the toowoomba & district ms support group …...smac twmba carers rep jon 4635 5481 email...

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CHILL&CHAT MONTHLY SOCIAL MEET Contact Cathy on 4634 5281 or 0402 143 826 for more info of where, when and to RSVP. Come along for a purely social and very informative gathering every month! MONTHLY COLOPLAST INCONTINENCE CLINIC Toowoomba MS Wellness Clinic, 8-10 Russell St. Phone Irene on 0423 422 316 or MSQ Info 1800 177 591. SATURDAY, FEBRUARY 15 TOOWOOMBA MS SWIMATHON Please donate to our 2019 Support Group Swimathon Fundraiser online www.msqldevents.com.au/champion/2019-Toowoomba-MS-Swimathon or contact our treasurer Mike on 0405 213 352. Come out and support our great community supporting us, bring your family and friends for a fun day out. Food available onsite or bring a picnic to the Highfields Aquatic Centre, see you there! The Toowoomba MS Swimathon has raised $19,463.28 so far... FEBRUARY PAIN MANAGEMENT COURSE This program is de- signed to give participants the tools to relieve pain and reduce their re- liance on pain medication and live a better life with your neurological condition. Contact Jan from Total Health & Education (NDIS Reg) now to book, starts Feb 11. CHAIR YOGA kicks off at EFM Health Club on February 18th! Phone Shauna for more info on 0423 719 659 GUEST SPEAKER We welcome Tiffany from MS QLD to talk about the exciting new high tech Toowoomba housing project for people with MS and neurological conditions coming to Hume St soon! PLEASE bring a plate to share for lunch! UNIVERSITY OF QUEENSLAND Clive Berghofer Recreaonal Centre BAKER ST X WEST ST PLATZ ST Steele Rudd College Steele Rudd Dr NELSON ST CAR PARK WHERE DO WE MEET? Toilets MS Dance Hall Next Meeting is on Wed, February 20, 10am Cuppa & Chat 10.30am start NB Steele Rudd Dr is not on your GPS . Taxi desnaon Steele Rudd CollegeThe Toowoomba & District MS Support Group MS&PNDMessenger February 2020 MS SWIMATHON SATURDAY, FEB 15 See you there!

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Page 1: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

CHILL&CHAT MONTHLY SOCIAL MEET Contact Cathy on 4634 5281 or 0402 143 826 for more info of where, when and to RSVP. Come along for a purely social and very informative gathering every month! MONTHLY COLOPLAST INCONTINENCE CLINIC Toowoomba MS Wellness Clinic, 8-10 Russell St. Phone Irene on 0423 422 316 or MSQ Info 1800 177 591. SATURDAY, FEBRUARY 15 TOOWOOMBA MS SWIMATHON Please donate to our 2019 Support Group Swimathon Fundraiser online www.msqldevents.com.au/champion/2019-Toowoomba-MS-Swimathon or contact our treasurer Mike on 0405 213 352. Come out and support our great community supporting us, bring your family and friends for a fun day out. Food available onsite or bring a picnic to the Highfields Aquatic Centre, see you there! The Toowoomba MS Swimathon has raised $19,463.28 so far...

FEBRUARY PAIN MANAGEMENT COURSE This program is de-signed to give participants the tools to relieve pain and reduce their re-liance on pain medication and live a better life with your neurological condition. Contact Jan from Total Health & Education (NDIS Reg) now to book, starts Feb 11.

CHAIR YOGA kicks off at EFM Health Club on February 18th! Phone Shauna for more info on 0423 719 659

GUEST SPEAKER We welcome Tiffany from MS QLD to talk about the exciting new high tech Toowoomba housing project for people with MS and neurological conditions coming to Hume St soon! PLEASE bring a plate to share for lunch!

UNIVERSITY OF QUEENSLAND

Clive Berghofer

Recreational Centre

BAKER ST

X

WEST ST

PLATZ ST

Steele

Rudd

College

Ste

ele

Ru

dd

Dr

NELSON ST

CAR PARK

WHERE DO WE MEET?

Toilets

MS Dance Hall

Next Meeting is on Wed, February 20, 10am Cuppa & Chat 10.30am start

NB Steele Rudd Dr is not on your GPS .

Taxi destination “Steele Rudd College”

The Toowoomba & District MS Support Group

MS&PNDMessenger

February 2020

MS SWIMATHON SATURDAY, FEB 15 See you there!

