agenda board of directors - healthwatch cumbria

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1 Agenda Board of Directors The Healthwatch Cumbria Board meetings are held in public. Members of the public who wish to attend will be made very welcome. If you plan to attend and wish to ask a question please use the form via email – [email protected] or available at the venue and ensure that your question is submitted to the Chair immediately before the meeting.: Date: 30.04.2019 Time: 14:00-16:00 Place: Barrow Conference Room, 78 Duke Street, Barrow, LA14 1RR Tel: 01228 550696 (Carlisle Office) Agenda items and requests to: Elaine Ralph Board Members: Helen Horne (HH) (Chair) Gilda Wells (GW) (Vice Chair) Charlotte Studholme (CS) (Board Member) Ted Cole (TC) (Board Member) Supporting Officers: David Blacklock (DB) (Chief Executive Officer) Sue Stevenson (SS) (Chief Operating Officer) Elaine Ralph (ER) (Information and Administration Officer - Minutes) 1. Apologies for absence 2. Declarations of interest 3. Draft Minutes, paper enclosed To confirm the minutes of the meeting of the 13 November 2018.

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Agenda Board of Directors

The Healthwatch Cumbria Board meetings are held in public.

Members of the public who wish to attend will be made very welcome. If you plan to attend and wish to ask a question please use the form via email –

[email protected] or available at the venue and ensure that your question is submitted to the Chair immediately before the meeting.:

Date: 30.04.2019

Time: 14:00-16:00

Place: Barrow Conference Room, 78 Duke Street, Barrow, LA14 1RR

Tel: 01228 550696 (Carlisle Office)

Agenda items and requests to: Elaine Ralph

Board Members: Helen Horne (HH) (Chair)

Gilda Wells (GW) (Vice Chair)

Charlotte Studholme (CS) (Board Member)

Ted Cole (TC) (Board Member)

Supporting Officers:

David Blacklock (DB) (Chief Executive Officer)

Sue Stevenson (SS) (Chief Operating Officer)

Elaine Ralph (ER) (Information and

Administration Officer - Minutes)

1. Apologies for absence

2. Declarations of interest

3. Draft Minutes, paper enclosed

To confirm the minutes of the meeting of the 13 November 2018.

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4. Matters arising

5. Action Log, paper enclosed

6. Chair and Board Report – verbal update

Helen Horne, Chair and Board Members

7. Operations Report – paper enclosed

Sue Stevenson, Chief Operating Officer

8. Young People and Mental Health Project – report enclosed

Sue Stevenson, Chief Operating Officer

9. Carlisle and Eden Community Forum (replicating the West Cumbria Community

Forum) – paper to follow

Sue Stevenson, Chief Operating Officer

10. Research – Good practice in local Healthwatch – verbal update

Ted Cole, Board Member

11. Dates of next meetings in public

Friday 12th July – 2-4pm – Workington office

Monday 28th October – 10-12noon – Carlisle office

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Draft Minutes

Board of Directors

Date: 13.11.2018

Time: 14:00-16:00

Place: Penrith Rugby Club

Tel: 01228 550696

Board Members:

Helen Horne (HH) - Chair Gilda Wells (GW) - (Vice Chair) Geoff Lamb (GL) - (Board Member) Charlotte Studholme (CS) Board Member

Ted Cole (TC) Board Member

Gill Sadler (GS) Board Member

Supporting Officers:

Sue Stevenson (SS) Chief Operating Officer Elaine Ralph (ER) (Minutes)

1. Apologies for absence

David Blacklock, Chief Executive

2. Declarations of interest

There were no declarations of interest.

3. Minutes of last meeting

These were agreed.

4. Matters Arising

Email Communications

1.It was requested that electronic copies of completed reports are sent to the Board, ER

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will request if any members require a printed copy sent to them.

2. It was also suggested Board members could be alerted with a particular invitation

and/or request to attend an event when it is high profile or strategic.

The Chair highlighted issues relating to recruitment of GP’s in the west of the county.

This has had an affect on services available for people in this area and HWC should be

aware and prepared to engage with people.

Action: When ER sends electronic copies of finished reports she will also ask Board

members if they additionally require printed copies sent to them.

Action: ER to send email prompts to Board members if they are required to attend an

important HWC event.

