programs & resources guide, fall 2013 issue

Programs & Resources Guide

Fall 2013

Exercise with MSLearn about the importance of exercising with MS and how the National MS Society can get you started.

MS research symposiumGet the latest news on MS therapies and have your questions answered by an MS expert.

PlusFind MS programs in your

community, a listing of local clubs, groups and exercise

classes, and ongoing resources and services available anytime.

JOIN THE MOVEMENT®

Programs & Resources GuidePrograms & Resources Guide is a free publication of the National MS Society 200 12th Ave. S.Minneapolis, MN [email protected] Editors Maggie FlanaganSteve Korngable

Chapter PresidentHolly Anderson

Promising treatments for MS Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health care professionals about using these medications and about effective strategies and treatments to manage symptoms. If you or someone you know has MS, please visit nationalMSsociety.org or call 800-582-5296 to learn more.

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

MOVING IS WHO WE ARE

Deepening our commitment to MS research

The complexity of multiple sclerosis requires a comprehensive strategy to speed the development of new disease-management therapies. We must make investments to gain knowledge, identify new treatments and improve care and quality of life for people living with MS. Our research focus in 2013 reflects this comprehensive approach, and includes:

Investing in new therapies — We’re supporting an unprecedented number of

clinical trials of potential MS therapies and investing in ways to measure the impact of therapies.

Addressing the challenges of progressive MS through the International Progressive MS Collaborative — In February, at the first international meeting of its kind, key research leaders from around the world provided input and expertise in developing research strategy and action plans aimed at finding specified therapies and solutions for people with progressive MS.

Bringing together the brightest minds in MS research — The fourth Tykeson Fellows Conference will take place this November. This unique conference facilitates the sharing of research results and provides opportunities for experts to speak about varying areas in MS research. The experience helps reinforce the fellows’ commitment to MS, fosters new collaborations and inspires each person as they interact with people with MS.

The Society is on track to contribute $47.6 million to MS research this year, one of the largest amounts in history. We will continue to pursue all promising avenues, to engage the best and brightest minds, and connect people, resources and ideas so that we can stop MS in its tracks, restore lost function and end this disease forever.

Dr. Timothy Coetzee, Chief Research Officer, National MS Society

JOIN THE MOVEMENT®

Table of contentsFeatured programsExercise with MS 4Research symposiums 5

Iowa programs 6–8

Minnesota programs 9–18

North Dakota programs 19

South Dakota programs 20–21

Anywhere programs 22–24

Resources and financial assistance 25–27

Significant progress has been made, but more must be done to ensure no opportunity is wasted, moving MS research farther and faster than ever before.

NOW is our time to make things happen.

STOP THE DISEASEWe must STOP all disease activity and prevent further progression for people who already have MS.

RESTORE WHAT’S BEEN LOSTWe must RESTORE all function that has already been lost to nervous system damage.

END MS FOREVERWe are looking toward the future, working to END MS forever.

In a recent nationwide survey, people with MS indicated research is a top priority. That’s why the National MS Society committed to a large goal — $250 million — to support a comprehensive research strategy. Our NOW campaign, which stands for No Opportunity Wasted, allows everyone to play a role in demonstrating and driving a revolution to support MS scientists in their work to:

MS NOW … an MS Research Revolution

FEATURE PROGRAM

Not that long ago, medical professionals were taught that, in order to reduce exacerbations, people with multiple sclerosis shouldn’t exercise. However, in the past 15 years, studies have shown how exercise can significantly help people with MS.

Today, research proves that exercising regularly is one of the smartest things you can do for your MS. Findings indicate exercise can decrease fatigue, improve walking speed and balance, and build endurance, strength and cardiovascular health. It can also off set depression, and lessen anxiety and stress.

Many people living with MS find it beneficial to work with a fitness instructor who is knowledgeable about the disease, understands how the symptoms of MS impact movement, and can adjust an exercise routine to accommodate everyone. The Upper Midwest Chapter provides training to all MS fitness and wellness professionals who conduct nearly 40 exercise classes within the four-state chapter area. Group exercise classes include low-impact, land-based strengthening; yoga; water exercise; and Tai Chi.

Learn moreTo see a listing of exercise programs in your community, visit pages 17, 19 or 21.

To learn about at-home exercise programs for people with MS, visit MSsociety.org and search “exercise.”

The importance of exercising with MSExercise improves overall well-being and helps manage symptoms in MS.

Exercise tips

n Check with your health care provider before starting a new exercise program.

n Consult a physical therapist about what’s most effective and best for you.

n Find an exercise program that you enjoy. It makes creating the habit much easier.

n Create some personal incentives — rewards, social time, short-term goals, whatever works.

Avoid these errors:

n Not warming up: Muscles need time to adjust to new demands. Start slowly and gradually increase intensity.

n Pushing yourself: Doing a little every day is better than a blowout once a week — so go for frequency.

n Not drinking enough water: Don’t wait until you’re thirsty. Keep water at hand.

n Not cooling down afterward: Plan for rest time! If MS symptoms (especially prickling, numbness or blurred vision) have increased, they may be heat-related. Use cool water on wrists, neck and temples, and give yourself time to cool down.

