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Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

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Page 1: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

Confidential Inquiry into the deaths of people with learning disabilities

Identifying patients with learning disabilities

Pauline HeslopAnna Marriott

Page 2: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

Identifying patients with learning disabilities

• One of the key recommendations of the Michael report in 2008.

• The CI highlighted the continuing need to identify people with learning disabilities in healthcare settings to avoid their serious disadvantage.

Page 3: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

Key issues

• Lack of identification in:• GP referral letters• Hospital record systems

• Lack of awareness that reasonable adjustments might be required.

• Limited ability to extract data about people with learning disabilities.

Page 4: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

Impact of not identifying patients• Reasonable adjustments not

provided.• Poor access to healthcare

services.• Missed appointments, with

associated cost.• Unable to extract data about

people with learning disabilities to feed into JSNAs.

• Lack of intelligence to support commissioning priorities.

x

Page 5: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

Considerations

• Patient sensitivities.

• Effective data sharing protocols.

• Systems must be flexible enough to respond to the information.

Page 6: Confidential Inquiry into the deaths of people with learning disabilities Identifying patients with learning disabilities Pauline Heslop Anna Marriott

The way forward?


Learning Disabilities With an emphasis on math learning disabilities

LEARNING DISABILITIES: FOUNDATIONS, … · teristics of individuals with learning disabilities, the causes of learning disabilities, how to assess learning disabilities, teaching

Learning Disabilities Research · Learning Disabilities Research Learning Disabilities Research & Practice. 25(2), 60-75 0 2010 TI1e Division for Learning Disabilities of the Council

Confidential Inquiry into the deaths of people with learning disabilities Pauline Heslop and the CI team Norah Fry Research Centre University of Bristol

Confidential Inquiry into premature deaths of …Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD) Easy read report Pauline Heslop Peter Blair

Confidential Inquiry into the deaths of people with learning disabilities Dr Pauline Heslop Manager of the Confidential Inquiry Senior Research Fellow

Confidential Inquiry into the deaths of people with learning disabilities Pauline Heslop Anna Marriott Annual Health Checks Workshop

Understanding Learning Disabilities...Understanding Learning Disabilities How Processing Affects Mathematics Learning Companion Resource to the Understanding Learning Disabilities

LEARNING DISABILITIES

Learning Disabilities Training: Phase II · 4 Learning Disabilities Training: Phase II Differentiating Learning Disabilities from Intellectual Disabilities One of the main reasons

Learning Disabilities

Hidden Pain? People with learning disabilities who self-injure Pauline Heslop Norah Fry Research Centre, University of Bristol Fiona Macaulay Bristol Crisis

Learning Disabilities Research - Jill Jackson...Learning Disabilities Research Learning Disabilities Research & Practice, 28(1), 5–16 2013 The Division for Learning Disabilities

Confidential Inquiry into the deaths of people with learning disabilities Co-ordinating Care Workshop Pauline Heslop Anna Marriott

Students with Learning Disabilities The Family and Learning Disabilities

Confidential Inquiry into the deaths of people with learning disabilities Reviewing deaths Workshop Pauline Heslop Anna Marriott