5. Action Log

The Board discussed the Action Log.

Action: ER to update the action log with any current actions.

6. Chair and Board reports – Verbal updates

There was a verbal update from some of the Board on recent activities - GS is

supporting SS with HW Collaborative meetings and Morecambe Bay CCG meetings.

The Chair attended the HWE Conference as a member of the Healthwatch England

Committee. Our Young Board member CS also attended the Healthwatch England

Conference where she met Sir Robert Frances, Chair of Healthwatch England. Other

members of HWC who attended were SS, Oliver Pearson, Senior Engagement Officer

and John Redgate, Engagement Officer.

The Chair has been regularly attending Health Scrutiny, Health and Wellbeing

meetings and Healthwatch North West Network meetings with SS.

The Chair also mentioned that she and GS had attended Lancaster University’s

Health Innovation Campus Conference which has a focus on areas 'population

health including areas such as Garden Cities and Air Pollution.

GS informed the Board that a PFIA finance committee meeting had not taken

place recently in order for her to feedback HWC finance.

Action: SS to find out the date of the next finance committee meeting for GS. (6th

December 2018)

7. Project Update – Geoff Lamb GL explained that the organisation was now using software called Smartsheets as a

project management tool. GL will be providing a quarterly update on projects to

the Board.

The Board discussed potential future projects. One suggestion was to look at GP

provision within the County. It was agreed that the ongoing “Temperature Check”

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survey would help inform potential future projects.

8. Young People Mental Health Project – Charlotte Studholme CS presented the Young People and Mental Health Project to the Board. The

presentation included what type of questions were asked, areas targeted, numbers

of participants and what the results were.

The Board discussed where the findings should go. SS said that they would be fed

back into the reconfiguration of mental health services in the county. The Board

suggested that Public Health should be aware of the findings as some of the

concerns and issues relate to areas of Public Health work such as population health.

Action: SS to contact Colin Cox, Director of Public Health for Cumbria to discuss the findings.

9. Research – Ted Cole

Ted presented the paper he prepared on national trends in Healthwatch and exemplars of

two Healthwatch in the north (Northumberland and Durham).

Action: TC to highlight some exemplar websites using feedback and engagement for

next Board meeting in public.

Action: ER to send the latest HWE Quarterly Intelligence briefing to all Board

members and include the briefing with next research paper.

10. Operations Report – Sue Stevenson

The Board liked the new format and discussed some of the challenges for HWC at the

moment.

11. Strategic Objectives and Engagement Plan

It was agreed to develop the Strategy in the next HWC Board Development Session on 17th

December 2018.

The Board acknowledged the Engagement Plan and agreed that it was not necessary to

bring to further Board meetings in public. The Chair asked that if any members needed

additional information on anything within the plan then get in touch with a member of

the HWC team.

12. Terms of Reference and Re-appointment

The Board agreed the amendment of Number 5 – Membership of the Board from “The

Board will consist of 8-14 members” to “The Board will consist of up to 14 members.” The

re-appointment of GS and GW until 2022 and 2021 respectively was agreed. It was

proposed to re-appoint the Chair for a further four years from the next re-appointment

date which would be from 2019 to 2023. This was seconded and agreed.

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Action: ER to make amendments and update Terms of Reference as agreed.

Future Meeting Dates

Dates for 2019 have still to be agreed.

It was agreed to hold 3 meetings in public in 2019, with 4 development sessions plus one

additional development session which will focus on strategic planning. It was agreed to

hold public meetings in alternate areas of Carlisle, Workington and Barrow. It was

suggested that at least two of the development sessions should be held in Penrith if

possible.

Action: ER to distribute revised dates once agreed. Action: ER to book in Penrith if possible.

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Healthwatch Cumbria Board Meeting Action Log

Meeting date: 30.04.19

Green (G) – Completed Amber (A) – In progress Red (R) - Unable to proceed/Action required

Actions from Board Meetings

Meeting Date

Action Responsible Progress

13.11.18

1 When electronic copies of completed reports are sent to Board Members ask if they also require hard copies

ER ER will do when next complete report is ready to go out.

