Change Your Life

Be a part of this important participant-centric research:

CENA

Your organization name has partnered with Genetic Alliance and nine other disease advocacy organizations in a project called Community Engaged Networks for All (CENA) to create (name your project i.e. XYZ Patient registry)

We are collecting health data, in the form of a highly secure survey located on our Web site, which will allow medical researchers to obtain the data they need to conduct important research on (our condition name).

To change your life and the lives of others with this condition, please take the survey.

Organization Name Organization Address

City, State, Zip Phone

To participate, go to: Website address

USE REFERRAL CODE:

Org Logo

What is the Community-Engaged Network for All (CENA)?

Community-Engaged Network for All (CENA) is one

of 29 projects funded by the Patient Centered

Outcomes Research Institute (PCORI) to form a

new national resource that will accelerate health

research. The new network, which involves millions of

Americans, is called PCORnet. Genetic Alliance leads this

project, which is a collaborative of ten disease advocacy organizations, including (name of our

organization), the University of California San Francisco, the University of California Davis, and

Private Access.

What CENA means for individuals, families and communities You have an opportunity to engage in participant-centric research through (name of your

organization and CENA). Our project is a (name of the project, i.e. patient registry). In other words,

you may share information that is important to you, as well as medical history, all of which will

empower potential researchers to understand various conditions and discover relevant

interventions.

Aggregating information from individuals with (your condition) about their health and their lifestyle

will help advance overall well-being for all. It is important that we gather lived experience, clinical

records, device data, and health information from as many individuals as possible.

About (our condition and organization)