pediatricians' perceptions of the effectiveness of...

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O 196-206X / 88/ 090 1-0012502.00/ 0 DEVELOP,\ IENT1\l AND B EMAVIORAL PEDIATRICS '' 1988 by Williams & Wilki ns Co. Vol. 9. No. I, February 1988 Pri11t<'di11 U.S.11. Pediatricians' Perceptions of the Effectiveness of Early Intervention for At-Risk and Handicapped Children MICHAEL J. GURALNICK, PH.D. Child Development and Mental Retardation Center, University of Washington, Seattle, Washington KAREN E. HEISER, PH .D. Department of Education, Columbus Children's Hospita l, Columbus, Ohio ANTOINETTE P. EATON, M.D. Columbus Children's Hospital, Columbus, Ohio FORREST C. BENNETT, M.D. Child Development and Mental Retardation Center, University of Washington, Seattle, Wash ington H. BURTT RICHARDSON, JR. , M.D. Winthrop Family Pediatric Center, Winthrop, Maine JOSEPH M. GROOM , M. A. The Nisonger Center, The Ohio State University, Columbus, Ohio ABSTRACT. To evaluate pediatricians' perceptions of the effectiveness of early intervention for handicapped and at-risk children, all board-certified pediatricians in the state of Ohio were surveyed. A detailed question- naire was developed which included the use of brief but specific cases identifying eight different children with documented handicaps and two cases of children at developmental risk. Overall, the results i ndicated that pediatricians judged early intervention to produce at least a modest effect on children's general development and function. A more optimistic perspective was held for families in that involvement in early intervention was viewed as improving substantially the ability of families to cope with the problems of a handicapped or at-risk child and to pro vi de a supportive and stimulating environment. However, perceptions of effectiveness did vary for specific disability and at-risk groups. The correspondence between perceived effectiveness and ex- isting research findings also was discussed. J Dev Behav Pediatr 9: 12- 18, 1988. Index terms: early interven- tion, ratings by pediatricians, c hi ld and family outcomes. The emergence or concerted national and local efforts J es igned to promote the development and implementa- ti on 0 r ea rl y intervention programs for children with doc- umented handicaps, and ror those at ri sk f or deve lopmen- tal problems, has res ulted in a diverse and ex tens iv e array or programs that have touched virtually every community in the United States. 1 Although the prec ise nature and form o r the in volve ment or primary care pediatricians in the fiel d o r early intervention is st ill evolvi ng , it is clear that pi vo tal roles exist with regard to identi ri cation , di ag- nosis, and rererral , as consultants to schoo ls and to other profess ionals, and as part or a multidi sc iplinary effort rocusin g on th e health and developmental conce rn s or in - dividual children and fam ili es. 2 How these ro les are carried out is certa in to be innuen ce d by pedi atricians' pe rc eptions of th e effec ti ve ness of ea rl y Address for reprints: Michael J. Guralnick, Ph.D., Director, Child De- velopment and Mental Retardation Center, WJ - 10, University of Wash- ington, Seattle, WA 98195. 12 intervention programs. Un fortunately, the effectiveness of these se rvices for both children and families has been or conce rn lo professionals fr om many di sci plines, in- cluding pedialrics.3-5 The o ften controversial nature of these systematic and experie ntiall y based ear ly interve n- tion programs is, in part, a resu lt of the unusually co m- plex methodological problems researchers encounter in conduct in g e ffi cacy studies in t hi s field.6 It also reflects a tendency to seek gl oba l, summary statements about t he effec ti ve ness o r early intervention ,7 an approach that has many limitations rrom theoreti ca l, cl inical, a nd public policy perspectives.s.9 In fact , it is now cl ear that assessme nt s or efficacy must be linked to and qualified by ma ny f ac tors, including specific han di capping cond i- ti ons or a child's r is k stat us, the severity of each disabil- ity, the conditions under whi ch in tervention occ urs, and associated child, family, and en vironmenta l vari ab les, as well as the specific outcomes of interest. ID Differentiating child and family outcomes appears to be a part icul arl y im- portant aspect of t hi s evaluative process.

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Page 1: Pediatricians' Perceptions of the Effectiveness of …depts.washington.edu/chdd/guralnick/pdfs/Guralnick...pediatricians in response to the first mailing. A follow-up mailing was conducted

O 196-206X / 88/ 0901-0012502.00/ 0 DEVELOP,\ I ENT1\l AND BEMAVIORAL PEDIATRICS Copyri~h l '' 1988 by Williams & Wilki ns Co.

