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Shared DecisionMaking at Group Health David K. McCulloch, MD Medical Director of Clinical Improvement

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Page 1: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Shared Decision‐Making at Group Health

David K. McCulloch, MDMedical Director of Clinical 

Improvement

Page 2: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

What is shared decision making?

Togetherthey 

make a decision

Patientsconsider options

Doctorsshare 

information

Page 3: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Decision Aids Help to Facilitate Shared Decision Making (SDM)?

“Shared medical decision making is a process in which the physician shares with the patient all relevant risk and benefit information on all treatment alternatives and the patient shares with the physician all relevant personal information that might make one treatment or side effect more or less tolerable than others.  Then both parties use this information to come to a mutual medical decision.”

Source: American Journal of Law & Medicine, 2006 

Page 4: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

SDM with Decision Aids is a high legal standard for informed consent in WA state

On May 2, 2007, Governor Chris Gregoire signed into law a bill, E2SSB 5930 (Chapter 259, Laws of 2007), that recognized SDM with decision aids as a high standard of informed consent in WA state law. Legal documentation of SDM in the medical record must include:A statement that SDM process occurred between patient and provider, andA statement of the decision that was made, andA brief description of the decision aid that was used, andA statement that the patient or his or her representative understands: The risk or seriousness of the disease or condition to be prevented or treated; the available treatment alternatives, including nontreatment; and the risks, benefits, and uncertainties of the treatment alternatives, including nontreatment, andA statement certifying that the patient or his or her representative has had the opportunity to ask the provider questions, have any questions answered to the patient's satisfaction, and indicating the patient's intent to receive the identified services. 

Page 5: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Who grades the quality of decision aids?

Ottawa Health Research Institute

Page 6: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Healthwise: Knee Replacement Surgery

IPDAS is theInternationalPatientDecisionAidSurvey

Page 7: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Health Dialog: Knee Osteoarthritis

IPDAS is theInternationalPatientDecisionAid

Page 8: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

International Patient Decision Aid Standards (IPDAS) – Health Dialog Knee OA Video

NoThere is evidence that the decision aid (or one based on the same template) improves the match between the features that matter most to the informed person and the option that is chosen.

30.

YesThere is evidence that the decision aid (or one based on the same template) helps people know about the available options and their features.

29.

ScoreEffectiveness

NoThe decision aid (or available technical document) reports readability levels. 28.

. . .25.

YesField testing showed that people who were undecided felt that the information was presented in a balanced way. 24.

YesField testing showed that the decision aid was acceptable to users (the general public & practitioners). 23.

YesPeople who were facing the decision field tested the decision aid. 22.

YesThe decision aid was reviewed by people who previously faced the decision who were not involved in its development and field testing.

21.

YesUsers (people who previously faced the decision) were asked what they need to prepare them to discuss a specific decision.

20.

ScoreDevelopment Process

YesThe decision aid shows the negative and positive features of the options with equal detail. 19.

. . .16.

NoThe decision aid compares probabilities of options over the same period of time. 15.

. . . 6.

YesThe decision aid has information about the procedures involved (e.g. what is done before, during, and after the health care option).

5.

YesThe decision aid describes what happens in the natural course of the condition (health or other) if no action is taken.

4.

YesThe decision aid lists the options (health care or other). 3.

The decision aid describes the decision that needs to be considered (the index decision). 2.

YesThe decision aid describes the condition (health or other) related to the decision. 1.

ScoreContent

Page 9: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

When is shared decision making most useful?

More than one treatment option

More than one treatment option

“Preference sensitive”conditions

“Preference sensitive”conditions

Little evidence for one choice over another

Page 10: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

12 preference‐sensitive conditions

Orthopedics Cardiology Urology

Women’s Health

Breast Cancer Back Care

1. Hip osteoarthritis

2. Knee osteoarthritis

3. Coronary artery disease

4. Benign prostatic hyperplasia

5. Prostate cancer

6. Uterine fibroids

7. Abnormal uterine bleeding

11. Spinal  stenosis

12. Herniated disc

8. Early stage

9. Ductalcarcinoma in situ

10. Breast reconstruction

Page 11: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Providers can order through Epic

Page 12: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Distributing  decision aids

DVDs can be ordered for mailing or 

viewed on the Web

Page 13: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Decision aid distribution

Number of videos distributed, by month   Total: 8,808*

*As of 12/31/2010; does not include decision aids viewed on the web after Oct 2009

Jan Apr Jul Oct Jan Apr Jul Oct2009 2010

Page 14: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

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UrologyUrgent CareUnspecified SpecialtyRheumatologyRehabilitationRadiologyPhysical/Occupational TherapyPediatricOrthopedicsOncology/HematologyOccupational MedicineOB/GYNNeurosurgeryNeurologyNephrologyMidwiferyInternal MedicineGeneral SurgeryGastroenterologyFamily PracticeEmergency MedicineCardiology

Site (All) SDM Video (All)

Count of Videos

Period

Provider Specialty

Incremental improvements

Number of videosDistributed, by monthTotal 10, 700

Page 15: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Decision aid distribution in Ortho0

100

200

300

Vid

eos

Jan 09 Jul 09 Jan 10 Jul 10 Jan 11Month

Hip Osteoarthritis Knee Osteoarthritis

Orthopedics: Service Line Video Distribution

Implementationof PDP work

Page 16: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

2009 2010

Percentage of procedures for preference sensitive conditions where patient did not receive the video

Fewer missed opportunities

Page 17: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Overall rating of decision aid videosPatient survey, September2010, 950 responses

Helped you understand the treatment choices 

Helped you prepare to talk with provider

Patient assessment

Page 18: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Patient assessment

Overall rating of decision aid videosPatient survey, September 2010, 975 responses

How important is it that providers make programs like this available?

Page 19: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Rating of decision aid videos, by topic

September 2010

Patient assessmentHelped understand treatment choices 

Helped prepare to talk with provider 

How important that providers make programs like this available

Excellent or very good Extremely or very importantPercent of patients rating:

Page 20: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Problems/issues/things to improve…?

Getting the right patient at the right time.Knowing that the patient watched the DA.Knowing that a follow‐up conversation took place.Tracking which patients watched the DA and decided NOT to have surgery at this time.Getting follow‐up with patients at 12mo+ to check if they were happy with their decision.

Page 21: Shared Decision Making Group Healthforces4quality.org/af4q/download-document/3023/Resource...Decision Aids Help to Facilitate Shared Decision Making (SDM)? y“Shared medical decision

Measuring Decision Quality and Improving Communication – A “Feed Forward Report”