Page 2: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

In November, the Minister for the National Disability Insurance Scheme (NDIS)

Stuart Robert announced the government’s plans to improve the NDIS. There

were six areas of focus announced, all of which have specific activities to deliv-

er on the promise of the NDIS. These six are:

• Quicker access and quality decision-making

• Increased engagement and collaboration

• Market innovation and improved technology

• A financially sustainable NDIS

• Equitable and consistent decisions

• Improve the long-term outcomes for people with disability, families and carers

Here’s a summary from Every Australian Counts with their take on the changes

Flexibility of Funding

From July 2020, participants will be able to move their funding between core and ca-

pacity building.

Help with Assessments

In 2020, the NDIA will roll out independent assessments for people

applying for access. The assessments will be paid for by the NDIA.

Previously, it has been up to the individual to access and pay for

their own assessments which can be a massive barrier to getting

access to the NDIS.

Draft Plans

From April 2020, you will be able to meet with your Local Area Coordinator, and a

planner to review your draft plan before it is approved. Previously you’ve simply re-

ceived your approved plan after your planning meeting rather than having a chance to

make sure the plan accurately reflects your goals and needs etc.

Reviews

You will now be able to make small changes to your plan without it

triggering a formal review.

There’s a few other things that the team at Every Australian Counts is

still closely monitoring and there’s been some positive progress so

far. These are:

◦Wait times for children have reduced but need to continue to be reduced.

◦The waitlist for assistive technology approvals has been halved but there are still

thousands of approvals waiting. There’s still work to be done here.

◦There are further changes coming for Specialist Disability Accommodation (SDA) in-

cluding allowing participants to live with partners, family or housemates

Want to find out more about the NDIS and how MS Queensland can help you?

Visit our NDIS page online. msqldorg.au or call your service coordinator. Source.6/01/2020 by MS Queensland

Page 3: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

T oowoomba MS Wellness Clinic Update

Here’s an update on the who, what, and when of

the Toowoomba Wellbeing Centre.

NeuroPhysio and Exercise Therapy

The NeuroPhysio Toowoomba Team is Llynlly and

Lyndel. MS Queensland is taking bookings for physio

on Mondays and Tuesdays (8:30am – 4pm). They’re

looking at opening on a Wednesday provided there is the demand. Bookings can be

made for Exercise Therapy which is available Monday – Wednesday (9am – 5pm).

MS Queensland can also accommodate exercise therapy in the home. You can ask

any questions or book an appointment through our NeuroAssist Team on 1800

177 591.

Service Coordination

The Toowoomba Service Coordinators are Andrea

(pictured right) and Sally (pictured left). Andrea and Sally

are available to help you get the services and support you

need, including referrals, and general information and edu-

cation. Andrea and Sally are often out and about seeing cli-

ents, so if you’re looking for more information about Ser-

vice Coordination, get in touch with the Neu-

roAssist Team.

Got any questions for MS Queensland?

Contact the NeuroAssist team (pictured) – they

should be the first point of call for all things MS

Queensland. They can book physio appoint-

ments, help with My Aged Care access as well

as navigating the NDIS, provide information and

advice, and are a friendly ear.

(L-R: Kathryn, Jane, Lee-Ann, Wendy, Lorretta, Linda, Cameron) See more on the

ms qld website https://www.msqld.org.au/service/physiotherapy/ (Supplied by MSQ)

Colorplast Incontinence Clinic Nerves in the body control how the bladder stores and releases urine, prob-

lems with these nerves can cause a variety of problems with the bladder, or

the sphincters, or both. Don't suffer in silence, learn about products and the

tools to get your confidence back to get on with life.

Book in your free Coloplast Care Nursing Support Service today at the

MS Wellness Clinic on 1800 177 591 or contact Irene on 0423 422 316.

Page 4: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

MS Employment Support Service is specifically designed to address the needs of people living with

MS (or similar neurological conditions) who are having difficulty managing symptoms

in the workplace or seeking new employment. Our employment consultants can meet

you in your home or at one of MS Queensland’s Wellbeing Centres or office locations.

We currently serve the South East Queensland area but please contact our Neu-

roAssist InfoLine to find out how you can access this service from regional locations.

Helping you maintain your employment

Our service offers individualised support and assistance that

will help enable you to manage your symptoms and continue

working. Common symptoms that can make the workplace

challenging include:

• Trouble moving around the workplace

• Difficulty accessing the bathroom

• Problems with concentration and memory

• Stiffness and pain

• Fatigue

If you’re currently working but feel as though MS or your neurological condition is im-

pacting on your ability to work, our specialist team of allied health professionals will

assist you to identify the individual barriers you are experiencing at work and develop

strategies to help you to remain being a productive employee.

