editorial fitness and physical activity in children and youth with

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Hindawi Publishing Corporation International Journal of Pediatrics Volume 2012, Article ID 162648, 2 pages doi:10.1155/2012/162648 Editorial Fitness and Physical Activity in Children and Youth with Disabilities Maria A. Fragala-Pinkham, 1 Margaret E. O’Neil, 2 Kristie F. Bjornson, 3 and Roslyn N. Boyd 4 1 Research Center for Children with Special Health Care Needs, Franciscan Hospital for Children, Brighton, MA, USA 2 Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, PA, USA 3 Department of Pediatrics, Seattle Children’s Research Institute, University of Washington, Seattle, WA, USA 4 Queensland Cerebral Palsy and Rehabilitation Research Centre, The University of Queensland, Brisbane, QLD, Australia Correspondence should be addressed to Maria A. Fragala-Pinkham, [email protected] Received 10 December 2012; Accepted 10 December 2012 Copyright © 2012 Maria A. Fragala-Pinkham et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. Over the last decade, there has been a major shift in pediatric rehabilitation from an impairment-based model to activity-based interventions focusing on improving fitness, physical activity, and participation for children and youth with disabilities [1]. A catalyst for this shift is related to the emphasis on health promotion and disease prevention in the health care arena. There is growing evidence on the importance of daily physical activity for health in children and youth as well as evidence on positive health outcomes from programs that promote physical activity and fitness for children and youth; however, less information is available on these topics for children and youth with disabilities [26]. As rehabilitation interventions incorporate more strate- gies to increase fitness, physical activity, and participation in children and youth with disabilities, it is critical that outcome measures are appropriate to examine intervention eective- ness. Over the past few years, there has been an increase in measurement methodology research to ensure the feasibility, reliability, validity, and responsiveness of fitness and physical activity measures for children and youth with disabilities. It is important that pediatric rehabilitation researchers design sound intervention and measurement protocols to identify the eectiveness of activity-based interventions to improve fitness and physical activity in children and youth with disabilities. It is important that these measures are accessible and feasible for researchers and clinicians. Further, it is important that researchers articulate clear operational defi- nitions of the fitness components (strength, endurance, flex- ibility, and body composition) and physical activity dimen- sions (frequency, duration, and intensity) that are being examined in the research. The aim of this special issue is to expand the level of knowledge about fitness interventions, physical activity participation, and measurement protocols for children and youth with disabilities. This special issue represents an international forum of physical activity and fitness research. The articles reflect the components of the World Health Organization’s Interna- tional Classification of Functioning, Disability, and Health (the ICF Model) and they target a variety of disabilities and conditions of childhood including cerebral palsy, spina bifida, motor disability, and neurodevelopmental disorders. The ICF Model includes three personal dimensions; body structure and body function impairments, activity limita- tions, and participation restrictions. In this special issue, two articles focused on body structure and function impairments with one examining the potential for cardiometabolic dys- function in youth with spina bifida and the role of physical activity and exercise while the other examined arterial struc- ture and function in cerebral palsy. Four articles examined dierent aspects of activity. Two articles examined measures of physical activity; one was a systematic review of clinimetric properties of habitual physical activity measures in motor disability and one examined the feasibility of accelerometry to measure physical activity in cerebral palsy. Another article focused on functional electrical stimulation as an interven- tion strategy to assist in cycling activity and one examined child, family, and environmental factors that influence phys- ical activity levels in children with special health care needs. Two articles examined participation; one in the context of play in children with cerebral palsy and one in the context

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Hindawi Publishing CorporationInternational Journal of PediatricsVolume 2012, Article ID 162648, 2 pagesdoi:10.1155/2012/162648

Editorial

Fitness and Physical Activity in Children andYouth with Disabilities

Maria A. Fragala-Pinkham,1 Margaret E. O’Neil,2 Kristie F. Bjornson,3 and Roslyn N. Boyd4

1 Research Center for Children with Special Health Care Needs, Franciscan Hospital for Children, Brighton, MA, USA2 Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, PA, USA3 Department of Pediatrics, Seattle Children’s Research Institute, University of Washington, Seattle, WA, USA4 Queensland Cerebral Palsy and Rehabilitation Research Centre, The University of Queensland, Brisbane, QLD, Australia

Correspondence should be addressed to Maria A. Fragala-Pinkham, [email protected]

Received 10 December 2012; Accepted 10 December 2012

Copyright © 2012 Maria A. Fragala-Pinkham et al. This is an open access article distributed under the Creative CommonsAttribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work isproperly cited.

Over the last decade, there has been a major shift inpediatric rehabilitation from an impairment-based model toactivity-based interventions focusing on improving fitness,physical activity, and participation for children and youthwith disabilities [1]. A catalyst for this shift is related tothe emphasis on health promotion and disease preventionin the health care arena. There is growing evidence on theimportance of daily physical activity for health in childrenand youth as well as evidence on positive health outcomesfrom programs that promote physical activity and fitness forchildren and youth; however, less information is available onthese topics for children and youth with disabilities [2–6].