Vol. 9. No. I, February 1988 Pri11t<'di11 U.S.11.

Pediatricians' Perceptions of the Effectiveness of Early Intervention for At-Risk and Handicapped Children

MICHAEL J. GURALNICK, PH.D. Child Development and Mental Retardation Center, University of Washington, Seattle, Washington

KAREN E. HEISER, PH.D. Department of Education, Columbus Children 's Hospital, Columbus, Ohio

ANTOINETTE P. EATON, M.D. Columbus Children's Hospital, Columbus, Ohio

FORREST C. BENNETT, M.D. Child Development and Mental Retardation Center, University of Washington, Seattle, Washington

H. BURTT RICHARDSON, JR. , M.D. Winthrop Family Pediatric Center, Winthrop, Maine

JOSEPH M. GROOM, M.A. The Nisonger Center, The Ohio State University, Columbus, Ohio

ABSTRACT. To evaluate pediatricians' perceptions of the effectiveness of early intervention for handicapped and at-risk children, all board-certified pediatricians in the state of Ohio were surveyed. A detailed question­naire was developed which included the use of brief but specific cases identifying eight different children with documented handicaps and two cases of children at developmental risk. Overall , the results indicated that pediatricians judged early intervention to produce at least a modest effect on children's general development and function . A more optimistic perspective was held for families in that involvement in early intervention was viewed as improving substantially the ability of families to cope with the problems of a handicapped or at-risk child and to provide a supportive and stimulating environment. However, perceptions of effectiveness did vary for specific disability and at-risk groups. The correspondence between perceived effectiveness and ex­isting research findings also was discussed. J Dev Behav Pediatr 9: 12- 18, 1988. Index terms: early interven­tion, ratings by pediatricians, child and family outcomes.

The emergence or concerted national and local efforts J esigned to promote the development and implementa­tion 0 r early intervention programs for children with doc­umented handicaps, and ror those at risk for developmen­tal problems, has resulted in a diverse and extensive array o r programs that have touched virtually every community in the United States. 1 Although the precise nature and form o r the involvement or primary care pediatricians in the field o r early intervention is st ill evolvi ng, it is clear that pivotal roles exist with regard to identirication , diag­nosis, and rererral , as co nsultants to schools and to other professionals, and as part or a multidisciplinary effort rocusing on the health and developmen tal concerns or in­dividual children a nd fam ilies.2

How these roles are carried out is certain to be innuenced by pediatricians' perceptions of the effectiveness of earl y

Address for reprints: Michael J . Guralnick, Ph.D., Director, Child De­velopment and Mental Retardation Center, W J -10, University of Wash­ington, Seattle , WA 98 195.

12

intervention programs. Un fortunately, the effectiveness of these services for both children and families has been or concern lo professionals from many disciplines, in­cluding pedialrics.3-5 The o ften controversial nature of these systematic and experientiall y based early interven­tion programs is, in part, a result of the unusually com­plex methodological problems researchers encounter in conducting efficacy studies in this field.6 It also reflects a tendency to seek global, summary statements about the effectiveness o r early intervention ,7 an approach that has many limitations rrom theoretical, cl inical, and public policy perspectives.s.9 In fact , it is now clear that assessments or efficacy must be linked to and qualified by ma ny factors, including specific handicapping condi­ti ons or a chi ld's risk status, the severity of each disabil­ity, the conditions under which intervention occurs, and associated child, family, and en vironmenta l variables, as well as the specific outcomes of interest. ID Differentiating child and family outcomes appears to be a particularly im­portant aspect of this evaluative process.

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Effectiveness of Early Intervention 13

In view of both the press for early intervention services and the uncertain and controversial nature of exist ing re­search, a current assessment o f pediatricians' perspectives o r these issues would provide valuable information. or particular interest is whether pediatricians' views of effec­tiveness vary with a client's handicapping condi tion o r risk status, and whether these views correspond to expectations based on existing efficacy research. In addition , the e r­rects or early intervention on families and children sho uld be considered separately, as these perceptions may well influence pediatricians' counseling and referral practices.