2 Board members to be informed when an important event or invite is sent to HWC

ER ER will send when received

3 GS requested the next finance committee meeting date. SS SS to send date to GS (06th December)

4. Young People and Mental Health project - progress SS SS to contact Colin Cox, director of Public Health to discuss next steps

5. TC to highlight some exemplar websites using engagement and feedback for the next Board Meeting.

TC TC to prepare for Board meeting in April.

6. Quarterly Intelligence reports from Healthwatch England sent to Board members.

ER ER will send once received from HWE.

7. Small amendment to Terms of Reference. ER Done

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8. Board meeting dates for 2019 to be sent to Board members and agreed.

ER Done

23.01.18

5 Contact CCC to offer HWC awareness raising sessions for representatives from schools

SS/SH This is being included as part of development of Young Healthwatch

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Healthwatch Cumbria Board Meeting

Agenda Item: 7

30th April 2019

Operations Report

Purpose of Report:

The purpose of this report is to provide the Heathwatch Cumbria Board with an overview of progress and activity since the last Board meeting held on 13th November 2018

Key Issues / Considerations:

None.

Recommendations:

The Board is asked to note this report

Presented By

Sue Stevenson, Chief Operating Officer, Healthwatch Cumbria

Contact Details

[email protected]

Report Written

Sue Stevenson, Chief Operating Officer, Healthwatch Cumbria

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Achievements HWC continues to influence and monitor the progress of work to address the Everyone Has a Voice project outcomes,

especially through joint work with the LD Partnership Board and CCC.

WCCF continues to be upheld as a key mechanism for joint working between system and community representatives. The meeting on April 12th focused on the forthcoming merger between NCUH and CPFT. Conversations are now taking place to explore options for replicating the WCCF model in other parts of north Cumbria.

The engagement with young people about their Mental Health needs has concluded and the report is ready for publication and is in the process of circulation. A presentation proving insight to the key findings will be given to the CYP Partnership Board in June, and it is hoped that a similar presentation will be given to the Cumbria HWBB.

The HWC Team will be supporting survey engagement from the beginning of April regarding the merger of NCUHT with CPFT.

The Stroke survey for the Building Health Partnerships project has been concluded by HWC and the findings have provided the basis for the next phase of raising public awareness of Stroke Prevention.

HWC has been working with the communications and engagement group for the new ‘super surgery’ in Barrow to ensuring appropriate information and opportunities for comment are available to patients and public

Hospice at Home: A draft SLA has been submitted to Hospice at Home in respect of a possible co-production project to develop a Customer Charter.

The Appleby work has concluded and a report provided to the Town Council, with a presentation to the Town Council scheduled for April 17th.

The Ulverston project has attracted attention from the Healthy Town Initiative (HTI). The survey being used was produced in collaboration with the Town Council goes live at the beginning of April 2019.

The HWC Enter and View Authorised Representatives have carried out four Enter and View visits in residential and nursing care homes – two in Carlisle and two in Silloth. Further visits will be scheduled in due course but the programme has been halted for the moment so the team can concentrate on the NHS LTP engagement work.

HWC delivered a presentation, setting out the rationale for involving people in service design, to Morecambe Bay Health professionals as part of the ongoing Better Care Together programme. Further public engagement may take place later in the year.

HWC is in early discussions with the NHS and 13 other HW’s from the North East on England in respect of public engagement in advance of the proposal to create a Regional ICS.

A new and improved Website has been created and will go live in early April – this will incorporate a new feedback centre which will be launched in April/May.

The ‘Have Your Say’ survey is continuously available as an ongoing source of public views and experience of health and social care services.

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The HWs within each Integrated Care System (ICS) area in the Country are undertaking public engagement regarding the NHS 10 Year Plan. HWC and HWL are working in collaboration with HWs from Blackpool and Blackburn with Darwen in the south of the County. In the North of the County HWC is undertaking the work in respect of the North Cumbria ICS

The report on the Digital Project has been completed and submitted.

Following the THRIVE work in 2018; the next phase of consultation with young people, their families and carers has begun. Weekly meetings of participants are taking place in the Barrow office,

The second phase of testing for the LD Breast and Cervical Screening project has been done and the final L D Screening toolkit has been produced. This plus the accompanying report was submitted to the Commissioners on 15th April. We have agreed a few minor amendments and are now discussing roll out and evaluation. The commissioners are very pleased with the result – this has been a very effective piece of collaborative work delivered through HW Together.

