkages to care, psychosocial support, job training, advocacy, media; etc.
• Replication– One Love West Coast– SHIFT Uganda
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