Accordingly, in the following study, a detailed question­naire was developed which included the use of brief but specific cases identifying eight different children with documented handicaps a nd two cases of children at de­velopmental risk. l n each case, the speci fie parameters of any disability were noted, including its severity. In addi­tion, the general conditions under which intervention was to be provided were outlined, a nd were presented as op­timal approaches. Moreover, the questionnaire was de­signed to separate out perceived effectiveness for children and for famil ies. Finally, since certain background fac­tors of the respondents such as number of years in pediatric practice, ' 1 subspecialty interest, 12 or involvement with handicapped children may be associated with perceptions of effectiveness, a series o f secondary correlational and subgroup analyses were carried out.

METHODS

Sample

The study population consisted of all pediatricians in the state of Ohio certified by the American Board of Pe­diatrics and currently practicing pediatrics on a regular basis, either in primary care or a subspecialty area. At the time o f this investigation, the list contained 999 board­cert ified pediatricians (Fellowship List, 1984-85, Ameri­can Academy of Pediatrics, E lk Grove Village, IL). Two subsamples were excluded from this survey: (I) pedia­tricians who had graduated fro m medical school before 1950, and (2) junior fellows. The first group o f pediatri­cians was excluded because many were no t currently in ac­tive practice or had substantially reduced their clinical responsibilities. Junior fellows were omi tted because they were still in the process o f completing their tra ining. The remaining sample consisted of 651 pediatricians, a ll of whom received the Early Intervention Questionnaire in late 1985 . Seven pediatricians had changed addresses and could not be contacted or were no longer in pediatric practice. Thus, the final sample consisted of 644 pediatricians.

Completed questionnaires were received from 270 pediatricians in response to the first mailing. A fo llow-up mailing was conducted 3 months later. The same question­naire, along with a reminder memo, was sent to all nonre­spondents. Questionnaires were returned by an additiona l 84 pediatricians. Thus, the combined total of respondents was 354, which is a 54. 90Jo return rate. No further follow­ups were conducted .

Questionnaire

The Early Intervention Questionnaire was divided into two major sections. In the first section of the question­naire, background information was obtained that appeared to be relevant to issues of early intervention. Specifically, data were gathered with regard to (I) year of graduation from medical school, (2) type of pediatric practice (gen­eral pediatrics, subspecial ty interest , subspecialty, other), (3) city of practice- used to identify size of the commu­nity, (4) the number of infants and young children seen in the practice, (5) whether regular consultation occurred with local infant stimulation programs, preschools, Head Start programs, etc., regarding young handicapped chil­dren, (6) the number of handicapped children seen in the practice, and (7) the proportion of children in the prac­tice from potentially adverse home environments, in­cluding those with very low income, parents with limited education, and teenage parents.

The second and main section of the questionnaire re­quested the opinions of the respondents focusing on eight separate handicappi ng conditions and two types of devel­opmental risk.

Children with Documented Handicaps. A shared con­text for responding to questions regarding early interven­tion was considered necessary, especially for children with documented handicaps. Accordingly, the questionnaire provided essential background information describing the nature of early intervention and the types o f services that are commonly received by children and their families . ln addition, since opinions with regard to the effectiveness of early intervention are likely to vary for children with d ifferent disabilities o r degrees o f severity for a given disability, a brief descr iption containing essential diagnos­tic in formation with developmental parameters for the eight different cases representing each of the documented handicaps o f interest was provided.

The eight cases with documented handicaps selected for study were: (I) cognitive delay (moderate mental retar­dation), (2) cognitive delay (mild mental retardation), (3) motor disability (moderate spastic diplegia), (4) com­munication disorder (severe expressive, mild receptive language problems), (5) hearing impairment (severe con­genital bilateral loss), (6) visual impairment (congenitally blind child), (7) aut ism (nonverbal moderately retarded child with significant self-stimulatory behaviors), and (8) multiply handicapped (profoundly retarded child with spasticity and seizures). Respondents were asked to assume that the specific service agency identified in each case pro­vides a well-run progra m, uses up-to-date individualized approaches, and employs a highly qualified staff.

For each case (handicap) , respondents were asked to complete two separate scales. The first focused on the ef­fectiveness of early intervention in relation to the handi­capped children themselves. It was stated that we were in­terested in the opinion o f each pediatrician with regard to the "probable impact of these programs on child devel­opment or function. " The second scale focused exclusively on the effects of early intervention on fam ilies, "specifi­cally their a bility to cope with the problems of a handi-

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14 GURALNICK ET AL JDBP/February, Vol. 9, No. 1

capped child and to provide a supportive and stimulating environment." Each scale ranged from no effect of early intervention (a rating of I) lo a substantial (positive or beneficial) effect (a rating of 5). A midpoint (rating of 3) was used to reflect a modest (positive or beneficial) effect. A "no opinion" option was also available. Finally, at the end of the section on children with developmental handi­caps, respondents were asked if they saw any contraindica­tions with regard to enrolling handicapped children in early intervention programs and to specify the problems and conditions for which this might be the case.