The Co-production toolkit produced with the CCG and CLIC has been finalised and published on the North Cumbria CCG website - opportunities for its use are being explored.

HWC is in discussion with Active Cumbria and Direct Rail Services with a view to undertaking a piece of work about Suicide prevention on this later in the year.

Opportunities for commissioned work are continuously being explored.

Challenges Nationally, a number of HW have had their funding reduced during the re-tendering process; our contract is in year 3 of a 4

year contract and we will be working with colleagues across People First to ensure we are tender ready by the autumn.

We keep the balance of our work under review. It is important to systematically build and sustain strategic relationships in two increasingly complex health and care systems, north and south, and at the same time increase operational activity to build our intelligence

HR and Admin Our volunteer numbers are slowly increasing following the loss of several during 2018 due to personal reasons.

Our PF Marketing and Communications Officer has developed a Communication and Marketing Strategy which will inform oversight and development of promotional material and help us achieve an increased media presence

The two new Engagement Officers have had a positive impact on our capacity for engagement and survey work

We plan to recruit a Research and Data Officer in the coming months.

Engagement 1813 (Quarter 4 – January to March 2019)

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HWC Operations Report April 2016

Healthwatch Cumbria Board Meeting

Agenda Item: 9

30th April 2019

Report

Purpose of Report:

Project Proposal for Carlisle and Eden Community Forum

Key Issues / Considerations:

HWC will invest resources into facilitating the above Forum. This investment will contribute to a range of voices being heard and aid dissemination of information. This is fully explored within the project proposal.

Recommendations:

The Board is asked to consider this project proposal.

Presented By

Sue Stevenson – Chief Operating Officer

Contact Details

[email protected]

Report Written

25 April 2019

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HWC Operations Report April 2016

Introduction Healthwatch Cumbria (HWC) has successfully facilitated the West Cumbria Community Forum (WCCF) since 2014. This model, which creates the conditions for effective “conversations about a healthier future”, brings together representatives of community groups of interest and place and senior representatives of the health and care system. Its effectiveness is greatly enhanced by the skills and approach of its independent chair and by the relationships and informal networks amongst its members which have been developed over time. More than once, conversations have taken place about replicating the WCCF model elsewhere in the county. It has been acknowledged that the WCCF has served a very distinct and useful purpose in tackling a specific set of challenges in west Cumbria, that it evolved at a time of huge anxiety, anger and concern amongst the local communities and that it has connected representatives and leaders from the system with representatives and leader of local communities in west Cumbria in a new and helpful way. Never-the-less, its success has evoked a desire to test whether a similar format would work elsewhere. The WCCF success factors are;

Common purpose

Consistent strategic leadership and support from system leaders

Independent Chair by Archdeacon Richard Pratt

Independent facilitation by Healthwatch Cumbria (HWC)

Clear Terms of Reference and culture built on network of networks - people are representing groups and required to feedback to them

A culture of problem solving

The development of shared energy, confidence, willingness, persistence and tenacity to address difficult issues together

Willingness to also address challenges softly and directly between meetings - The Chair has taken time to build individual relationships based on trust which has helped to ease tensions

Its ability to keep going – it has gone through the recognised group dynamic stages of forming, storming, norming and performing

Relationship building between all partners through regular meetings - it has been noted that where once the representatives of the system and communities sat at opposite sides of board-room style set-up, now there is a healthier mix around the room

Safe environment to share views - sometimes explosive

Transparency - early sight of information - trust has been established both ways and information has been shared which may not normally have been openly discussed in a public domain

A willingness to hear and address misunderstandings

Better understanding of concerns, context and challenges on all sides

Local MPs and councillors have continued to support the Forum

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HWC Operations Report April 2016

