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Northern Ireland Substitute Prescribing Database Report
31st March 2014
2
Contents Summary ............................................................................................................................................. 3
Summary of Activity 2010-2014.......................................................................................................... 5
All activity during 2013/14 .................................................................................................................. 6
Census as of 31 March 2014 ............................................................................................................... 6
Time in Treatment ............................................................................................................................ 10
Main Problem Drug ........................................................................................................................... 11
Substitute Medication....................................................................................................................... 12
Prescribing Responsibility ................................................................................................................. 13
Patient Improvement ........................................................................................................................ 14
Stabilisation ....................................................................................................................................... 14
Heroin usage at Initiation of Treatment and at Review closest to 31st March 2014 ........................ 14
Continuing Drug Usage ..................................................................................................................... 15
Injecting Behaviour at Initiation of Latest Treatment and at Review closest to 31st March 2014 ... 16
Missed Appointments ....................................................................................................................... 17
Salivary/Urinalysis Testing by Health & Social Care Trust ................................................................ 17
Viral Testing during Treatment ......................................................................................................... 18
Personal Living Arrangements .......................................................................................................... 19
Discontinuation from Substitute Prescribing Services ...................................................................... 20
3
Statistics from the Northern Ireland Substitute Prescribing Database:
31 March 2014
This bulletin summarises information on individuals referred to the Northern Ireland Substitute Prescribing Scheme (SPS). It relates to those referred up to and including the 31 March 2014 and focuses on those patients in contact with Substitute Prescribing treatment services during 2013/14. The figures produced in this report are extracted from the Substitute Prescribing Database held by the Health & Social Care Board (HSCB), Performance Management & Service Improvement Directorate in County Hall, Ballymena. It collects detailed data, including information on drugs misused and injecting behaviour on these individuals at various stages throughout their course of Substitute Prescribing treatment. This is the seventh such report produced since 2004, and the second produced since responsibility for managing the database was delegated to the HSCB from the Department of Health, Social Services and Public Safety in 2010.
Summary 687 individuals were in treatment across Northern Ireland as of 31st March 2014.
822 patients in total received substitute prescribing treatment in 2013/14. This was a 9%
increase on the previous year.
The NHSCT continues to have the highest number of patients at 252 (37%), followed by
BHSCT at 154 (22%)
There were 167 initiations onto the scheme in 2013/14. This compares with 175 initiations in
2012/13
112 patients discontinued from treatment in 2013/14, compared with 119 the previous year.
Of these 112 42% underwent “managed discontinuation”.
39% of patients have been in treatment for 5 or more years, up slightly from 37% in 2012/13
48% of patients were prescribed Buprenorphine while 46% were prescribed Methadone.
The Database relies on the timely and accurate submission of forms from the Community Addiction Agencies. Each Health & Social Care Trust provides a Substitute Prescribing Treatment Service and the location of each Agency can be seen in Figure 1 below:
4
In addition to the Trust based services 32 GP practices have a Northern Ireland Locally
Enhanced Service (LES) contract. This means at least one GP in the practice is trained to
prescribe substitute medications on a shared-care basis with community based trust
services. There are 14 GP practices in Belfast LCG area providing this LES, 15 practices in
Northern LCG are and 3 in South-Eastern LCG area.
Prescriptions from both secondary care and primary care are dispensed and supervised in
community pharmacies. In 2013/14 the service was provided by 117 pharmacies across
Northern Ireland, which represents 22% of all pharmacies.
To maintain confidentiality the figures in this report are based on the Health & Social Care
Trust area where people presented for treatment, not their place of residence.
Ballymena
Omagh
Antrim
Newtownabbey
Craigavon
Moyle
Community Addiction Team, Ballymena
Woodlea House, L'Derry
Addiction Treatment Unit, OmaghND & A Community Addiction Services, N'Ards
Belfast HHSST SP Team, Belfast
Ards
Armagh
Ballymoney
Banbridge
Belfast
Carrickfergus
Castlereagh
Coleraine
Cookstown
Derry
Down
Dungannon
Fermanagh
Larne
Limavady
Lisburn
Magherafelt
Newry and Mourne
North Down
Strabane
Ward 15, Downshire Hospital, DownpatrickAddiction Services, St. Luke's, Armagh
Figure 1: Location of Substitute Prescribing Treatment Agencies
5
Summary of Activity 2010-2014 Figure 2 shows the total number of patients receiving Substitute Prescribing treatment during each
year and at the Census date each year, 31st March 2014. Data shows the continual increase in
numbers of patients being treated.