Children At Risk for Developmental Problems. An identical pattern was followed for the section on children at risk for developmental problems. A brief discussion of programs designed to prevent or minimize the possible im­pact of adverse biological (e.g., asphyxiated full-term in­fants, premature/low birth weight graduates of neonatal intensive care) and environmental factors (e.g., low edu­cational level of mother, delayed prenatal care, poverty) was presented. These two risk categories, biological risk and environmental risk, were selected for separate case presentations. The biologicalJy at-risk case consisted of a 3-month-old premature child (30 weeks' gestation, 1200 g) recently discharged from the neonatal intensive care unit. The environmentalJy at-risk case was that of an 18-month­old child from a single parent family with limited educa­tion and resources. Two of the mother's previous four chil­dren were currently enrolled in special education. Separate scales for assessing impact on the child and on the fami ly were provided, and the question on contraindications was also presented.

RESULTS

Characteristics of the Sample•

The mean number of years from the point of graduation from medical school of our sample was 20.34 (SD = 7 .97). Almost half the respondents were in a general pediatric practice (46.740'/o), 24.080'/o identified themselves as sub­specialists, and 21.250Jo indicated they were in a general pediatric practice with some subspecialty interest. The remainder selected the "other" category, identifying ad­ministration or nutrition research, for example, as their primary involvement. The practices of most respondents (83.530Jo) were in large metropolitan areas.

As noted, a series of questions was asked to determine the size of each respondent's practice and his or her in­volvement with handicapped and at-risk children. Nearly two-thirds of our sample saw more than 10 children, 5 years old or younger, per day, in their practice, and ap­proximately 15 0Jo saw more than 15. When asked if they consulted regularly with infant stimulation programs, preschools, Head Start programs, or other agencies serv­ing young handicapped child<cn, 58.630'/o responded posi-

*Not all respondents answered every question (range 337-353). Since then for each question did vary, most of the data for the background questions are presented as percentages of the total number of those responding.

tively. Respondents were then probed specifically about the number of handicapped children seen in their practice per month. One-quarter of the sample (25.070'/o) saw more than 15 handicapped children per month, but nearly half (49.280'/o) saw fewer than five per month. A similar distri­bution held for the question asking respondents to esti­mate the proportion of their practice that included children from potentially adverse home environments. Approxi­mately 100'/o of the sample responded that their practice was composed primarily of children at environmental risk, with 42. 780'/o indicating that this subgroup constituted less than 100'/o of their practice.

Perceived Effectiveness of Early Intervention for Children

A one-way repeated measures analysis of variance (ANOVA) across the 10 disability and risk status groups was carried out for all respondents who had opinions for all cases (n = 271).t This analysis was highly significant, F(9,2700) = 149.27, p < 0.0001. Pair-wise compar­isons were then evaluated using the Newman-Keuls test (p < 0.05). Figure I presents the mean effectiveness ratings for each of the 10 cases. The bracketed areas at the top of the figure indicate which cases differed signifi­cantly from others. Brackets encompassing more than one case did not differ reliably from one another. However, each of the seven bracketed groupings was significantly different from each of the others.

As can be seen, hearing-impaired children were judged by pediatricians to be most li kely to benefit from early in­tervention, approaching the highest rating possible (a substantial effect). Cases involving the visually impaired child and the child with a communication disorder con­stituted the next highest grouping, achieving average scores above 4.00. The third grouping was quite heterogenous, consisting of a case involving a child with a motor disabil­ity, a child at environmental risk, and a child with mild mental retardation. The remaining four cases all differed significantly from one another, with the child with multi­ple handicaps judged to be least affected by involvement in early intervention.

Approximately 50 respondents indicated that there were some contraindications with regard to enrolling handi­capped children in early intervention programs. Most noted the possibility of establishing false expectations for fami­lies, especially for children with severe disabilities. Finan­cial stress was the second most frequently cited problem. ln addition, a number of pediatricians were concerned about the absence of prospective longitudinal studies of effec­tiveness and the substantial professional disagreements that existed surrounding specific therapeutic modalities. Very few respondents noted any contraindications for chil­dren at risk. The only issue that emerged involved cost­benefil considerations for the biologically at-risk child .

tThe /1 used for this repeated measures analysis (27 1) was therefore based on the lowest number of possible respondents in the sample. The n for each of the 10 groups ranged from 313 to 326. Nevertheless, the smaller subset was representative of this larger sample as the means and standard deviations were virtually identical in all instances.

