pfmd.org, an open systematic approach to patient engagement

A Systematic Approach to Patient Engagement WITH Patients

Early involvement may create highest impact, but involvement today is mostly at late phase

Roxana Radu

Less focus on the red lines (way faded than they are now). Focus should be on the "triangles" (current Patient involvement and Impact on patients") Visually we need to try and show that impact on patients is higher if you get involved earlier. Any suggestions?

Roxana Radu

Small green - patient recruitment A little bit more on trial (no green in first 2 segments)

Roxana Radu

I would still add a very thin line in the first two quadrants (very thin)

Multiple fragmentation

Roxana Radu

Not a sequence (remove arrow) & make it bigger

Roxana Radu

We need a visual showing the American and European continent coming together (eg - just a little bit of sea between them instead of an ocean) + a recognizable symbol of Christopher Columbus discovering America (like his ship crossing the tiny sea from Europe towards US)

Roxana Radu

Europe and US are getting closer (Pangea style) - almost uniting (way too close compared to reality) - Pangea style Ship - separately (or on the ground) - focus more on the continents

Roxana Radu

I think this is a step forward. What I would do to slightly improve it: - The boat should be bigger (it should be the Christopher Columbus boat) and in the bottom right corner- I would make the map bigger- I would fade out Canada somehow- add the Made with patient label and the PFMD logo (as in the classic PFMD template)

Roxana Radu

The previous image was much more suggestive (the barbed wire)

Roxana Radu

The idea is to show here a tiny boat overwhelmed by waves (think a fisherman boat in a tsunami)

Delivering on PMFD.org’s mission

Current Membership – January 2017

Partners

About PFMD

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Goal is to advance a consistent approach to meaningful patient engagement, through co-creation and implementation of an efficient, measurable and reliable meta-framework that integrates the voice of the patient across the medicines lifecycle.

Established in October 2015 as an open, independent global coalition of stakeholders managed by a not-for-profit organization.

•“Co-creation”isaboutencouragingfair and open participation andqualityinputbasedonexperienceandpersonalinsightsofall stakeholders (researchers,clinicaldevelopers,regulators,healthcareprofessionalsandpatients)toensurewedeliversignificantanddesired outcomes wherethevoiceofeachstakeholderisequally embeddedinfinaloutputs”

Governance model that ensures equality… and drives collaboration

Putting it all togetherMeta-framework co-creation and implementation

Roxana Radu

[email protected] Can we maybe get the editable file here so we could make it fit the slide specs?_Assigned to you_

Nicholas Brooke

please connect directly with John

Understanding the landscapePFMD Mapping and Networking Tool

Enter your initiatives and find partners https://involvement-mapping.patientfocusedmedicine.org/

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Searchable and interactive repository Detailed reports of initiatives Internal reports

https://involvement-mapping.patientfocusedmedicine.org/

Roxana Radu

This text can be removed. We can show snapshots of certain features in the tool with a title. Maybe it can look like a grid?

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Understanding the landscapeStakeholder Expectations Matrix

Roxana Radu

The entire slide needs to look better ( and respecting the PFMD colours)

Roxana Radu

Remove row

(Pre) Discovery PhaseEarly

development

Explore literatureExisting PE Initiatives

Frameworks

Clinical Development Phase I – III


Frameworks

(Post) Marketing

PhaseLaunch / lifecycle


Frameworks

Integrate and streamline

Defining key criteria for patient engagement3 Task Forces to Co-Create a PE Meta-Framework

Defining key criteria for PE

ACTION PLAN

Actors of the PE framework co-creation - 1st group

Roxana Radu

use this visual from the brochure with faces, stakeholder type and expertise

Roxana Radu

[email protected] Can you send me the details?

Actors of the PE framework co-creation - 2nd group

Actors of the PE framework co-creation - 3rd group

Patient Expertise

Initiatives Repartition by Focus and Geography

Partnership by Medicine lifecycle

Initiatives by medical scope

Initiatives by medical scope

Roxana Radu

Cut

Tailored organisational reports

Organization / System Development subdivision

Patient engagement initiative Contribution to advocacy goals

Get on the map, share PE practices and manage your PE portfolio1

Engage with co-creationfocused groups2

Get on board of PFMD.org!3

Where are you on the PATIENT IMPACT MAP?

Roxana Radu

Build on slide redesigned in the intro add PFMD and EUPATI bottom left

pfmd.org, an open systematic approach to patient engagement

Health & Medicine