Figure 3 shows that over the past four years each Health & Social Care Trust has reported an increasing number of patients receiving Substitute Prescribing Treatment.
639
720
755
822
552
627
648
687
300
400
500
600
700
800
900
2010/11 2011/12 2012/13 2013/14
Figure 2: Total Number of Patients receiving Substitute Treatment during the years between 1st April 2010 and 31st March 2014 also showing the Census of Patients at 31st March each year
Total Patients seen during year Census of Patients at 31st March each year
150 149160
181192
246253
271 272
290
66
78 82 85
97
42
74
118113
131
72
85 89
104112
0
50
100
150
200
250
300
350
2009/10 2010/11 2011/12 2012/13 2013/14
Figure 3: Total Patients receiving Substitute Prescribing Treatment Services during years 2009/10; 2010/11; 2011/12; 2012/13 & 2013/14 by Initiating Health & Social Care Trust
Belfast Northern South-Eastern Southern Western
6
All activity during 2013/14:
A total of 822 individuals were in contact with Substitute Prescribing treatment services. There were 167 Initiations during the time period.
112 patients discontinued from the scheme. “Managed discontinuation” accounted for 47 patients leaving the scheme, with “unmanaged discontinuation of SP” and “failing to present for SP” accounting for a further 25 and 16 patients respectively.
45 patients transferred between NI trusts in 2013/14 and 13 continued their treatment outside NI.
5 patients were recorded as deceased during the reporting period.
Census as of 31 March 2014:
On the 31st March 2014 in total 687 individuals were receiving substitute medication. 563 (82%) of those patients were reported as stabilised. 266 (39%) of patients were in treatment for 5 or more years.
46% of patients were in receipt of methadone and 48% buprenorphine, the remainder classed as “other” or “unknown”. There is considerable variation between Trusts with 66% of patients receiving methadone in BHSCT area compared to 13% in WHSCT area.
Table 1 shows that during the year between 1st April 2013 and 31st March 2014 the five
Health & Social Care Trusts treated 822 patients in Substitute Prescribing Treatment
Services.
Table 1: Total patients who received Substitute Prescribing Treatment by Trust between 1st April 2013 and 31st March 2014
Health & Social Care Trust Area
Patients in SP Treatment
Percentage Trust
Population
Patients per 100,000
population
Belfast 192 23% 349618 55
Northern 290 35% 466724 62
South Eastern 97 12% 350788 28
Southern 131 16% 365712 36
Western 112 14% 296883 38
Total 822 100% 1829725 45 Population Source: (NISRA, Mid-2013 Population).
The figures are based on where people presented for treatment not their place of residence and are calculated as the incidence of treatment per 100,000 HSCT population. The figures range from 62 patients per 100,000 population in the Northern Trust to 28 patients per 100,000 population in the South Eastern Trust.
Table 2 shows the number of patients who commenced Substitute Prescribing treatment between 1st April 2013 and 31st March 2014 and also the number who discontinued during
7
the year. It also shows the number of patients receiving Substitute Prescribing Treatment as at 31st March 2014.
Table 2: Number of Initiations and Discontinuations between 1st April 2013 and 31st March 2014. Also Number in Substitute Prescribing Treatment Services at 31st March 2014
Patients Belfast Northern South-Eastern
Southern Western Prison Total
Initiations 49 49 16 21 29 3 167
Discontinued Treatment During Year
31 24 10 11 35 1 112
In treatment as at 31/3/2014
154 252 79 112 70 20 687
The initiations can be categorised as follows:
New patient (new to the Service, never previously treated in NI);
Recommenced (patients had stopped receiving treatment, then restarted within 3 months);
Returned (patients had received treatment in the past and had returned to the Service, this is considered a break in treatment rather than recommencing current treatment episode )
Table 3 shows the initiation type of the 167 patients who started Substitute Prescribing Treatment between 1st April 2013 and 31st March 2014.
