“The Year of the Family Caregiver”-Celebrating a Decade of Caring

Fifth National Conference for Caregiving CoalitionsApril 27, 2011San Francisco, CAU.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov | WEB www.aoa.gov

The National Family Caregiver Support Program

The National Family Caregiver Support Program (NFCSP)

• Created in the 2000 Reauthorization of the Older Americans Act

• Focus on Caregiver vs. Care Recipient• General Provisions of Title III Apply– Services delivery system– Organization and structure (SUA, AAA,

LSPs)– Intrastate Funding Formula

The NFCSP – 10 Years of Growth

• Gradual increases in funding– $125 million initial appropriation– $154 million for FY 2010– $192.2 million for FY 2012 (requested)

• Projects of National Significance & Innovation– New approaches– Effectiveness of programs– Quality and improvement through evaluation, training, TA

and research• 2006 Amendments

– Care Recipients with Alzheimer’s Disease of any age– Lowered age for grandparents/other relatives to 55– Inclusion of older caregivers (55+) of individuals with

disabilities (18-59)

Program Impact

• Who Do We Serve?– 675,000 caregivers– 1/3 work full time– Primarily Women (73%)– Elderly themselves

• 54% age 60+• 22% age 75+

– 17% live in rural areas– Grandparents

• 81% female• 84% age 60-74

• What They Tell Us?– 84% receive respite– 45% said respite was

most helpful– 75% reported less

stress– 85% reported

caregiving was easier– 95% reported service

quality as good to excellent

NFCSP 10th Anniversary• November 17, 2010 – 10th Anniversary

Celebration• Year of the Family Caregiver• www.celebratingfamilycaregivers.org– Calendar– National, State, Local Events– Tools, resources– Video Testimonials

Looking Ahead:National Family Caregiver Support Program• Vice President’s Middle Class Task Force –

Caregiver Initiative– Focuses on Specific Caregiver Needs– Integrates Caregiver Supports with other HCBS– FY 12 Budget Request

• NFCSP (III E) - $192.2 million• Title VI C - $8.388 million• ADSSP - $11.46 million• Lifespan Respite - $10 million

The Lifespan Respite Care Program

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Lifespan Respite Care Program

What are Lifespan Respite Care Programs?

Defined by the Lifespan Respite Care Act of 2006 (PL109-442) as:

Coordinated systems of accessible,community-based respite care services forfamily caregivers of children or adults with

special needs

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Program Implementation

• Authorized in 2006• Funded in 2009 and 2010 at $2.5 Million• President’s FY 12 Request: $10 Million• Competitive Grant Process– 12 States funded in FY 2009– 12 States funded in FY 2010– FY 2011 Program Announcement – Up to $200,000 for three year projects– TA Activities – ARCH National Respite Network &

Resource Center

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Lifespan Respite Care Program States

2009• Alabama• Arizona• Connecticut• District of Columbia• Illinois• Nevada• New Hampshire• North Carolina• Rhode Island• South Carolina• Tennessee• Texas

2010• Delaware• Kansas• Louisiana• Massachusetts• Minnesota• Nebraska• New York• Oklahoma• Pennsylvania• Utah• Washington State• Wisconsin

Looking Ahead:Lifespan Respite Care Program

• 2011 Respite Summits – GA, MT, OH, VA

• FY 2011 Program Announcement• Lifespan Respite Program

Reauthorization• 2011 National Respite Conference– Glendale, AZ– November 1-4, 2011– 2nd Annual Grantee Meeting

Looking Ahead:Supporting Family Caregivers

• Health Care Reform Provisions– Incentives to states to increase access to

Medicaid HCBS– Training for family and home care workers– Expand access to care coordination and

transitional care services

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov | WEB www.aoa.gov

Contact Me

Greg Link, MAU.S. Administration on Aging

Washington, DCGreg.link@aoa.hhs.gov