4 National Multiple Sclerosis Society

FEATURE PROGRAM

Sept. 5 n St. Paul, MNSept. 24 n Rapid City, SD

Learn about the latest MS research and therapies and have your questions answered by an MS expert. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience.

Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS.

Featured speakersSt. Paul: Dr. Mark Keegan began working for the Mayo Clinic in 2001 and is currently a consultant, associate professor of neurology and chair of the section of MS and autoimmune neurology. He is a clinician and principal investigator on a number of multi-center therapeutic clinical trials in MS.

Rapid City: Dr. Matthew Simmons is a board-certified neurologist who’s practiced in Rapid City since 1992. He has experience in the management of a variety of neurologic disorders including MS, stroke and diseases of nerves and muscles and is an associate professor and associate dean for the University of South Dakota Sanford School of Medicine.

See pages 10 and 20 for complete details.

MS research symposiumsLearn everything you need to know about the latest MS research and therapies.

Dr. Matthew Simmons

Dr. Mark Keegan

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org 5

Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

Primary-progressive MS: Perspectives on moving forwardSunday, Aug. 4, 2 p.m.Des Moines YMCA Healthy Living Center, 12493 University Ave., Clive, IA 50325

Primary-progressive multiple sclerosis (PPMS) is characterized by a steady decline in function without relapse, and current disease-modifying treatments are largely ineffective in people living with PPMS. In the DVD “Primary-Progressive MS: Perspectives on Moving Forward,” listen to four individuals living with PPMS tell their stories and share their perspectives. Discussion following the presentation will be facilitated by Tom Holtackers, whose story is featured in this program. Tom is a recently retired physical therapist. He’s volunteered with the National MS Society for more than 30 years and was named the Society’s National Volunteer of the Year in 2010. To RSVP, contact David at 515-556-5338 or [email protected].

MS roundtableA discussion about MS symptom management and wellnessSecond Thursday of every month, 11:30 a.m. – 1 p.m.Ruan MS Center, 1111 Sixth Ave., Des Moines, IA

Complimentary light lunch provided.

RSVPs are appreciated, but not required. Contact Valerie Stickel-Diehl, R.N., M.S., M.S.C.N., at 515-358-0002 or [email protected].

Carouseling for a CureSaturday, Sept. 14, 4–10 p.m.North Park, Story City, IA

Register to ride Story City’s antique carousel and ask friends and family to support your ride with donations. Carouseling for a Cure provides people living in central Iowa an opportunity to connect with other people who are similarly passionate about the MS movement; a fun, festive atmosphere; as many whirls around the carousel as you wish; plus online fundraising tools to help you raise money and awareness to end this disease forever! Food will be provided. Registration is free. To learn more visit tinyurl.com/nbgdkcy or contact Rachel at 773-380-2955 or [email protected].

Iowa programs

IOWA


IOWA

Clubs and groupsJoin an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

BurlingtonThird Saturday of the month 10 a.m. – noon, Burlington Public Library Laurie, 319-754-0407

CarrollFirst Tuesday of the month 6 p.m., Swan House Tina, 712-792-4777

Cedar Falls/WaterlooThird Thursday of the month 6:30 p.m., Covenant Medical Center Shirl, 319-235-8946

Cedar RapidsThird Sunday of the month 2 p.m., Mercy Hospital Kathy, 319-373-5390

ClintonThird Tuesday of the month 6:30 p.m., Mercy Medical Center, Boardroom, South Campus Tami, 563-357-4884

Council BluffsThird Tuesday of the month 7 p.m., United Methodist Church Jerry, 712-366-9569

DavenportFirst Thursday of the month 6 p.m., Davenport Public Library (Fairmont Branch) Becky 563-445-7645

DavenportSecond Tuesday of the month 6:30 p.m., Genesis East Heart Building (Fairmont branch) Karen, 309-736-0738

Des MoinesThird Sunday of the month 2 p.m., Walnut Ridge at Clive David, 515-556-5338

Des Moines Couples GroupThird Saturday of the month 10 a.m., St. Mary of Nazareth Church Kelli, 515-963-7788

Des Moines Men’s GroupMeets quarterly Time and location varies Ken, 515-999-9186

Des Moines Phone GroupSecond Thursday of the month 10 a.m., toll-free: 866-906-9995 Passcode: 828172 Rita, 515-480-3870

Des Moines Women’s Luncheon GroupSecond Tuesday of the month 11:30 a.m., location varies Annie, 515-724-2641

Dubuque First Tuesday of the month 6:30 p.m., Mercy Hospital Corey, 319-447-1801

Dubuque (for people living with progressive MS)First Tuesday of the month 1:30 p.m., Finley Hospital, Bartels & Butler Room Sandra, 563-582-5815

NEW


IOWA

Fort DodgeFirst Monday of the month 7 p.m., St. Olaf Lutheran Church Sheila, 515-576-1860 Marc, 515-955-5814

Iowa City 20s and 30sThird Thursday of the month 6:30 p.m., Coralville Public Library Emily, 214-677-5733

KnoxvilleThird Monday of the month 6:30 p.m., Seventh Day Adventist Church Melinda, 641-670-0994