Table 3: Initiations by Type of Initiation between 1st April 2013 and 31st March 2014
Type of Initiation Belfast Northern South-Eastern
Southern Western Prison Total
New patient 33 21 11 17 18 3 103
Recommenced (<3 months)
2 10 2 2 1 0 17
Returned (>3 months)
14 16 3 4 10 0 47
Total 49 47 16 23 29 3 167
Table 4 shows in time bands the 47 patients who returned to the Substitute Prescribing Service after earlier treatment. 19 returned within 1 year; 8 returned within 1-2 years; 11 within 2-3 years and 9 within 3-6 years of discontinuing from the Service.
8
Table 4: Returning Patients - Length of Time between discontinuing & returning to the Substitute Prescribing Service
Length of Time between discontinuing &
returning Belfast Northern
South-Eastern
Southern Western Prison Grand Total
3 mths - 1 year 8 6 1 2 2 0 19
1 - 2 years 2 2 1 1 2 0 8
2 - 3 years 3 5 1 0 2 0 11
3 - 6 years 1 3 0 1 4 0 9
Grand Total 14 16 3 4 10 0 47
Figure 4 shows the breakdown by gender and age-band, the 167 new patients who started
to receive Substitute Prescribing Treatment Services between 1st April 2013 and 31st March
2014. The highest percentage (29%) was in the 30-34 age-band and the lowest percentage
was in the 45+ age-band (7%).
Since May 2013 data has been collected from the Prison Addiction Team. Previously, data in reports would have appeared to show that treatment discontinued on entering prison and was initiated again on release; this will now correctly show continuing treatment and any initiations in prison.
At 31st March 2014, 687 people were receiving Substitute Prescribing treatment services.
Table 4 shows the split by gender and location of treatment. The proportion of females and
males is shown with the highest percentage being males (73%). The highest percentage of
3% 5%
8% 9%
1% 2%
7%
15%
21%
16%
9%
5%
0%
5%
10%
15%
20%
25%
18-25 26-29 30-34 35-39 40-44 45+
Pe
rce
nta
ge
Age-Band
Figure 4: Substitute Prescribing Treatment Services Patient Initiations (167) between 1st April 2013 and 31st March 2014
by Gender and by Age-Band
Females as a % of Initiations Males as a % of Initiations
9
males is within Southern Trust (78%) and the highest percentage of females accessing the
service is in the Western Trust (36%).
Table 4: All Patients receiving Substitute Prescribing Treatment Services at 31st March
2014 by Gender
Gender Belfast Northern South-Eastern
Southern Western Prison Total
Female 45 (29%) 66 (26%) 23 (29%) 25 (22%) 25 (36%) 0 (0%) 184 (27%)
Male 109 (71%) 186 (74%) 56 (71%) 87 (78%) 45 (64%) 20 (100%) 503 (73%)
Total 154
(100%) 252
(100%) 79 (100%) 112
(100%) 70 (100%) 20 (100%) 687
(100%)
Figure 5 below shows the 687 patients by age-band. The majority of patients both male and
female receiving the service (23%) are in the 35-39 age-band. The lowest percentage of
patients (5%) was in the youngest age-band, 18-25. The youngest person accessing the
service at 31st March 2014 was 19 and the oldest was 66.
2% 3%
6% 7%
4% 4% 3%
9%
16% 16% 18%
12%
0%
2%
4%
6%
8%
10%
12%
14%
16%
18%
20%
18-25 26-29 30-34 35-39 40-44 45+
Pe
rce
nta
ge
Age-Band
Figure 5: All Patients (687) receiving Substitute Prescribing Treatment Services at 31st March 2014
by Gender and by Age-Band
Females as a % of Total Males as a % of Total
10
Time in Treatment
Table 5 and Figure 6 illustrate the length of time patients were in treatment patients at 31st March
2014.
