integrated mental health & learning disabilities cluster training second phase 2014-15

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Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 1: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Integrated Mental Health & Learning Disabilities Cluster

Training

Second Phase 2014-15

Page 2: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Objectives

By the end of the session you should have an understanding of:•The rationale behind the updated MH & LD Clustering Tool (MHLDCT)•Who is responsible for clustering and when•Each item within the tool and additional guidance to accompany it•The content of the clusters•The decision tree for cluster allocation•How to score and cluster a case•Movement between clusters

Page 3: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

History of Care Pathways & Packages

• Developed originally to increase use of evidence based practice and reduce inconsistent treatment.

• A number of Trusts as part of the Care Pathways & Packages Project Consortium have led this development nationally.

• The Mental Health Clustering Tool is now a recognised and mandated tool for all Working Age and Older Peoples Services.

• A list of relevant care packages and a quality & outcomes framework have been developed for Working Age Adult and Older Peoples Services.

Page 4: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Using the Integrated MHLDCT

• It is a summary of need not a clinical assessment.• It rates current problems in terms of impact on client.• It also rates historical problems.• The tool should be completed within two contacts.• It is seeks to identify the most significant presenting

need.• The cause of the problem and the interventions used

are NOT included in making a rating.• The more the MHLDCT is used the more reliable and

efficient it will be for users.

Page 5: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Responsibility for Clustering

• Lead Professional, Care Coordinator OR Delegated Professional are responsible for clustering.

• BUT at any given time a significant change may occur with a client’s presentation where the person normally responsible for clustering may not be available.

• E.g. if a client was admitted to an inpatient unit under Mental Health Act section or from out of area then professionals within that inpatient unit would cluster.

Page 6: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

MHLDCT – Overview

• The first section in the tool contains a number of items to rate.

• There are Two Parts (Current and Historical) to this section: Part 1 Problems in the past two weeks

Items 1-13 are taken from the original MHCTItems 30-31 are LD specific

Part 2 Historical Issues (including the past two weeks)Items A-E are taken from the original MHCTItems I-K are LD specific

Page 7: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

MHLDCT – Overview

Part 1 Problems in the past two weeks

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental-self injury

3 Problem drinking or drug taking

4 Cognitive problems

5 Physical illness or disability problems

6 Problems associated with hallucinations and delusions

7 Problems with depressed mood

8 Other mental and behavioural problems

9 Problems with relationships

10 Problems with activities of daily living

11 Problems with living conditions

12 Problems with occupation and activities

13 Strong unreasonable beliefs occurring in non-psychotic disorders only

30 Non accidental Self Injury (associated with cognitive impairment

31 Physical problems with eating and drinking

LD specific items

Page 8: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

A Agitated behaviour / expansive mood

B Repeat self-harm

C Safeguarding children & vulnerable dependant adults

D Engagement

E Vulnerability

I Social Communication and interaction difficulties

J Problems with communication

K Seizures

LD specific items

MHLDCT – Overview

Part 2 Historical issues

Page 9: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

MHLDCT – General scoring guidance

• Rate every item using the 0- 4 scale where

0-1 = sub clinical requiring ‘no action’2 = mild problem but definitely present3 = moderately severe problem4 = severe to very severe problem

• Also, Check Score Guide for examples and anchor points.

• Score each item in turn and don’t rate an aspect of a client’s presentation twice

• For Item 8 – choose and rate the most severe problem if relevant.

Page 10: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

A. Agitated behaviour/ expansive mood (historical)

Rate agitation and overactive behaviour causing disruption to social role functioning. Behaviour causing concern or harm to others. Elevated mood that is out of proportion to circumstances.

Include such behaviour due to any cause (e.g. drugs, alcohol, dementia, psychosis, depression etc).

Excessive irritability, restlessness, intimidation, obscene behaviour and aggression to people animals or property.

Do not include odd or bizarre behaviour to be rated at Scale 6.

2 Makes verbal/gestural threats. Pushes/pesters but no evidence of intent to cause serious harm. Causes minor damage to property (e.g. glass or crockery). Is obviously over-active or agitated.

3 Agitation or threatening manner causing fear in others. Physical aggression to people or animals.

Property destruction. Serious levels of elevated mood, agitation, restlessness causing significant disruption to functioning.

