anita macdonald. liquid protein substitute substitute

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Anita MacDonald Anita MacDonald

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Page 1: Anita MacDonald. Liquid protein substitute substitute

Anita MacDonaldAnita MacDonald

Page 2: Anita MacDonald. Liquid protein substitute substitute

Liquid Liquid proteinprotein

substitutesubstitute

Page 3: Anita MacDonald. Liquid protein substitute substitute

Liquid Liquid proteinprotein

substitutesubstitute

Page 4: Anita MacDonald. Liquid protein substitute substitute

Liquid Liquid proteinprotein

substitutesubstitute

NaffNaff

Page 5: Anita MacDonald. Liquid protein substitute substitute
Page 6: Anita MacDonald. Liquid protein substitute substitute

ProblemsProblems

preparation timepreparation timeneed waterneed waterdirty containersdirty containers

Page 7: Anita MacDonald. Liquid protein substitute substitute

too much efforttoo much effort

Page 8: Anita MacDonald. Liquid protein substitute substitute

makes peoplemakes people look differentlook different

Page 9: Anita MacDonald. Liquid protein substitute substitute

New liquid protein New liquid protein substitutesubstitute

Cooler130 ml pouches> 8 yearsaverage dose: 4

pouches daily

Page 10: Anita MacDonald. Liquid protein substitute substitute

How goodHow good is liquid Cooler?is liquid Cooler?

do people prefer it?

does it affect blood phenylalanine control?

is it easier than powder?

are people embarrassed when taking it?

Page 11: Anita MacDonald. Liquid protein substitute substitute

Who did we study?Who did we study?

26 people26 peopleaged: 8y – 49yaged: 8y – 49y14 female14 female12 male12 malemost took PKU most took PKU

Express powderExpress powder

Page 12: Anita MacDonald. Liquid protein substitute substitute

What did we do?What did we do?

3 parts: 6 weeks3 parts: 6 weeks

compared liquid protein compared liquid protein substitute with substitute with powdered equivalentpowdered equivalent

Page 13: Anita MacDonald. Liquid protein substitute substitute

Part 1/2Part 1/2 Part 1/2Part 1/2

2 weeks2 weeks 2 weeks2 weeks

Page 14: Anita MacDonald. Liquid protein substitute substitute

Part 1/2Part 1/2 Part 1/2Part 1/2

Page 15: Anita MacDonald. Liquid protein substitute substitute

Part 1/2Part 1/2 Part 1/2Part 1/2 Part 3Part 3

2 weeks2 weeks 2 weeks2 weeks2 weeks2 weeks

Page 16: Anita MacDonald. Liquid protein substitute substitute

What did we study?What did we study?

preference wastage self

consciousness phenylalanine

levels

Page 17: Anita MacDonald. Liquid protein substitute substitute

EvaluationEvaluation

Page 18: Anita MacDonald. Liquid protein substitute substitute

0

20

40

60

80

100

120

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26

% of either product chosen in part 3

Subjects

%

Liquid

Powder

Page 19: Anita MacDonald. Liquid protein substitute substitute

Ph

en

yla

lan

ine

(u

mo

l/l)

LiquidPowder

1400

1200

1000

800

600

400

200

0

p=0.027p=0.027

Blood phenylalanine controlBlood phenylalanine control

Page 20: Anita MacDonald. Liquid protein substitute substitute

0

20

40

60

80

100

120

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26

Subjects

%

%

Wastage

0

20

40

60

80

100

120

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26

p=0.001p=0.001

Page 21: Anita MacDonald. Liquid protein substitute substitute

0

10

20

30

40

50

60

70

80

90

100

%%

9292

3838

How easy was it to take?How easy was it to take?

liquidliquid powderpowder

p<0.001p<0.001

Page 22: Anita MacDonald. Liquid protein substitute substitute

Feeling self consciousFeeling self conscious

0

5

10

15

20

25

30

35

40

45

50

%

liquid

powder

50

21 2125 25

No self consciousnessNo self consciousness on liquid but with powderon liquid but with powder

No self consciousnessNo self consciousness on eitheron either

Self conscious on bothSelf conscious on both

p=0.003p=0.003

Page 23: Anita MacDonald. Liquid protein substitute substitute

LiquidLiquidmore convenient: more convenient: p=0.002p=0.002

easier to take outside the home: easier to take outside the home: p=0.001p=0.001

Page 24: Anita MacDonald. Liquid protein substitute substitute

Friends don’t notice!

less bullying

at school

Don’t need to hide in toilet

friends

say

powder

is like sick

Page 25: Anita MacDonald. Liquid protein substitute substitute

ConclusionsConclusions

Liquid CoolerLiquid Cooler

popular

easy

convenient

Page 26: Anita MacDonald. Liquid protein substitute substitute

ConclusionsConclusions

Liquid CoolerLiquid Cooler

popular

easy

convenient

It It rocksrocks

!!!!

Page 27: Anita MacDonald. Liquid protein substitute substitute
Page 28: Anita MacDonald. Liquid protein substitute substitute

Cooking 4 FunCooking 4 Fun

Page 29: Anita MacDonald. Liquid protein substitute substitute

lovedlovedfajitas fajitas

Helped me Helped me trytry

new thingsnew things

Other children Other children watch….and want to watch….and want to

make thingsmake things

Easy and simpleEasy and simple

……loves makingloves makingRainbow dropsRainbow drops