research shouldn’t sit on a shelf: stories of strength, action and resilience from women living...

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Mubnii Morshed, from Women’s Health in Women’s Hands Community Health Centre in Canada, introduces a digital storytelling videos made by seven women representing different stakeholders within the HIV community.

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Page 1: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV
Page 2: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Partners:

Funders:

Page 3: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Agenda Introduction to WCBR

Project

Introduction to Digital

Storytelling

Screening of 4 Videos

Q & A with Video

Participants Panel

Group Discussion:

Innovative Ideas for Knowledge

Mobilization in Community

Research

Page 4: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

The WCBR ProjectInvolving Ontario HIV-positive Women And

Their Service Providers In Determining Their Research Needs And Priorities

Page 5: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

The WCBR Project Mixed method study funded by the Canadian Institute of Health

Research (CIHR) between 2007 – 2010

Implementation team:

2 Principle investigators

5 Co-investigators

25 CAB members

12 women living with HIV as Peer Research Assistants

Think Tank of experts in between the two phases to

determine direction for phase II

Page 6: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

WCBR - Phase 1 15 focus groups were conducted with women living with HIV (n=104)

across Ontario, Canada including:

Aboriginal, African/Caribbean, South Asian, Latina, sex worker,

injection drug user, lesbian/bisexual/queer, and transgender

women

5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay

Peer Research Assistants (PRAs) from targeted populations were

trained as a component of study development and implementation

4 focus groups were also done with service provides and

researchers (n=45) in Ottawa, Hamilton and Toronto

Page 7: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

WCBR - Phase 2 A quantitative survey was developed to further investigate themes and

priorities of women living with HIV

A total of 166 women ranging from 18 – 69 years of age

Three regions: Ottawa, Toronto, Southwestern Ontario

1. What is the influence of HIV-related stigma, gender-based discrimination

and racial discrimination on quality of life, depression and access to care

among Black, African, Caribbean and Canadian women?

2. What is the influence of social support and resilient coping on quality of

life, depression and access to care among Black, African, Caribbean and

Canadian women?

Page 8: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

KTE ActivitiesRange of KTE Activities targeted to multiple

audiences:

1. Scientific community:

18 conference presentations

6 papers published in peer reviewed journal

1 paper in review

2 in preparation

2. Service providers and communities of

women living with HIV

Community report

Forums – 7 done across Ontario

3. Multiple audiences

7 Digital Story Telling videos

Page 9: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Digital StorytellingWhat is it?Why did we choose it?How does it work?

Page 10: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

What is Digital Storytelling?

Digital storytelling

combines the traditional

art of storytelling with

multimedia features such

as: photography,

animation, text, audio,

voiceover, and video

“New Folklore of the Digital Age”

Page 11: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Why Digital Stories?

Initial: ~25 min full video

Final: 7 digital storytelling videos (~3 mins each)

Individual vs. collective experiences in research

Reflexive Process

Using own voice – individual ownership of video

Social Media Strategy

Page 12: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

How does it work?

1. Story Circle

2. Discussion/Feedback

3. Script Writing (3 min)

4. Storyboard/Plan

5. Voiceover

6. Gather photos/videos/art

7. Final Cut Express

8. Finish & Screen

Page 13: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Q & A with Panelists

Carmen Logie Marvelous Muchenje Wangari Tharao

Page 14: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

WCBR Study ReportWebsite: www.whiwh.com

Page 15: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Digital Storytelling VideosWebsite: www.youtube.com/TorontoWHIWHCHC

Page 16: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

WCBR Project Interactive Website (In progress)

Features

• Embedded Videos

• Biographies

• Final Report

• Results + Themes

• Updates/Events

• Pre/Post Survey

• Social Media

• Discussion/Forum

Page 17: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

1. What are some challenges you find in mobilizing knowledge?

2. How can we facilitate research to action in CBR? (“now what?”)

3. Examples of innovative KTE strategies/projects

4. Breaking the stigma on HIV research – how can KTE help?

Open Discussion

Innovative Ideas for Knowledge Mobilization

in Research

Page 18: Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

Thank You!

Contact Information:

Mubnii Morshed, MPHResearch Coordinator

Women’s Health in Women’s Hands CHCToronto, Canada

[email protected]