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Effectiveness of Early Intervention 15

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FIGURE 1. Mean effectiveness ratings for children as a function of the handicap and at-risk status groups.

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FIGURE 2. Mean effectiveness ratings for families as a function of the handicap and at-risk status groups.

Perceived Effectiveness for Families and Comparisons to Child Effectiveness

A one-way repeated measures AN OVA across the I 0 dis­ability and risk-status groups carried out for all respondents who had opinions on the effectiveness for families for all cases (n = 272) was highly significant, F(9,2710) = 45.61 , p < 0.0001. *Pair-wise comparisons using the Newman-

*To adjust for varying numbers of respondents, the same approach used for the analysis for effects on children was used here (see footnote tJ. Once again, a high correspondence existed between this sample and the slightly larger number of pediatricians responding to each of the 10 ~ases.

Keuls Lest (p < 0.05) revealed the pallern of outcomes de­picted in Figure 2. Brackets for each disability or risk group indicate which cases d iffered signi ficant ly from each other. As can be seen, the case of the hearing-impaired child received the highest effectiveness rating for families, a re­sult identical LO Lhal obtained for the effectiveness for chil­dren ratings.

To assess the relationsh ip between child and family rat­ings, we carried out separate repeated measures ANOYAs for each or the IO cases (Fig. 3).5 Thal analysis for the hearing-impaired case indicated no difference between the ratings received for the child and family assessments (p < 0.05). The visuall y impaired child received the next highest rating, a position also identical Lo that obtained for the corresponding child effectiveness assessment. The brackets in Figure 2 indicate that the visually impaired chi ld's ratings differed significantly from all other cases, except that of the chi ld identified as having a cognitive­moderate disability. Comparisons between child and fam­ily ratings for the visually impaired child (see Fig. 3) did not reveal a reliable difference (p < 0.05) , as pediatricians perceived that both children wit h sensory impairments a nd their families would benefit substantially from par­ticipat ion in early intervention programs. Children with cogni tive delays that were moderate in severity a lso re­ceived a high famil y rating. However, this ra ting differed from the child effectiveness pattern and resulted in a sig­nificantly higher rating for fami lies than for children, F(l,648) = 11 7.22,p < 0.0001(Fig.3).

The next highest ratings for families formed a cluster that included the motor, communication, and cognitive-mi ld cases (Fig. 2). This order a lso differs from that obtained from the e ffectiveness for children assessments . Separate analyses comparing child and family ratings for each of the three cases in this grouping revealed that respondents perceived the impact to be greater fo r families than for children, for cases involving chi ldren with cogni tive-mild, F(l,650) = 24.6 1, p < 0.0001, and motor F(l,646) = 13.34, p < 0.001, disabilities. In contrast, in the case of the child with a communication disorder, respo ndents per­ceived the impact on children LO be greater than that on the families, F( I ,642) = 5.04, p < 0.05. This latter dif­ference was quite small , however (Fig. 3).

T he case of the child at biological risk was part of a cluster of three groups that received the next highest ef­fecti veness rat ing for families. Once again, respondents rated the effect for families to be greater than that for children, F(l,622) = 37.44,p < 0.0001(Fig. 3). This pat­tern was retained for the ratings composed of the child with autism and the child with multiple handicaps. Rat ings for the effect on families were substant ially higher for both the childwithautism,F( l ,592) = 95.61,p < 0.0001 ,andthe mu lti handicapped child, F(l ,642) = 248.81,p < 0.0001. As can be seen, although respondents did not expect that early intervention programs would produce more than a modest effect o n chi ld development o r function for these

•The sample used for this analysis consisted or all respondents who rated both the child and family effectiveness scale for each particular ~ase (range 297-326).

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16 GURALNICK ET AL JDBP/February, Vol. 9, No. 1

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" FIGURE 3. Mean effectiveness ratings comparing child and family scales for each of the handicap and at-risk status groups.

more severely disabled children, they were considerably more optimistic wit h regard to benefits LO thei r fami lies. Finally, and in marked comrast to the pauern noted above, respondents not only ra ted that early intervention would be least effective for the ramilies of the environmemally at- risk case, but that the effect on the child would be sub­stamially greater than the effect on fami lies, F( 1,634) 28.76, p < 0.0001.