Mason CityFourth Sunday of the month 2 p.m., Bethlehem Lutheran Kathy, 641-454-2953

OskaloosaSaturday following the third Tuesday of the month 10 a.m., Mahaska County Hospital Lin, 641-295-2030

Sioux CityFirst Saturday of the month 1:30 p.m., CNOS Clinic Janet, 605-217-2726

NEW


MINNESOTA


Minimizing your risk of fallsThursday, Aug. 1, 7 p.m.Access North, 606 NW Fifth St., Brainerd, MN

Due to mobility problems and other symptoms, people with MS are at a significant risk for falls and the resulting consequences of fall-related injuries. Although completely eliminating falls may be unrealistic, many of them occur under predictable circumstances. In her presentation, Megan Frost, P.T., will discuss key risk factors that contribute to falls and steps that can be taken to minimize or eliminate them. To RSVP, contact Jasmine at 218-839-1774 or [email protected].

Research updatesTuesday, Sept. 3, 11:30 a.m.Bethany Baptist Church, 6700 Grand Ave., Duluth, MN

Thursday, Sept. 5, 7 p.m.Access North, 606 NW Fifth St., Brainerd, MN

Saturday, Sept. 21, 10:30 a.m.,Oakdale Library, 1010 Heron Ave. N., Oakdale

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions addressed by MS specialist, Dr. Gareth Parry. Dr. Parry is a neurologist and former medical director of the University of Minnesota MS Center and Clinical Neuroscience Research Unit, as well as a professor of neurology at the University of Minnesota. To RSVP for the Duluth program, contact Bev at 218-624-1212 or [email protected]. To RSVP for the Brainerd program, contact Jasmine at 218-839-1774 or [email protected]. To RSVP for the Oakdale program, contact Samantha at 651-735-0190.

Minnesota programs


MINNESOTA

MS research symposium Thursday, Sept. 5, 5:30–7:30 p.m.Radisson Hotel Roseville, 2540 N. Cleveland Ave., Roseville, MN

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Mark Keegan from the Mayo Clinic Center for MS in Rochester, Minn. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and appetizers will be from 5:30 to 6 p.m. The registration deadline is Aug. 29.

Primary-progressive MS: Perspectives on moving forwardWednesday, Sept. 11, 6 p.m.Macalester Plymouth Church Annex, 1658 Lincoln Ave., St. Paul, MN

Primary-progressive multiple sclerosis (PPMS) is characterized by a steady decline in function without relapse, and current disease-modifying treatments are largely ineffective in people living with PPMS. In the DVD “Primary-Progressive MS: Perspectives on Moving Forward,” listen to four individuals living with PPMS tell their stories. Discussion following the presentation will be facilitated by Tom Holtackers, whose story is featured in this program. Tom is a recently retired physical therapist. He’s volunteered with the National MS Society for more than 30 years and was named the Society’s National Volunteer of the Year in 2010. To RSVP, contact Beth at 612-825-7990 or [email protected]; or Mary Lynn at 651-644-1429.

Care partner happy hour socialThursday, Sept. 12, 6–8 p.m.10 Pin Alley, PINZ, 7520 32nd St. N., Oakdale, MN

Care partners for people with MS are invited to enjoy complimentary appetizers and meet other people who understand the experience of caring for someone who has MS. Beverages must be purchased by attendees. There is no fee for this program. Registration is appreciated but not required.

20s and 30s social outingSaturday, Sept. 14, 3–7 p.m. Putt’er There Mini Golf, 1300 Midway Parkway, St Paul, MN

Join us for an afternoon of mini golf and a summer picnic! People in their 20s and 30s who have MS or have a close connection to MS are invited to join us for mini golf, food and the opportunity to connect with others. Friends and family are also welcome. Mini golf admission and picnic are provided by the Noran Neurological Clinic. Space is limited. The registration deadline is Sept. 6.


MINNESOTA

Facetime with Dr. Jonathan CalkwoodMonthly, 6:30–8 p.m.The Minneapolis Clinic of Neurology, 4225 Golden Valley Road, Golden Valley, MN

Tuesday, Aug. 13: Establishing a home exercise program

Thursday, Sept. 12: Managing pain in MS

Tuesday, Oct. 15: Research update from Annual Meeting of European Committee for Treatment and Research in MS

For more information, contact the Schapiro Center for MS at 763-302-4199.

MS Day CentersActivities at MS Day Centers help adults with MS remain active and independent and can maintain and improve physical strength, emotional health and overall quality of life. Centers also assist family members and care partners by providing respite, support and resources. Each day center offers unique programs and services, but most provide:

n educational and exercise programs;n socialization activities;n health and wellness education;n creative arts; andn much more.

Fairview MS Achievement CenterMonday through Friday, 10 a.m. – 3:30 p.m. 2200 University Ave., Ste. 140, St. Paul, MN (612-672-2815)

MS Center at Opportunity MattersTuesdays, 2–4 p.m.; Thursdays 3–4 p.m. (Resource Center) 701 23rd St. S., Sartell, MN (320-240-1990)

MS Achievement CenterSaturdays, 9 a.m. – 3 p.m. Benedictine Health Center, 935 Kenwood Ave., Duluth, MN (218-733-2254)

For more information, please visit MSsociety.org and search “day program,” or call a center directly at the number provided.


