Centers for Disease Control and PreventionNational Center on Birth Defects and Developmental Disabilities

Centers for Disease Control and PreventionNational Center on Birth Defects and Developmental Disabilities

Learn the Signs. Act Early.Learn the Signs. Act Early.g yg yIt’s time to change how we

view a child’s growthview a child s growth

PartnersPartners• Association for University Centers on • Association for University Centers on Association for University Centers on

Disabilities (AUCD)• HRSA/Maternal and Child Health Bureau• Easter Seals

Th C lth F d

Association for University Centers on Disabilities (AUCD)

• HRSA/Maternal and Child Health Bureau• Easter Seals

Th C lth F d• The Commonwealth Fund• Cooperative Extension Program• Early Head Start/Zero to Three• Indian Head Start

• The Commonwealth Fund• Cooperative Extension Program• Early Head Start/Zero to Three• Indian Head StartIndian Head Start• National Association of Child Care Resource

Agencies• National Early Childhood Technical

Assistance Centers

Indian Head Start• National Association of Child Care Resource

Agencies• National Early Childhood Technical

Assistance CentersAssistance Centers• Network of Autism Training and Technical

Assistance Programs• Society for Developmental Pediatrics

Assistance Centers• Network of Autism Training and Technical

Assistance Programs• Society for Developmental Pediatrics• National Association of Pediatric Nurse

Practitioners• Society of Physician Assistants in Pediatrics

• National Association of Pediatric Nurse Practitioners

• Society of Physician Assistants in Pediatrics

and more!

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…and more!

Background: ParentsBackground: Parentsgg

• Lacked knowledge about • Lacked knowledge about g

– Cognitive, emotional, and social development– Developmental delays

g

– Cognitive, emotional, and social development– Developmental delaysDevelopmental delays

• Recommend efforts communicate the urgency of acting early when there is a concern about

Developmental delays • Recommend efforts communicate the urgency of

acting early when there is a concern about developmental delay

• Clear consensus to avoid using language such as

developmental delay

• Clear consensus to avoid using language such as “autism” and “ASD” in materials designed to reach all parents of young children“autism” and “ASD” in materials designed to reach all parents of young children

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MissionMissionMM

Every child reaches his or herf ll t ti l

Every child reaches his or herf ll t ti lfull potentialfull potential

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Campaign ObjectivesCampaign Objectivesmp g jmp g j• Increase AWARENESS of developmental • Increase AWARENESS of developmental

milestones and early warning signs• Increase KNOWLEDGE in the benefits of

early action and early intervention

milestones and early warning signs• Increase KNOWLEDGE in the benefits of

early action and early interventionearly action and early intervention • Increase parent-provider DIALOGUE on the

topic of developmental milestones and

early action and early intervention • Increase parent-provider DIALOGUE on the

topic of developmental milestones andtopic of developmental milestones and disorders

• Increase EARLY ACTION on childhood

topic of developmental milestones and disorders

• Increase EARLY ACTION on childhoodIncrease EARLY ACTION on childhood developmental disorders Increase EARLY ACTION on childhood developmental disorders

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Target AudiencesTarget AudiencesggHealth Care Professionals (HCPs)Health Care Professionals (HCPs)

– Pediatricians, family physicians, physician assistants, nurse practitioners, nurses, and others serving young children

– Pediatricians, family physicians, physician assistants, nurse practitioners, nurses, and others serving young childreng y g

Parents of Young Children – Ages 4 and younger

g y gParents of Young Children

– Ages 4 and youngerges a d you geEarly Educators (EEs)

– Preschool teachers, day care providers, and

ges a d you geEarly Educators (EEs)

– Preschool teachers, day care providers, and Preschool teachers, day care providers, and othersPreschool teachers, day care providers, and others

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Reaching Our AudiencesReaching Our Audiencesgg• Paid and unpaid placement of our print ad/PSA in

select publications targeted websites tv radio• Paid and unpaid placement of our print ad/PSA in

select publications targeted websites tv radioselect publications, targeted websites, tv, radio• Present and exhibit at key conferences/select

meetings

select publications, targeted websites, tv, radio• Present and exhibit at key conferences/select

meetingsg• Create content for CE or certification purposes• Partner with professional/social organizations and

g• Create content for CE or certification purposes• Partner with professional/social organizations andPartner with professional/social organizations and

deliver information through existing channels (newsletters, member subscriptions, websites)