As rehabilitation interventions incorporate more strate-gies to increase fitness, physical activity, and participation inchildren and youth with disabilities, it is critical that outcomemeasures are appropriate to examine intervention effective-ness. Over the past few years, there has been an increase inmeasurement methodology research to ensure the feasibility,reliability, validity, and responsiveness of fitness and physicalactivity measures for children and youth with disabilities. Itis important that pediatric rehabilitation researchers designsound intervention and measurement protocols to identifythe effectiveness of activity-based interventions to improvefitness and physical activity in children and youth withdisabilities. It is important that these measures are accessibleand feasible for researchers and clinicians. Further, it isimportant that researchers articulate clear operational defi-nitions of the fitness components (strength, endurance, flex-ibility, and body composition) and physical activity dimen-sions (frequency, duration, and intensity) that are being

examined in the research. The aim of this special issue is toexpand the level of knowledge about fitness interventions,physical activity participation, and measurement protocolsfor children and youth with disabilities.

This special issue represents an international forum ofphysical activity and fitness research. The articles reflect thecomponents of the World Health Organization’s Interna-tional Classification of Functioning, Disability, and Health(the ICF Model) and they target a variety of disabilitiesand conditions of childhood including cerebral palsy, spinabifida, motor disability, and neurodevelopmental disorders.

The ICF Model includes three personal dimensions; bodystructure and body function impairments, activity limita-tions, and participation restrictions. In this special issue, twoarticles focused on body structure and function impairmentswith one examining the potential for cardiometabolic dys-function in youth with spina bifida and the role of physicalactivity and exercise while the other examined arterial struc-ture and function in cerebral palsy. Four articles examineddifferent aspects of activity. Two articles examined measuresof physical activity; one was a systematic review of clinimetricproperties of habitual physical activity measures in motordisability and one examined the feasibility of accelerometryto measure physical activity in cerebral palsy. Another articlefocused on functional electrical stimulation as an interven-tion strategy to assist in cycling activity and one examinedchild, family, and environmental factors that influence phys-ical activity levels in children with special health care needs.Two articles examined participation; one in the context ofplay in children with cerebral palsy and one in the context

2 International Journal of Pediatrics

of overall physical activity participation in children withneurodevelopmental disorders.

Each study illustrates the multiple aspects of physicalactivity and fitness that must be considered when designingan intervention program and measurement protocol toexamine outcome effectiveness. Further, these papers alsorepresent the variety of issues to consider when conductingresearch with children and youth with disabilities. There is amultitude of physiological, medical, functional, and envi-ronmental factors that contribute to the effectiveness andsustainability of interventions and outcomes. Also, when oneconducts pediatric research, there are multiple maturationaland developmental factors to consider. The articles in thisspecial issue reflect the breadth of childhood as differentresearchers focused on different age ranges of childhood andadolescence.

This special issue provides a good resource to inform andfacilitate future research on fitness and physical activity inchildren and youth with disabilities. This collection of workrepresents a substantial contribution to the burgeoning fieldof activity-based research and fitness and physical activityoutcomes for children and youth with disabilities.

Maria A. Fragala-PinkhamMargaret E. O’NeilKristie F. Bjornson

Roslyn N. Boyd

References

[1] E. G. Fowler, T. H. A. Kolobe, D. L. Damiano et al., “Promotionof physical fitness and prevention of secondary conditions forchildren with cerebral palsy: section on pediatrics researchsummit proceedings,” Physical Therapy, vol. 87, no. 11, pp.1495–1510, 2007.

[2] C. A. Maher, M. T. Williams, T. Olds, and A. E. Lane, “Physicaland sedentary activity in adolescents with cerebral palsy,”Developmental Medicine and Child Neurology, vol. 49, no. 6, pp.450–457, 2007.

[3] G. C. Frey, H. I. Stanish, and V. A. Temple, “Physical activity ofyouth with intellectual disability: review and research agenda,”Adapted Physical Activity Quarterly, vol. 25, no. 2, pp. 95–117,2008.

[4] P. J. Morris, “Physical activity recommendations for childrenand adolescents with chronic disease,” Current Sports MedicineReports, vol. 7, no. 6, pp. 353–358, 2008.

[5] J. A. Rimmer and J. L. Rowland, “Physical activity for youthwith disabilities: a critical need in an underserved population,”Developmental Neurorehabilitation, vol. 11, no. 2, pp. 141–148,2008.

[6] C. C. Johnson, “The benefits of physical activity for youth withdevelopmental disabilities: a systematic review,” American Jour-nal of Health Promotion, vol. 23, no. 3, pp. 157–167, 2009.

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