bioshare: the bbmri-eric elsi services - jasper bovenberg - legal pathways

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BBMRI Common Services ELSI

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Page 1: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

BBMRI Common Services ELSI

Page 2: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

BBMRI ERIC Common Services ELSI

Page 3: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

BBMRI ERIC Common Services ELSI

Page 4: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

The BBMRI ERIC Common Service ELSI aims to:

cross-border exchanges of human biological resources and data attached for research uses, Collaborations;sharing of knowledge, experiences and best practices.

Page 5: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

What ELSI Services?

Provide an ethics check of research proposals submitted to BBMRI- ERIC;Coordinate input for consultations on international legislation and policy making:

European Data Protection Regulation;Council of Europe Draft Biobanking RecWMA Draft Declaration

"Help-Desk“ in the form of tools:hSERNBBMRI Legal Wiki Templates

And much more

Page 6: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

The Service Providers

Lead by a Board of Co-Directors consisting of Anne Cambon-Thomsen (FR), Mats Hansson (SE), Marialuisa Lavitrano (IT) & Jasper Bovenberg (NL)

03/05/23 6

©BB

MRI

-ERI

C

Page 7: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

Organisation

03/05/23 7

©BB

MRI

-ERI

C

Page 8: BioSHaRE: The BBMRI-ERIC ELSI Services - Jasper Bovenberg - Legal Pathways

Acknowledgement

The research leading to these results has received funding from the European Union Seventh Framework Programme (FP7/2007-2013) under grant agreement n° 261433 (Biobank Standardisation and Harmonisation for Research Excellence in the European Union - BioSHaRE-EU)

<please adapt text and lay out as necessary, and include other funders as well. >