Correlations with Background Factors and Effects of Type of Practice

A series of correlat ional a nd subgroup analyses in­volving backgrou nd factors were carried out to determine whether specific outcomes were assoc iated with aspects of the respondents' practice, their involvemem with handi­capped child ren and their families, and their subspecialty interests. These extensive analyses revealed few and no sub­stant ial correlations or consistent patterns for any vari­able, suggest ing that the rati ngs described above do not require qualification. Details of these analyses can be ob­tained by writing the first author.

DISCUSSION

The results of this extensive survey of pediatricians' perceptions of the effectiveness of early intervention for at-risk and handicapped children revealed a number of im­portan t patterns. Overall , pediatricians appear to hold a posi tive view of early in tervention, j udgi ng it LO produce at least a modest impact on children's development and function and to improve substantially the abi lity of fami ­lies to cope with the problems of a handicapped child, and to provide a supportive and stimlulating environment. However, these opinions were not independent of a child's handicapping condition or risk status. Based on the re­sults of the effectiveness for children scale, pediatricians considered children with sensory im pairmems and com­munication disorders to benefit more than any of the ot her

groups, receiving an overall rating of 4.3 on the child scale. In contrast, children wi th more severe handicaps, i. e., those wi th autism and multiple impairments, were judged lo benefit to only a limited extent from early intervention . Although this study was not designed to assess the corre­spondence between these perceptions and clinical practice, it is likely that the more extreme differences reflected di f­ferent counseling and referral strategies. An important di­rection for future work in this area will be research that directly evaluates the relationship between perceptions of early imervention and clinical practice.

Pediatricians were even more positive about the impact of early intervention for families. Direct comparisons be­t ween the child and fami ly scales favored the family com­ponent for children with a wide range of existing or poten­tial disabilities, including the cognitive-mild, cognitive­moderate, motor, autism, mu ltihandicapped, and at-risk biological cases. Those instances in which no differences were found between the child and fam ily scales were due to the fact that the child effectiveness rating itself was quite high . The only major exception to this pattern was the rat­ing for children at environmental risk. In this instance, pediatricians j udged families to benefit less than their chi ldren from participation in early intervention. This finding may reflect the recognition that a large number of diverse problems confronL these families and, despite involvement in early intervemion programs, these family life patterns are not likely to be altered dramatically.

An important question to ask is whether or not these perspectives correspond to existi ng outcome data on the effectiveness of early intervention. Overall, ratings for the effectiveness for children with documented handicaps cor­respond to the general finding that responsiveness to early intervention correlates positively with a child's intellectual levet.13 However, a more detailed examination of the in­dividual disability and risk status groups suggested a more variable relationship to existing research. The case of the child with a hearing impairment received the highest rating, and current research, particularly for programs follow­ing a total communication approach, does, in fact, indicate that hearing-impaired children can benefit substantially.14

I l is nevertheless somewhat ironic that this perception is held, since a number of studies have indicated that pedi­atricians often fail to detect a hearing impairmenL suffi­ciently early .15,l6 In contrast, high effectiveness rati ngs for the cases of the visually impaired ch ild and the child with a communication disorder are not based on adequate empirical support. 17· ia In fact, virtually no systematic or scientifically sound studies are available demonstrating the effectiveness of early intervention for visually impaired children.

Pediatricians' perceptions of a modest effect for children with motor, cognitive-mi ld, and cognitive-moderate dis­abilities, as well as those at risk from environmental fac­tors, are consistent with available research. 19-21 The low ratings for children with autism and multiple handicaps also seem realistic, although there is increasing, yet st ill pr~liminary, evidence that more substantial benefits can result for autistic children.22-24 The relatively low ratings fo r children at biological risk are perhaps related to the

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Effectiveness of Early Intervention 17

fact that the child in the case described in the question­naire does not appear to have detectable problems upon discharge from the neonatal intensive care unit, despite the fact that the incidence of developmental problems in very low birth weight children is quite high.25 On the other hand, the rating may weU reflect the research litera­ture that has failed to demonstrate reliable effects of early intervention for children at biological risk.26

The finding that pediatricians viewed the impact of early intervention programs for families to be highly positive is especially noteworthy. However, despite the fact that a strong case can be made for the benefits of early interven­tion for families, the research literature has not been able to demonstrate a consistent and reliable effect,27-29 al­though this issue is currently a highly controversial one. 13

We were unable to determine from our study whether the posi tive ratings by pediatricians were based on families' perceived ability to cope with the problems of a handi­capped child, their ability to provide a supportive and stimulating environment, or both. Nevertheless, pediatri­cians tend to hold the view that families benefit substan­tially from involvement in early intervention programs, a view shared generally in the field, despite the absence of supportive research.