Did you know…

MS-related fatigue is one of the main reasons people prematurely leave the

workforce. Strategies to relieve the impact of fatigue in the workplace may in-

clude taking regular breaks, modifying work structure or hours, doing regular

exercise, modifying the workplace or using an adaptive piece of equipment.

To make an appointment with one of our employment consultants please

phone the NeuroAssist InfoLine on 1800 941 201 Monday – Friday between

7:30am – 6:30pm, or contact us on [email protected]. You can also request a

call back from our NeuroAssist team.

the

Page 5: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

Toowoomba MS Swimathon

Saturday, February 15 6am-6pm

Funds raised are to bring MS QLD services to our community

For more info contact 07 3840 0812 or email [email protected]

Swim for Team MS if you have MS or similar or someone you know

wants to swim for you! If you would like to fundraise but cannot swim

on the day, please donate on our support group fundraiser page online

www.msqldevents.com.au/champion/2019-Toowoomba-MS-Swimathon or con-

tact our treasurer Mike on 0405 213 352. See you there!

Covering around eight hectares, this park is a forest regeneration site where a natu-

ral eucalypt forest has been encouraged to develop. This bushland park provides

three small bush walks with great scenery and views east over the Great Dividing

Range, including Table Top Mountain. This park is ideal for walking with

children and those less mobile.

Wallaby Walk

Distance: 250 m one way Walking time: Approximately 10 min

Description: The walk starts at the picnic area, taking you to the Flagstone Lookout

along the way and to the Lockyer Lookout on the northern side of the park. This walk

is suitable for wheelchairs and mobility devices following the flat compacted gravel

circuit that joins it with part of the Squirrel Glider Circuit and the Link Walk.

Sensory Walk

Distance: 270 m one way Walking time: Approximately 5 min

Description: The walk starts at the picnic area and finishes at the intersection

of the Link Walk with the Squirrel Glider Circuit. It takes you through the native

forest where you can hear the bird sounds, feel the texture of the different

leaves and smell the scent of the plants. The Sensory Walk has a handrail

rope to assist vision impaired people to navigate the trail. The location of concrete

pavers indicates the placement of interpretive signage and double as passing bays

for wheelchairs. This walk is suitable for wheelchairs and mobility devices.

Disability parking is available now with toilet facilities coming soon

J.E Duggan Park, Leslie St, Rangeville

Page 6: The Toowoomba & District MS Support Group …...SMAC Twmba Carers Rep Jon 4635 5481 email carajon2@bigpond.com “A conduit between MSQ management and people with MS, their families

President Sue 4564 9318 email [email protected]

Vice President Daryl 4636 0406 email [email protected]

Secretary Trish 0422 361 622 email [email protected]

Treasurer Mike 0405 213 352 email [email protected]

Facebook Manda 0435 185 435 email [email protected]

Newsletter, MSQ Buzz Joanna 4635 3281 email [email protected]

Chill & Chat Social Meet Cathy 0402 143 826 email [email protected]

SMAC Twmba Carers Rep Jon 4635 5481 email [email protected]

“A conduit between MSQ management and people with MS, their families and carers.“

FACEBOOK “MS Support Group Toowoomba”

Toowoomba MS Wellness Centre

Easternwell Building, 8-10 Russell St, Toowoomba

MS QLD Neuro Physiotherapy

Colorplast Care Incontinence Clinic visiting monthly

Phone Irene on 0423 422 318

MS QLD/Neuro Assist Appointments and Infoline 1800 177 591

www.msqld.org.au

Spark NeuroCare Regional Service Co-ordinators

Andrea M 0439 484 148

Sally1800 177 591

TOOWOOMBA MS SUPPORT GROUP CONTACTS

What is the MS QLD Buzz? Objectives of MS Buzz: To create greater two-way conversa-

tion and community participation, MS Queensland would

like to ask questions of our community to encourage greater

interaction with key representatives from the MS Queensland

community (Support Group convenors, MS Ambassadors and SMAC) in a

closed Facebook Group with MS Queensland.

Please contact Joanna with any ideas, queries, feedback about the MS Well-

ness Clinic or MS Queensland services in general and help our support rela-

tionship grow and evolve throughout 2020! Don’t use the MS Wellness Clinic?

Do you find access a problem, any suggestions to help reach people?

C an the support group help you with financial assistance to help

you live better with your neurological condition? Our group was set up

to fundraise for its own MS/neuro community for when the need/

opportunity arises. Do you need taxi vouchers to attend work/social/

support network gatherings or medical appointments and accomoda-

tion? Do you need help with specialist bills? We are eager to help you!