Table 5: All Patients receiving Substitute Prescribing Treatment services at 31st March 2014 by Length of Time in Treatment by Service
Time in treatment Belfast Northern South-Eastern
Southern Western Prison Total
< 1 yr 36 38 10 20 18 20 142
1 year 25 27 11 18 11 0 92
2 years 12 26 9 25 5 0 77
3 years 6 16 9 24 6 0 61
4 years 12 25 3 8 3 0 51
5 years or more 63 120 37 17 27 0 264
All Patients 154 252 79 112 70 20 687
Of the number of patients receiving treatment South-Eastern Trust had the highest percentage
(46%) in treatment for more than 5 years while Northern Trust had (47%), Belfast Trust had (41%),
Western Trust had (39%) and Southern Trust had the lowest percentage (15%).
0
50
100
150
200
250
300
All Patients Over 1 year Over 2 years Over 3 years Over 4 years Over 5 years
Figure 6: All Patients by Length of Time in Treatment by Health & Social Care Trust
Belfast Northern South-Eastern Southern Western Prison
11
Main Problem Drug
The database records information on the main problem drug for the patient and up to four other drugs that the patient may be using; these drugs do not have to be opiates. Figure 7 shows the main problem drug used by new patients to the service between 1st April 2013 and 31st March 2014. The chart shows that the main problem drug continues to be Heroin.
“Other Drugs” include (in decreasing order of popularity): Diazepam, Cannabis, Mephedrone, Methamphetamine, Crack and Benzodiazepine). There was 1 blank form and it is included in the “Other Drugs” category.
76%
55%
63%
70%
35% 33%
18%
30%
37%
22%
48%
67%
6%
15%
0%
8%
17%
0% 0%
10%
20%
30%
40%
50%
60%
70%
80%
Belfast Northern South-Eastern Southern Western Prison
Figure 7: Percentage of Initiations (167) to Substitute Prescribing by Main Problem Drug on Initiation by Health & Social Care Trust between 1st April 2013 & 31st March 2014
Heroin Other Drugs Other Opiates including prescription and OTC
12
Substitute Medication
Figure 8 shows the Substitute Medication prescribed to the 687 patients who were in receipt of treatment (whether they had stabilised or not) as at 31st March 2014. The chart includes Substitute Medication prescribed to patients in Prison at 31st March 2014. Overall, data shows that 48% of patients received buprenorphine, 46% received methadone and 6% received treatment classified as “Other” or “not known”. This information relies on the submission of SP2 forms and in this instance 6% of SP2 forms were not submitted although some data was obtainable from the SP3 forms.
66%
47% 52%
32%
13%
50%
25%
52%
46%
62%
70%
45%
9%
1% 2% 6%
17%
5%
0%
10%
20%
30%
40%
50%
60%
70%
80%
Belfast Northern South-Eastern Southern Western Prison
Figure 8: All Clients receiving Substitute Prescribing Medication treatment at 31st March 2014 by their Prescribed Medication and by
Health & Social Care Trust & Prison
Methadone Buprenorphine Other + Not Known
13
Prescribing Responsibility
Figure 9 illustrates that the majority, of prescribing responsibility remains with Specialist Services with 85% in the Southern Trust and 76% in the South-Eastern Trust. Northern Trust has the highest percentage of patients whose prescribing responsibility is with/shared with Primary Care (GP) (28%). For those patients in prison, prescribing responsibility remains with the Prison Addiction Team.
Although prescribing responsibility may be with the GP, the vast majority of such patients remain in a Shared Care arrangement with specialist services and roles continuing to be provided by the Trust, for example Key Worker.
69%67%
76%
85%
62%
0%
18%
28%
19%
3%
8%
0%3% 2% 1% 0%
9%
100%
10%
3% 4%
12%
21%
0%0%
20%
40%
60%
80%
100%
120%
Belfast Northern South-Eastern Southern Western Prison
% o
f C
lien
ts (
Tru
st)
Health & Social Care Trust & Prison
Figure 9: All Clients receiving Substitute Prescribing Treatment Services at 31st March 2014 by Prescribing Responsibility by Health & Social Care Trust & Prison
Specialist Services Primary Care (GP) Prison Addiction Team Not Known (awaiting SP2)
14
Patient Improvement
Stabilisation
Table 6 shows that of the 687 patients receiving substitute medication 82% were reported as being stabilised. This data is only available on the SP2 form; there may be a degree of subjectivity with this data.
