living donor kidney transplant april 15, 2012 margaret leid transplant community liaison penn...
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Living Donor Kidney Transplant
April 15, 2012
Margaret LeidTransplant Community Liaison
Penn Transplant [email protected]
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Greater Philadelphia Region Kidney Transplant Centers Deceased & Living Donor Transplants: Volume*
* Scientific Registry of Transplant Patients, January 2012.Time period 7/1/2010 – 6/30/2011. www.srtr.org
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Penn Transplant Institute3-Year Patient Survival
Penn Transplant InstituteBest 3-Year Graft Survival in Region
Penn Transplant Institute Highest Volume Center in the Region
SRTR Data 1/2012. For patients transplanted
between 1/1/2006 and 6/30/2008
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Penn Transplant Institute – Kidney Transplant Program
EXPERIENCEFirst kidney transplant
1966
VOLUMEHighest volume in
Philadelphia Region
OUTCOMESBest 3-year graft survival rates in
Philadelphia region*
LIVING DONOR TEAMOne of country’s most experienced teams. Most living kidney donors in region*
GUEST HOUSEFor transplant
patients and their families traveling
more than 50 miles
EVAL CLINIC YARDLEY, PA
Reduces travel time by car from NYC by
one hour each direction
ACCESSIBLEBy Train
Amtrak, NJ Transit By Bus
Greyhound Megabus, Bolt Bus
LOCATIONHistoric University of
Pennsylvania Campus located in
shopping/dining University City District
*Based on January 2012 SRTR data
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Clyde F. Barker Penn Transplant HouseNEW GUESTHOUSE
Built in June 2011For Penn transplant patients and families traveling more
than 50 miles
SUPPORT THROUGH ALL PHASES OF CARE
EvaluationSurgery
Follow-up
CONVENIENT LOCATION
Five blocks from PennOn Septa bus line
INSURANCE COVERAGE
Considered part of travel expense for transplant
evaluation and follow-up.Check with insurance company
KIDNEY TRANSPLANT SUPPORT GROUPS
Second Sunday of each month. Pre and post transplant patients
and their familiesLight refreshments provided
LONG TERM STAYSBeautiful common kitchen area
with storage for each family. Common living and dining area
for connection with other transplant patients and families.
For Reservations and Additional Information: 215-662-4540
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Questions to Run On
Why does a kidney from a living donor sometimes last twice as long as a kidney from a deceased donor?
How do I know it is safe for my friends or family to donate a kidney to me?
How does someone interested in learning about donating a kidney get information before committing to the surgery?
What are the health requirements for someone thinking about donating a kidney?
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How Do Kidneys Become Available?
DONOR HOSPITAL
Living Donors Do Not Need to Be in Your
Family
OR
Living Kidney Donors4 to 6 Year Wait
Deceased Donor Kidneys
UNITED NETWORK OF ORGAN SHARING (UNOS)
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(UNITED NETWORK FOR ORGAN SHARING)
Government contract to oversee the national
system for U.S. organ procurement an transplantation
One Central Database
ACUTE CARE HOSPITALSACUTE CARE HOSPITALS
Work with OPOs to coordinate the Work with OPOs to coordinate the organ donation processorgan donation process
Transplant Waiting List:
Updated Every Time A Family Says Yes to Donation and Every Time a
Patient is Added to the List
Where do deceased donor kidneys come from?
TRANSPLANT CENTERS
List patients for transplant Penn is 1 of 256 transplant
centers in the U.S.
Donor Data Sent to UNOS
Family Says Yes to
Donation
Recipient data sent to UNOS
computer system
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112,637
U.S.TRANSPLANT WAITING LIST ALL ORGANS 90,621
KIDNEY = 80%
WAITING
GIFT OF LIFE DONOR PROGRAMDONATION YEAR 2009-2010
780 KIDNEY
TRANSPLANTS
OPTN DATA 1/20/2012
http://optn.transplant.hrsa.gov
Our Region5,335
AVERAGE WAITING TIME
3–5 YEARS
(BASED ON BLOOD TYPE)
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91,425 people in U.S. waiting for kidney
An average of 16,000 people receive kidney transplants per year
Gallup Poll of Americans
93%Would Donate Their Loved One’s Organs If They Knew Their Wishes Ahead of Time
Donor DesignationPennsylvania
45.2% Philadelphia County
30%
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How Many of Your Patients
Understand:
Dialysis shortens life expectancy compared to transplant.
The less time on dialysis before transplant, the better the kidney will function and
the longer it will last.
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Optimum Strategies to Minimize Time On Dialysis
Living Donors
Consider Kidneys from Expanded Criteria Donors
(ECD)
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Summary of Options
Own healthy kidneys
Living donor kidney
Standard criteria kidney
Expanded criteria kidney
Dialysis
Most life years
Fewest life years
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Why does a kidney from a living donor sometimes last twice as long as a kidney from
a deceased donor? Kidney not impacted by brain death.
The time the kidney is without blood flow is dramatically reduced.
Living kidney donors are healthier than the average person.
Only very healthy people are accepted at Penn to be living kidney donors.
First living donor transplant at Penn more than 40 years ago. Donor and recipient still doing well.
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Benefits of Living Kidney Donor Transplantation
Kidney lasts longer – improved quality Avoid dialysis completely or shorten time on dialysis
• Before complications develop Improved patient survival Avoid 4-6 year wait for deceased donor kidney Time of transplant operation is made at convenient
time for donor and recipient Minimal delayed organ function Medicines post-transplant may be less aggressive
Who can be a living donor? Family member
Friend Stranger
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Living Donor Evaluation ProcessExtensive and Thorough
DONOR EDUCATION
SESSION
MULTI-DISCIPLINARY EVALUATION
NEPHROLOGY EVALUATION
SURGICALEVALUATION
DONOR SELECTION
COMMITTEE REVIEW
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Interested in Living Kidney Donation?Steps for Listed Patients
Complete all testing and attain status 1 on the transplant waiting list.
Share with your family and friends your experiences with chronic kidney disease and dialysis.
1. Invite interested potential donors to complete the Living Kidney Donation Referral Form.
2. Encourage friends and family members to support organ donation awareness initiatives through Gift of Life.
Steps for Potential Donors
1. Submit request for private preliminary consultation with the Living Kidney Donor team.
2. Learn about the living kidney donor process through the evaluation process
3. Talk with the team about concerns and questions.
4. Decide if this is the right option for you at this time.
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What Are the Top 5 Criteria to be a Living Kidney Donor?
Free from diabetes, cancer, kidney disease, heart disease and
substantial high blood pressure.Physically fit - Body Mass Index
(BMI) <30
Between 21 and 60 years old
Stability in life maintenance issues.Good general health
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Paired Kidney Exchange
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How to Find a Living Donor
Share your story about dialysis and needing a kidney transplant.
Learn about living donor kidney transplant
- Volunteer organizations- Religious groups- Friends and family: consider a spokesperson
Penn Transplant Website http://www.pennmedicine.org/transplant/
American Society of Transplant Surgeons (ASTS) http://www.a-s-t.org/
National Kidney Foundation - http://www.kidney.org/
American Society of Transplantation http://www.asts.org/ResearchEducation/PatientEducation.aspx
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How does someone interested in learning about donating a kidney get information
before committing to the surgery?
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Patient Education
Lobby Days
One to One Sessions
Intro to Kidney Transplant
Multiple Listing
Dialysis Unit Staff
Inservices/Luncheons
Transplant Eval Process
Organ Donation Protocols
Understanding SRTR Data
PENN KIDNEY TRANSPLANT : PATIENT & STAFF EDUCATION SERVICES
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