4 Serious physical harm caused to persons/animals. Major destruction of property. Seriously intimidating others or exhibiting highly obscene behaviour.

Elevated mood, agitation, restlessnesscausing complete disruption.

Rate 9 if not known

Exampleof Need for Accurate Rating:

Page 11: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

MHLDCT - Additional Guidance

- Additional guidance has been put together to provide clarity on certain items and to explain how some of the Mental Health examples apply in Learning Disabilities

- Guidance was derived from the first pilot with clinicians

Page 12: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Eg. Scale 4: Cognitive Problems• Please be aware that the anchor points in this question

may not be helpful for learning disabilities clients, it may be easier to revert to the generic scale for this item.

• In this context, 0 = no learning disabilities; 1= borderline learning disabilities; 2= mild learning disabilities; 3=moderate learning disabilities; 4=severe to profound learning disabilities.

• Where the person is experiencing dementia or other additional difficulties that may impact on cognitive impairment, score the most severe impairment for the person.

Page 13: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

MHLDCT – Using the Decision Tree

The Decision Tree helps to reduce the range of potential clusters for allocation. To do this:

1.Firstly you need to identify the ‘super class’ (Non-psychosis, Psychosis or Organic) that the client may fit best with.

2.Then consider the particular need/level of complexity/severity relevant to the client within that super class.

3.You should then be able to reduce the list of potential clusters for allocation.

Page 14: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

DECISON TREE(RELATIONSHIP OF CLUSTERS TO EACH OTHER)

Acuity

Page 15: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

New Learning Disability Specific Clusters

9A Maintenance, engagement and minor support needs, complicated by LD

9B Risk to self, complicated by LD

9C Risk to others complicated by LD

9D Risk to others, complicated by mild LD & ASD

9E Risk to others, complicated by moderate - profound LD & ASD

9F Risk to others & self, complicated by moderate - profound LD & ASD

22 Physical health complicated by mild LD

23 Physical health complicated by moderate - profound LD

24 Physical health with dysphagia complicated by moderate - profound LD

Page 16: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9d Risk to others, complicated by mild LD & ASD

Description: This group will be displaying physical and/or verbal aggression towards others but not self-injurious behaviour. They will be experiencing social and communication difficulties and have relatively mild: cognitive impairment; problems with adaptive functioning; social communication and interaction difficulties; self-regulation (emotional and/or behavioural).

Likely primary diagnosis: Significant challenging behaviour. F70 Mild Learning Disabilities. F84 Pervasive Development al Disorders.

Unlikely primary diagnosis: Minimal or no challenging behaviour. F71-73 Moderate – Profound Learning Disabilities. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Risk of injury to others. Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability. Likely NICE Guidance: Adults with Autism CG142, Challenging behaviour and Learning Disabilities due 2015. Drawing on existing NICE guidance as appropriate Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury

3 Problem drinking or drug taking

4 Cognitive Problems

5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood *

8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living

11 Living conditions 12 Occupation & Activities

13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement

E Vulnerability

F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score

Expected to score No data available

May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

Example Cluster Profile

Page 17: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Using the scoring profile

Make sure the scoring fits in with the Must Scores (‘Red rules’)

If they don’t fit but the cluster profile is a good match then go back and check your scoring to see if you under/overscored.

Use the Expected to score (orange) and May score (yellow) to help decide between different clusters, check that you’ve got a reasonable match with the profile and check you’re not under/overscoring.

Page 18: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Using the Variance Cluster

There may be times when the client’s needs do not readily fit an existing cluster profile. On these occasions the Variance Cluster may be used (Cluster 0).

However, this is likely to happen less than 10% of the time and it’s important that the Variance Cluster is only used as a last resort.

It is much more helpful in terms of understanding needs to have a cluster profile allocated but with concerns noted in ‘Additional Information’.

Page 19: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Retrospective clustering

The current scores might not reflect the patient’s needs at the point of assessment if the care package is working.

SO…Choose a superclass that best fits the patient’s needs over their time in the service.Consider the long term presentation of the patient and complexity rather than changes in severity.Consider the patient’s needs at their worst.Record appropriate cluster according to this and place a comment in the free text box confirming “this is a retrospective cluster”.