MINNESOTA


CLUBS

Book clubs

Apple ValleyFirst Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

DuluthFourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Maple GroveFourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

MahtomediFourth Tuesday of the month 6 p.m., Perkins Maplewood Judy, 651-488-4454

MinneapolisThird Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

RosevilleFirst Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 612-874-9019 or Lisa, [email protected]

Social gatherings

Arrowhead regionMeeting monthly at regional restaurant Mary, 218-827-8327

Burnsville/Apple ValleyThird Thursday of the month Noon, Perkins Restaurant, Apple Valley Mike, 952-898-2857

Forest Lake areaFourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

New Brighton/St. AnthonyFourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton Rick, 612-791-6473

New UlmSecond Monday of the month 11 a.m., Perkin’s Restaurant Sue, 507-359-4345

GROUPS

CogniFitness

MinneapolisFirst Tuesday of the month 2 p.m., Turtle Bread Company Casey, 612-722-5548

For artists, crafters and writers with MS

MS Art & Crafts Interest GroupFirst Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville Donna, 612-280-0786

For care partners

Men’s Care Partner BreakfastThird Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville Dan, 651-779-9435

Perham Care PartnersLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502


MINNESOTA

St. Louis Park Care PartnersThird Wednesday of the month 6:30 p.m., St. Louis Park City Hall Bobbie, 651-223-9858

Women Care PartnersThird Saturday of the month 11 a.m., Baker’s Square, Maplewood Jenny, 763-862-0145

For couples

Couples in their 20s and 30sSecond Saturday of the month 1–3 p.m., Courage Center, Golden Valley Kim & Tony, 763-245-3945

Stillwater CouplesSecond Saturday of the month Noon, Courage St. Croix, Stillwater Dan & Jean, 651-779-9435

For deaf and hard of hearing

Deaf MS GroupThird Saturday of the month, 10 a.m., Wentworth Library, West St. Paul No meetings June–August Colleen, [email protected],651-714-2314 v/caption-call

For GLBT

St. Paul GLBT (for GLBT living with MS)First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul Corbett, 651-603-2028

For men

Metro Area It’s Just Breakfast (with the guys)First Saturday of the month 10 a.m., Famous Dave’s, Calhoun SquareSecond Wednesday of the month 10 a.m., restaurant varies Rick, 612-791-6473

For moms with young children

Moms with Young ChildrenFirst Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina Jennifer, 952-412-1291

For primary-progressive MS

Primary-progressive MSFirst Saturday of the month Noon, Fabulous Ferns, St. Paul Joia, 651-261-3633

For people of color

Metro MS Group for People of ColorSecond Saturday of the month 10:30 a.m., Sumner Library, Minneapolis Linda, 612-290-9515

For people mildly affected by MS or recently diagnosed

Southwest Metro MS Group for Mildly AffectedThird Saturday of the month 10 a.m., United Methodist Church, Eden Prairie Lisa, 952-934-2296

South Metro Recently to Five Years DiagnosedLast Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington Carol, 612-310-0070

For professionals

Let’s Lunch: Professionals Living with MSThird Saturday of the month 11 a.m., Chatterbox Pub, St. Paul Becky, 651-292-4193


MINNESOTA

For women

Maplewood Women’s Peer Support GroupSecond Thursday of the month 1 p.m., Gustavus Adolphus Lutheran Church Joan, 651-426-3220

General groups

Albert LeaSecond Monday of the month 7 p.m., Grace Lutheran Church Cindy, 507-461-3648

AlexandriaSecond Monday of the month 4:30 p.m., St. Mary’s Office Building (No meetings Dec. – Mar.) Kathryn, 320-762-2320

BloomingtonFirst Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) (No meetings January or July) Carol, 952-884-2747

BrainerdFirst Thursday of the month 7 p.m., Access North Jasmine, 218-839-1774

BuffaloThird Monday of the month Noon, United Methodist Church Colleen, 763-682-2167

Burnsville/Apple ValleyFirst Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville Mike, 952-898-2857

CambridgeThird Thursday of the month 7 p.m., Cambridge Medical Center Bob, 763-270-0678

CanbySecond Thursday every other month, April – Dec., 3:30 p.m., Sanford Canby Medical Center Peggy, 507-223-7277

CloquetFourth Monday of the month 3 p.m., Cloquet Gospel Tabernacle Karen, 218-464-7690

ChaskaThird Tuesday of the month 12:30 p.m., Chaska Library Mary, 952-556-5599

Coon Rapids North SuburbanSecond Wednesday of the month 6:30 p.m., Coon Rapids City Center Renee, 763-757-4650

DuluthFirst Tuesday of the month 11:30 a.m. (Bring a bag lunch) Bethany Baptist Church Bev, 218-624-1212

Excelsior/MinnetonkaSecond and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior Denise, 952-474-2960

FaribaultThird Tuesday of the month 6 p.m., Buckham Memorial Library Kurt, 507-210-1853