Replicating the model proposal HWC has a role to act as the consumer champion for everyone who uses health and care services and to provide mechanisms for their voices to be heard in a variety of ways. The WCCF model does that in a very direct and immediate way. This proposal is to replicate the model in Carlisle and/or Eden in conjunction with North Cumbria Integrated Care System (NC ICS) colleagues and in conjunction with existing engagement and communication plans. This would help to ensure that people’s voices are heard at a time when the whole health and care system is changing in line with the aspirations of the NHS Long Term Plan and would help to involve people in the local changes being considered by NC ICS. It would help to provide additional opportunities for people to be more informed about why services may need to change and to increase involvement in shaping changes together. Senior leaders in the ICS have stated clearly that the system needs to engage more locally and has recognised that HWC is well placed to bring people and decision makers together. To do this we must work closely with local communities, community representatives, community groups and interested parties and provide evidence that this type of collaborative working, or coproduction, can work and result in services that are more person centred. Local people have the right to be confident that planned changes will lead to better outcomes for them and their families. They need to know exactly what will happen in the future. Practically they want to know where they will go, for what and why, on an everyday healthcare basis. This proposal sets out how HWC would facilitate the establishment of a Carlisle and Eden Community Forum to ensure that people’s voices, hopes and concerns from these districts are heard, that informative conversations can take place and that accurate and timely information is shared. It is important to note that HWC is in place to operate as the champion and representative of the people and is independent of the health and social care commissioners and providers involved. HWC will use its role as a facilitator and enabler to bring key stakeholders together with local people for constructive dialogue and information exchange. HWC is delighted that Archdeacon Richard Pratt has indicated that he is prepared to provide independent leadership for this new Forum and to act as its Chair. Carlisle and Eden Community Forum will have the following objectives:

o To welcome key representatives, including Local MPs, all three tiers of

elected members, local community representatives, representatives of third sector providers, and representatives of North Cumbria ICS to come together on a regular basis for informed discussion focused on the change process and its likely impact in Carlisle and Eden.

o To provide additional mechanisms to;

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HWC Operations Report April 2016

o Ensure that people's concerns, anxieties, questions, ideas, and experiences, are heard by decision makers

o Ensure that commissioners and providers can answer questions from the community, listen first-hand to concerns and provide timely and accurate information about planned changes

o Ensure commissioners and providers involve people in shaping proposed developments and changes and in considering how these can improve outcomes

o Provide regular accurate briefings about strategic and operational developments

o Ensure that the public are clear about which decisions will be subject to formal public consultation and explain exactly how and when this will happen – and that their views are taken into consideration over what processes might be used for consultation

o Ensure that there are opportunities with community leaders to discuss, test out and demonstrate how real life scenarios will be managed in Carlisle and Eden settings

CECF will adopt positive behaviours as the norm as set out in detail in the Terms of Reference. HWC is aiming to ensure that the Community Forum meetings are attended by a wide range of people and that all communities are represented. However, these will not be public meetings but will have an invited audience. Representatives will be required to ensure that they meet regularly with the communities they are representing both before and after meetings of the Forum and that effective two-way communications are maintained. It should be noted that the Forum will not be focused on single issues or lobbying, but rather on debate and discussion about shared issues and concerns that have been brought forward through its representatives and for which there is a demonstrable evidence base. Where individual experiences, concerns or complaints exist these can be shared directly with the appropriate ICS commissioner or provider organisations through, for example, complaints processes, or directly with HWC, or the NHS Complaints Advocacy service. Draft Terms of Reference are included as Appendix 1 Project Plan

Action Responsible Group

Deadline

Agree CECF proposal and timescales HWC Board ICS SLB

End June 2019

Develop Comms Plan to include:

initial press release to explain why this is happening, who is to be involved,

HWC NC ICS

End June 2019

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HWC Operations Report April 2016

what is the purpose

introductory letter to all key stakeholders

use of social media, websites (consistent info to be used on all websites) etc.

Contact and brief identified Forum representatives

CECF Steering Group

End July 19

Arrange first Forum meeting including setting times and selecting and booking initial venue

HWC To be agreed

Identify initial issues and speakers for first meeting

In line with agreed date for first meeting

First CECF meeting to also consider and agree;

Membership

T of R

Frequency and venues for meetings

Comms. Plan

HWC NC ICS

Subsequent meetings booked HWC To be agreed

Review effectiveness after one year HWC NC ICS

CECF Members HWC and other members of the CECF Steering Group will identify and brief potential representatives for CECF by end July 2019 as follows;

