Data Co-production and Analysis: The Example of Video Diaries

Barbara Gibson, PhD, PTAssistant Professor

Department of Physical Therapy University of Toronto, &

Postdoctoral FellowChild Health Evaluative Sciences

Hospital for Sick Children

Video “Diaries”Video “Diaries”

Socially located constructions Produced in response to research context Examples from my doctoral research

Visual MethodsVisual Methods

Advantages of visual methods» Density» Triangulation» Permanence» Multiple reviewers» Video elicitation

Visual ResearchVisual Research

Seeing is believing ?

Video “Validity”Video “Validity”

The Research ProjectThe Research Project

Identity Men with Muscular

Dystrophy Rely on Ventilation

MethodsMethods

10 case studies: Initial interview Participant generated video Second interview

Video SuggestionsVideo Suggestions

Rooms and objects Daily activities People (family, friends, attendants) Places they visit Themselves (by facing a mirror)

The Presence of the Absent Researcher

Reflexivity and Fluid Methods

“Donald was not able to produce an independent video in that Dad was there helping him. I suppose it helps that I was not there. He did say some different things on the tape. How fluid are these methods? How problematic is it if different participants do different things i.e. alone or not, with me doing some of the taping?”

“I was actually pleased in a way that I had control of the camera. I was able to probe (him) into talking about the objects in the apartment and what they say about his identity, rather than medical routines or disability related gadgets. It generated lots of discussion. Should I consider modifying the protocol to include some of both? Or at least give the option to participants?”

Analysing Video AccountsAnalysing Video Accounts

Audience Scene Director Role Cut

Joe’s videoJoe’s video

Audience and SceneAudience and Scene

Director and RoleDirector and Role

Mom: Okay, now you can talk, Joe.Joe (to nurse): Then you can explain what we’re doing. As you’re doing it, just explain, that’s all.Nurse: This is Joe, getting his trach changed. I’m his nurse. This is a trach going out…. (explains procedure as she performs it)…. Did you hear that click, Joe? Joe: No.Nurse: (Drops the tracheotomy tube) Whoops! Happens on video, never happens any other time! There you are.Joe (to the camera): It’s done. And there’s no pain involved, nothing like that. It’s done once a month, to see if I have an infection. I guess we’re done now.

CutCut

ConclusionConclusion

AcknowledgmentsAcknowledgments

Canadian Institutes of Health Research

CIHR Strategic Training Program in Health Care, Technology and Place

Collaborative Research Program in Rehabilitation and Long term Care