Partner with professional/social organizations and deliver information through existing channels (newsletters, member subscriptions, websites)

• Train & equip “champions” to reach out into their communities

• Train & equip “champions” to reach out into their communities

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Reaching Parents Where They PlayReaching Parents Where They Playg y yg y y

• Campaign messages on the • Campaign messages on the Goodyear Blimp during national sporting events

• TV PSA on Astrovision in

Goodyear Blimp during national sporting events

• TV PSA on Astrovision inTV PSA on Astrovision in Times Square

• Poster on Grey’s Anatomy for

TV PSA on Astrovision in Times Square

• Poster on Grey’s Anatomy for past five seasons

• Campaign promotions on FOX Sports during two televised

past five seasons

• Campaign promotions on FOX Sports during two televisedSports during two televised NASCAR racesSports during two televised NASCAR races

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Health Care Professional R Kit

Health Care Professional R KitResource KitResource Kit

Stand with 200 Informational Cards

Stand with 200 Informational Cards Set of 15 Fact SheetsSet of 15 Fact Sheets Small Posters (3)Small Posters (3)Packaged in sealed white

box (12x9x3” box);

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box (12x9x3 box); approximately 4 lbs.

Parent Resource KitParent Resource Kit

Informational C d (1)

Informational C d (1)

Packaged in sealed white 9x12” envelope

Set of 8 Fact SheetsSet of 8 Fact Sheets Growth Chart (1)

Growth Chart (1)

Card (1) Card (1)

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9x12 envelope (1) (1)

Early Educator Resource KitEarly Educator Resource Kityy

CD ROMCD ROMCD-ROMCD-ROM

Flyers for Parents (50)

Flyers for Parents (50)

Fact sheetsMilestones checklists

Fact sheetsMilestones checklists

Packaged in sealed white

Parents (50)Parents (50)

Growth Charts (3)Growth Charts (3)Small Posters (3)Small Posters (3)

Tips for talking to parentsTips for talking to parents

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Packaged in sealed white 9x12” envelope

Additional Print Materials Additional Print Materials

• Print materials• Print materialsHCP FlyerHCP Flyer

– Informational card refill kit (500 cards)Fact sheet refills

– Informational card refill kit (500 cards)Fact sheet refills– Fact sheet refills (set of 15 fact sheets)

– Growth chart kits (10 charts)O t h kit (100 h lf fl )

– Fact sheet refills (set of 15 fact sheets)

– Growth chart kits (10 charts)O t h kit (100 h lf fl )

Early Educator FlyerEarly Educator Flyer

– Outreach kits (100 half-page flyers)• For parents • For health care professionals

– Outreach kits (100 half-page flyers)• For parents • For health care professionals• For early educators• For early educators

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www.cdc.gov/actearlywww.cdc.gov/actearly

• Order form / Materials • Order form / Materials available for download

• Interactive Tools for

available for download

• Interactive Tools for Parents

• Links and Additional R

Parents

• Links and Additional RResources

• Partner Spotlights

Resources

• Partner Spotlights

• And more!• And more!

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Public Service AnnouncementsPublic Service Announcements

• Print (sizeable to your needs)• Print (sizeable to your needs)( y )

• Television (30-second; English only; “tagable”)

( y )

• Television (30-second; English only; “tagable”)

• Radio (60-second; “tagable”)• Radio (60-second; “tagable”)

Y /h h PSAY /h h PSAYou can see/hear the PSAs on our website. Look for “Public Service

Announcements” on the right-hand navigation bar, near the bottom of

You can see/hear the PSAs on our website. Look for “Public Service

Announcements” on the right-hand navigation bar, near the bottom ofnavigation bar, near the bottom of

the page.navigation bar, near the bottom of

the page.