Fergus FallsSecond Wednesday of the month 11:30 a.m., United Church of Christ Connie, 218-736-7285

Forest Lake areaSecond Thursday of the month 6:30 p.m., The Meadows for Assisted Living Susan, at 651-464-1043

Grand RapidsSecond Thursday of the month 12:30 p.m., St. Joseph Church Sally, 218-326-1371


MINNESOTA

HibbingLast Thursday of the month 1 p.m., Open Door Church Corry, 218-262-1364

HutchinsonSecond Monday of the month 6:45 p.m., Christ the King Lutheran Church Ann, 320-894-7896

Little Falls/PierzFirst Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls Rita, 320-632-5679

LuverneThird Thursday of the month 7:30 p.m., Rock County Family Services Chuck, 605-582-2309

MankatoBethlehem Lutheran ChurchJen, 507-381-3017, [email protected]

Maple GroveSecond Saturday of the month 10 a.m., St. Joseph the Worker Church Diane, 763-425-8346

MinneapolisLast Saturday of the month 10 a.m., Kingsley Commons Beth, 612-529-0651

MonticelloThird Wednesday of the month 6 p.m., Monticello Hospital Jane, 763-295-8103

New PragueFirst Tuesday of the month 6:30 p.m., Mayo Health Center (No meetings Dec. – Feb.) Adele, 952-688-8068

OakdaleThird Saturday of the month 10:30 a.m., Oakdale Library Samantha, 651-735-0190

PerhamLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

PrincetonThird Saturday of the month 10 a.m., Fairview Northland Regional Hospital Laurie, 763-389-4225

Redwood Falls/BelviewThird Thursday of the month 7:30 p.m., Redwood Area Hospital (No meetings Nov. – Feb.) Kathy, 507-641-2555

RochesterThird Wednesday of the month 7 p.m., Meadow Lake Senior Living Geri, 507-288-6255

RosevilleSecond Thursday of the month 6:45 p.m., Roseville City Hall Robin, 651-647-0809

Sauk CentreSecond Thursday of the month 11:30 a.m., Centre Crossing Townhomes Community Room Judy, 320-351-4998

ShoreviewSecond Wednesday of the month Noon, STEP Physical Therapy Mary Jo, 651-653-5844

South St. Paul/ Inver Grove HeightsFirst Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH (No meetings Dec. – Feb.) LaDonna, 651-450-6230

StaplesSecond Thursday of the month 3:30 p.m., Lakewood Care Center (No meetings June – Aug.) Angela, 320-594-6377

St. Cloud, 20s and 30sLast Thursday of the month, 6:30 p.m., restaurant varies Dennis, 320-237-5447 or [email protected]

NEW


MINNESOTA

St. CloudSecond Wednesday of the month 5 p.m., St. Cloud Public Library (No meetings June – Aug.) Betsy, 320-253-5421

St. Paul Care to ShareSecond Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

SuperiorSecond Tuesday of the month 6 p.m., Superior Public Library Pam, 715-394-6958

WasecaThird Tuesday of the month 7 p.m., Waseca Medical Center Cindy, 507-461-3648

Wayzata/PlymouthFirst Thursday of the month 1 p.m., restaurant varies, Richie 763-670-9114

WillmarFirst Tuesday of the month 7 p.m., Bethesda Nursing Home (No meetings Jan. – Mar.) Teresa, 320-235-7499

Windom/Cottonwood CountyThird Wednesday of the month 7 p.m., ALC Lutheran Church Lois, 507-831-3256

Woodbury A.M.Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church Jeanine, 651-757-6152

Woodbury P.M.Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury Jeanine, 651-757-6152


MINNESOTA

ExerciseStudies show physical activity not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Water exercise

Albert LeaFamily YMCA Susie, 507-373-8228 T/W/R, 1–1:45 p.m.

BurnsvilleMinnesota Valley YMCA Lori, 952-435-9022 T/R, 9–9:45 a.m.

Detroit LakesDetroit Lakes Community & Cultural Center Leslie, 218-844-4221 T/R, 9–10 a.m.

Eden PrairieCommunity Center Beth, 952-949-8447 M/W, 10:30–11:30 a.m.

Elk RiverFamily YMCA Jennifer, 612-618-9445 T/R, 11 a.m.

Grand RapidsItasca County Family YMCA Sue, 218-327-1161 M/W/F, 9:30–10:25 a.m.

Inver Grove HeightsThe Grove Amy, 651-554-3420 Shallow water T/R, 10 a.m.Deep water M/W, 7:15 p.m. Call for more options.

MankatoMankato Family YMCA Joy, 507-345-9813 W, 5–6 p.m.

MarshallMarshall Area YMCA Cindy, 507-532-9622 M, 4:30–6 p.m.

New HopeNorthwest YMCA Pauline, 763-592-5518 T/R, 11 a.m.–noon

OsakisClub Galeon Tony, 320-859-6280 T/R, 11 a.m.

PerhamCommunity Center Marie, 218-346-7222Land-based strengthening W, 9–9:45 a.m.Water T, 8:30–9:30 a.m.