Despite the sampling approach that included all board­certified pediatricians residing in one state who graduated within the last 35 years and the reasonable return rate (54.9%), it is not possible to determine whether responses to the early intervention questionnaire were representative of pediatricians in the entire state or of pediatric practi­tioners in general. A comparison of respondents with non­respondents in terms of year of graduation, however, did indicate that a higher proportion of respondents than non­respondents graduated more recently from medical school. Since there was a modest negative correlation between years in practice and child and family ratings, this would suggest that respondents were likely to have been slightly more positive wi th regard to child and family outcomes for some disability or risk groups. Nevertheless, as noted

earlier, correlations with all background factors were both sporadic and extremely small, clearly suggesting that our findings need not be qualified by any of these factors . Moreover, the large sample size and the internal consis­tency of the findings add confidence to the generality of our results, but other samples are certainly necessary before our conclusions can be firmly established. To some extent, the overall positive perception may have been in­fluenced by the fact that the questionnaire stated that the early intervention programs were to be considered as be­ing well run, with highly trained staff. Although these seem like reasonable descriptions, the tendency toward extreme negative ratings by pediatricians who had personal ex­periences with inadequate programs may have been re­duced. Finally, our findings must be interpreted within the I 0 cases representing each of the disability and risk groups. Establishing a framework in the questionnaire for pediatri­cians to respond to child and family ratings was seen as essential, but nevertheless forced a choice among an ar­ray of possible child characteristics .

Conclusions

Despite the complexity and diversity of early interven­tion programs and the need for more definitive research for most disability and risk status groups, pediatricians appear to hold a generally positive and realistic outlook with regard to the effectiveness of early intervention. The high ratings received for the family scales are particularly noteworthy since, even when children are not expected to benefit even modestly from early intervention services, re­ferrals by pediatricians to early intervention programs and encouragement to families to become active participants are likely occurrences.

Acknowledgment. This research was supported by Grant 0007903056 from the Office of Special Education Programs , U.S. Department of Education.

REFERENCES

I. Public Law99-457. Education of the Handicapped Act , Part H, 1986 2. Dworkin PH: Pediatric role definition, in Levine MD, Carey WB,

Crocker AC, et al (eds): Developmental-Behavioral Pediatrics. Phil­adelphia, PA, W.B. Saunders Co., 1983, pp 1022-1035

3. Denhoff E: Current status of infant stimulation or enrichment pro­grams for children with developmental disabilities. Pediatrics 67: 32-37, 1981

4. Haskins R, Finkelstein NW, Stedman DJ: Infant-stimulation pro­grams and their effects. Pediatr Ann 7: 124- 144, 1978

5. Simeonsson RJ, Cooper DH, Scheiner AP: A review and analysis of the effectiveness of early intervention programs. Pediatrics 69:635- 641, 1982

6. Guralnick MJ: Efficacy research in early childhood intervention pro­grams, in Odom SL, Karnes MG (eds) : Early Intervention for In­fants and Children with Handicaps: An Empirical Base. Baltimore, MD, Brookes (in press)

7. Casto G, Mastropieri MA: The efficacy of early intervention pro­grams: A meta-analysis. Except Child 52:417-424, 1986

8. Dunst CJ, Snyder SW: A critique of the Utah State University early intervention meta-analysis research. Except Child 53:269-276, 1986

9. Guralnick MJ, Bennett FC (eds): The Effectiveness of Early Interven­tion for At- Risk and Handicapped Children. New York, Academic Press, 1987

10. Guralnick MJ, Bennett FC: A framework for early intervention, in Guralnick MJ, Bennett FC (eds): The Effectiveness o f Early In­tervention for At-Risk and Handicapped Children. New York, Aca­demic Press, 1987, pp 3-29

11 . Adams GL: Referral advice given by physicians . Menl Retard 20: 16- 20, 1982