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Template MaterialsTemplate Materialspp

• Co-brand and customize f ff t

• Co-brand and customize f ff tfor your efforts– You provide the

information/logo

for your efforts– You provide the

information/logo– We drop it in and

provide printer-ready files

– You take files to local

– We drop it in and provide printer-ready files

– You take files to localYou take files to local printer

• Important note: HHS and CDC logos become

You take files to local printer

• Important note: HHS and CDC logos become g“words” on template materials

g“words” on template materials

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Progress to DateProgress to Dategg

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DocStylesDocStylesDocStyles

2008 Ph i i R l

DocStyles

2008 Ph i i R l2008 Physician ResultsBaseline (2004) Comparisons

2008 Physician ResultsBaseline (2004) ComparisonsBasel ne ( 00 ) ompar sons

n= 250 Pediatricians

Basel ne ( 00 ) ompar sons

n= 250 Pediatriciansn= 250 Pediatriciansn= 487 Family/General Practice

n= 250 Pediatriciansn= 487 Family/General Practice

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In 2008, 42% of pediatricians and 23% of gen/fam physicians In 2008, 42% of pediatricians and 23% of gen/fam physicians and 23% of gen/fam physicians reported having heard of CDC’s

“L th Si A t E l ”

and 23% of gen/fam physicians reported having heard of CDC’s

“L th Si A t E l ”“Learn the Signs. Act Early.”“Learn the Signs. Act Early.”

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Have Resources Needed to Teach Parents about Tracking DevelopmentHave Resources Needed to Teach

Parents about Tracking DevelopmentParents about Tracking DevelopmentParents about Tracking Development77%80%

49%

57%

50%

60%

70%

32%

30%

40%

50%

20042008

10%

20%

0%Pediatricians Fam/Gen Phys

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Believe Early Intervention Can HelpBelieve Early Intervention Can Helpy py p95%95%

89% 88%

85%

90%

80%80%

85%20042008

75%

70%Pediatricians Fam/Gen Phys

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Knowledge of Resources for Referrals and Treatment

Knowledge of Resources for Referrals and TreatmentReferrals and TreatmentReferrals and Treatment

89% 92%100%

68%73%

70%80%90%

40%50%60%

20042008

10%20%30%

0%10%

Pediatricians Fam/Gen Phys

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Typically Recommend Concerned Parents “Wait and See”

Typically Recommend Concerned Parents “Wait and See”Parents Wait and SeeParents Wait and See

32%35% 30%

22%

32%

26%

25%

30%

35%

15%

20%

5%

20042008

5%

10%

0%Pediatricians Fam/Gen Phys

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HealthStylesHealthStylesHealthStylesHealthStyles

2008 Parent ResultsBaseline (2004) Comparisons

2008 Parent ResultsBaseline (2004) ComparisonsBaseline (2004) ComparisonsBaseline (2004) Comparisons

2008 n= 559 Parents of Young Children2008 n= 559 Parents of Young Children

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In 2008, 29% of parents In 2008, 29% of parents reported having heard of CDC’s

“Learn the Signs. Act Early.”reported having heard of CDC’s

“Learn the Signs. Act Early.”Learn the Signs. Act Early.Learn the Signs. Act Early.

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Look for Developmental MilestonesLook for Developmental Milestonespp

58%66%70%

2005 58%

50%

60% 2007

28% 24%30%

40%

1% 2% 4% 1%9% 8%

10%

20%

1%0%

Stronglydisagree

Disagree Neutral Agree StronglyAgree

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In 2008, 24% of parents In 2008, 24% of parents reported using a checklist to

track development.reported using a checklist to

track development.track development.track development.