Page 20: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

You allocate to a Cluster by using your Decision Tree

Choices &the MHLDCT scores

identify the most appropriate

‘Cluster Profile’

Page 21: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care clusters identify needs of clients at a particular ‘moment in time’

Clusters allow for a certain amount of fluctuation in condition But a significant change in condition will often lead to a change in

cluster allocation. So a client’s journey may involve them moving through a range of

clusters as their condition changes over time

How do we re-allocate clusters?

We use Cluster Reviews to help understand this.

These happen on a significant change (e.g. admission to inpatient services) or at planned

reviews (typically six monthly).

Page 22: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Examples of when not to cluster

• No allocation to cluster on discharge but you will do a new set of scores on discharge

• No MHLDCT if only a one-off assessment or the client does not require services and it is identified that no interventions/treatment is required

Page 23: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Begin using the Clustering Process now

for

• all new assessments (by second contact) that lead to further assessment or treatment

• all Reviews Planned/Unplanned • Any other significant change of circumstance.

Page 24: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Give it a go

(Using real cases or vignettes as a practice)

Page 25: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Cluster Profiles for Information

Page 26: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 28: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15
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Page 30: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 31: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 32: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 33: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Page 34: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9A Maintenance, engagement & minor support needs, complicated by LD

Description: This group will be experiencing minor difficulties with one or more of the following: emotional distress, behavioural dysfunction, vulnerability to others and history of aggressive behaviour. They will be likely to have relatively mild levels of: cognitive impairment; impairment in adaptive behaviours and self-regulation (emotional and/or behavioural). They are unlikely to be experiencing significant social communication & interaction difficulties

Likely primary diagnosis: F70 Mild Learning Disabilities. Minimal or no challenging behaviour.

Unlikely primary diagnosis: F71-73 Moderate – Profound Learning Disabilities. Significant challenging behaviour. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: Some problems with ADL and role functioning

Risk: Current low levels of risk but potential for: placement breakdown, social isolation, limited social activity and occupation associated with increased vulnerability.

Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability.

Likely NICE Guidance: Drawing on existing NICE guidance as appropriate including service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Depression with Chronic Health Problems CG91, Common mental health disorders CG123, OCD CG31.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury

3 Problem drinking or drug taking

4 Cognitive Problems

5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood *

8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living

11 Living conditions 12 Occupation & Activities

13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement

E Vulnerability

F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score

Expected to score No data available

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*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Page 35: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

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Care Cluster 9B Risk to self, complicated by LD

Description: This group will be displaying self-injurious behaviour. They will not be experiencing significant social communication & interaction difficulties. They are likely to have mild to severe: cognitive impairment, impairment in adaptive behaviours, general communication difficulties, self-regulation (emotional and/or behavioural).

Likely primary diagnosis: F71-73 Moderate – Profound Learning Disabilities. Significant challenging behaviour. Unlikely primary diagnosis: F70 Mild Learning Disabilities. Minimal or no challenging behaviour. F84 Pervasive Development al Disorders. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Current high levels of injury to self.

Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability.

Likely NICE Guidance: Challenging behaviour and Learning Disabilities (due 2015). Drawing on existing NICE guidance as appropriate Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury 3 Problem drinking or drug taking 4 Cognitive Problems 5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood * 8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living 11 Living conditions 12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

Page 36: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9C Risk to others, complicated by LD

Description: This group will be displaying physical and/or verbal aggression towards others. They will not be experiencing significant social communication & interaction difficulties. They are likely to have mild to moderate: cognitive impairment, adaptive functioning impairment, general communication difficulties, self-regulation - emotional and/or behavioural.

Likely primary diagnosis: F70-73 Mild – Profound Learning Disabilities. Significant challenging behaviour. Unlikely primary diagnosis: Minimal or no challenging behaviour. F84 Pervasive Development al Disorders. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Risk of injury to others.

Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability.

Likely NICE Guidance: Challenging behaviour and Learning Disabilities (due 2015). Drawing on existing NICE guidance as appropriate Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury 3 Problem drinking or drug taking 4 Cognitive Problems 5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood * 8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living 11 Living conditions 12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Page 37: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9d Risk to others, complicated by mild LD & ASD

Description: This group will be displaying physical and/or verbal aggression towards others but not self-injurious behaviour. They will be experiencing social and communication difficulties and have relatively mild: cognitive impairment; problems with adaptive functioning; social communication and interaction difficulties; self-regulation (emotional and/or behavioural).