12. Esposito RR: Physicians' atti tudes toward early intervention . Phys Ther 58: 160- 167, 1978

13. Dunst CJ: Overview of the efficacy of early intervention programs, in Bickman L, Weatherford DL (eds): Evaluating Early Interven­tion Programs for Severely Handicapped C hildren and Their Fam­ilies. Austin, TX, Pro-Ed, Inc., 1986, pp 79- 148

14. Meadow-Orlans K: An analysis of the effectiveness of early inter­vention programs for hearing-impaired children, in Gura lnick MJ , Bennett FC (eds): The Effectiveness of Early Intervention for At­Risk and Handicapped Children. New York, Academic Press, 1987, pp 325-362

Page 7: Pediatricians' Perceptions of the Effectiveness of …depts.washington.edu/chdd/guralnick/pdfs/Guralnick...pediatricians in response to the first mailing. A follow-up mailing was conducted

18 GURALNICK ET AL JDBP/February, Vol. 9, No. 1

15. Coplan J : Deafness: Ever heard of it? Delayed recognition of per­manent hearing loss. Pediatrics 79:206-213, 1987

16. Shah CP, Chandler C, Dale R: Delay in referral of children with impaired hearing. Volta Rev 80:206-2 15, 1978

17. Olson M: Early intervention for children with visual impairments, in Guralnick MJ , Benneu FC (eds): The Effectiveness of Early In­tervention for At-Risk and Handicapped Children. New York, Aca­demic Press, 1987, pp 297-324

18. Snyder-McLean LK, McLean JE: Effectiveness of early interven­tion for children with language and communication disorders, in Guralnick MJ, Bennell FC (eds): The Effectiveness of Early Interven­tion for At-Risk and Handicapped Children. New York , Academic Press, 1987, pp 213-274

19. Bryant DB, Ramey CT: An analysis of the effectiveness o f early in­tervention programs for environmentally at-risk children, in Guralnick MJ, Benneu FC (eds): The Effectiveness of Early Interven­tion for At-Risk and Handicapped Children. New York, Academic Press, 1987, pp 33-78

20. Guralnick MJ , Bricker D: The effectiveness of early intervention for children with cognitive and general developmental delays, in Guralnick MJ , Benneu FC (eds): The Effectiveness of Early In­tervention for At-Risk and Handicapped Children. New York, Aca­demic Press, 1987, pp 115-173

21. Harris SR: Early intervention for children with motor handicaps, in Gura lnick MJ , Bennett FC (eds): The Effectiveness of Early In­tervention for At-Risk and Handicapped Children. New York, Aca­demic Press, 1987, pp 175-212

22. Lovaas 0 1: Behavioral treatment and normal educational and in-

tellectual functioning in young autistic children. J Consull Clin Psycho! 55:3-9, 1987

23. Simeonsson RJ , Olley JG, Rosenthal SL: Early intervention for children with autism, in Guralnick MJ, Benneu FC (eds): The Ef­fectiveness of Early Intervention for At-Risk and Handicapped Chil­dren. New York, Academic Press, 1987, pp 275-296

24. Strain PS, Jamieson B, Hoyson M: Learning experiences -an alter­native program for preschoolers and parents: A comprehensive ser­vice system for the mainstreaming of autistic-like preschoolers, in Meisel CJ (ed): Mainstreamed Handicapped Children: Outcomes, Controversies, and New Directions. Hillsdale, NJ , Lawrence Erlbaum, 1986, pp 251-269

25. Bennett FC: Neurodevelopmental outcome of low-birth-weight in­fants, in Kelley VC (ed): Practice o f Pediatrics. Philadelphia, PA, Harper & Row, 1984, pp 1-24

26. Bennett FC: The effectiveness of early intervention for infants at increased biologic risk, in Guralnick MJ , Bennett FC (eds): The Effectiveness of Early Intervention for At-Risk and Handicapped Children . New York, Academic Press, 1987, pp 79-112

27. Bailey DB Jr, Simeonsson RJ : Design issues in family impact eval­uation, in Bickman L, Weatherford DL (eds): Evaluating Early In­tervention Programs for Severely Handicapped Children and Their Families. Austin, TX, Pro-Ed, Inc., 1986, pp 209-230

28. Casto G, Lewis AC: Pa rent involvement in infant and preschool programs. J Div Early Child 9:49- 56, 1984

29. Halpern R: Lack of effects for home-based early intervention? Some possible explanations. Am J Orthopsychiatry 54:33- 42, 1984