Meet with Responsible person

Local community champions and representatives activity

Sue S

Local MPs Sue S

Elected members through CCC Local Committees of Carlisle and Eden

Sue S

Elected members of Carlisle and Eden district councils

Sue S

Cumbria Association of Local Councils (CALC) - parish councils

Sue S

Senior Representatives of NC ICS

Third Sector Executive and Action for Health David

Health and social care support group leaders Julie C

North West Ambulance Service Julie C

Cumbria Health Scrutiny Committee David

John Macilwraith David

Colin Cox Sue S

Identifying key issues for Forum The nominated representatives, above, will already be aware of the key issues which need to be addressed by the Forum, but each will also be asked to ensure that the communities they represent can bring forward issues for debate. Suggested initial items include;

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HWC Operations Report April 2016

CIC Cancer Centre

Hyper Acute Stroke Unit

ICC Updates How will we know we have been successful? (Success Criteria)

It has been agreed that during the development phase success will not be determined by numbers attending the Forum but rather by;

Relationships established and developed so that we are working together in a sustainable way

The group has been able to influence X and Y

The group has been able to identify and resolve challenges as they have arisen

Sue Stevenson Chief Operating Officer – People First Independent Advocacy 25th April 2019

Appendix 1 CECF T or R V 1 April 19

Carlisle and Eden Community Forum

Terms of Reference

Introduction Healthwatch Cumbria (HWC) has established the Carlisle and Eden Community Forum (CECF) in the spring of 2019 in partnership with key representatives of communities of place and interest across west Cumbria and with key stakeholders from the North Cumbria Integrated Care System (NC ICS). The Forum was set up as a vehicle to enable “conversations about a healthier future” and to involve people in informing and shaping the future provision and delivery of health and care services in Carlisle and Eden. The Forum has been modelled on the highly successful West Cumbria Community Forum (WCCF) which was set up in Autumn 2014 and is still running at the request of its participants. The WCCF and has enabled information sharing and debate to take place, directly involving people in the development and delivery of the Success Regime programme of activity which ultimately resulted in the consultation “the Future of Healthcare in west, north and east Cumbria” and in the implementation of its decisions thereafter; as well as being involved in other aspects of health and care provision across West Cumbria. Members of the WCCF agreed that the Forum has achieved its ambitions to “encourage good conversation” and to exist as a “network of networks” and stated that they would like it to continue to operate within this ethos. The CECF will aim to replicate this successful format and culture. Role of CECF HWC wants to ensure that the passion and voice of local people is heard loudly in all the right places as decisions affecting their health and care are made moving forward and also that people are properly informed. To do this we must continue to work closely with local communities, community representatives, community groups and interested parties and ensure that key decision makers are listening and responding. We want to define and deliver “coproduction” in practice. This means using the NC CCG/HWC/CLIC Coproduction Model and Toolkit (see link below) to aid understanding and practice about what this is and how it can be achieved.

Appendix 1 CECF T or R V 1 April 19

http://www.northcumbriaccg.nhs.uk/get-involved/engagement/co-production-and-the-working-together-group.aspx

It should be noted that CECF will not be focused on single issues or lobbying, but rather on debate and discussion about shared issues and concerns that have been brought forward through its representatives and for which there is a demonstrable evidence base. Where individual experiences, concerns or complaints exist these can be shared directly with the appropriate NHS commissioner or provider organisations through, for example, complaints processes, or directly with HWC, or the NHS Complaints Advocacy service. Chair

The CECF will be independently chaired by The Archdeacon of West Cumbria, Richard Pratt Meetings of CECF

The Forum will be facilitated by HWC

The members of the Forum will agree the T of R and consider and fill any gaps in membership

The Forum will meet at times and intervals to be agreed by its membership

Issues discussed at the Forum will be pre-identified, as far as is possible, by the nominated representatives and through ongoing engagement

Representatives will be required to ensure that matters discussed and information shared during the Forum meetings are shared with those communities that they are representing

A range of mechanisms will be used to ensure that Forum meetings are conducted in the spirit of openness and transparency, that they are well publicised and that information from the meetings is shared - this will include through press releases, the HWC website, NC ICS websites and other social media methods.

Membership

CECF meetings are open to a wide membership and will seek to ensure that a wide range of people and that all communities are formally represented by nominated representatives. Representatives will be required to ensure that they meet regularly with the communities they are representing both before and after meetings of the Forum and that effective two-way communications are maintained.