Table 6: Patients stabilised receiving Substitute Prescribing Medication at 31st March 2014 by Health & Social Care Trust & Prison
Stabilisation Belfast Northern South-Eastern Southern Western Prison Total
Yes 124 (81%) 219 (87%) 66 (81%) 81 (73%) 56 (81%) 15 (75%) 561 (82%)
No 11 (7%) 24 (9%) 8 (10%) 16 (14%) 4 (6%) 2 (10%) 65 (9%)
Not Known 18 (12%) 10 (4%) 7 (9%) 14 (13%) 9 (13%) 3 (15%) 61 (9%)
Total 153
(100%) 253
(100%) 81
(100%) 111
(100%) 69
(100%) 20
(100%) 687
(100%)
Heroin usage at Initiation of Treatment and at Review closest to 31st March
2014
Figure 10 shows the comparison of the use of Heroin as a main problem drug at the start of treatment and at latest review closest to 31st March 2014. Overall 72% of patients used heroin at the start of treatment and at last review closest to 31st March 2014, 15% were using heroin.
81%
73%
54%
83%
49%
70%
17% 17%
1%
23%
3% 0%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
Belfast Northern South-Eastern Southern Western Prison
Figure 10: Percentage of Clients using Heroin at Initiation compared with those using Heroin at last review closest to
31st March 2014
Using Heroin at Initiation Using Heroin at Last Review
15
Continuing Drug Usage
Figure 11 gives a more detailed breakdown of the continued drug use by patients. 33% had no problem drug recorded, 21% had recorded Cannabis as their main problem drug, 21% had a variety of “Other Drugs*” recorded while 14% recorded heroin as their main problem drug.
*Other Drugs have been categorised as other opiates/Class A drugs, Class B and C drug, “New Psychoactive Substances (NPS) prescription drugs, OTC drugs and (in decreasing order of popularity): *Diazepam, Mephedrone, Dihydrocodeine, Codeine, Benzodiazepines, Amphetamines, Cocaine, Codeine & paracetamol, Other Drugs, Morphine, Opiates – Others, Temazepam, Methedrone, Nubain, Speed (amphetamine sulpha) and Tramadol.
10%
4% 8%
10%
20%
85%
17%
46%
29% 29%
36%
15%
21% 21%
33%
19% 14%
0%
17% 17%
1%
23%
3% 0%
35%
12%
29%
19%
27%
0% 0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
Belfast Northern South-Eastern Southern Western Prison
Figure 11: All Patients in Substitute Prescribing Treatment Service at 31st March 2014 by Main Problem Drug on Review by Health & Social
Care Trust & Prison
No SP3 received
No Problem Drugs
Cannabis
Heroin
Other Drugs
16
Injecting Behaviour at Initiation of Latest Treatment and at Review closest to
31st March 2014
A measure of patient improvement is comparing the injecting behaviour of patients at
initiation of treatment and at their latest review closest to 31st March 2014. Overall, 52% of
patients injected at initiation of treatment compared to 10% at last review. Figure 12
compares this with their injecting behaviour at last review closest to 31st March 2014.
Overall there was an 81% reduction in the number who were injecting at start of treatment
with Substitute Prescribing Services.
66%
47%
41%
54%
41%
60%
15% 10%
0%
13%
4% 0%
0%
10%
20%
30%
40%
50%
60%
70%
Belfast Northern South-Eastern Southern Western Prison
Pe
rce
nta
ge o
f P
atie
nts
Health & Socical Care Trust & Prison
Figure 12: Patients in Substitute Prescribing Treatment at 31st March 2014 - Comparison of Patients who injected at initiation compared to
those who injected their main problem drug at last review
Injecting at Initiation Injecting at last review
17
Missed Appointments
Of the 687 patients receiving Substitute Prescribing Treatment at 31st March 2014 it was recorded on their last review that 10% of them missed appointments. Table 7 illustrates this by Health & Social Care Trust & Prison.