St. CloudFamily YMCA Celeste, 320-253-2664 M/W/F, 9:30–10:30 a.m.

St. PaulJewish Community Center Stacey, 651-255-4762 T/R, 9:50–10:35 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 T/R, 10–11 a.m.

VirginiaMesabi Family YMCA Jana, 218-749-8020 T/R, 1–2 p.m.

WaconiaSafari Island Sara, 952-442-0695 M/W/F, 8:30 a.m.

WillmarKandiyohi County Area YMCA Christy, 320-222-9622Shallow water M-F, 8:30–9:30 a.m.Deep water M/W/F, 9:30–10:30 a.m.Shallow/deep combo M/W, 5:30–6:30 p.m.


MINNESOTA

WoodburySoutheast Area YMCA Pauline, 651-739-6589 T, 11:15 a.m.–noon.

Feldenkrais lessonsFeldenkrais Method is a form of exercise that aims to reduce pain in movement and promote general well-being.

St. Louis ParkLennox Community Center Linda, 952-928-6419 R, 6:35–7:35 p.m.; M, 7–8 p.m.

Tai Chi

BurnsvilleDiamondhead Education Center Linda, 651-686-0335 W, 11 a.m.–noon

Inver Grove HeightsThe Grove Amy, 651-554-3420 W, 10 a.m.; F, 9:30 a.m.

MankatoV.I.N.E. Summit Center, Karen, 507-345-5262 T, 3:30–4:30 p.m.

St. PaulFairview MS Achievement Center Casey, 612-672-2815 T/F, 9–10 a.m.

Yoga

BemidjiDionne’s OM Yoga Studio Dionne, 218-766-9262 T, 8-9 a.m.; S, 9:30–10:30 a.m.

DuluthBenedictine Health Center Jarod, 218-733-2254 R, 10:30 a.m.

Eden PrairieEden Prairie Community Center Beth, 952-949-8447 F, 10:30–11:15 a.m.

Grand RapidsMN United Methodist Church Geri, 218-259-9804 T, Noon

MankatoOld Main Village Karen, 507-345-5262 T/R, 9 a.m.

MinneapolisKingsley Commons Mary, 651-690-1850 T/F, 10:30 a.m.

Uptown YWCA Lisa, 612-822-3504 T/F, Noon

St. PaulFairview MS Achievement Center Casey, 612-672-2815 T, 9–10 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 W, 10 a.m.; R, 6:30–7:30 p.m.

Group exercise

HutchinsonPhysical Rehabilitation Center Dave, 320-484-4414 M/W, 9:30–10:30 a.m.

North OaksVillage Center Megan, 651-766-0080 M/W, 11–11:45 a.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday


NORTH DAKOTA

North Dakota Clubs and groupsJoin an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

Bismarck, MandanThird Wednesday of the month 7 p.m., Medcenter One Outpatient Services Center (enter door 20) Judy, 701-220-4181

BottineauFirst Tuesday of the month 4:30 p.m., St. Andrews Hospital Amy, 701-228-3665

DickinsonSecond Tuesday of the month 1:15 p.m., St. Luke’s Home Tom, 701-225-5103

Fargo/Moorhead Last Monday of the month Noon, Sanford Hospital DeeAnne, 701-361-6915

Fargo (for newly diagnosed)First Thursday of the month 6 p.m., restaurant location varies monthly Jennifer, 218-329-0805

Fargo/Moorhead Care Partner GroupThird Tuesday of the month 7 p.m., Hope Lutheran Church Susan, 605-988-5200

Grand ForksSecond Thursday of the month 7 p.m., North Dakota Association for the Disabled Lee, 701-787-5164

JamestownSecond Tuesday of the month 6:30 p.m., St. Paul’s United Methodist Church (No meetings June – Aug.) Denise, 701-769-2529

MinotSecond Wednesday of the month 7 p.m., Trinity St. Joseph’s Hospital Donna, 701-837-0824


BismarckYoga For You Gentle Yoga M/W/F, 9 a.m.

M= Monday T = Tuesday W= Wednesday R = Thursday F = Friday S = Saturday

Yoga For You Adaptive Yoga W, 11 a.m. Brenda, 701-255-8499

FargoHeart SpringsR, 11:15 a.m.


SOUTH DAKOTA


MS research symposium Tuesday, Sept. 24, 5:30–7:30 p.m.Holiday Inn Rapid City — Rushmore Plaza hotel, 505 N. Fifth St., Rapid City, SD

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by neurologist Dr. Matthew Simmons from the Regional Medical Clinic in Rapid City, S.D. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and appetizers will be from 5:30 to 6 p.m. The registration deadline is Sept. 17.