The meetings, whilst not pubic meetings, will be held in public so members of the public who are not nominated representatives but who wish to attend can do so to observe and be given the opportunity to ask questions pertinent to the agenda.

Appendix 1 CECF T or R V 1 April 19

Members will include;

Local MPs

County and District council elected members

Parish councillors

Representatives from Cumbria County Council, including senior representatives of Adult Social Care, Public Health Locality Managers, representatives of area teams in Carlisle and Eden

Representatives of local communities of interest and place

Representatives of third sector organisations

Senior representatives from North Cumbria ICS

Healthwatch Cumbria (HWC) Objectives:

To ensure that people are involved and informed about developments and changes to health and care services that impact on the population of Carlisle and Eden

To ensure that coproduction, as defined above, is at the heart of everything that happens with regard to the design and delivery of health and care services that impact on people across Carlisle and Eden, including; o To be involved in the development and delivery of the NC ICS with regard to

its impact in Carlisle and Eden

o To work closely with those involved in the development and implementation of Integrated Care Communities (ICCs) as the basis for patient centered healthcare across Carlisle and Eden.

By; o Involving and engaging representatives of the people of Carlisle and Eden

through a number of different mechanisms in discussions about their health and care services

o Involving a wide range representatives of community and place and thus

being an effective “network of networks”

o Operating within an ethos of openness and transparency, encouraging good conversation

o Coming together on a regular basis to address issues of concern, discuss

ways of ensuring that accurate and timely information is shared and ensure that all opportunities are taken for local engagement

o Ensuring that people's concerns, anxieties, questions, ideas, and

experiences, are heard by decision makers

o Ensuring that commissioners and providers have opportunities to answer questions from the community, listen first-hand to concerns and provide timely and accurate information about planned changes

Appendix 1 CECF T or R V 1 April 19

o Ensuring commissioners and providers have opportunities to explain future proposed changes and describe how these can improve outcomes

o Providing regular accurate briefings about strategic and operational

developments

o Ensuring that the public are clear about which decisions will be subject to formal public consultation and explain exactly how and when this will happen – and that their views are taken into consideration over what processes might be used for consultation

o Ensuring that there are opportunities with community leaders to discuss,

test out and demonstrate how real life scenarios will be managed in Carlisle and Eden settings

o Ensuring that all opportunities for communicating with the public are used,

including the use of short videos demonstrating real life experiences where outcomes have been improved through changed care pathways

Identifying Representatives Representatives will need to be able to demonstrate that they;

Are able to be representative of a community of interest or geography, accepting and demonstrating that responsibility

Recognise that, by attending, they are contributing to the Forum operating as a network of networks

Have mechanisms in place to gather, analyse, share and disseminate views prior to, and after meetings of the Forum

Have mechanisms in place to share findings and disseminate information following meetings of the Forum

Are not focused on single issues or lobbying

Have capacity to be able to be a regular attender at most meetings of the CECF Culture and behaviours In order to be successful, the CECF will require members to adopt the following behaviours which support the culture and ethos of coproduction;

To listen with respect and courtesy

To share everything early and to learn as much as possible about the current state, current improvements and actions and current risks

To expect to be able to make your point

To expect, and to role-model, co-operation

For all suggestions to be considered and discussed – ideas should not be ridiculed

To respect people’s professional roles and responsibilities

To respect the time and energy committed by volunteers

To respect confidentiality –information shared for the process should not be shared outside the group unless specifically agreed by the group

Appendix 1 CECF T or R V 1 April 19

To work to an ethos of trust – ‘Chatham House Rule’ – the freedom to express views within this process without having those views attributed to a particular individual outside of the process. This means notes of meetings will reflect the discussion.

Members should feel safe to challenge behaviours seen as not in line with this agreement during meetings and with each other (and should always respond positively to constructive criticism) but should never criticise each other’s behaviour outside of the group.

We expect there will be times when things will go wrong – everyone is committed to learning when things go wrong, not to attributing blame. Ways of working?

Our way of working intends to form resolutions by consensus.

The ‘terms of reference’ are subject to annual review

Sue Stevenson Chief Operating Officer Healthwatch Cumbria 25th April 2019