care centres – a role for palliative care_dato' seri dr t devaraj
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CARE CENTRESA ROLEFOR PALLIATIVE CARE?
Dato Seri Dr T
DevarajPenang Hospice Society
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THE ECONOMIST, 27 June 2009
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SOURCE: Takeo Ogawa, Ph.DKumamoto Gakuen University
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THE SUN, 23 JANUARY 2012
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THE SUN, 14 July 2011
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NST, 12 MARCH 2012
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Sunday Star , 16 Jan 2011
NST, 2 Nov 2011
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NST, 19 Sept 2011
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NST, 30 JUNE 2010
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WHO IS MY PARENTS KEEPER ?
Historically - family, filialpiety
Social changes - fromagricultural to industrialurbanization /
modernization Increasing ageing
Burden LTCphysical,emotional, $
New valuesindividualism,
choice, independence Costs of living rising
Role of statehands off,regulator, enforcer to careprovider
The Star, 18 Dec 2011
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NST, 13 Jan 2012
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MALAYSIAN SCENARIO
Historically
Old folk homes - very few via state - elderlyimmigrants
charities -faith based, NGOs
Orphanages few, ethnic
mainly NGOs
Think point of note:
Population rural: urban 1957 70 : 30
2010 30 : 70
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1952
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1995
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NST, 18 Oct 2011
Kinta Medical CentreKinta Healthcare Home Established in 1980
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CARE IN THE COMMUNITY
DEVELOPED COUNTRIES
Gradual changes overdecades
Care systemsresidential
homesnursing homes/ hospicehome
DEVELOPING COUNTRIES
more recent, rapid
homes by NGOs
little by state
Who is my parents keeper?*family *responsibility - family*statesupport, funds, laws *state - regulatory laws
*no funding
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AUSTRALIAAGED CARE HOME CARE support after hospitalization aged care at home / dementia day therapy centers
RESIDENTIAL CARE elderly ( independent living, assisted living, nursing
homes) dementia
APPROACH OF STATE / FEDERAL GOVERNMENT helpwhen at home
when in residential care OTHER PLAYERS private sector church based / others
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SOURCE: Takeo Ogawa, Ph.DKumamoto Gakuen University
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SOURCE: Takeo Ogawa, Ph.D; Kumamoto Gakuen University
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SOURCE: Takeo Ogawa, Ph.DKumamoto Gakuen University
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MALAYSIAN LAWS
Current Laws:
Care Centre Act 1993
elderly, orphanages, children (day care), OKU Jan 2012 only 1332 registered / 1886 not
registered
Private Health Care Facilities and Services Act1998/2006
no nursing home registered yet in Penang
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CARE CENTRES The Law requires that every care centre is registered and utmost
importance is placed on the welfare, well-being and safety of itsresidents or persons who receive care at a centre
Day Care Centre and Residential Care Centre
Register with Registrar of Companies or ROS
Require approval of technical agencieslocal council, fire and
rescue dept, health dept Fulfils Dept of Social Welfares minimum standards as follows:
ratio caregiver and residents / persons received for care
comply with the minimum space
balanced and nutritional diet
approved programme of daily activities equipped suitable, safe and adequate furniture, equipment
maintains hygiene, healthy and safe environment within andaround centre
www.jkm.gov.my
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NURSING HOMES
nursing care means any care for patient that is provided bya registered nurse in accordance with the directions of aregistered medical practitioner or registered dentalpractitioner and accepted nursing practice
80. (1) (a) the medical management of patients vests in a registeredmedical practitioner or a visiting medical practitioner caring for thepatients in the premises
private nursing home means any premises, other than aGovernment nursing home, used or intended to be used forthe reception of, and the provision of nursing care, for personssuffering or convalescing from any sickness, injury or infirmity
Standards for private nursing homes (regulations 353 - 374
Private Health Care Facilities and Services Act & Regulations 1998 / 2006
NB. Not a single nursing home registered to date in Penang
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KINDS OF RESIDENTIAL CARE
NEEDS Elderly
old
Frail
Disability dementia
Chronic illness
elderly
others
Think Point:welfare vs care continuum
need for a holistic approach
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PALLIATIVE CARE NURSE ON A HOME VISIT
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WHEN ONE IS ILL
PT
HOSP.
CLINICS
TAKING CARE TO THE HOME
HHP
1992PT
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RESIDENTIAL HOMES - ROLES FOR HOSPICE
Hospice care for residents requesting care
Support holistic care
Train staff towards holistic care
TAKING CARE TO THE HOME
RH
PT