South Dakota programs


AberdeenSecond Saturday of the month 11 a.m., Mother Joseph Mano Retirement Community (No meetings June – Aug.) Cathie, 605-225-0724

Aberdeen SAMSFirst and third Saturday of the month 10 a.m., First United Methodist Church Lois, 605-225-7190

BrookingsFirst Monday of the month 7 p.m., Brookings Hospital (No meetings June – Aug.) Angi, 605-692-9702

HuronSecond Thursday of the month Time and location varies Brenda, 605-354-2783

MitchellSecond Saturday of the month 10 a.m., Zion Lutheran Church Brian, 605-770-7097

Rapid City Lunch BunchTime and restaurant varies Jolene, 605-341-7622

RedfieldThird Monday of the month 6 p.m., First Congregational Church Sandy, 605-472-0217

Sioux FallsThird Friday of the month Times vary, National MS Society office Susan, 605-988-5200


SOUTH DAKOTA

SpearfishSecond Friday of the month 10 a.m., Spearfish Recreation Center Liz, 605-644-8921

WatertownFourth Tuesday of the month 7 p.m., Lake Area Tech Institute Tawnya, 605-881-3171 Suzanne, 605-520-5596

WinnerThird Monday of the month 6:30 p.m., United Methodist Church Doris, 605-835-8945


Land-based strengthening

Dakota DunesCenter for Neurosciences, Orthopedics and Spine Janet, 605-217-2770 Land-based strengthening T/R, 5:30 p.m.

Sioux FallsAccessible Wellness Gym Kevin, 605-328-1870 Accessible equipment, fitness trainers, drop-in structure

Yoga

Rapid CityFitness Plus Laura, 605-721-5959 Adaptive yoga W, 10:30 a.m.; S, 10:45 a.m.

Water exercise

Sioux FallsDow Rummel Village Wellness Center Melissa, 605-575-0193Water walking T, 9–9:30 a.m.; R, 8–8:30 a.m.Neuro fit T/R, 2:30–3 p.m.Aqua Chi M, 8:30–9:15 a.m.Adaptive yoga R, 6:30–7:30 p.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday


Children & Teens with MSChildren and Teens with MS is a support and education network for children and teens with MS and their families. For more information, visit nationalMSsociety.org and search “Pediatric MS Support Group.” To register for the network, call 800-344-4867 or email [email protected].

Knowledge is PowerKnowledge is Power is a free, at-home educational series for people who are newly diagnosed and their family members. The multi-week program provides literature with up-to-date information about multiple sclerosis. To learn more or participate, call 800-582-5296 (option 1).

Person-to-PersonThe MS Person-to-Person program pairs people with multiple sclerosis with others living with the disease or with people who know a great deal about it. Person-to-Person can also connect care partners with others who can relate to their experiences. Enjoy a one-on-one connection — over the phone, email or in person — with someone who understands the challenges of the disease. To learn more or participate, contact Connie at 612-335-7964 or [email protected].

Midwest Teleconference SeriesEach month, an MS specialist provides up-to-date information on a specific topic in a one-hour teleconference format. Empower yourself with education from the comfort of your own home for free. To learn more or register, visit MSsociety.org and search “Midwest Teleconference Series;” or call 800-582-5296 (option 1).

Monday, Aug. 12, 7–8 p.m. C.T.Probiotics and MS with Dr. Loren Rolak, Director, Marshfield Clinic MS Center: Hear about MS research projects based on the hygiene hypothesis.

Monday, Sept. 9, 7–8 p.m. C.T.Complementary and alternative medicine (CAM) for MS with Patricia Kennedy, R.N., C.N.P., M.S.C.N., Can do MS nurse educator and programs consultant: Learn what CAM therapies are and their benefits and risks.

This program is supported by educational grants from

Anywhere programs

ANYWHERE


ANYWHERE

MS ConnectionMake meaningful connections and access the most up-to-date resources.Multiple sclerosis destroys connections. It disconnects the mind from the body and people from each other. But what if we could defy this disease with the very thing it seeks to destroy: connections. Would we share more knowledge? More questions? More answers? More hope? Maybe, by connecting enough small victories, we could win some really big ones.

MS Connection — a new online community that’s all about making meaningful connections when, where and how you want — provides easy access to the best content and resources the MS community can bring you. You’ll learn about the topics that are most important to you, connect with people you want to connect with and have expert MS information right at your fingertips.

Visit MSconnection.org, complete your community profile, find new connections, join and start groups and discussions and more.

If you have any questions, please contact us at [email protected].

MS Learn OnlineMS Learn Online, a Society internet program, is a convenient way to learn about multiple sclerosis. View new or archived programs on a wide variety of topics such as information for people newly diagnosed, basic facts about MS, symptom management, employment, intimacy, care partners, progressive MS and more. Registration is not required.

To view a listing of topics and links, visit MSsociety.org and search “MS Learn Online.”

My Life, My MS, My DecisionsThis series of online classes will help you boost your decision-making power. Sometimes it can feel like other people are making your decisions for you — these classes keep you in the driver’s seat. For more information, visit nationalMSsociety.org and search “My Life, My MS, My Decisions,” or call 800-344-4867 (option 1).

MS KILLSCONNECTION

CONNECTIONKILLS MS

> <


ANYWHERE

MS Next Step®

This multi-media program (DVDs, PDFs, booklets, etc.) is designed to answer questions that are commonly asked immediately following a diagnosis. If you’re just beginning your search for information about multiple sclerosis; wondering how the diagnosis may affect you; or considering issues like disclosure, treatment strategies and working with your health-care team, MS Next Step® could be an invaluable resource. If you’re newly diagnosed and would like to receive a copy of MS Next Step®, call 800-344-4867 (option 1) or email [email protected].