Likely primary diagnosis: Significant challenging behaviour. F70 Mild Learning Disabilities. F84 Pervasive Development al Disorders.

Unlikely primary diagnosis: Minimal or no challenging behaviour. F71-73 Moderate – Profound Learning Disabilities. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Risk of injury to others.

Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability.

Likely NICE Guidance: Adults with Autism CG142, Challenging behaviour and Learning Disabilities due 2015. Drawing on existing NICE guidance as appropriate Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury 3 Problem drinking or drug taking 4 Cognitive Problems 5 Physical Illness or disability problems 6 Hallucinations and Delusions 7 Depressed mood * 8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living 11 Living conditions 12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability F Social communication difficulties G Communication problems H Seizures

Must score Unlikely to score Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Page 38: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9E Risk to others, complicated by moderate - profound LD & ASD

Description: This group will be displaying physical and/or verbal aggression towards others but not self-injurious behaviour. They will have moderate to severe: cognitive impairment; problems with adaptive functioning, social communication & interaction difficulties, self-regulation (emotional and/or behavioural). Likely primary diagnosis: Significant challenging behaviour. F71-73 Moderate – Profound Learning Disabilities. . F84 Pervasive Development al Disorders. Unlikely primary diagnosis: Minimal or no challenging behaviour. F70 Mild Learning Disabilities. F84 Pervasive Development al Disorders. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Risk of injury to others. Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability. Likely NICE Guidance: Adults with Autism CG142, Challenging Behaviour and Learning Disabilities due 2015. Drawing on existing NICE guidance as appropriate Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury 3 Problem drinking or drug taking 4 Cognitive Problems 5 Physical Illness or disability problems 6 Hallucinations and Delusions 7 Depressed mood * 8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living 11 Living conditions 12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability F Social communication difficulties G Communication problems H Seizures

Must score Unlikely to score Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Page 39: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 9F Risk to others & self, complicated by moderate - profound LD & ASD

Description: This group will be displaying physical and/or verbal aggression towards others and self-injurious behaviour. They will have moderate to severe: cognitive impairment; problems with adaptive functioning; social communication & interaction difficulties; self-regulation (emotional and/or behavioural). Likely primary diagnosis: Significant challenging behaviour. F71-73 Moderate – Profound Learning Disabilities. . F84 Pervasive Development al Disorders. Unlikely primary diagnosis: Minimal or no challenging behaviour. F70 Mild Learning Disabilities. F84 Pervasive Development al Disorders. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30-39 Mood (affective) disorders, F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60-69 Personality disorders

Impairment: ADLs and/or role functioning are likely to be significantly affected. Risk: Risk of injury to others and self. Course: Episodic. Unlikely to improve without intervention. Life-long vulnerability.

Likely NICE Guidance: Adults with Autism CG142, Challenging behaviour and Learning Disabilities due 2015. Drawing on existing NICE guidance as appropriate including Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury

3 Problem drinking or drug taking

4 Cognitive Problems

5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood *

8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living

11 Living conditions 12 Occupation & Activities

13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement

E Vulnerability

F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score

Expected to score No data available

May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Care Cluster 22 Physical health, complicated by mild LD

Description: This group will be experiencing significant physical health problems complicated by difficulties associated with mild learning disabilities which make unsupported access to mainstream services problematic. They will have mild: cognitive impairment; problems with adaptive functioning, impairments in self-care and communication difficulties.

Likely primary diagnosis: F70 Mild Learning Disabilities. G40-41Epilepsy. R25-29 Nervous & Musculoskeletal Systems Unlikely primary diagnosis: F71-73 Moderate – Profound Learning Disabilities F33 Recurrent depressive disorder , F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60 Specific personality disorders, F50 Eating Disorder. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30 Manic Episode, F31 Bipolar Disorder

Impairment: Some problems with ADL and role functioning

Risk: Risk of self-neglect and physical harm through their problems in maintaining their own personal wellbeing. Course: Episodic. Life-long vulnerability Likely NICE Guidance: Drawing on existing NICE guidance as appropriate including Epilepsy CG20, Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury

3 Problem drinking or drug taking

4 Cognitive Problems 5 Physical Illness or disability problems

6 Hallucinations and Delusions

7 Depressed mood * 8 Other mental and behavioural problems *

9 Relationships 10 Activities of daily living

11 Living conditions

12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability

F Social communication difficulties

G Communication problems H Seizures

Must score Unlikely to score

Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

Page 53: Integrated Mental Health & Learning Disabilities Cluster Training Second Phase 2014-15

Care Cluster 23 Physical health, complicated by moderate - profound LD

Description: This group will be experiencing significant physical health problems complicated by difficulties associated with moderate to profound learning disabilities (e.g. specific neurological impairments; sensory impairments). They will have moderate to profound: cognitive impairment; problems with adaptive functioning, impairments in self-care and communication difficulties.

Likely primary diagnosis: F71-73 Moderate - Profound Learning Disabilities. G40-41Epilepsy. R25-29 Nervous & Musculoskeletal Systems Unlikely primary diagnosis: F70 Mild Learning Disabilities. D13 Dysphagia. F33 Recurrent depressive disorder , F40-48 Neurotic, stress-related and somatoform disorders, F50 Eating disorders, F60 Specific personality disorders, F50 Eating Disorder. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30 Manic Episode, F31 Bipolar Disorder

Impairment: ADLs and role functioning will be severely affected Risk: Risk of self-neglect and physical harm through their inability to maintain their own personal wellbeing. Course: Episodic. Life-long vulnerability Likely NICE Guidance: Drawing on existing NICE guidance as appropriate including Epilepsy CG20, Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

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1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury 3 Problem drinking or drug taking 4 Cognitive Problems 5 Physical Illness or disability problems 6 Hallucinations and Delusions 7 Depressed mood * 8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living 11 Living conditions 12 Occupation & Activities 13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement E Vulnerability F Social communication difficulties G Communication problems H Seizures

Must score Unlikely to score Expected to score No data available May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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Care Cluster 24 Physical health with dysphagia, complicated by moderate - profound LD

Description: This group will be experiencing significant physical health problems complicated by difficulties associated with moderate to profound learning disabilities (e.g. specific neurological impairments; sensory impairments). They will have definite physical difficulties eating and drinking safely. They will have severe to profound: cognitive impairment; problems with adaptive functioning; impairments in self-care.

Likely primary diagnosis: F71-73 Moderate-Profound Learning Disabilities. D13 Dysphagia. Unlikely primary diagnosis: F70 Mild Learning Disabilities. F32 Depressive Episode, F40 Phobic Anxiety Disorders, F41 Other Anxiety Disorders, F42 Obsessive-Compulsive Disorder, F43 Stress Reaction / Adjustment Disorder, F50 Eating Disorder. F00-03 Dementias, F20-29 Schizophrenia, schizotypal and delusional disorders , F30 Manic Episode, F31 Bipolar Disorder

Impairment: ADLs and role functioning will be severely affected Risk: Risk of self-neglect and physical harm through their inability to maintain their own personal wellbeing. Specific risks associated with, health nutrition &, hydration.

Course: Episodic. Life-long vulnerability Likely NICE Guidance: Drawing on existing NICE guidance as appropriate including Epilepsy CG20, Service user experience in adult mental health CG136, Anxiety CG113, Depression in adults CG90, Common mental health disorders CG123.

NO ITEM DESCRIPTION RATING

0 1 2 3 4

1 Overactive, aggressive, disruptive or agitated behaviour

2 Non-accidental self-injury

3 Problem drinking or drug taking

4 Cognitive Problems

5 Physical Illness or disability problems 6 Hallucinations and Delusions

7 Depressed mood *

8 Other mental and behavioural problems * 9 Relationships

10 Activities of daily living

11 Living conditions 12 Occupation & Activities

13 Strong Unreasonable Beliefs

14 Non-accidental self-injury (associated with cognitive impairment)

15 Physical Problems with eating and drinking

A Agitated behaviour/expansive mood

B Repeat Self-Harm

C Safeguarding other children & vulnerable dependant adults

D Engagement

E Vulnerability

F Social communication difficulties G Communication problems

H Seizures

Must score Unlikely to score

Expected to score No data available

May score

*Use the highest rating from Scales 7 & 8 when deciding if the rating fits the range indicated.

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