Table 7: Number & Percentage of Patients who missed appointments, as recorded on their last Review closest to the 31st March 2014
Missed Appointments
Belfast Northern South-Eastern
Southern Western Prison Total
Total Patients 154 252 79 112 70 20 687
No. of Missed Appointments 27 (18%) 14 (6%) 11 (14%) 6 (5%) 8 (11%) 1 (5%)
67 (10%)
Salivary/Urinalysis Testing by Health & Social Care Trust
Figure 13 shows the percentage of patients tested at the review most recent to 31st March 2014. South-Eastern Trust had the highest percentage of tested patients (94%).
79% 81%
94% 88%
77%
20%
7%
15%
0% 1% 0% 0%
14%
5% 6% 11%
23%
80%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Belfast Northern South-Eastern Southern Western Prison
Figure 13: Percentage of Clients who received a Salivary/Urinalysis at last review closest to 31st March 2014
by Health & Social Care Trust & Prison
Yes No Blank
18
Viral Testing during Treatment
At initiation the SP1 form records if the patient has been tested for HIV, Hepatitis B and Hepatitis C. Figure 14 shows the percentage of patients who were tested for HIV, Hepatitis B and Hepatitis C at initiation of treatment. Figure 15 shows the percentage of patients who took tests for HIV, Hepatitis B and Hepatitis C. The data was taken from the SP1 Initiation form
.
78% 63% 62% 63%
53%
80% 77% 73%
63% 63%
53%
80%
74% 73% 63% 60%
53%
75%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
Belfast Northern South-Eastern Southern Western Prison
% o
f C
lien
ts
Health & Social Care Trust
Figure 14: Of the patients receiving Substitute Prescribing Treatment at 31st March 2014 the percentage who were offered tests for HIV, Hepatitis B and Hepatitis C by Health & Social Care
Trust & Prison
HIV Hepatitis B Hepatitis C
53%
36%
19%
41%
19%
33%
53%
48%
18%
41% 19%
33%
52%
49%
20%
41%
19%
33%
0%
10%
20%
30%
40%
50%
60%
Belfast Northern South-Eastern Southern Western Prison
% o
f C
lien
ts
Health & Social Care Trust
Figure 15: Of the Clients receiving Substitute Prescribing Treatment at 31st March 2014 the percentage who took Tests for HIV,
Hepatitis B and Hepatitis C by Health & Social Care Trust & Prison
HIV Hepatitis B Hepatitis C
19
Personal Living Arrangements
With data taken from their last review Figure 16 shows that 37% of patients reported that they were living alone, 16% lived with their spouse, partner and children and 13% lived with their parents, 11% lived with their spouse/partner only, 9% of forms did not specify the living circumstances of the patients.
The “Living With” status of patients is recorded on initiation of treatment and at each
review. Of the patients receiving treatment at 31st March 2014, at initiation of Substitute
Prescribing Treatment 1% of them were recorded as homeless. Continuing to look at those
patients, at their last review no patients were homeless.
Where the *”Other Specify” option was included it showed that the patients lived with: Adult Family; Mental Health Hospital; Sister; Brother; Grandmother; Mother & Dependent child.
Alone, 37%
With spouse/ partner and
children, 16%
With parents, 13%
With spouse/ partner only, 11%
Not Known, 9%
With dependant children, 6%
In Prison - YOC, 3%
With friends, 2% Other Specify, 1% Hostel, 1%
Figure 16: All Clients in Substitute Prescribing Treatment Services at 31st March 2014 by Living Arrangement
20
Discontinuation from Substitute Prescribing Services
112 patients discontinued from Substitute Prescribing Treatment Services during 2013/14. Figure 17 shows their reason for leaving with the main reasons being “Managed Discontinuation of SP” (42%); “Unmanaged Discontinuation of SP” (22%) and “Failed to present for Substitute Prescribing” (14%).
Managed discontinuation of
SP, 47, 42%
Unmanaged discontinuation of
SP, 25, 22%
Failed to present for SP, 16, 14%
Continuing SP outside NI, 13,
12%
Deceased, 5, 4%
Other e.g. Released, 4, 4%
Not suitable for SP, 2, 2%
Figure 17: Number & Percentage of Clients who left Substitute Prescribing Treatment Services during 2013/14 by
Reason of Leaving