You CAN!You CAN! is an online resource brought to you with the help of Can Do Multiple Sclerosis (formerly The Heuga Center for Multiple Sclerosis) as a reminder that despite the challenges MS may bring, you have a whole life to live. Can Do Multiple Sclerosis teaches people with MS to focus on what they can do instead of what they cannot, empowering them to live fuller, more productive lives. For more information, visit nationalMSsociety.org and search “You Can!”


RESOURCES AND SERVICES

The National MS Society addresses the challenges of each person whose life is affected by multiple sclerosis and helps them stay independent and connected. The services listed below are available at any time to any person who wants to learn more about MS. The Society also offers limited financial assistance for individuals with a clinical diagnosis of MS.

For more information or to request an application for the services below, call 800-582-5296 (option 1).

ResourcesMS Navigators®

Contact an Upper Midwest Chapter MS Navigator® — social workers who can help guide you through the many obstacles that can result from an MS diagnosis. This includes understanding health insurance; finding affordable, accessible housing; guiding you through the process of applying for Social Security benefits; and more. Navigators will support you from diagnosis through all the various changes that occur as you move forward living with MS.

Lending LibraryThe National MS Society provides access to accurate, current and comprehensive information for people with MS, for free! Browse books, videos, DVDs and audio recordings. We mail any library items you choose. Even returning your library materials is easy; we prepay the postage! To view and request items in the Lending Library, visit MSsociety.org and search “Lending Library.” If you have questions about the Lending Library, please call 800-582-5296 (option 1).

Equipment loan programThe Society provides short-term loans for various types of medical equipment and devices. Try out equipment before making an important purchase or simply borrow equipment to address a temporary need related to the unpredictable nature of MS. Equipment and devices include (but are not limited to): manual and power wheelchairs, hospital beds, patient lifts, walkers and scooters.

Resources and financial assistance



MS ClassifiedsMS Classifieds is a virtual marketplace to buy, sell and donate mobility and assistive devices. The National MS Society, Upper Midwest Chapter does not endorse or guarantee any products or services listed on this website. Visit MSClassifieds.org to place your item for sale or to donate. If you’re interested in acquiring an item on MSClassifieds.org, you must contact the seller directly.

Phone consultationsPhone consultations are free and by appointment only. Consultations include family attorney consultations; employment consultations; tips on interviewing, resumes and more; employment discrimination/private disability consultations; and financial planning consultations. Call 612-335-7938 to schedule an appointment.

Newly diagnosed consultations: Call 612-335-7938 to schedule a face-to-face or phone consultation with an MS Navigator®. Some evening and Saturday times are available.

Financial assistanceLiving with multiple sclerosis can mean unexpected and ongoing financial difficulties for you and your family. The National MS Society, Upper Midwest Chapter is here to make sure that doesn’t stop you from moving forward. We provide limited financial grants that can assist with securing medical equipment, daily living aids, funds for household chores, counseling, emergency assistance and more.

How it worksAn MS Navigator® will talk you through the process and send you an application and/or referrals for eligible items or service providers in your area. They’ll also help you evaluate other options you may have.

We may be able to assist with part of the cost of products, such as:

n Scooters, power chairs, walkers and other mobility devices;

n Cooling vests, air conditioners and other cooling aids;

n Ramps, grab bars, bath safety products and other home modifications;

n Auto modifications such as hand controls and lifts;

n Tools and devices to simplify day-to-day tasks; and

n Much more.



We can also help with part of the cost of services that make life easier, such as:

n Mental health counseling;

n Transportation to and from medical appointments;

n Home assessments to increase safety and accessibility;

n Respite care services (a break for unpaid caregivers);

n Yard maintenance, snow removal and light housekeeping;

n Exercise and wellness classes and opportunities;

n College scholarships for people with MS and their children; and

n Many more.

To learn more, contact us at 800-582-5296 or [email protected], or visit the Financial Assistance Web pages at MSsociety.org.


My daughter was diagnosed with MS more than three years ago. I want her to see a cure in her lifetime. That’s the reason I’ve included a bequest to the National MS Society in my will.

Join the Movement®

It’s easy to provide for causes you care about, and the National MS Society can help you learn how. Contact Jennifer at [email protected] or 612-335-7965.

Alexis, diagnosed in 2009.

WE CARE ABOUT A CURE … THIS IS

WHY WE GIVE

Nominate your caregiver or health care provider

Submit your nominations for the National MS Society, Upper Midwest Chapter’s Starfish and Luminary

awards before the Sept. 6, 2013, deadline!

The Luminary Award recognizes the support, guidance and compassion of outstanding care partners. Nominations may include a spouse, partner, child, parent, friend or anyone else who goes out of his or her way to bring joy to the life of a person with MS.

The Starfish Award honors a neurologist, physician, nurse, physical therapist or any health care professional who consistently goes above and beyond his or her responsibilities to make a difference

in the lives of people with MS.

Visit MSSociety.org for more information or to submit your nominations.

programs & resources guide, fall 2013 issue

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