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Knowledge of Behavior Suggesting Autism

Knowledge of Behavior Suggesting AutismSuggesting AutismSuggesting Autism

55%57%60% 55%

38%

50%20042008

37% 38%

30%

40%

20%

1%5%

1% 1%5%

1%0%

10%

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Will not sharetoys

Colicky for 6months

No words by 2 orlosing words

Impulsive Don't know

Best Time to Get Help for Children with Autism

Best Time to Get Help for Children with AutismChildren with AutismChildren with Autism

49%50%

40%35%40%

45%50% 2004

2008

35%

30%35%

21%18%

22%

15%20%25%

8%4%5%

10%15%

280%

Before 6 months Before 2 years Before kindergarten Don't Know

Who Can Best See Early Signs of Autism

Who Can Best See Early Signs of Autismof Autismof Autism

64% 62%70%

2004

54%58%

45%

64%

53%

62%

50%

60%20042008

45%37%

28%

40%

50%

22% 24%20%

28%

13%20%

30%

13%

0%

10%

29

0%Parents School

TeachersDaycareProviers

MedicalProfessionals

Other Don't Know

Asked HCPs About DevelopmentAsked HCPs About Developmentpp

26%30%

2005

18%

23% 23%

20%22%

26%

18%18% 18%20%

25%20052008

18% 18%18% 18%

12%15%

20%

5%

10%

0%

5%

Strongly Disagree Neutral Agree Strongly

30

Stronglydisagree

Disagree Neutral Agree Stronglyagree

HCP Asked About DevelopmentHCP Asked About Developmentpp55% 55%60%

2005

40%

50% 2008

23%30%

9%8%

11%16%

18%

10%

20%

5%2%

0%

10%

Strongly Disagree Neutral Agree Strongly

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Stronglydisagree

Disagree Neutral Agree Stronglyagree

What to Do If HCP Says “Wait and See”

What to Do If HCP Says “Wait and See”Wait and SeeWait and See

72%80%2004

55%

72%

60%

70%20042008

29%

38%40%

50%

29% 26% 27% 27%

%20%

30%

4% 4%8%

0%

10%

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Wait 6 months Wait 1 year Take toanother Dr.

Contact EI Don't Know

Looking Ahead…Looking Ahead…L gL gAUCD PartnershipAUCD Partnership• 2008 “Research Topics of Interest”

– Improve screening and referral practices among general/family physicians (2 research projects)

• 2008 “Research Topics of Interest”– Improve screening and referral practices among

general/family physicians (2 research projects)general/family physicians (2 research projects)

• 2008 “Collaborative Research Awards”– Using Positive Parenting to Teach Child Development

general/family physicians (2 research projects)

• 2008 “Collaborative Research Awards”– Using Positive Parenting to Teach Child Development g g p– Involving Allied Health Care Professionals in Helping

Parents to Navigate Systems for Autism Spectrum Disorder (ASD)

g g p– Involving Allied Health Care Professionals in Helping

Parents to Navigate Systems for Autism Spectrum Disorder (ASD)

Ongoing partnership with HRSA/MCHB and Combating Autism Act Initiatives

Ongoing partnership with HRSA/MCHB and Combating Autism Act Initiatives

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Thank you!K ti Kilk G

Thank you!K ti Kilk G Katie Kilker Green

kpk9@cdc.govKatie Kilker Green

kpk9@cdc.gov

www.cdc.gov/actearlywww.cdc.gov/actearlyg / yg / y

PartnersPartners• Association for University Centers on • Association for University Centers on Association for University Centers on

Disabilities (AUCD)• HRSA/Maternal and Child Health Bureau• Easter Seals

Th C lth F d

Association for University Centers on Disabilities (AUCD)

• HRSA/Maternal and Child Health Bureau• Easter Seals

Th C lth F d• The Commonwealth Fund• Cooperative Extension Program• Early Head Start/Zero to Three• Indian Head Start

• The Commonwealth Fund• Cooperative Extension Program• Early Head Start/Zero to Three• Indian Head StartIndian Head Start• National Association of Child Care Resource

Agencies• National Early Childhood Technical

Assistance Centers

Indian Head Start• National Association of Child Care Resource

Agencies• National Early Childhood Technical

Assistance CentersAssistance Centers• Network of Autism Training and Technical

Assistance Programs• Society for Developmental Pediatrics

Assistance Centers• Network of Autism Training and Technical

Assistance Programs• Society for Developmental Pediatrics• National Association of Pediatric Nurse

Practitioners• Society of Physician Assistants in Pediatrics

• National Association of Pediatric Nurse Practitioners

• Society of Physician Assistants in Pediatrics

and more!

35

…and more!